Careers at PHA

The Pulmonary Hypertension Association (PHA) is a dynamic, fast-growing organization serving pulmonary hypertension (PH) patients, their family members and the medical community. Pulmonary hypertension, a life-threatening illness described as high blood pressure in the lungs, affects people of all ethnic backgrounds and ages. PHA provides high level medical and patient education, raises awareness of PH in the general public and medical community, advocates for legislation, supports research, and helps patients connect with others to end their isolation.

We believe that anyone whose life has been touched by this difficult illness has the right to fight back as much as they are willing and able. We also believe that PHA has an obligation to create the environment that makes such involvement possible.


Grassroots Campaign Associate/Senior Associate

Dear cause-driven applicant,

Thank you for taking a moment to explore this opportunity with the Pulmonary Hypertension Association (PHA). There are so many reasons that I value my position as the Director of Advocacy and Awareness at PHA…

  • I empower others.
  • My creativity is valued.
  • I am supported by a friendly, talented team.
  • My work matters.
  • I am inspired daily.

I’m looking for a self-directed, cause-driven individual with strong communication skills to join me in creating opportunities for pulmonary hypertension patients get involved in solutions to issues that affect their lives. No prior knowledge of pulmonary hypertension is needed but community organizing experience is a plus.

Responsibilities:

  • Coordinate PHA’s grassroots advocacy campaign (the 435 Campaign) and grassroots media campaign (the PHAware Campaign). Mobilize advocates to use their personal stories as tools for meaningful, measurable change.
  • Build multiple issue campaigns as compelling entry points for advocates and promote those campaigns via social media, print publications and events.
  • Provide training, support and material resources to advocates as they share the story of how PH has impacted their lives with elected officials and reporters.
  • Cultivate leaders and mentors from within the grassroots advocate pool.
  • Complete other duties as assigned.

Qualifications:

  • Commitment to PHA’s values of empowerment and constituent engagement, community organizing or nonprofit experience a plus
  • Enthusiasm for making engagement rewarding for advocates
  • Willingness to test new ideas and take healthy risks
  • Comfort interacting professionally with individuals from a variety of backgrounds, including patients, medical professionals, legislative staff and media representatives
  • Excellent organizational and time management skills
  • Enthusiasm about working as part of a team, ability to work independently
  • Excellent oral and written communication skills
  • Bachelor's degree and 2-4 years relevant work experience

What We Offer:


A competitive salary; generous benefits, including employer-paid individual health insurance and a transportation subsidy; location in downtown Silver Spring, Md. (a suburb of Washington, DC, two blocks from Metro); and a collegial work environment. We also provide high-quality training to enhance the skills of our staff.

How to Apply:

Send cover letter, resume, and salary requirements to Katie Kroner, the department director, at Katherinek@PHAssociation.org. No phone calls please. Applications will be considered on a rolling basis until the position is filled.


Treatment Access Associate/Senior Associate

The Pulmonary Hypertension Association (PHA) is a dynamic, fast-growing rare disease nonprofit that is working to serve the needs of patients, family members, and the medical community. We believe that anyone whose life has been touched by this difficult illness has the right to fight back as much as health and interest allow. We also believe that PHA has an obligation to create the environment that makes such involvement possible. By building synergy between patients, family members and medical professionals, in a field with fewer than 30,000 diagnosed patients we…

  • Organize and manage a network of 245 support groups
  • Publish a quarterly medical journal and offer a medical education website
  • Guide an Accredited Centers of Care program to improve quality of care and outcomes in pulmonary hypertension (PH)
  • Have made more than $14 million in research commitments through our five research programs, including the world's first and only pediatric PH research program
  • Provide a focal point for coordination, communication and collaboration between a growing global network of more than 60 national PH associations
  • Are working with our entire community through the Sometimes Its PH Campaign to reduce the time from onset of symptoms to point of diagnosis
  • …and a whole lot more

To further the success of our mission, PHA has an immediate opening for an Treatment Access Associate/Senior Associate to help people living with PH understand and navigate the health insurance system in the U.S. Whether the challenge is PH patients on Medicaid being denied access to PH specialists or pharmacies who are careless about delivering medication on time, PH patients are in a fight for their lives. This position is an opportunity to take a leading role in that fight.  No prior knowledge of pulmonary hypertension is needed. 

