Careers at PHA

The Pulmonary Hypertension Association (PHA) is a dynamic, fast-growing organization serving pulmonary hypertension (PH) patients, their family members and the medical community. Pulmonary hypertension, a life-threatening illness described as high blood pressure in the lungs, affects people of all ethnic backgrounds and ages. PHA provides high level medical and patient education, raises awareness of PH in the general public and medical community, advocates for legislation, supports research, and helps patients connect with others to end their isolation.

We believe that anyone whose life has been touched by this difficult illness has the right to fight back as much as they are willing and able. We also believe that PHA has an obligation to create the environment that makes such involvement possible.


Sr. Manager / Director, Press Relations 

The Pulmonary Hypertension Association (PHA) is a dynamic, fast-growing rare disease nonprofit that is working to serve the needs of patients, family members, and the medical community. We believe that anyone whose life has been touched by this difficult illness has the right to fight back as much as they are willing and able. We also believe that PHA has an obligation to create the environment that makes such involvement possible. By building synergy between patients, family members and medical professionals, in a field with fewer than 30,000 diagnosed patients, we…

  • Organize and manage a network of 245 support groups.
  • Publish a quarterly medical journal and offer a medical education website.
  • Are launching in 2014 the PHA - Accredited PH Care Centers program to improve quality of care and outcomes in PH.
  • Have made more than $14,000,000 in PH research commitments through our five research programs, including the world's first and only pediatric PH research program.
  • Provide a focal point for coordination, communication and collaboration among a growing global network of more than 60 national PH associations.
  • Are working with our entire community through the Sometimes It's PH Campaign to reduce the time from onset of symptoms to point of diagnosis.
  • …and a whole lot more.

To further the success of our mission, PHA has an immediate opening for a Sr. Manager/Director of Press Relations. This full-time position reports to Rino Aldrighetti, President and CEO.

PHA has always had strong focus on and good success in communicating our story to our own community of patients, family members and medical professionals. More recently, we have begun to develop a focus on increasing our external visibility. Here are a few of our storylines:

  • A government contractor in Afghanistan passes out. She's sent home, but her employer calls her a liar. He career is destroyed before she finally receives a diagnosis of pulmonary hypertension.
  • An insurance provider's choice to shift a patient from an experienced, specialized pharmacy to one unfamiliar with PH results in a near-fatal medication delay. PHA responds with a unique watch dog program, our new Specialty Pharmacy Advisory Board.
  • The number of physicians treating PH has grown from 100 to more than 10,000 since 2001, but not all of those physicians treat the disease effectively, or even accurately. In response we will launch PHA-accredited Centers of Care in 2014. This is the unique story of medical professionals functioning as part of a patients' association to establish improved quality of care.

We also have a number of staff interested in expanding their own PR skills. We seek to make that possible through the creation of an internal PR team, led by the person filling this position.

Specific Duties

  • Work with PHA's three medical committees involved in our early diagnosis Campaign, Sometimes It's PH, further developing their media plan.
  • Quarterback a team of PHA staff in developing media pitches.
  • Gain successful media pitches.
  • Develop relationships with reporters on social media platforms; use Vocus to develop media lists and distribute pitches.
  • Create media kits for PHA - Accredited PH Care Centers to use in their regional publicity efforts.
  • Coordinate a media campaign for the Race of Our Lives Campaign; an all-women cycling team featuring a PH-treating physician, competing in a high-endurance cycling event in June 2014. The team will be racing to raise awareness of PH and funds to support the Pulmonary Hypertension Association and research to find a cure.
  • Create physician and patient partnerships in various cities as a tool for press pitches

Qualifications

PHA seeks to hire dynamic individuals who bring enthusiasm and creativity to our work. This position is ideal for an experienced PR professional who is interested in working and growing with a passionate, cause-driven nonprofit organization.

  • Demonstrated abilities to garner earned media coverage in both print and broadcast formats.
  • Demonstrated ability to initiate and manage reporter relationships through both social media and more traditional strategies.
  • Experience building and managing PR campaigns that incorporate paid, owned and earned media including social media.
  • Ability to continually scan across all of PHA's work and related events within the PH community for media opportunities; maintain an ongoing list of media-worthy story themes; and pitch those themes as appropriate based on what's of interest in the larger media environment.
  • Ability to mentor current PHA staff to increase PHA's overall knowledge and experience with earned media.
  • Experience supporting grassroots activists who are interested in sharing their story directly with local reporters.
  • Understanding of nonprofit structure and culture.
  • Outstanding written and verbal communication skills.
  • Knowledge of AP style a plus.

