Careers at PHA

The Pulmonary Hypertension Association (PHA) is a dynamic, fast-growing organization serving pulmonary hypertension (PH) patients, their family members and the medical community. Pulmonary hypertension, a life-threatening illness described as high blood pressure in the lungs, affects people of all ethnic backgrounds and ages. PHA provides high level medical and patient education, raises awareness of PH in the general public and medical community, advocates for legislation, supports research, and helps patients connect with others to end their isolation.

We believe that anyone whose life has been touched by this difficult illness has the right to fight back as much as they are willing and able. We also believe that PHA has an obligation to create the environment that makes such involvement possible.


Vice President, Communications and Marketing

The Pulmonary Hypertension Association (PHA), a dynamic, highly respected organization serving pulmonary hypertension (PH) patients, their family members and the medical community, is seeking a Vice President, Communications and Marketing.

Pulmonary hypertension, a life-threatening illness described as high blood pressure in the lungs, affects people of all ethnic backgrounds and ages. Without proper diagnosis and treatment, a patient’s average lifespan is 2.8 years.

PHA provides high level medical and patient education, raises awareness of PH in the general public and medical community, advocates for legislation, supports research, and helps patients connect with others to end their isolation.

PHA is headquartered in Silver Spring, Md., with a staff of 40. In addition, the organization currently has four fund-raising field offices in major metropolitan areas whose work is supported by headquarters staff. Current staffing of the chapters is approximately 16.

The Vice President, Communications and Marketing, reports to the President and CEO.

This position requires occasional weekend and evening work, and limited domestic travel.

GENERAL POSITION SUMMARY

The Vice President, Communications and Marketing, will have oversight responsibility for the external and constituent-focused communications and marketing functions of the Pulmonary Hypertension Association’s headquarters and field offices. As our staff and external communications have grown, the need for a strategic vision and day-to-day leadership of PHA’s many communications functions has become evident. The Vice President will ensure that our messaging is dynamic and consistent across all platforms and audiences, including our constituents (patients, family members and medical professionals), and external audiences (media, funders, non-PH specialist health care providers, and the general public).

The individual in this position will interface with all departments within PHA, and supervise the directors/managers of departments directly responsible for communications and marketing, currently: Advocacy and Awareness, Communications (media relations), Early Diagnosis and PHAware campaigns, Publications and Web Services.

ESSENTIAL DUTIES AND RESPONSIBILITIES

Provide strategic leadership on PHA’s communications and marketing initiatives in order to increase its visibility across key stakeholder audiences and expand the public’s knowledge of pulmonary hypertension

  • Develop and implement an integrated strategic communications plan to advance the Pulmonary Hypertension Association’s brand identity, programs and priorities
  • Create a marketing/public relations strategy that will enable PHA leadership to cultivate and enhance meaningful relationships with targeted, high-level external audiences, including the media and key influencers
  • Identify opportunities, challenges and emerging issues. In collaboration with leadership team and staff identify internal and external communications opportunities and solutions; define and execute appropriate strategies to support them
  • Develop and seize marketing opportunities to extend PHA’s brand
  • Serve as communications and marketing counselor to PHA leadership

Develop and raise PHA’s profile in the media

  • Serve as a spokesperson and lead point person on media interactions that help promote and/or impact the organization
  • Prioritize media opportunities, and prepare talking points, presentations and other supporting material as needed
  • In collaboration with the Director of Communications, actively engage, cultivate and manage media relationships to ensure coverage surrounding PHA programs, special events, public announcements, and other projects

Ensure that communications are cohesive across all departments; supervise and mentor staff in multiple communications departments

  • Direct all PH and PHA awareness-raising activities, ensuring that our message and brand are compelling and consistent throughout headquarters and field offices
  • Direct development of all PHA communications, including PHA’s website and social media, annual report, newsletters, and marketing collateral materials.
  • Oversee delivery of communication and marketing support to field offices to further their fundraising efforts and PHA’s local visibility
  • Recruit and mentor a communications team, achieving a high level of performance using a supportive and collaborative approach on a consistent basis
  • Supervise the day-to-day activities of PHA’s communications functions, including budgeting, planning and staff development
  • Establish and monitor staff performance goals, establish priorities, conduct annual performance appraisals, and administer salary adjustments

EXPERIENCE, SKILLS AND ATTRIBUTES

Background/Experience

  • Bachelor's degree in journalism, communications, or related field is required; advanced degree preferred
  • Minimum of five years in senior management either in-house or with an agency, planning, writing, editing, and producing a wide array of print and online material
  • Experience building, mentoring and coaching a team of communications specialists

