Press Releases
6/16/09
New Source of Information on Pulmonary Hypertension Medications
PHA recently collaborated with NeedyMeds, a non-profit that connects patients who cannot afford their treatment to various prescription assistance programs and resources, to create a PH-specific resource page.
5/18/2009
Pulmonary Hypertension Association Names Dr. Nicholas Hill Recipient of 2009 Award of Excellence in Pulmonary Arterial Hypertension (PAH) Care
The Pulmonary Hypertension Association (PHA), Tufts Medical Center, and Actelion Pharmaceuticals US, Inc., today announced Dr. Nicholas Hill of Tufts Medical Center as the recipient of the 2009 PHA Award of Excellence in Pulmonary Arterial Hypertension (PAH) Care.
3/13/2009
For Pulmonary Hypertension Community, Research and Education Act a Labor of Love
Pulmonary hypertension (PH) patients don’t have a lot of breath to spare, but the PH community is doing what it takes to spread the word about the Tom Lantos Pulmonary Hypertension Research and Education Act of 2009 (H.R. 1030). The bill was introduced February 13 by Representative Kevin Brady (R-TX) and Representative Lois Capps (D-CA) who, despite their parties’ differences, are united in their fight against this rare, incurable disease.
12/2/2008
Pucker Up 4 PH Campaign collects kisses to raise awareness of pulmonary hypertension
The Pucker Up 4 PH Campaign, organized by the PHA in the United Kingdom (PHA-UK), is
part of an international effort among the 47 PH associations in countries around the world to
raise awareness of PH by collecting blue kisses.
Browse the PHA Press Release Archive |
1/26/09
Kindergartener Not Slowed by Rare Condition
(9 WSYR – Syracuse) - She's one of a kind in Onondaga County -- and really, there are very few like her, anywhere. Sarah Peek is a little girl with pulmonary hypertension, or high blood pressure in the main artery of the lungs.
01/09
Hope and Courage: Living with Pulmonary Hypertension
(Sarasota Magazine) -- Gail Bucci, 52, is a petite woman with fiery red hair, glowing skin and an ear-to-ear smile. She’s the picture of health, but looks can be deceiving. She’s fighting a deadly disease called pulmonary arterial hypertension. Today, Bucci is winning the battle. It took her several years before she knew what she was fighting.
1/5/09
Silent illness: Pulmonary hypertension is a Rare Disorder That's Hard to Diagnose
(Desert News) -- Katy Doak was 4 years old when she unexpectedly fainted, the first hint that something was seriously wrong with her. Later, looking back, her mom would remember that she wasn't as active as other little kids. She seemed drawn to "quiet" activities.
1/2/09
Green Bay Woman Gets Second Chance at Life
(Green Bay Press-Gazette) -- Two years ago, the Green Bay resident learned she had less than a year to live. In the midst of battling pulmonary hypertension, she also found out her kidneys were failing.
12/31/08
Hospital's Palliative Care Program Evolving Thanks to a PH Patient
(Desert News) -- When Virginia Martin was dying, her doctor sat with her for hours "as if he didn't have another case in the world. They talked about everything, and he answered all her questions," remembers daughter Cathleen Frome.
Browse the full archive of PH-related news stories
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