What We Offer

A competitive salary; generous benefits, including employer-paid individual health insurance and a transportation subsidy; location in downtown Silver Spring, Md., (a suburb of Washington, D.C., two blocks from Metro); and a collegial work environment. We also provide high quality training to enhance the skills of our staff.

How to Apply

Please send a cover letter, resume, two relevant writing samples and salary expectations to PHA's Vice President of Finance and Human Resources, Serena G. Weisman at SerenaW@PHAssociation.org; include Sr. Manager / Director, Press Relations in the subject line. We look forward to hearing from you, but no phone calls please.


Volunteer Services Sr. Associate/Manager

Full-time position; available April 2014

The mission of the Pulmonary Hypertension Association (PHA) is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, research, advocacy and awareness. One of the ways this mission is realized is through the coordination of a nationwide network of more than 245 patient support groups. Through the training, equipping and support of more than 330 support group leaders, PHA has been able to build a strong, vital foundation of knowledge and understanding that reaches many in the greater PH community.

The Sr. Associate/Manger of Volunteer Services will be responsible for overseeing our national Support Group Network, identifying, recruiting and training both local and remote volunteers, directing the Support Group Leadership Institute ($1 million endowed program) and managing the Support Group Central Fund ($275,000 program). This position will be responsible for developing creative and sustainable strategies for equipping and training support group leaders while helping to foster measurable interest in fundraising and advocacy initiatives.

Responsibilities

  • Manage the Volunteer Services Program Associate and part-time administrative assistant who will be responsible for the coordination of the Support Group Central Fund and PHA's Support Group Meeting Announcement program
  • Plan and execute four to six annual, two-day, regional training summits for support group leaders in order to instil advanced facilitation skills while promoting a variety of PHA programing with an emphasis on regional coalition building, fundraising and advocacy initiatives
  • Direct a strategically designed field strategy to establish PHA presence and support in geographically isolated and previously under-supported areas
  • Coordinate meetings and other communication opportunities with chapter staff by submitting reports concerning the status of area-specific support groups and their level of involvement while providing feedback on proposed strategies
  • Identify and train prospective support group leaders through the development and implementation of a strategic orientation process which will involve key staff and reputable community members
  • Develop and maintain a robust Support Group Coaching Program by building relationships with existing and potential support group leaders in order to ensure and enhance their success as leaders
  • Coordinate the Second Tuesday monthly training webinar series for support group leaders, including scheduling speakers, marketing, preparing webinar content and facilitating calls
  • Work with the Directors of the Volunteer Services and Web Services departments to plan, design and launch a new Support Group Leader Microsite
  • Coordinate Support Group Sessions, direct on-site volunteers and engage support group leaders in networking and training opportunities at PHA's bi-annual conference and On the Road events
  • Management of our Support Group Central Fund program, including:
    • Coordination of the grant applications, accurately tracking and managing each application as it moves through the review process
    • Creation of quarterly educational booklets and online resources, providing leaders with fresh ideas for planning meetings
    • Developing a marketing plan to promote the Central Fund and granting all available funds
  • Management of PHA's Support Group meeting post-card announcement mailings
  • Establishing relationships with existing and potential support group leaders in order to ensure and enhance their success as leaders
  • Ongoing needs assessment of PH support group leaders via email groups, online surveys, mailings and one-on-one outreach
  • Development of leadership resources for both web and print distribution
  • Involvement in other activities of the Volunteer Services department as needed
  • Additional tasks as assigned

Qualifications

  • BA/BS preferred
  • Previous experience in leadership development, volunteer coordination, staff management, public speaking and grassroots organizing necessary
  • Excellent writing and organizational skills paired with a commitment to excellence are essential
  • The ability to work independently and in a team setting combined with strong interpersonal, analytical and communication skills required
  • Past experience coordinating programs in chronic and rare-disease communities is vital
  • Advanced level proficiency in Microsoft Office and BBNC preferred

What We Offer

A competitive salary; generous benefits including a transportation subsidy; location in downtown Silver Spring (bus and Metro accessible); and a collegial work environment. We also provide quality training opportunities to enhance the skills of our staff.