Skills

  • Demonstrated leadership in managing a comprehensive strategic communications, media relations, and marketing program to advance an organization's mission and goals
  • Ability to utilize social media and new media technologies in support of an organization’s mission
  • Capacity to build relationships with top tier reporters and editors to achieve high-impact media placements
  • Exceptional writing and oral presentation skills
  • Ability to influence and engage direct and indirect reports and peers

Attributes

  • Innovative thinker, able to translate strategic thinking into action plans and output
  • Excellent judgment and creative problem solving skills
  • Ability to make decisions in a changing environment and anticipate future needs
  • Energetic, flexible, collaborative, proactive, results-oriented
  • Passion for promoting a mission-driven organization

WHAT WE OFFER

A competitive salary; generous benefits, including employer-paid individual health insurance premiums and a transportation subsidy; location in downtown Silver Spring (bus and Metro accessible); collegial work environment. We also provide quality training opportunities to enhance the skills of our staff.

HOW TO APPLY

Please send a responsive cover letter, résumé, two relevant writing samples and your salary expectations to Adrienne Dern, Interim VP, Communications, AdrienneD@PHAssociation.org. Your subject line should read “VP Communications.” Applications without salary information will not be considered. We look forward to hearing from you, but no phone calls, please.


 

Vice President, Human Resources and Training

The Pulmonary Hypertension Association (PHA), a dynamic, highly respected organization serving pulmonary hypertension (PH) patients, their family members and the medical community, is seeking a Vice President, Human Resources and Training. This position is newly created to meet the demands of a growing organization.

Pulmonary hypertension, a life-threatening illness described as high blood pressure in the lungs, affects people of all ethnic backgrounds and ages. Without proper diagnosis and treatment, a patient’s average lifespan is 2.8 years.

PHA provides high level medical and patient education, raises awareness of PH in the general public and medical community, advocates for legislation, supports research, and helps patients connect with others to end their isolation.

PHA is headquartered in Silver Spring, Md., with a staff of 40. In addition, the organization currently has four fund-raising field offices in major metropolitan areas whose work is supported by headquarters staff. Current staffing of the chapters is approximately 16 and new chapters will be forming in 2015 and beyond. PHA has experienced exceptionally rapid growth over the past five years, and particularly in the past two with the addition of our field offices. While these are positive changes, they have altered the dynamics of the organization and our new VP will be involved with addressing the effects of these transitions.  

The Vice President, Human Resources and Training, reports to the President and CEO.The VP supervises, in a dotted line relationship shared with VP of Finance, the Associate Director of Finance and Benefits.

This position requires occasional weekend and evening work, and limited domestic travel.

GENERAL POSITION SUMMARY:

Provide leadership and coordination for all organizational Human Resource functions. Develop and implement an organizational human resource strategy and programs with a special emphasis on training at the management and line staff levels.

ESSENTIAL DUTIES AND RESPONSIBILITIES:

HR Management

  1. Create and implement a strategic recruitment and hiring plan for headquarters and field staffs.
  2. Develop and manage annual budgets for the department and perform periodic cost and productivity analyses.
  3. Recommend and establish HR policies and procedures.
  4. Develop and oversee a comprehensive grievance policy and mediate workplace disputes.
  5. Evaluate procedures and technology solutions to improve human resources data management.
  6. Recommend and maintain an organizational structure and staffing levels to accomplish organizational goals and objectives.
  7. Understand the organizational culture and provide recommendations on further strengthening it to meet PHA goals and objectives.
  8. Evaluate and recommend human resource outsourcing opportunities and identify potential vendors.
  9. Establish and implement short- and long-range departmental goals, objectives, policies, and operating procedures.

Compensation & Benefits

  1. Oversee the design and implementation of our compensation strategy and programs.
  2. Direct the administration of benefit programs including health, retirement, death, disability, and unemployment.
  3. Evaluate and recommend improvements to benefit programs.

Training

  1. Create an organizational strategic training and development plan to meet personal, professional, and organizational needs of PHA employees.
  2. Develop and deliver a training program to strengthen supervisors’ management expertise.
  3. Work with supervisors to establish and implement training for their line staff.
  4. Evaluate effectiveness of training provided for and by managers and of line staff.

Compliance

  1. Coordinate organizational equal opportunity programs to ensure understanding and compliance.
  2. Oversee compensation programs to ensure regulatory compliance and competitive salary levels.              

