Pulmonary hypertension (PH) is a rare, debilitating disease in which high blood pressure in the arteries of the lungs can lead to right heart failure.

From simple beginnings — four women who met around a kitchen table in Florida in 1991 — the Pulmonary Hypertension Association (PHA) has evolved into a community of over 16,000 PH patients, caregivers, family members and medical professionals. PHA's mission is to find ways to prevent and cure PH, and to provide hope to the community through support, education, research, advocacy and awareness.

Join our vibrant community, donate to support PHA's mission, or get involved in advancing the cause.

News & Events

    • Special summer camp gives PH patients experiences typically out of reach for kids with their condition
    • FDA issues Drug Safety Announcement on Proglycem (diazoxide) in treatments of infants and newborns
    • 79-year-old Don Stevenson, aka the Pacing Parson, is walking 3,000 miles cross-country for PHA! Support Don
    • The Pacing Parson and PHA Executive Vice President, Carl Hicks, walk together and share their stories with WDAZ-ABC News in North Dakota. Watch the video and find more coverage on our media page
    • Join PHA's O2 breathe Walk of Baltimore at the Maryland Zoo on Sunday, September 20. Register now
    • Don't miss our unforgettable patient and family education events, PHA on the Road, in Phoenix (Oct. 3), and St. Louis (Oct. 10)
    • Team O2 breathe does the Race Across the West in support of pulmonary hypertension
    • Fundraising for PHA just got a lot easier! Download the new, free PHA Events app for iPhone or Android
    • PHA wins an APEX Award for Publication Excellence in the category of One-of-a-Kind Publications - Education & Training! Read more and check out our award-winning Advocacy Guide

Find more news & events on the PHA Daily Beat blog.


Featured Video: PHA on the Road, Philadelphia, Pa.


Quick Links


About PH
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Discussion Board
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Recursos en Español


Early Diagnosis Campaign
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Membership Networks
PH Care Centers

Patient-to-Patient Support Line: 1-800-748-7274

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PHPN Symposium


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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.