RELATED HEALTH ORGANIZATIONS

Disclaimer: The Pulmonary Hypertension Association does not own, control or endorse any of these sites and is not responsible for their content.
AARC Logo American Association for Respiratory Care (AARC), a professional organization for respiratory therapists, created YourLungHealth.org to provide patients with information on lung diseases and healthy living.
American Academy of Sleep Medicine provides information on sleep and sleep disorders, and can help patients find accredited sleep centers to help improve sleep patterns.
About 500,000 adults in the United States currently live with congenital heart disease. For more information and support go to Adult Congenital Heart Association.
American Heart Association offers resources to help manage cardiovascular health.
Several clinical studies have shown a 20% higher prevalence of pulmonary hypertension in patients with advanced liver disease. For information and resources go to American Liver Foundation.
American Lung Association works to improve lung health through education, advocacy and research.
HHT is a genetic disorder that causes abnormalities of blood vessels. Read more at Hereditary Hemorrhagic Telangiectasia (HHT) Foundation.
American Thoracic Society Public Advisory Roundtable is a partnership between ATS and organizations that represent people affected by respiratory diseases, sleep-related conditions, and related critical illnesses with the intent of advancing shared educational, research, patient care, and advocacy goal.
The National Institute of Health’s Office of Rare Disease Research provides information about more than 6,000 rare diseases, current research and clinical trials, and support groups.
The National Organization of Rare Diseases (NORD) offers many programs and services for people living with rare diseases. Go to NORD for more information.
People with sickle cell disease have red blood cells that become hard and pointed instead of soft and round. Sickle cells cause anemia, and can be associated with pulmonary hypertension. Read more at the Sickle Cell Association of America.
Though the exact number of pulmonary hypertension patients with scleroderma is not known, estimates range from 10% to 60% of scleroderma patients, read more at Scleroderma Foundation.

 Scleroderma Research Foundation is dedicated to finding improved therapies and a cure for scleroderma by funding research and Scleroderma Centers of Excellence, which provide multi-specialty clinical care in dedicated facilities throughout the US.

artey logo

It's My Heart exists to provide support and education for those affected by Congenital and Pediatric Acquired Heart Defects. Through awareness, resources and education, It's My Heart creates alliances and networks among families, groups, hopsitials and the community. 

COPD Foundation

The mission of the COPD Foundation is to develop and support programs which improve the quality of life through research, education, early diagnosis and ehanced therapy for persons whose lives are impacted by Chronic Obstructive Pulmonary Disease. 

  Amfar Logo2  Founded in 1985, amfAR is dedicated to ending the global AIDS epidemic through innovative research.
NIDA NIDA's mission is to lead the Nation in bringing the power of science to bear on drug abuse and addiction.
Lupus Logo The Lupus Foundation of America is the only national force devoted to solving the mystery of lupus, one of the world's cruelest, most unpredictable and devastating diseases, while giving caring support to those who suffer from its brutal impact. 
The Lupus Research Institute is uniquely dedicated to novel research in lupus. 
Today, WomenHeart looks toward its second decade of providing education, support and hope to millions of women and ensuring that every woman has access to prevention and early detection, accurate diagnosis and proper treatment. 
National Heart, Lung, and Blood Institute (NHLBI) - Bethesda, MD The National Heart, Lung and Blood Institute (NHLBI) provides global leadership for a research, training and education program to promote the prevention and treatement of heart, lung and blood diseases and enhance the health of all individuals so that they can live longer and more fulfilling lives. 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.