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PHA On the Road

Living with a rare disease like pulmonary hypertension can be isolating, but you’re not alone. Meet people who understand what it’s like to live with PH and network with a community of patients, supporters and professionals. PHA on the Road is a FREE, day-long educational forum to provide education and support to patients and families.

Join us on Nov. 19, 2016 in Tampa, Fla. for interactive presentations, educational sessions and networking opportunities. To make this event accessible to as many people as possible, PHA is offering free valet parking, free childcare for children ages 3-16 and free breakfast and lunch for all attendees.

Register today to join us in Tampa.

Make a Gift Today: Your Support Today Provides Health, Hope and Empowerment

Your support today ensures that PHA remains: a source of hope that empowers the PH community; a catalyst for a cure that will lead to an outright cure and innovations that extend and enhance life; a champion for quality care that includes improved access and delivery; THE voice of the PH community.

Donate Now

A Heart CuresHelp Kickoff November’s Pulmonary Hypertension Awareness Month

Want to help raise awareness for pulmonary hypertension? Join the PHA Nov. 1 Thunderclap campaign! By signing up to post a one-time message on Facebook or Twitter, you can help our voices rise above the noise of social media and amplify our message of hope. Sign up today by showing your support on Facebook, Twitter or Tumblr.

Show your #Heart2CurePH

Group of walk participantsLong Island O2 breathe Walk to Honor and Unite Community

The PHA Northeast Chapter's 2016 Long Island O2 breathe Walk will take place at Heckscher National Park in East Islip on Sunday, Oct. 23 from 8:30 a.m. to 11 a.m. Join hundreds in the PH community to raise crucial funds to advance PHA’s mission. There will be a special PH patient tent, live music, activities for kids and a chance for walkers to share their stories.

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Group at CapitolPHA Urges Support for PH Senate Bill

U.S. Senator Bob Casey (D-PA) recently introduced the Pulmonary Hyprtension Research and Diagnosis Act (S. 3361), giving new hope to people living with PH. Pushed by PH patients, caregivers, family members and healthcare professionals, a similar House bill (HR 3520), introduced by Rep. Kevin Brady (R-TX) and Rep. Lois Capps (D-CA), is gaining bipartisan momentum with 57 co-sponsors.

Read more at PHA News

Watch my Music Video - Breathless not Hopeless

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.