BUILDING AN EFFECTIVE PH ASSOCIATION

Getting Organized

Create a Mission Statement for Your Organization

"Medical advisory boards are important to help in the guidance of a society... They should be part of a national PH society."
-
British Columbia PH Society

Why should I create a mission statement and statutes?

The work you do today will shape the future of pulmonary hypertension in your country for years. Creating a clear mission statement - one that squarely addresses your vision, goals, and objectives - will help establish an identity for your association. Keep your focus on the "big picture" and boldly state your aspirations and priorities.

Your mission statement will guide your work and make the nature of that work clear to other associations and government bodies. Your membership will return to it again and again for encouragement and motivation to continue working against PH. For ideas, take a look at the mission statements of the associations featured in this guide. While both should be clear, they can also be simple and flexible.

How can I create a mission and statutes?

Many associations choose to promptly create formalized structures, such as medical advisory committees involving physicians, nurses and researchers. If you are unable to create such a structure – or if you decide against it for the time being – try to involve medical professionals and PH scientists in a less formal advisory capacity. Doing so will add credibility to your work and synergy to the association.

The advice and guidance of medical professionals will help ensure that the information you are providing to patients and the public is accurate, and because they often work in connection with other medical professionals, your association will benefit from the growing body of knowledge they can contribute to.

Remember that medical professionals tend to see many patients and serve many roles in the hospitals and clinics in which they work. For this reason, they may be quite busy already and will appreciate clearly defined expectations and time-limits. Many medical professionals are eager to help their patients and enhance their understandings of their work and PH; find ways to engage them in your association that complement their schedules and availability.

Next: Getting Organized - Starter Tip >>
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.