PH International
PHA serves as the hub for information-sharing worldwide

PH Associations Worldwide If your association is not listed please contact PHA’s International Department at international@PHAssociation.org. Argentina Australia Austria Belgium Brazil Canada China Colombia Czech Republic Europe France Germany Greece Ireland Israel Italy Japan Latin America Mexico The Netherlands Norway Peru Portugal Romania Singapore South Africa Spain Switzerland Taiwan Turkey United Kingdom Venezuela New PH associations are being established all the time and PHA is proud to work with them to spread global awareness, information and support. When international groups are sufficiently developed, PHA extends the opportunity to formalize the partnership by signing a memorandum of understanding. MOU-holding PHA partners have demonstrated solid membership, effective organizing and a commitment to cooperate with the international network of associations. If your group is interested in becoming an MOU-holding PHA partner, please contact international@phassociation.org. Associations that hold MOUs with PHA are indicated by a . Argentina PHA Argentina (Spanish) mdiez@ffavaloro.org alabro@ffavaloro.org HIPUA (HIPERTENSION PULMONAR ARGENTINA) asociacionhipua@yahoo.com.ar Lic. Nancy Campelo Manuel Ugarte 2504 2 "B" (1428) Ciudad Autónoma de Buenos Aires Buenos Aires, Argentina Australia PHA Australia MOU-holding PHA Partner (MOU) www.phaaustralia.com.au admin@phaaustralia.com.au PHA Australia overcomes the barriers of isolation experienced by many managing a rare, life threatening illness in a geographically large country. Our mission is to provide hope, support, and education to patients and the medical community, as well as to promote awareness and advocate for the PH community across Australia. Run by patients and their supporters, PHA Australia provides a nationwide state support group network and web-based online support for all who are touched by pulmonary hypertension. We know that TOGETHER WE ARE STRONGER. PH NSW (PH New South Wales) MOU-holding PHA Partner (MOU) www.phnsw.org.au info@phnsw.org.au Providing Hope and Promoting Health Together: Pulmonary Hypertension NSW is a support organization run by patients for patients, their family and friends. Our Mission is to reach all those who are touched by pulmonary hypertension and to support them as they come to realize and accept the challenges of living with PH. We also strive to help raise awareness of this condition and to promote early detection of symptoms and diagnosis. Austria PHA Austria (English, German) MOU-holding PHA Partner (MOU) www.phaaustria.org office@phaaustria.org It is the foundation's major goal to promote PH awareness to the broad public and the medical professionals and to raise money in order to fund PH research laboratories for advancing effective therapies and finding a cure. The Austrian PH self-help group is dedicated to providing PH patients, families, and caregivers with information and education, to improve the communication between patients and medical professionals, and to assist PH patients with all aspects of life as best as possible. Belgium Belgium PH vzw (Pulmonale Hypertensie Patientenvereniging) (Dutch/some info in French) www.ph-vzw.be hendrik.ramaker@telenet.be HTAP Belgique (French) www.htap-belgique.be htapbelgique@hotmail.com Brazil ABRAF (Associação Brasileira de Amigos e Familiares de Portadores de Hipertensão Arterial Pulmonar) (Portuguese) MOU-holding PHA Partner (MOU) www.respirareviver.org.br/ contato@respirareviver.org.br paulamenezes@respirareviver.org.br ABRAF was created with the main goal of raising awareness of PH among the general population and governmental organizations.  Through this effort and others, ABRAF is proactive in diminishing the number of incorrect diagnoses. ABRAF also works to make access to PH medications easier for patients.  By being in touch with the PH global community, ABRAF is able to inform others about the latest improvements through our website, meetings, email and other means. ABRAHP (Associacao Brasileira de Hipertensao Pulmonar) (Portuguese) solangearvs@gmail.com Canada PHA Canada (English, French) (MOU) www.PHACanada.ca info@PHACanada.ca BCPHS (British Columbia Pulmonary Hypertension Society) (English) MOU-holding PHA Partner (MOU) www.bcphs.org lgmccall@shaw.ca The mission of BCPHS is to provide patients and caregivers with support and education, promote awareness of PH, and to raise funds for research. In addition to its website, this group publishes a newsletter and hosts a yearly, day-long symposium. The Manitoba Pulmonary