About the People Who Fundraise

In Memory of Grandmother of
Samantha Wiener: Bat Mitzvah

Samantha WienerWhen Samantha Wiener was preparing to become a bat mitzvah (a coming of age in the Jewish religion), she asked her guests to make gifts to PHA in honor of her celebration and in memory of her grandmother, who had passed away two years earlier following a battle with PH. As a means to further raise awareness about PH, Samantha chose to display materials about PH and PHA at her reception.

>When asked about her motivation to remember her grandmother in this special way, Samantha said, “It was really sad for me to see my grandmother suffer and I don’t want others to have to experience that. I want to see research lead to a cure. My grandma was not diagnosed until shortly before her passing, so I want to support PHA’s medical education programs so that more patients will be diagnosed and put on treatment before it’s too late. We had never heard of PH before my grandmother was diagnosed. I found PHA on the internet and it provides so many great resources; I wish we knew about PHA when my grandma was still alive.”

Contact us at 301-565-3004 x742 or to learn more about the program.

Read Al's Story

Read the Curtis’ Story: Celebrating 50 Years Together

Read Jen and Tommy’s Story: Educating Wedding Guests


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.