Getting the Word Out

To Do List

  • Create a logo to help identify the association.
  • Establish a web presence that lets people in your country know about your work and learn about PH.
  • Get the help of a trusted medical professional to review all of the information you publish online and in print.
  • Use your creativity to assess the needs of the PH community in your country and find ways to reach out to them.
  • Collaborate with related organizations and medical associations.
  • Work toward a presence at PH clinics and medical conferences.

Next: Getting Down to Work >>
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.