Hypertension Support Group (English) MOU-holding PHA Partner (MOU) http://mbphsupportgroup.webs.com/ mb_ph_group@yahoo.ca Established in 2004, The Manitoba Pulmonary Hypertension Support Group is dedicated to serving the PH community in this province of about 1million people. The group holds regular meetings and members are actively involved in raising awareness of pulmonary hypertension. New Brunswick Pulmonary Hypertension Society (English) MOU-holding PHA Partner (MOU) www.nbphs.org jgendron@nb.sympatico.ca The mission of NBPHS is to provide patients, caregivers and families affected by PH with support and education, to promote PH awareness and advocate for those living with the disease, and to raise funds for research and goals set by the Society. PHA Canada - Toronto Chapter www.phatoronto.ca info@phatoronto.ca Calgary Pulmonary Hypertension Support Group Alberta (English) sharonproudfoot@yahoo.com Edmonton Pulmonary Hypertension Support Group havinfun667@yahoo.co University of British Columbia Pulmonary Hypertension Society British Columbia (English) ubcphs@hotmail.com The Pulmonary Hypertension Society of Ontario (English) phs@mnsi.net PPH Quebec (English, French) lyndab64@hotmail.com China PHA China (Chinese) MOU-holding PHA Partner (MOU) www.phachina.com phachina@yahoo.com.cn Established in 2005, PHA China is dedicated to raising awareness of pulmonary hypertension in the public and educating physicians, patients, and their families. It has an informative website that provides 24 hour free consultancy for PAH patients online, a newsletter, toll-free hotline, patient club, and a Chinese language Patient Survival Guide. Colombia FCHP (Fundación Colombiana de Hipertensión Pulmonar) (Spanish) MOU-holding PHA Partner (MOU) www.hipertension-pulmonar.org fchp@hipertension-pulmonar.org comunicaciones@hipertension-pulmonar.org The Colombian Pulmonary Hypertension Foundation – CPHF – is a non-profit organization whose objective is to provide support to patients, family, and professionals in basic Biomedical Sciences, Medicine and Social and Human Sciences by means of research, assistance, education and ancillary help in Pulmonary Hypertension and those illnesses that generate Pulmonary Hypertension such as Scleroderma and Lupus. The internet site provides information and support by means of a team of professionals, and in the community of patients and family by blogs and chats. Czech Republic SPPH (Sdruzeni Pacientu s Plicni Hypertenzi) (Czech) MOU-holding PHA Partner (MOU) www.plicni-hypertenze.cz lidajelinkova@volny.cz alarulez@gmail.com Europe PHA Europe (English) MOU-holding PHA Partner (MOU) www.phaeurope.org info@phaeurope.org PHA Europe is an umbrella group fostering communication and joint planning among European PH Associations, currently including groups in Austria, Belgium, the Czech Republic, France, Germany, Italy, Portugal, Spain, Switzerland and Turkey. France HTAP France (Hypertension Arterielle Pulmonaire France) (French) www.htapfrance.com secretariat@htapfrance.com Germany PHeV (Pulmonare Hypertonie e.V) (German) MOU-holding PHA Partner (MOU) www.phev.de info@phev.de PH e.v is a foundation dedicated to helping PH patients and their families cope with their personal fates. It offers information for patients and members, works together with national and international institutions, provides contact to specialized professionals, and arranges regular patient meetings. Ph e.V is divided into many dependent regional support groups in order to guarantee an exchange of patient experiences. PH e.v also supports medical research for pulmonary hypertension. Greece PHA Greece (Greek) giannoulis_phagr@yahoo.gr Ireland PHA Ireland (English) www.mater.ie/pha-ireland dmoran@mater.ie and cminnock@mater.ie Israel PH Israel (Hebrew) MOU-holding PHA Partner (MOU) www.phisrael.org.il/ ajberg@gmail.com, iris_tal@netvision.net.il Living with an illness like PH changes the way you experience life and out of this experience came the need to come together and established the Israeli Pulmonary Hypertension association. The association has made its goal to address all aspects of life with PH: medical, emotional, social, financial, and legal. Italy AIPI (Associazione Ipertensione Polmonare Italiana) (Italian) MOU-holding PHA Partner (MOU) www.aipiitalia.org pisana.ferrari@aliceposta.it AIPI is dedicated to providing PH patients, families, and medical professionals with an environment of education, friendship, and support. AIPI has an informative website with message boards, a quarterly newsletter, and a team of individuals available to help support their