Pulmonary hypertension (PH) is a rare, debilitating disease in which high blood pressure in the arteries of the lungs can lead to right heart failure.

From simple beginnings — four women who met around a kitchen table in Florida in 1991 — the Pulmonary Hypertension Association (PHA) has evolved into a community of over 16,000 PH patients, caregivers, family members and medical professionals. PHA's mission is to find ways to prevent and cure PH, and to provide hope to the community through support, education, research, advocacy and awareness.

Join our vibrant community, donate to support PHA's mission, or get involved in advancing the cause.

News & Events

    • The New Jersey Sentinel shares an inspiring story of a community that rallies to honor a PH patient and fundraise for a PH cure. Read about seven-year-old Olivia Marie Rodrigues and the Power for PH PHun Walk, coming up on Sept. 20 in Edison, N.J. — or visit www.o2breathe.org/PowerForPH to donate or register for the walk
    • Read Cosmopolitan's profile of Carson Smith, a multi-sport athlete who received a life-changing PH diagnosis over a decade ago
    • PHA will commemorate PH Awareness Month in November with the theme of Coloring the World Periwinkle for 25 Years and a celebration of 25 Periwinkle Pioneers who have shaped PHA's history. Learn more and nominate someone to be a Periwinkle Pioneer; nominations are open until October 18
    • Are you an artist interested in making a lasting contibution to PHA? Submit work to our Periwinkle Pioneers Art Contest
    • 79-year-old Don Stevenson, aka the Pacing Parson, is making headway from Detroit to Toledo on his cross-country walk for PHA! Find coverage on our media page and support Don with a donation today
    • Join PHA's O2 breathe Walks at the Maryland Zoo in Baltimore (Sun., Sept. 20) and at the Philadelphia Zoo (Sun., Oct. 4)
    • Don't miss our unforgettable patient and family education events, PHA on the Road, in Phoenix (Oct. 3), and St. Louis (Oct. 10)
    • Save the date for the 6th annual Colorado PH in the Park event in Denver, Sun., Oct. 4. Join us there or make a donation to support PH research and education
    • Join Team O2 breathe at the Rock 'n' Roll Brooklyn™ Half Marathon on Sat., Oct. 10. Rock your way to the finish line with live music at every mile! Learn more and register
    • Fundraising for PHA just got a lot easier! Download the new, free PHA Events app for iPhone or Android

Find more news & events on the PHA Daily Beat blog.


Featured Video: A PH Nurse's Message of Thanks to the Pacing Parson


Quick Links


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Patient-to-Patient Support Line: 1-800-748-7274

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.