EXPERIENCE, SKILLS AND ATTRIBUTES:

  1. Knowledge of change management.
  2. Knowledge of federal, state, and local employment, wage and salary laws, and regulations.
  3. Ability to interpret and provide sound advice on the application of EEO/AA laws.
  4. Ability to assess training needs and develop responsive solutions.
  5. Knowledge of organizational development theory and practices.
  6. Experience in design, development and implementation of salary administration plans and benefit programs.
  7. Experience examining and re-engineering operations and procedures, formulating policy, and developing and implementing new strategies and procedures.
  8. Knowledge of computerized information systems used in human resources applications.
  9. Strong professional ethics which includes dealing with confidential staff and patient information.
  10. Minimum education level:
    1. BA in HR or related degree plus at least five years HR experience
  11. Preferred education/certification level:
    1. Master’s Degree in Human Resources and at least five years experience in a senior-level non-profit Human Resource position.
    2. SHRM-CP™ certification

WHAT WE OFFER:

A competitive salary; generous benefits, including employer-paid individual health insurance premiums and a transportation subsidy; location in downtown Silver Spring (bus and Metro accessible); collegial work environment. We also provide quality training opportunities to enhance the skills of our staff.

HOW TO APPLY:

Please send a responsive cover letter, résumé, and your salary expectations to Rino Aldrighetti, President and CEO, at RinoA@PHAssociation.org.  Your subject line should read “VP Human Resources.” Applications without salary information will not be considered. We look forward to hearing from you, but no phone calls, please.


 

Special Events Program Associate

About PHA’s Special Events Program

Started in 2004, PHA’s Special Events Program empowers patients, caregivers, family and medical professionals to plan and host fundraisers in their own communities. By hosting a special event, organizers and volunteers tangibly impact a cause that is of utmost importance to them by raising awareness of this life-threatening illness and generating funds for PHA. PHA’s Special Events Program provides practical resources, encouragement, and support to special events volunteers–fostering over 50 events each calendar year. Proceeds from local fundraisers benefit the many services the organization offers to patients and their families and PHA’s Research Program.

About the Special Events Program Associate

This is an exciting opportunity for an aspiring nonprofit professional to facilitate the growth of a program that provides a significant source of funding for a dynamic health-related organization. Reporting to the Executive Director of Development, the Special Events Program Associate will be responsible for providing
programmatic support as well as working directly with repeat special events volunteers. Specific  responsibilities include:

  • Provide resources and support to grassroots special events planners with regard to: volunteer recruitment, event registration and marketing, securing sponsorship, and providing awareness-raising
    materials.
  • Assist with the management of PHA’s Special Event Central Fund program, including:
    • The coordination of grant requests by accurately tracking and managing applications as they move through the review process.
    • Interfacing with Database, Development and
      Finance staff to ensure proper allocation and notation of granted funds.
  • Assist in the development of online and print materials that will better support and equip event planners fundraisers
  • Implement and improve the Special Events recognition program to ensure event retention.
  • Manage the Special Events merchandise orders, marketing, and all other in-house responsibilities.
  • Additional responsibilities as assigned.

Qualifications

The successful candidate will be mission-oriented, and share PHA’s commitment to grassroots constituent
engagement and empowerment. Experience working with volunteers and special events is a plus. Specific qualifications include:

  • Excellent written and oral communication skills
  • Strong interpersonal skills and a proven ability to work both independently and in teams
  • Ability to think creatively and strategically
  • Proven ability to prioritize and multitask
  • Proven ability to take initiative on projects and see them through to completion
  • Bachelor’s degree and relevant work experience

What We Offer

A competitive salary, generous benefits including a transportation subsidy, location in downtown Silver Spring (bus and metro accessible), and a collegial work environment. We also provide training to enhance the skills of our staff.

How to Apply

If you, like us, believe in this critical role and want to join an organization with a collaborative, results-driven culture, then please send a cover letter, resume, a 1-2 page writing sample, and salary history/requirements to PHA’s Executive Director of Development, Michael Catell, at MichaelC@PHAssociation.org.  Include “Special Events Program Associate” in the subject line. 
We look forward to hearing from you, but no phone calls please.


Program Assistant, PH Care Centers

GENERAL SUMMARY POSITION:

Provide daily program support and assistance; help guide PHCC Review Committee operations through collection of reviewer availability, organization of site reviews and scheduling of travel (including flight, hotel and ground transportation).

