PHA’S INTERNATIONAL SEED GRANT PROGRAMS

PHA Japan members

Members of PHA Japan at
their first patient conference

Empowering the International Network of PH Associations

The international network of pulmonary hypertension associations is steadily growing. As it does, patients, their families, and their medical professionals benefit from improved access to support and information. Associations throughout the world affect legislation and access to treatments, drive research, and motivate positive change.

To encourage the development of international associations, the Pulmonary Hypertension Association (PHA) offers a limited number of International Seed Grants of up to $10,000USD to PH associations outside the U.S. with non-profit status that propose projects that will help strengthen the group and achieve its goals.

International Seed Grants offer real results

In making these grants available, PHA enables associations to:

  • Grow your membership and organizational impact
  • Implement new ideas and activities
  • Build visibility and understanding of PH in your national community
  • Educate patients and medical professionals
  • Accomplish appropriate programs and projects

Your experience will help others

All associations that receive grants are expected to report on their experiences once every six months for the duration of funding and again at the completion of their projects. These reports are shared on PHA’s website as a best practices resource for the international community, showing how projects are accomplished and what the value of those projects might be for other associations.

Understanding the awards process

Seed grants are awarded to emerging and developing PH associations outside the United States. To be eligible, these associations must meet the following criteria.

  • Applying organizations must be government-registered (the equivalent of a 501(c)(3) organization in the United States). Applications must include articles of incorporation or other relevant documentation in order for PHA to be able to provide funding.
  • Associations must involve pulmonary hypertension patients, their family members, and medical professionals.
  • If an applying association has 20 or more members, including patients, families, and medical professionals, it must become an MOU-holding PHA partner in order to be eligible for an International Seed Grant. This partnership prepares applying organizations to share and receive additional information and support. If an organization meets all of the criteria to qualify for a seed grant but has not signed a Memorandum of Understanding with PHA, it will be eligible to apply for the grant once it has entered into that partnership with PHA.
  • If an organization is not yet qualified to sign a MOU (either because its membership does not include PH patients, families and/or medical professionals, or because it does not have a membership of 20 or more), it is still eligible to receive a Seed Grant and may apply. Once the association has met the requirements of a MOU-partnership, it must enter into MOU discussions with PHA.
  • Applications must be made by leaders within the national PH organization, or by officers authorized to sign documents on behalf of the organization.

PHA is grateful to Pfizer, Inc., for supporting the development of international PH associations by providing the unrestricted educational grant that makes the International Seed Grant program possible.

Ready to apply?

Interested associations can apply online or contact PHA’s International Department at International@PHAssociation.org. You will receive a packet of application materials and you will be asked to submit the following:

  • A completed application form detailing your proposed project or activity
  • An itemized budget outlining how you expect to use the money awarded
  • A list of leaders, founding members and/or active volunteers
  • A plan of action indicating the steps and tasks required for successful completion of the proposed plan or activity
  • Articles of incorporation or other relevant documents demonstrating that your association is a government-registered non-profit organization (the equivalent of a 501 (c) (3) in the United States). If these documents are not prepared in English, an English translation must also be submitted.

Completed applications and all attachments should be submitted to PHA by mail, email or fax:

Apply Online
Apply Now

To mail, email or fax, you may use this printable application (PDF). Download and fill it out then print, or print it and fill it out by hand. 

Mail
Attn: International Services Manager
Pulmonary Hypertension Association
801 Roeder Road, Ste 1000
Silver Spring, MD 20910, USA

Email
International@
PHAssociation.org

Fax
Attn: International Services Manager
301-565-3994

You will be notified when your proposal has been received.

Submission Deadline and Review Process: when and how are decisions made?

International Seed Grant applications are received and considered on a rolling basis as they are submitted. Applications are reviewed by the International Seed Grant Review Committee within 30 days of receipt to ensure compliance with all necessary guidelines and procedures. Applications are accepted on a first-come, first-serve basis and are reviewed as long as funding is available.

The International Seed Grant Review Committee evaluates applications for the following:

  • Feasibility of the proposed project
  • Potential impact of the project or program
  • Likelihood that the project or program, as presented, will meets its stated goals
  • Thoroughness of planning and preparation for the project or program
  • Post-grant sustainability
  • Likelihood that other national PH associations may see the proposed project or program as valuable and achievable in their own communities
  • Demonstration of ways in which the structure of the applying organization reflects the successful model being adopted by PH groups globally, i.e. that the applying organization involves patients, family members, and medical professionals.

The International Seed Grant program is also intended to educate developing organizations on applying for grants so that in the future those associations may use these skills when pursuing funding from other organizations, companies, and agencies. As such, in reviewing Seed Grant Applications, the Review Committee may choose one of the following categories of decision:

  • Accepted.
  • Provisionally accepted on the condition that appropriate clarification or adjustments are provided. In the event of this decision, referred to as a “Category #2” response, the Review Committee will indicate specific questions or areas of concern and applicants will have the opportunity to resubmit the proposal with appropriate changes within 30 days of being notified of the Category #2 decision.
  • Rejected. A short explanation will be provided in the case of a rejected application.

What if my proposal is rejected?

If your application is rejected, you may resubmit a fundamentally different proposal in accordance with the Committee Guidelines described above.

If your group’s proposal is not selected and you choose not to reapply, PHA may still be available to work with your PH association to help you achieve the goals you laid out in your proposal.

My organization has been approved for funding. Now what?

Congratulations! Your hard work paid off and now you can put your program into action!

Before your organization can receive its funding, it will be asked to sign a Grant Agreement with PHA. This agreement assures that the funds are used appropriately. The Grant Agreement will be sent to you along with the final decision of the Committee.

Once your organization has been awarded a Seed Grant, you are expected to provide PHA with a written interim report every six months until the money has been spent, at which time you will be required to submit a final report. These reports should describe how the funds have been used and the progress made toward achieving the program’s objectives. The report must comply with the terms of the grant outlined in the Grant Agreement. Interim and Final Report forms will be sent to you along with that agreement.

 


Read about
 PAST SEED GRANT
WINNERS

ABRAF (Brazil)
PHA Austria
PHA Canada
PH Israel
PHA Japan
HAP Mexico (AMHAP)
FUNDAIRE (Venezuela)

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.