UNDERSTANDING & CHOOSING YOUR INSURANCE

“Get educated and be an expert in PH. Know what you are talking about and it will carry you far.”
- PH Patient

Need More Information About Your Plan or Potential Plan?

Baby PH patient and caregivers

Whether you are covered by a public plan or a private plan, you want to be an informed consumer. Accessing your treatment may depend on how well you know your plan and entitled benefits.


 

 

 

Contact us with insurance questions, success stories, suggestions, or requests to volunteer.


FIND IT FAST

Help Build Our Program

Contribute an Insurance Letter
Submit a successful insurance letter to our template letters collection and help other PHers overcome insurance challenges!

Browse our collection and learn more about submitting a letter.

Become an Insurance Volunteer

Carol Morrison, PHA insurance volunteer


Carol Morrison, PHA insurance volunteer, uses her 15-plus years of experience in the insurance industry to help develop resources for the PH community.

Get involved with PHA's insurance program

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.