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International PH Associations

PH is not a selective disease; it affects people of all nations, races, and cultures. At our 2002 International PH Conference, PHA was asked by those attending to act as a hub, collecting information and sending it back out to the international network. As we move forward in this direction, we hope to see awareness of PH grow on a global scale.

International PH Associations with which PHA has a Memorandum of Understanding

Austria | Brazil | Canada - British Columbia | Canada - Manitoba | Canada - New Brunswick | China | Colombia | Europe | Germany | Israel | Italy | Japan | Mexico | The Netherlands | United Kingdom | Venezuela
non-MOU International PH Associations

Austria
The Children PH (Pulmonary Hypertension) Research Foundation (English)
MOU (PDF)
www.phaaustria.org
office@phaaustria.org
It is the foundation's major goal to promote PH awareness to the broad public and the medical professionals and to raise money in order to fund PH research laboratories for advancing effective therapies and finding a cure. The Austrian PH self-help group is dedicated to provide PH patients, families and caregivers with information and education, to improve the communication between patients and medical professionals and to assist PH patients with all aspects of life as best as possible.

Brazil (Portuguese)
ABRAF - Associação Brasileira de Amigos e Familiares de Portadores de Hipertensão Arterial Pulmonar
MOU (PDF)
www.respirareviver.org.br/
contato@respirareviver.org.br
paulamenezes@respirareviver.org.br
ABRAF was created with the main goal of raising awareness of PH among the general population and governmental organizations.  Through this effort and others, ABRAF is proactive in diminishing the number of incorrect diagnoses.  ABRAF also works to make access to PH medications easier for patients.  By being in touch with the PH global community, ABRAF is able to inform others about the latest improvements through our website, meetings, email and other means.

Canada - British Columbia (English)
BCPHS [British Columbia Pulmonary Hypertension Society]
MOU (PDF)
www.bcphs.org
lgmccall@shaw.ca
The mission of BCPHS is to provide patients and caregivers with support and education, promote awareness of PH, and to raise funds for research. In addition to its website, this group publishes a newsletter and hosts a yearly, day-long symposium.

Canada - Manitoba (English)
The Manitoba Pulmonary Hypertension Support Group
MOU (PDF)
http://ca.geocities.com/mb_ph_group/
mb_ph_group@yahoo.ca
Established in 2004, The Manitoba Pulmonary Hypertension Support Group is dedicated to serving the PH community in this province of about 1million people. The group holds regular meetings and members are actively involved in raising awareness of pulmonary hypertension.

Canada- New Brunswick (English)
New Brunswick Pulmonary Hypertension Society
MOU (PDF)
www.nbphs.org
jgendron@nb.sympatico.ca
The mission of NBPHS is to provide patients, caregivers and families affected with Pulmonary Hypertension (PH) with support and education, to promote PH awareness and advocate for those living with the disease and to raise funds for research and goals set by the Society.

China (Chinese)
PHA China
MOU (PDF)
www.phachina.com
phachina@yahoo.com.cn
Established in 2005, PHA China is dedicated to raise awareness of pulmonary hypertension in the public and give a series education to the physicians, patients and their families. It has an informative website which provides 24 hour free consultancy for PAH patients on line, a newsletter, toll-free hotline, patient club, a Chinese version of a survival guide for patients.

Colombia (Spanish)
FCHP Fundación Colombiana de Hipertensión Pulmonar
MOU (PDF)
www.hipertension-pulmonar.org
fchp@hipertension-pulmonar.org
The Colombian Pulmonary Hypertension Foundation – CPHF- is a non-profit organization whose objective is to provide support to patients, family and professionals in basic Biomedical Sciences, Medicine and Social and Human Sciences by means of research, assistance, education and ancillary help in Pulmonary Hypertension and those illnesses that generate Pulmonary Hypertension such as Scleroderma and Lupus. The internet site provides information and support by means of a team of professionals, and in the community of patients and family by blogs and chats

Europe (English)
PH Europe
MOU (PDF)
www.phaeurope.org
info@phaeurope.org
PHA Europe is an umbrella group fostering communication and joint planning among European PH Associations, currently including groups in Austria, Belgium, France, Germany, Italy, Netherlands, Portugal, Switzerland and the United Kingdom.

