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"Start small and work up, don't expect to start with a lot of people. We [patients] are few and far between, so anyone wanting to start a society needs to have the time to commit themselves, as a lot comes from one or two key people. Things will then branch out, but one must have a lot of motivation to keep the 'ball rolling'." - British Columbia PH Society
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.