PARTICIPATE IN RESEARCH AND CLINICAL TRIALS

Research room at conference
Research Room at 2006 PHA Conference

By participating in pulmonary hypertension research, you can provide scientists with information that may be vital to the development of new treatments for PH.

Clinical trials are studies that come at the end of a long and careful PH research process. They involve the study of real patients to determine whether promising treatments are safe and effective. There are currently hundreds of trials on PH being conducted in the United States and around the world.

Considering a clinical trial?

Participating in a clinical trial can be a big decision. Before signing on to one, it’s important to understand what will be involved and how the trial will impact your life. If you are interested in participating in a specific clinical trial, consult with your PH specialist to determine whether the trial is right for you.

Know that you and your family members may be asked to share your medical histories with researchers. Depending on the nature of the study, you may also be asked to provide blood, urine samples or DNA. Most research studies will pay to obtain and ship any biological specimens required.

Read more information on clinical trials from the National Institutes of Health.

Read a quick guide to Understanding the Process and Importance of Clinical Research.

Learn more about pulmonary hypertension clinical trials on PHA's website.

Other ways to aid PH research

Donate lung tissue specimens

If you are scheduled for a lung transplant, you can request that your lungs be donated for medical research purposes.

Plan for organ donation

Anyone can choose to be an organ donor. PH patients who donate their organs contribute to science’s growing knowledge about this disease. If you choose to donate your organs to PH research, inform your family and talk to your doctor about taking the necessary steps to make this possible.

 

ADVOCATE FOR RESEARCH FUNDING

Put your Members of Congress to work for you, their constituent. Ask them to support federal funding for PH research and education.

Advocate for PH research funding


Donate to Research

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.