ESSENTIAL DUTIES AND RESPONSIBILITIES:

  1. Receive and review communications with PHCC applicants in order to process applications.
  2. Compile all relevant documents to guide PHCC Reviewers conducting site visits.
  3. Coordinate site visits for PH Care Center accreditation, including ensuring all required meetings are scheduled with the relevant professionals at the applicant sites and providing all documentation and travel services to the site reviewers.
  4. Create and distribute (through email and mailing services) site visit packets to predetermined Site Reviewers.
  5. Management of the PH Care Centers governance structure, including management of three committees (Oversight, Site Review, and Patient Registry) including teleconference scheduling, planning, and coordination of action items. Liaison to the PHA Board of Trustees, who ultimately oversees the program.
  6. Provide assistance during teleconferences and webinars.
  7. Aid the design revisions and updates of the PHCC website.
  8. Collaborate with PHA staff to deliver timely responses to external (including email and telephone) inquires about the PHCC program.
  9. Other duties as assigned.

KNOWLEDGE, SKILLS AND ABILITIES REQUIRED:

  1. Experience in assisting multiple projects with varying deadlines.
  2. Knowledge of basic computerized information systems used in typical work environments (Word, PowerPoint, etc.).
  3. Work requires professional written and verbal communication in addition to interpersonal skills.
  4. Ability to collaborate and interact with physicians and non physician clinicians on a daily basis.
  5. Willingness to participate in group meetings.
  6. Strong professional ethics which include approaching others in a tactful manner; reacting well under pressure; treating others with respect and consideration; dealing with confidential staff and patient information.
  7. Work requires willingness to work a flexible schedule.
  8. Minimum requirement to apply: BA at a recognized four year undergraduate institution. Demonstrated training experience applicable to the essential duties and responsibilities
  9. Preferred: BA in Health related studies at a recognized four year undergraduate institution. At least one year of experience in a health organizational setting.

REPORTING RELATIONSHIPS:

  1. Reports to: PHCC Program Manager and the Director of Medical Services
  2. Supervises: N/A

WORKING CONDITIONS:

Working conditions are normal for an office environment. Work may require more frequent than normal weekend and/or evening work.

WHAT WE OFFER:

A competitive salary; generous benefits, including employer-paid individual health insurance and a transportation subsidy; location in downtown Silver Spring (bus and Metro accessible); and, a collegial work environment. We also provide quality training opportunities to enhance the skills of our staff.

HOW TO APPLY:

Please send a cover letter with salary expectations, résumé, and writing sample to Michael Gray, Director of Medical Services & Education, at MichaelG@PHAssociation.org. Applications without salary information will not be considered. We look forward to hearing from you, but no phone calls, please.


Development Manager, San Francisco Bay Area Chapter

General Summary

This employee will be an integral member of PHA's San Francisco Bay Area Chapter team. The employee will focus on securing new revenue, fundraising events administration and logistics that will include: event planning, event production and event administration. Fundraising events may include: galas, golf tournaments, walks and other special events in a very intensive start-up environment. The employee will also be responsible for recruiting and managing volunteer teams and committees in several venues throughout the Bay Area.

Essential Duties & Responsibilities

Fundraising
  • Identify, cultivate, solicit, and close new corporate, foundation, and individual gifts
  • Recruit in-kind donations of products and services appropriate for the Association's fundraising campaigns to reduce expenses
  • Launch and strengthen partnerships with local communities and businesses to grow third-party fundraising program
  • Secure media partnerships, including television, radio, print, and online partnerships
  • Work closely with the Executive Director and Special Events Manager to achieve the Chapter's annual revenue goals
Event Planning & Production
  • Manage up to 12 events per year
  • Must be able to anticipate project needs, discern work priorities, and meet deadlines with little supervision
  • Negotiate and manage vendor contracts and book event space, arrange food and beverage, order supplies and audio/visual equipment, make travel arrangements, order event signs and ensure appropriate décor
  • Conduct research, make site visits, and find resources to help staff and volunteers make decisions about event possibilities
  • Propose new ideas to improve the event planning and implementation process
  • Serve as liaison with vendors on event-related matters
  • Assist with managing on-site production and clean-up for events as necessary
  • Keep track of event finances including check requests, invoicing, and reporting
  • Prepare and modify event contracts as requested; manage guest list, call downs and RSVP's
Knowledge, Skills & Abilities Required
  • Bachelor's degree preferred; significant work experience can substitute for a degree
  • 3 years' experience coordinating special events, preferably fundraising events
  • Excellent communication skills including writing, proofreading, and speaking
  • Ability to manage multiple projects and work assignments from a variety of staff and volunteers
  • Ability to accomplish projects with little supervision
  • Excellent customer service skills and high expectations for quality
  • Proficient using the latest versions of Microsoft Word, Excel, PowerPoint; skilled at mail merges, email outreach and web searches
  • Ability to work with a wide variety of constituents including PH patients, medical professionals, caregivers and donors
  • Comfortable asking for and achieving in-kind commitments
  • Strong interpersonal skills (verbal and written) necessary in order to communicate diplomatically and effectively with volunteers, donors and staff
  • Volunteer management experience preferred
  • Strong professional ethics
Working Conditions
  • Travel to meetings and events as necessary throughout the San Francisco Bay Area
  • Work nights and weekends as necessary to attend and oversee meetings and events
  • Must have access to reliable transportation and ability to travel to meetings or events at different locations
  • Use of computer required
  • Sitting, bending, reaching, and walking
  • Some heavy lifting (50lbs) may be required

