PHA is Here to Help!

2009 TX Bug BoilIf you’re planning an officially recognized PHA fundraiser, PHA is here to help! The list below includes some of the many ways we provide support to volunteer special events organizers.

Contact PHA’s Senior Manager of Special Events, Joshua Griffis, at 301-565-3004 x742 or to arrange the following or to request additional assistance.

To support you and your special event, PHA:

Connect with other PHA community members

Through PHA Support Groups: PHA works with more than 215 PH support groups across the nation, and we can put you in touch with the one closest to you. Group leaders and members can lend ideas and planning support, as well as connections to local medical professionals, pharmaceutical companies and businesses that can offer assistance for your event.

Through PHA Special Events Mentors: We offer a peer-to-peer mentorship network of experienced special events volunteers who can advise you in your planning. Contact PHA’s Special Events Manager, who will personally match you with another who has planned a similar event in the past!

Request educational and awareness displays and materials

PHA tabletop displayPHA tabletop display

PHA will send you educational brochures, fliers, and other materials in convenient sizes and shapes to use in a PH display or in your event “goody bags.” To supplement your awareness-raising efforts, banners and tabletop displays are also available for loan on the basis of availability.

Order free educational materials online (please allow 3 weeks for delivery) or contact PHA directly.
Order popular PHA mementos to sell at your event

Receive assistance with visibility and recruitment

PHA will mail event fliers and brochures to our members in your region, helping to spread the word and increase attendance! In addition, PHA will also include your event details in our special events online calendar, advertise it in our quarterly newsletter, Pathlight (time permitting), and in our twice-monthly e-newsletter, PHANews.

Apply for event sponsorship

Through PHA’s Special Events Central Fund: Established in 2009, the Fund assists special event organizers in securing sponsorship for PHA-recognized special events. The Fund acts as one of many possibilities for event sponsorship. All applications are reviewed by an external review committee and accepted on a rolling basis.

For information on PHA's Special Events Central Fund, please contact

Learn more about securing additional sponsors for your event

Benefit from non-profit tax status and acknowledgements

Because your event is raising money for PHA, a non-profit organization with a 501(c)(3) tax status, most funding raised from registration fees, general donations, donated items for your auction or raffle, and sponsorships, is tax deductible to the full extent allowable by law!* PHA works hard to ensure that your donors and sponsors receive their tax acknowledgements. All you need do is ensure that checks are written out to PHA with your event’s name in the memo line. In addition, for in-kind donations, be sure to keep track of the contact name, address, item/good/service and its value.

*Sales tax needs to be paid on items purchased for your event, except in Maryland, Florida and Texas.

Request and explore print and online resources

Print resources: We provide free step-by-step Fun Walk and House Party kits to aid you in planning process of these signature PHA special events. Contact PHA’s Special Events Manager to request your copy.

Online resources: PHA special event planners receive a bi-monthly e-newsletter prepared just for you with planning tips, updates, and other useful resources.

Download back issues




Are you currently planning a PHA-recognized event? Submit your event and we’ll publicize your fundraiser on our special events calendar.

Submit your event


Eventful Times Newsletter

Are you planning or interested in planning a PHA Special Event? Sign up to receive Event-ful Times, our quarterly e-newsletter!

Sign up for Event-ful Times

Request Print Resources

Cookin' Up a Cure
Order your free Fun Walk kit

Order your free House Party kit

Special Events Forum

Connect with our nationwide network of volunteer special events organizers. PHA's Special Events Forum is an email group for sharing and receiving planning tips, advice and encouragement!

Join PHA's Special Events Forum (Requires a free Google account. Please allow a short delay while your group membership is processed.)

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.