Careers at PHA

The Pulmonary Hypertension Association (PHA) is a dynamic, fast-growing organization serving pulmonary hypertension (PH) patients, their family members and the medical community. Pulmonary hypertension, a life-threatening illness described as high blood pressure in the lungs, affects people of all ethnic backgrounds and ages. PHA provides high level medical and patient education, raises awareness of PH in the general public and medical community, advocates for legislation, supports research, and helps patients connect with others to end their isolation.

We believe that anyone whose life has been touched by this difficult illness has the right to fight back as much as they are willing and able. We also believe that PHA has an obligation to create the environment that makes such involvement possible.


National Support Group Senior Associate

GENERAL POSITION SUMMARY

Train new leaders and provide orientations for support group co-leaders. Outreach to underserved or previously served areas to expand the support group network. Coordinate monthly telephone/webinar trainings of leaders.

ESSENTIAL DUTIES AND REPSONSIBILITIES

  • Outreach to geographically underserved regions to generate new support group leaders and new support groups.
  • Outreach to previously active areas with now-defunct support groups to reinvigorate these groups, find new leaders and starte these groups back up again.
  • Use existing results from the 2014 Support Group Leader Census to ascertain why some groups are no longer active and work to resolve these issues in order to bring meetings back to these areas.
  • Utilize results from the 2014 Support Group Leader Census to identify trends in support group turnover, and develop new resources to keep support groups active and to prevent leader burnout.
  • Utilizing the newly accredited PH Care Centers, outreach to areas that have centers that do not have support groups to end isolation and provide support to PH patients across the country.
  • Identify and train prospective support group leaders through the development and implementation of a strategic orientation process which will involve key staff and reputable community members. Input progress of each leader in Raiser's Edge for tracking and reporting.
  • Establish relationships with existing and potential support group leaders in order to ensure and enhance their success as leaders.
  • Develop and maintain a robust Support Group Coaching Program by building relationships with existing and potential support group leaders in order to ensure and enhance their success as leaders.
  • Develop programming and coordinate the Second Tuesday monthly training webinar series for support group leaders, including scheduling speakers, marketing, preparing webinar content and facilitating calls.
  • Assist with the coordination of the Support Group Central Fund program, including: inventorying grant applications; accurately tracking and managing each application as it moves through the review process; developing and implementing a marketing plan; and analyzing grant use for reports to corporate stakeholders.
  • Develop leadership resources for both web and print distribution.
  • Participate in other activities of the Volunteer Services department as needed.
  • Additional tasks as assigned.

KNOWLEDGE, SKILLS AND ABILITIES REQUIRED

PHA seeks to hire dynamic individuals who bring enthusiasm and creativity to our work. This position is ideal for a professional who is interested in working and growing at a passionate, cause-drive nonprofit organization.

  1. Previous experience in leadership development, volunteer coordination, staff management, public speaking and grassroots organizing
  2. Excellent organizational skills paried with a commitment to excellence
  3. Past experience coordinating programs in chronic and rare-disease communities.
  4. Work requires professional written and verbal communication and interpersonal skills. Ability to participate in and facilitate group meetings.
  5. Strong professional ethics, which include approaching patient and caregiver constituents in a tactful manner; reacting well under pressure; treating others with respect and consideration; dealing with confidential patient and caregiver information; and, following through on commitments.
  6. Work requires willingness to work a flexible schedule and willingness to travel to meetings across the country.
  7. Minimum requirements to apply:
    -BA/BS in health or related degree
    -Demonstrated training experience
    -Preferred skills: proficiency in Microsoft Office and Raiser's Edge

REPORTING RELATIONSHIP

Reports to: Senior Director, Volunteer Services

Supervises: N/A

WORKING CONDITIONS

Working conditions are normal for an office environment. Work may require occasionaly travel to meetings on evenings and/or weekends.

WHAT WE OFFER

A competitive salary; generous benefits, including employer-paid individual health insurance premiums and a transportation subsidy; location in downtown Silver Spring, Md., (a suburb of Washington, D.C., bus and Metro accessible); and, a collegial work environment. We also provide high quality training to enhance the skills of our staff.

HOW TO APPLY

Please send a cover letter with salary expectations, résumé, and writing sample to Debbie Drell, Senior Director of Volunteer Services, at DebbieD@PHAssociation.org. Applications without salary information will not be considered. We look forward to hearing from you, but no phone calls, please.


The Pulmonary Hypertension Association is an equal-opportunity employer.

Questions or concerns? Please contact HR@PHAssociation.org.

Updated 6/15/2015

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.