What We Offer

A competitive salary, generous benefits, highly desirable location in San Francisco's Financial District (BART accessible), and a collegiate work environment. We also provide quality training opportunities to enhance the skills of our staff.

How to Apply

Please send a cover letter, résumé and salary expectations to Im Senephimmachack, Executive Director at ImSenephimmachack@phassociation.org; include “Development Manager” in the subject line. We look forward to hearing from you, but no phone calls please.


 

Director, Web Services

The Director reports to the Vice President, Communications, and supervises a full-time Online Tech Support Consultant who works from a remote location. 

In addition to our primary website, www.phassociation.org, PHA maintains and develops microsites designed to promote specific initiatives, including our Early Diagnosis Campaign, Sometimes Its PH, a site devoted to introducing PHA to newcomers, PHAware, and a special site for our biennial international conference.

Limited evening and weekend hours may be necessary at times, along with modest domestic travel. 

The successful candidate will have a strong work ethic, a positive attitude, and excel at working with staff in a collaborative manner. S/he will be passionate about communicating via the web and social media, and be analytical, detail-oriented, resourceful, adaptable, creative, and forward-thinking. 

ESSENTIAL DUTIES AND RESPONSIBILITIES:

  1. Manage the overall content on PHA’s web properties. Ensure that the content and navigation meet the needs of our web visitors.  
  2. Work with staff on planning and implementation of new web content.
  3. Edit content for style, website best practices, user experience and SEO.
  4. Train staff on best practices for web content and how to use our content management system.
  5. Oversee redesigns and the creation of new sections and microsites. Provide lead on discovery, navigation, wireframes, user experience, and testing. Collaborate with the developer to create a design from the wireframees.
  6. Use Google Analytics to set goals tracking, analyze data, create reports and provide recommendations.
  7. Identify needs and research and implement new tools and technologies to assist PHA in fulfilling our mission.
  8. Work as part of team to strategize communications and marketing plans and manage editorial calendar.
  9. Other duties as assigned.

KNOWLEDGE, SKILLS AND ABILITIES:

Required:

  1. At least five years’ experience managing websites.
  2. Solid understanding of best practices for web writing and standards, web design, web content management, search engine optimization, web data analysis, and social media strategies.
  3. Knowledge of HTML, Fireworks or Photoshop, MS Office, Google Analytics, and using content management system.
  4. Professional experience with Facebook, Twitter, YouTube and blogging.
  5. Strong project management skill with the ability to multitask and balance sometimes competing priorities.
  6. Experience using a style guide for editing.
  7. Strong oral and written communication skills. Ability to craft engaging and concise messages for different audiences and different types of channels.
  8. Understanding of basic marketing and community engagement principals.

Preferred:

  1. Knowledge of/experience with: Blackbaud NetCommunity, Small World Labs Online Community, CSS, dynamic multimedia content, social sharing tools, Adobe Creative Suite, video development, web and email testing, and using RSS and tagging.
  2. Knowledge of AP style.
  3. Experience with LinkedIn, Google+, Blogger, WordPress, Pinterest and/or Instagram.
  4. Nonprofit experience.
  5. Experience working with patient, caregiver and/or medical professional communities.
  6. Experience managing vendors and contractors.

WHAT WE OFFER:

A competitive salary; generous benefits, including employer-paid individual health insurance premiums and a transportation subsidy; location in downtown Silver Spring (bus and Metro accessible); collegial work environment. We also provide quality training opportunities to enhance the skills of our staff.


HOW TO APPLY:

Please send a cover letter, résumé, and your salary expectations to adrienned@phassociation.org; include “Web Director” in the subject line. Applications without salary information will not be considered. We look forward to hearing from you, but no phone calls, please.  


Questions or concerns? Please contact Jennifer Freedman, PHA's Associate Director of Finance & Benefits, at HR@PHAssociation.org.

Updated 12/15/2014

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.