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MEDIA GUIDE

Use this guide for comprehensive, step-by-step instructions on how to raise awareness of PH through the media. You’ll find information on sharing your personal story, promoting events and meetings and airing public service announcements. Plus, you’ll find tips and resources that will help you as you contact your local news outlets.

To order free copies of PHA's Press Kit or the PHAware Campaign Media Guide, contact Elisabeth by writing to PHAware@PHAssociation.org or call 301-565-3004 x753.

The Basic Steps Start here to master the basics of contacting the media and sharing your story.	Media at PH Events Draw participants to your Special Event or support group meeting by promoting it in the media. Or, encourage reporters to cover PH by inviting them to your event.
Share Your Story Educate your community by sharing your personal journey through diagnosis and life with PH.	Public Service Announcements Share information on PH with a large number of people in your area by working with radio stations on PSAs.
Letters to the Editor and Op-Eds Get the word out about an important PH-related event or issue in an easy, straightforward way.	Tips and Resources Learn tips about how to contact the media, how to work with reporters and how to write effective press releases and PSAs.

Online Press Room -- A Great Resource For Reporters

PHA's Press Room provides reporters with essential information on PH so they can stop researching and focus on your story.

Visit PHA's Online Press Room

Sign Up For PHA's Media Matters! Alerts

Receive media updates from PHA including breaking news opportunities, success stories and tips for getting your story covered.

Learn From Media Experts—Your Fellow PHers!

Share experiences, and ideas and tips with your fellow PHers by joining the PHAware Campaign email group.

Sign up today: PHAware-subscribe@yahoogroups.com

MEDIA SUCCESSES

Woman smiling “People need to hear your story. Don’t be afraid to tell it.”

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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	The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.