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I Secured a PH Research Act Co-Sponsor. You can, too!
PH patient and PHA Board of Trustees member Colleen Brunetti visited Washington, D.C., and talked to her Members of Congress about the Tom Lantos PH Research and Education Act. Her efforts helped secure another co-sponsor for the bill, Sen. Richard Blumenthal! Read more
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Congressional Luncheon Reaches Legislators from Coast to Coast
December 2012 — PHA's annual Awareness Month Luncheon on Capitol Hill boasted the most diverse group of PHers and their loved ones ever. More than thirty PH community members from twelve states attended! Read more
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PHers Secure Record Busting 80 Proclamations During Awareness Month
December 2012 — PHers doubled their efforts to secure proclamations this year and it paid off! Eighty towns, cities and states declared November Pulmonary Hypertension Awareness Month — more than double the number of proclamations from Awareness Month 2011! Read more
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PHers Drum Up Support for PH Bill in Their Congressional Districts
August 2012 — "People probably think, 'What difference can I make?' Listen, I'm one person. I've been in that congressional office and I've gotten a Member of Congress to co-sponsor after my meeting. If you get to one person, you make a difference," Nicole Cooper said about gaining co-sponsorship of the Tom Lantos PH Research and Education Act. Read more
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PH Bill Gains New Co-Sponsors
July 2012 — Since the beginning of the year, six U.S. representatives have become co-sponsors of the Tom Lantos Pulmonary Hypertension Research and Education Act! Each new Member of Congress who adds his or her name to the PH bill represents a PH patient, caregiver or medical professional who contacted that Member and shared a story. Six Members signed on after receiving visits during PHA’s Congressional Luncheon in November, but some signed on after a simple phone call or email from a constituent. Learn more about keeping your Member of Congress aware of the PH community. Read more
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PH Community Builds Momentum for More PH Research and Education
June 2012 — PHers around the country joined PHA Conference attendees in an effort to make the most of our numbers. The goal was simple: to build support for the Tom Lantos Pulmonary Hypertension Research and Education Act by urging our Members of Congress to cosponsor the only PH-specific bill in Congress. Since the beginning of the year, PHers requested their Members of Congress cosponsor the PH Research and Education Act 1,280 times. Thanks to everyone for tirelessly advocating for a PH cure! Read more
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Laura D’Anna Spreads PH Awareness to Congress
April 2012 — In April, Laura D'Anna, Immediate Past Chair of PHA's Board of Directors, came to Washington, D.C., to raise PH awareness and ask her senators and representative to co-sponsor the Tom Lantos PH Research and Education Act of 2011. We asked Laura a few questions about her experience on Capitol Hill. Read more
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Congressional Staffers Inundated with Phone Calls for a Cure
April 2012 — PHers across the country called their Members of Congress during PHA National Call-In Day on April 26 to urge them to co-sponsor the Tom Lantos PH Research and Education Act of 2011. Thanks to everyone who called and made the day a resounding success! Read more
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Penn. State Rep. Keith Gillespie Puts Spotlight on PH
Penn. State Rep. Keith Gillespie interviewed PH patient and York PH Support Group Leader Michael McAdams and Dr. Dmitriy Zubkus, York Hospital Pulmonary Hypertension Program Director for his 30 minute online legislative program. They talked about pulmonary hypertension, barriers to diagnosis, Michael’s personal journey with PH and his local support group. Over the last two years, Michael has actively advocated to State Rep. Gillespie about the need for more PH research and education. Michael asked him to declare November PH Awareness Month and last year hosted State Rep. Gillespie at a support group meeting. Watch Michael's interview with State Rep. Gillespie
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PH Research and Education Act Gets a Wave of Congressional Support
January 2012 — Thanks to the hard work of several PH advocates, the following Members of Congress became official co-sponsors of the PH Research and Education Act in the new year: Read more
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