members. AMIP (Associazione Malati Ipertensione Polmonare) (Italian) MOU-holding PHA Partner (MOU) www.assoamip.net mpproia@tiscalinet.it The mission of AMIP is to increase information about pulmonary hypertension, advocate for those with the disease, facilitate access to health services, and promote and encourage studies, research, and discussions relating to PH. Some of the ways it does this are through their website, newsletter, and regular support group meetings. Japan PHA Japan (Japanese) MOU-holding PHA Partner (MOU) www.pha-japan.ne.jp m-yukiko@cf6.so-net.ne.jp Based out of Tokyo, PHA Japan is dedicated to the fight of PH. In 2003, this organization released a complete Japanese translation of PHA’s Pulmonary Hypertension: A Patient’s Survival Guide by Gail Boyer Hayes.   Latin America PH Latin Society/ Sociedad Latina de Hipertensos Pulmonares (Spanish) www.sociedadlatinahp.org/ phlatinsociety@hotmail.com Mexico HAPMexico (Asociación Mexicana de Hipertension Arterial Pulmonar) (Spanish) MOU-holding PHA Partner (MOU) Spanish (PDF) www.hapmexico.org info@hapmexico.org marthaarenas@hapmexico.org medicos@hapmexico.org FAHIP (Fundación de Apoyo para la Hipertensión Pulmonar del Sureste, AC) (Spanish) www.hipertensionpulmonar.org.mx hapmexico@hotmail.com Hipertension Arterial Pulmonar en Mexico hapmx.ods.org The Netherlands PHA Nederland (Dutch) MOU-holding PHA Partner (MOU) www.pha-nl.com info@pha-nl.nl In addition to providing practical support for patients, PHA Netherlands is active in increasing awareness and education to the general public and doctors. It has a website, brochures, a newsletter, Papillon, and a patient guide book. The group arranges two national conferences per year and a family weekend for children. Its Medical Advisory Board consists of seven medical professionals from six centers. Norway PHA Norway MOU-holding PHA Partner (MOU) www.pha-no.com hall@pha-no.com Peru Asociación Peruana de Hipertension Pulmonar (Spanish) marielatc@terra.com.pe Portugal RESPIRAR- APHP (Portuguese) www.aphp.web.pt maria.j.saraiva@clix.pt Romania PHA Romania (Romania) www.htap.ro office@htap.ro Singapore Singapore PH Support Group (English) pulmonaryhypertensionsingapore. googlepages.com smamub@yahoo.com.sg South Africa South African PH Support Group (English) www.phsa.co.za Spain ANHP (Asociación Nacional de Hipertensión Pulmonar) (Spanish) www.hipertensionpulmonar.es informacion@hipertensionpulmonar.es FCHP (Fundación contra la Hipertensión Pulmonar) (Spanish) www.fchp.es info@fchp.es Switzerland HTAP Revivre (French, German, Italian) www.saph.ch/SuisseRomande monika.sorgemaitre@hcuge.ch Selbsthilfegruppe Schweiz (German language support group) www.lungenhochdruck.ch bosshard@lungenhochdruck.ch Taiwan TFRD (Taiwan Foundation for Rare Disorders) (Mandarin) www.tfrd.org.tw ms05@tfrd.org.tw TiPAH (support group for Idiopathic PH patients) www.tipah.org.tw Turkey PHA Turkey (Turkish) MOU-holding PHA Partner (MOU) www.phdernegi.org.tr www.PHA-Turkey.com (Patient Support Group website) utali@hotmail.com, Ümit Atli arisoye@gmail.com, Ebru Arisoy Established as a support group in 2006 and officially established in 2008, Pulmonary Hypertension Association Turkey aims to enhance the quality of life of pulmonary hypertension patients, to try and deal with and resolve the problems and requirements of pulmonary hypertension patients. PHA Turkey has an informative website, arranges monthly patient meetings and is a member of PHA Europe. United Kingdom PHA UK MOU-holding PHA Partner (MOU) www.phassociation.uk.com office@phassociation.uk.com This registered charity aims to provide support, understanding, and information for all people touched by PH. Its website contains current information as well as message boards and chat rooms. PHA UK hosts a yearly conference, has a toll-free hotline, and releases a newsletter for members. Venezuela FUNDAIRE ( Fundación Venezolana de Hipertension Pulmonar) (Spanish) MOU-holding PHA Partner (MOU in English) (MOU en Espanol) www.fundavhip.org respiremos@gmail.com The objective of the Venezuelan Foundation for Pulmonary Hypertension (FUNDAIRE) is to raise awareness of PH, which until recently was completely unknown in Venezuela. Thanks to our efforts, and presence on the radio and TV, we have been able to help secure funding for physicians to train in PH in Spain. Additionally, FUNDAIRE has successfully lobbied the government for approval of PH treatments. Our goal is to assist patients and families in obtaining adequate treatment and counseling to help them lead better lives.

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