Germany
PHeV [Pulmonare Hypertonie e.V.] (German)
MOU (PDF)
www.phev.de
info@phev.de
PH e.v is a foundation dedicated to help PH patients and their families to cope with their personal fate. It offers information for patients and members, works together with national and international institutions, provides contact to specialized professionals and arranges regular patient meetings. Ph e.v. is divided into many dependent regional self support groups in order to guarantee an exchange of patient experiences. PH e.v also supports medical research for pulmonary hypertension.

Israel (Hebrew)
PH Israel [Pulmonary Hypertension Israel]
MOU (PDF)
http://www.phisrael.org.il/
ajberg@gmail.com, iris_tal@netvision.net.il
Living with an illness like PH changes the way you experience life and out of this experience came the need to come together and found the Israeli Pulmonary Hypertension association. The Association has made its goal to address all aspects of life with PH: medical, emotional, social, financial and legal.

Italy (Italian)

AIPI [Associazione Ipertensione Polmonare Italiana]
MOU (PDF)
www.aipiitalia.org
pisana.ferrari@aliceposta.it
AIPI is dedicated to provide PH patients, families, and medical professionals with an environment of education, friendship, and support.  AIPI has an informative website with message boards, a quarterly newsletter, and a team of individuals available to help support their members.

AMIP [Associazione Malati Ipertensione Polmonare]
MOU (PDF)
www.assoamip.net
mpproia@tiscalinet.it
The mission of AMIP is to increase information about pulmonary hypertension, advocate for those with the disease, facilitate access to health services, and promote and encourage studies, research, and discussions relating to PH. Some of the ways it does this are a website, a newsletter, and regular support group meetings.

Japan (Japanese)
PHA-Japan [Pulmonary Hypertension Association of Japan]
MOU (PDF)
www.pha-japan.ne.jp
m-yukiko@cf6.so-net.ne.jp
Based out of Tokyo, PHA-Japan is dedicated to the fight of PH. In 2003, this organization released a complete Japanese translation of PHA’s Pulmonary Hypertension: A Patient’s Survival Guide by Gail Boyer Hayes.

Mexico (Spanish)
Asociación Mexicana de Hipertension Arterial Pulmonar (AMHAP)
MOU English | Spanish (PDF)
http://www.asociacionmxhap.org
veronica@asociacionmxhap.org, tomaspulido@asociacionmxhap.org
Established as a support group in 2004, this Mexican association was recently created with the mission to bring awareness, education and support to PH patients, relatives and the medical community. Currently including and working with the Pulmonary Hypertension Foundation of the Southeast.

The Netherlands (Dutch)
PHA-Nederland
MOU (PDF)
www.pha-nl.com
info@pha-nl.nl
In addition to practical support for patients, PHA Netherlands is active in increasing awareness and education to the general public and doctors. It has a website, brochures, a newsletter, Papillon, and a patient guide book. It arranges two national conferences per year and a family weekend for children. Its Medical Advisory Board consists of seven medical professionals from six centers.

United Kingdom (English)
PHA-UK [Pulmonary Hypertension Association (UK)]
MOU (PDF)
www.pha-uk.com
enquiries@pha-uk.com
This registered charity aims to provide support, understanding, and information for all people touched by PH. Its website contains current information as well as message boards and chat rooms. PHA-UK hosts a yearly conference, has a toll-free hotline, and releases a newsletter for members.

Venezuela
Fundación Venezolana de Hipertension Pulmonar (FUNDAIRE) (Spanish)
MOU English | en Espanol (PDF)
www.fundavhip.org
respiremos@gmail.com
The objective of the Venezuelan Foundation for Pulmonary Hypertension (FUNDAIRE) is to raise awareness of PH, which until recently was completely unknown in Venezuela. Thanks to our efforts, and presence on the radio and TV, we have been able to help secure funding for physicians to train in PH in Spain. Additionally, FUNDAIRE has successfully lobbied the government for approval of PH treatments. Our goal is to assist patients and families in obtaining adequate treatment and counseling to help them lead better lives. 