Specific Duties

  • Communicate with PH patients, caregivers and medical professionals about health insurance challenges. Provide appropriate referrals to additional insurance resources.
  • Staff PHA's Specialty Pharmacy Advisory Board. Gather and analyze patient input about their experiences with the specialized pharmacies from which they must receive their medication. Coordinate with those pharmacies on a prompt response to concerns. Facilitate quarterly Advisory Board conference calls.
  • Monitor insurance-related legislation and regulation as it pertains to the PH community. As appropriate, coordinate responses from PHA's medical leadership and/or patient membership.
  • Collaborate with the Director of Advocacy and Awareness to identify insurance-related barriers to treatment that are advocacy priorities for PHA. As appropriate, engage PHA's medical and corporate partners in addressing these barriers through PR campaigns, legislative strategies, letter-writing, face-to-face meetings with key opinion leaders, etc.
  • Coordinate proactive initiatives to educate public and private insurance payers about PH, available treatments, and related research.
  • Draw on the expertise of PHA's medical and corporate partners to maintain PHA's online insurance guide and to create and disseminate additional educational materials for patients, medical professionals and insurance providers.
  • Other duties as assigned

Qualifications

  • Commitment to PHA's values of empowerment and constituent engagement
  • Bachelor's degree and 2-4 years relevant experience
  • Comfort interacting and communicating professionally with individuals from a variety of backgrounds, including patients, medical professionals and corporate representatives
  • Excellent organizational and time management skills
  • Enthusiasm about working as part of a team; ability to work independently
  • Excellent oral and written communication skills: ability to break down complex information and present it to a lay audience clearly and concisely; ability to facilitate meetings and group discussions

What We Offer

A competitive salary; generous benefits, including employer-paid individual health insurance and a transportation subsidy; location in downtown Silver Spring, Md., (a suburb of Washington, D.C., two blocks from Metro); and a collegial work environment. We also provide high quality training to enhance the skills of our staff.

How to Apply

Please send a cover letter, resume and salary expectations to PHA's Director of Advocacy and Awareness, Katherine Kroner, at KatherineK@PHAssociation.org. We look forward to hearing from you, but no phone calls please.

 


Special Events Program Associate

Emphasis on Campaigns and Endurance Events
Full-time position; available July 2014

The mission of the Pulmonary Hypertension Association (PHA) is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, research, advocacy and awareness. One of the ways this mission is realized is through the coordination and support of more than 60 annual grassroots special events and hundreds of individual fundraising initiatives. By creating opportunities for community involvement, we hope to provide event organizers and volunteers with a way to tangibly impact and strengthen PHA's mission.

The Special Events Program Associate position provides an exciting opportunity for an aspiring nonprofit professional to gain first-hand experience of grassroots fundraising, volunteer management and campaign organization. Reporting to the Special Events Senior Manager, this associate will be responsible for ongoing programmatic support for special event organizers as well as the continued development of PHA's Endurance Program.

Responsibilities

  • Provide resources and support to grassroots special event planners with regard to: volunteer recruitment, event registration and marketing, sponsorship and awareness-raising materials.
  • Provide resources and support to individual fundraisers with regard to: fundraising ideas, webpage creation, awareness materials and additional support as needed.
  • Assist in the development of online and print materials that will better support and equip event planners individual fundraisers.
  • Assist with the management of PHA's Special Event Central Fund program, including:
    • The coordination of grant requests by accurately tracking and managing applications as they move through the review process.
    • Interfacing with Database, Development and Finance staff to ensure proper allocation and notation of granted funds.
  • Research and report on PHA's existing campaigns and endurance program while preparing (and later implementing) a proposal to enhance program structure (i.e. budget, chapter integration, promotion, etc.)
  • Interface with various departments at PHA to ensure the program's success and visibility.
  • Create new, innovative and user-friendly avenues for recruiting athletes inside and outside the organization.
  • Additional tasks as assigned.

Qualifications

BA/BS preferred. The successful applicant will be highly organized and have the ability to respond to a variety of activities while keeping track of details. S/he must also demonstrate Microsoft Office proficiency. Excellent writing and organizational skills paired with a commitment to success are essential. The ability to work well with people, exercise independent judgment, take initiative, and manage shifting priorities are also necessary qualifications for the position.

What We Offer

A competitive salary; generous benefits including a transportation subsidy; location in downtown Silver Spring (bus and Metro accessible); collegial work environment. We also provide quality training opportunities to enhance the skills of our staff.

How to Apply

Please send a cover letter, resume, writing sample and your salary expectations to Joshua Griffis, Special Events Senior Manager at JoshuaG@PHAssociation.org.  Applications without salary information will not be considered. We look forward to hearing from you, but no phone calls please.


Questions or concerns? Please contact Serena Weisman, PHA's Vice President of Finance & Human Resources, at Finance@PHAssociation.org.

Updated 7/11/2014

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.