How to Apply

Please send a cover letter, resume, writing sample and salary history with salary expectations for this position to Senior Director, Volunteer Services, Debbie Castro, at DebbieC@PHAssociation.org. Applications without salary information will not be considered.  We look forward to hearing from you, but no phone calls please.
 


Special Events Program Associate, with Challenge Event Experience

About the Pulmonary Hypertension Association

The Pulmonary Hypertension Association (PHA) is a dynamic, fast-growing rare disease nonprofit that is working to serve the needs of patients, family members, and the medical community. We believe that anyone whose life has been touched by this difficult illness has the right to fight back as much as they are willing and able. We also believe that PHA has an obligation to create the environment that makes such involvement possible.

PHA works to raise awareness of PH in the general public and medical community, advocates for legislation, supports research in the field, and aims to help patients connect with others to end their isolation. By building opportunities for community involvement and education, we are committed to maintaining the volunteer spirit upon which our organization was founded.
By promoting synergy between patients, family members, volunteers and medical professionals, in a field with fewer than 30,000 diagnosed patients, we…

  • Organize and manage a network of 245 support groups
  • Publish a quarterly medical journal and offer a medical education website
  • Are launching in 2014 an Accredited Centers of Care program to improve quality of care and outcomes in PH
  • Have made more than $14,000,000 in PH research commitments through our five research programs, including the world's first and only pediatric PH research program
  • Provide a focal point for coordination, communication and collaboration between a growing global network of more than 60 national PH associations
  • Are working with our entire community through the Sometimes Its PH Campaign to reduce the time from onset of symptoms to point of diagnosis

…and a whole lot more

We are currently seeking a Special Events Program Associate, with challenge event experience, who will work directly with our grassroots volunteer event planners and support their efforts to host local fundraisers nationwide.

About PHA's Special Events Program

Started in 2004, PHA's Special Events Program empowers patients, caregivers, family and medical professionals to plan and host fundraisers in their own communities. By hosting a special event, organizers and volunteers tangibly impact a cause that is of utmost importance to them by raising awareness of this life-threatening illness and generating funds for PHA. PHA's Special Events Program provides practical resources, encouragement, and support to special events volunteers- fostering over 50 events each calendar year. Proceeds from local fundraisers benefit the many services the organization offers to patients and their families and PHA's Research Program.

About the Special Events Program Associate

This is an exciting opportunity for an aspiring nonprofit professional to facilitate the growth of a program that provides a significant source of funding for a dynamic health-related organization. Reporting to the Special Events Senior Manager, the Special Events Program Associate will be responsible for providing programmatic support as well as working directly with repeat special events volunteers. Specific responsibilities include:

  • Provide resources and support to veteran special events planners with regard to: volunteer recruitment, event registration and marketing, securing sponsorship, and providing awareness-raising materials.
  • Assist with emerging challenge event program; planning and logistics
  • Serve as Coordinator for the Baltimore Walk for Hope including sponsorship coordination and solicitation, route selection and management, management of planning committees and day-of programming coordination
  • Assist in developing useful materials tailored to special events planners, including the creation and production of Event-ful Times, a bimonthly e-newsletter.
  • Implement and improve the Special Events recognition program to ensure event retention.
  • Additional responsibilities as assigned.

Qualifications

The successful candidate will be mission-oriented, and share PHA's commitment to grassroots constituent engagement and empowerment. Experience working with volunteers and special events is a plus. Specific qualifications include:

  • Excellent written and oral communication skills
  • Strong interpersonal skills and a proven ability to work both independently and in teams
  • Ability to think creatively and strategically
  • Proven ability to prioritize and multitask
  • Proven ability to take initiative on projects and see them through to completion
  • Bachelor's degree and relevant work experience

What We Offer

A competitive salary, generous benefits including a transportation subsidy, location in downtown Silver Spring (bus and metro accessible), and a collegial work environment. We also provide high-quality training to enhance the skills of our staff.

How to Apply

If you, like us, believe in this critical role and want to join an organization with a collaborative, results-driven culture, then please send a cover letter, resume, a 1-2 page writing sample, and salary history and requirements for this position to PHA's Vice President of Finance and Human Resources, Serena G. Weisman, at SerenaW@PHAssociation.org. Applications without salary information will not be considered. Please include "Special Events Program Associate" in the subject line. We look forward to hearing from you, but no phone calls please.


Questions or concerns? Please contact Serena Weisman, PHA's Vice President of Finance & Human Resources, at Finance@PHAssociation.org.

Updated 3/21/2014

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.