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PHA On the Road

Living with a rare disease like pulmonary hypertension can be isolating, but you’re not alone. Meet people who understand what it’s like to live with PH and network with a community of patients, supporters and professionals. PHA on the Road is a FREE, day-long educational forum to provide education and support to patients and families.

Join us on Saturday, October 1, 2016 in Washington, D.C., or on November, 19, 2016 in Tampa, Fla. for interactive presentations, educational sessions and networking opportunities. To make this event accessible to as many people as possible, PHA is offering free valet parking, free childcare for children ages 3-16 and free breakfast and lunch for all attendees.

Register today to join us in D.C. or Tampa.


Brad A. WongYour Support Today Provides Health, Hope and Empowerment

Your support today ensures that PHA remains: a source of hope that empowers the PH community; a catalyst for a cure that will lead to an outright cure and innovations that extend and enhance life; a champion for quality care that includes improved access and delivery; THE voice of the PH community.

Make a gift today

Group at CapitolPHA Urges Support for PH Senate Bill

U.S. Senator Bob Casey (D-PA) recently introduced the Pulmonary Hyprtension Research and Diagnosis Act (S. 3361), giving new hope to people living with PH. Pushed by PH patients, caregivers, family members and healthcare professionals, a similar House bill (HR 3520), introduced by Rep. Kevin Brady (R-TX) and Rep. Lois Capps (D-CA), is gaining bipartisan momentum with 57 co-sponsors.

Read more at PHA News

Go PHAR participants showing their activity trackersLet’s Go PHAR Research!

At PHA, we’re putting our heart into a cure – and we know that a cure will come from research. Join us on a virtual walk to benefit the Pulmonary Hypertension Association Registry (PHAR). Regardless of your stamina as a PH patient, family member or friend, you can join PHA in advancing research and learning more from PHAR. Every registrant pledging to raise a minimum of $100 receives a free Withings “GO” Activity Tracker.

Learn more and get started


Watch my Music Video - Breathless not Hopeless

 
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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.