Other PH Associations around the world with which PHA is in contact

Argentina | Australia | Belgium | Brazil | Canada | Canada - Alberta |Canada - British Columbia | Canada - Ontario |Canada - Quebec | Columbia | Czech Republic | France | Greece | Ireland | Latin America | Mexico | Norway | Peru | Portugal |Romania| Singapore | South Africa | Spain | Switzerland | Taiwan | Turkey

Argentina (Spanish)
PHA Argentina
mdiez@ffavaloro.org
alabro@ffavaloro.org

Australia (English)
PHA Australia
www.phaaustralia.com.au/
pha@netspace.net.au

NSW Support Group
jenniferlouisehodges@hotmail.com

Belgium
Belgium PH vzw [Pulmonale Hypertensie Patientenvereniging] (Dutch/some info in French)
www.ph-vzw.be
hendrik.ramaker@telenet.be

HTAP Belgique (French)
www.htap-belgique.be
htapbelgique@hotmail.com

Brazil
Associacao Brasileira de Hipertensao Pulmonar (ABRAHP)
solangearvs@gmail.com

Canada
Pulmonary Hypertension Association of Canada (PHA Canada)
www.phacanada.ca
info@phacanada.ca

Canada - Alberta (English)
Calgary Pulmonary Hypertension Support Group
sharonproudfoot@yahoo.com

Edmonton Pulmonary Hypertension Support Group
havinfun667@yahoo.co

Canada - British Columbia (English)
University of British Columbia Pulmonary Hypertension Society
ubcphs@hotmail.com

Canada - Ontario (English)
The Pulmonary Hypertension Society of Ontario
phs@mnsi.net

Canada - Quebec (English, French)
PPH Quebec
groups.msn.com/PPHQuebec
lyndab64@hotmail.com

Colombia (Spanish)
Fundación Colombiana de Hipertension Pulmonar
www.hipertension-pulmonar.org
comunicaciones@hipertension-pulmonar.org

Czech Republic (Czech)
Sdruzeni Pacientu s Plicni Hypertenzi (SPPH)
www.plicni-hypertenze.cz
lidajelinkova@volny.cz
alarulez@gmail.com

France (French)
HTAP France [Hypertension Arterielle Pulmonaire France]
www.htapfrance.com
secretariat@htapfrance.com

Greece (Greek)
PHA-Greece
giannoulis_phagr@yahoo.gr

Ireland (English)
PHA-Ireland
www.mater.ie/pha-ireland
sdoherty@mater.ie

Latin America
PH Latin Society/ Sociedad Latina de Hipertensos Pulmonares (Spanish)
http://www.sociedadlatinahp.org/
phlatinsociety@hotmail.com

Mexico (Spanish)
Fundación de Apoyo para la Hipertensión Pulmonar del Sureste, AC (FAHIP) (Spanish)
www.hipertensionpulmonar.org.mx
hapmexico@hotmail.com

Norway (Norwegian – includes message board for English speakers)
PHA Norway
www.pha-no.com
hall@pha-no.com

Peru (Spanish)
Asociación Peruana de Hipertension Pulmonar
marielatc@terra.com.pe

Portugal (Portuguese)
RESPIRAR- APHP
www.aphp.web.pt
maria.j.saraiva@clix.pt

Romania
Pulmonary Hypertension Association Romania
www.htap.ro
office@htap.ro

Singapore (English)
Singapore PH Support Group
pulmonaryhypertensionsingapore.googlepages.com
smamub@yahoo.com.sg

South Africa (English)
South African PH Support Group
www.phsa.co.za

Spain
Asociación Nacional de Hipertensión Pulmonar (Spanish, En España)
www.hipertensionpulmonar.es
informacion@hipertensionpulmonar.es

Switzerland
Selbsthilfegruppe Schweiz (German language support group)
www.lungenhochdruck.ch
bosshard@lungenhochdruck.ch

HTAP Revivre (French)
www.saph.ch/SuisseRomande
monika.sorgemaitre@hcuge.ch

Taiwan (Mandarin)
Taiwan Foundation for Rare Disorders (TFRD)
www.tfrd.org.tw
ms05@tfrd.org.tw

TiPAH (support group for Idiopathic PH patients)
www.tipah.org.tw

Turkey
PHA Turkey (Turkish)
www.PHA-Turkey.com
123@pha-turkey.com

OTHER LINKS
Websites containing information for patients living with PH – not affiliated with an association

Canada
Living with Pulmonary Hypertension
www.livingwithph.ca

Mexico
Hipertension Arterial Pulmonar en Mexico
hapmx.ods.org

If your association is not listed please contact PHA’s International Department at international@PHAssociation.org

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