Support. Friendship. Hope.
Living with a rare disease can sometimes feel lonely. But you are not alone. PHA has a strong network of local support groups and an active online community. By reaching out to people who've been there, you will find fast PHriends who offer support, information and hope for the future. You can connect with the community however you prefer, whether that's on the web, on the phone, or in face-to-face support group meetings.
PHA's online social network for patients and their loved ones is home to hundreds of community members. Joining is free and easy, and will give you access to our most comprehensive resource for online connection and support.
- Facebook Groups
PHA hosts Facebook groups for the following communities:
- PHA Teens
- suPer Heroes: Long-Term Living with Pulmonary Hypertension
- Generation Hope: Young Adults with Pulmonary Hypertension
- PH Plus: Pulmonary Hypertension and Associated Conditions
- PHA CTEPH: Chronic Thromboembolic Pulmonary Hypertension
- Online Support Group Chats
Attend daily online support group chat meetings.
- Patient and Caregiver Mentor Program
Email with an experienced patient or caregiver who can help you find the information and support you're looking for. These mentors are also searchable on myPHA.
- RareConnect Community
Share experiences and ask questions on these international online community groups for pulmonary hypertension and other rare diseases. Translations are available.
Telephone Support Groups
Find a support group near you and find information on your group's website.
Ask questions and receive support from other patients who have been there.