OUR JOURNEYS

Creative Expressions: Creative Writing

Yunena Morales

Yunena Morales

Yunena is the leader for the Seattle/Des Moines Support Group.

Lady PHTN

I took a walk at early dawn years ago.
I woke up full of glee, anticipation and dreams of greater achievements.
The rays of sunshine met me at every turn.
I held my father and mother’s hands and flitted away like a sun bright yellow butterfly.
It was exciting with hope at every turn.
I met a lady.
I smiled and glided down the road.
She chased after me, a beaming smile.
She said,
Young lady,
I am taking you on a most intrepid trip you could ever dream of.
My name is pulmonary hypertension.
My first name is Idiopathic.
They call me IPAH for short.
You will be introduced to some doctors who will confuse you.
You cannot imagine, little one,
Life will never be the same again.
Off balance, you will almost fall dead,
Caused by those to make you whole.
Twelve inconclusive diagnoses and more to come.
All an impact to put you on a dance spin 360 degrees.
A turn by all these confused beings that will stir every emotion one can evoke in the universe.
God stepped in just as I was about to go out of control in anger.
He said, my child, there is a reason.
Choose to celebrate every moment;
Do not die before you are dead.
Life is much more than health.
The world needs a heart like yours to advocate for those who are so judged,
So underestimated and belittled by a system which is crammed with the proud and the haughty.
Here lies the path;
I said I am ready.
Go for it, Lady, He

 

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.