Our Journeys

Patients tell their stories:

Irene Adkins
Diane Adkins
Marla Akins
Nakia Allen
Josephine Alvarado New!
Susie Alvarez New!
Nina Amick
 
Christopher Anderson New!
Anonymous
Pam Bagwell
Priya Balachandran
Juliet Balubar New!
Yolunda Barquet 
Debi Barry 
M. Cindy Bennett
Marcia Beverly
Patricia Boaz
Raye Bohn
Craig Bond

Katy Bove
Julienne Brock 
Geraldine Brown New!
Braden Buehler
Jaclyn Burdick
Tami Burke-Heckler 
Larry Bush New!
Chris Campbell
Debra Carrabbia
LaVerne Cash
Janet Cecil
Sharon Chetty
Barbara Ching New!
Minju Choi
Julie Clark
Marilyn Clements
Dolly Clinard

Jody Coffey
Colleen
Lindsay Collins
Kelli Cornett
Amy Cortney
Kristie Coulter
Kim Craft
Suzanne Cressell
Sue Crowder
Diana Curtis 
Mary Ann Dahmen New!
Elsa Dasigo 
Olga de Leon New!
Margret DeVine
Diana
Kevin Doty
Bonnie Dukart 
Danya Edwards 
Angela Eldam
Portia Ellis
Eleanor Everett
Brittany Evans 
Sue Evans 
Susan Ferguson
Victoria Fink
Elise Firestone 
Heather Fischer New!
Pauline Fischer  
Alex Flipse 
Jessie Follett
Kimberlee Ford
Sylvia Fox
Julie Frazee
Dee Freeman 
Edward Freundl
Marie Garner 
Jim Gebhardt
Lynda Gettier
Diego Gil Cardozo
Mary Gillam
Tina Gillis 
Nairivis Maiz Gonzalez
Suzanne Gonzales 
Susan Gould
James Grea
Debbie Greer 
Vonetta Grey
Cheryl Guillory
Vanessa Hale New!
Marilyn Haney
Ellen Harris
George Harris
Jennifer Hayes


Donna Head
Robyn Heinrichs
Lorena Dávila Hernández
Pamela Herriman New!
Dina Hickman New!
Yoko Hooper
Barbara Howard 
Becca Hubbard
Rosanne Huber

April Clemmons Hughes
Scott Hughes
Donna Ice
Joyce Iman
Karen Janjanin

Nicole Jardim

Joanne

Lindsay Johnson
Bonnie Keller
Jacky Kelly
Honey Kennedy
Jacqueline Kirk New!
Mary Ann Konola 
Violet Ladd
Dr. Felix Lara
Betty Lait
Patricia Lawson
Shon Lawson New! 
Ornah Levy New!
Bettie Lewis
Julie Lisante
Raaitjie Lock
Carolyn Lombard
Amy Long
Jaimie Love 
Haley Lynn
Sally Maddox
Perry Mamigonian
Lillian Martinez-Jimenez 
Patti Mathias New!
Morgan Mattix New!
Lora Mausling
Charlotte McCabe 
Mack McCarthy
Jessica McClure 
Clarence McGee 
Amanda McKee
Rachel McPHee
Hara Mihalea
Laurie Montoya New!
Lindsay Morales
Yunena Morales
Lora Moranti
Jeannette Morrill
Kathy Morton New!
Kevin Mueller
Elaine Mullens

Nicolene Muller
Shannon Munson
Lismarí Muñoz New!  
Keisha Nance
Hasnaat Naushahi
Karima Neal
Robin Nelson
Clarissa Newman
Robert Ngo
Rose Niedbalski 
Denneys Niemandt
Valerie Norton
Jill Oliver 
Edna Irene Ohrbom
Regina O'Neal 
Teresa Orta New!
Jhenna Pacelli
Neeta Pai 
Pam
Linda Parshley
Traci Patnoude  
Patricia Patterson 
Denise Payne 
Barbara Peachey 
Donna Pedersen
Art Petersen
Leslie Polss
Sheryl Powell 
Kim Presswood
Cathy Price
Yadira Pulido 
Debbie Rainwater New!
Deziree' Rivera
Lois Ramos 
Dale Rankin-Mack
Merle Reeseman
Donna Rennie
Rodger Richardson
Tonya Robertson 
Nellie Rodrigues 

Janet Cecil
Nikki Rogers
Paige Ruffin New!
Pooja Salgaonkar 
Mauricio Sánchez
Earl Selvage 
Tammie Sharp

Jill Shaw

Karen Shelley
Nicole Shirey 
Joanne Schmidt
Belinda Shrestha
Monica Sifuentes
Christine Silks
Barbara Smith
Carson Smith 
Dawn Smith 
Julie Smith
Sharon Smith 
Carol Smith-Biggs New!
Michelle Snyder
Ralph Spaulding New!
Aggie Stefanelli
Amy Stephens 
Linda Lee Stewart
Brandi Stickney
Janet Stone 
Nancy Stubbs
Linda Sullivan 
Gina Tackett
Suzy Tarver
Kiara Tatum
Susan Temple
Debra Tenney
Barbara M. Thomas New!
Jennie Thomas
Barbara Thompson
Katie Tobias 
Tami Trost 
Maria Del Valle
Julia Vandenburg
Sandy Vandiver
Valerie Varn
Penelope Vazquez
Denise Wathen
Brenda Weisz
Debra Whelan
Melanie Whitesides
Frank Williams 
Michelle Williams 
Heather Wilson
Sandy Wolter New!
Yana Yakovleva New!
Sharren Yamron 
Kassandra Yarnell
Jamie Ziegler New!

Patient stories — as told by Family/Caregivers

Vincent Accurso
Diane Adkins
Aine's Story
Eliana Alderete
Amber
Brian Dancy
Paiton Cale
John Chastain
Caroline Clemens
Derek
Kathy Forrest
Gail
Braden Gendron
Katie Grace Groebner
Maddie Heaton
Janice
John New!

Jim Jordan
Josiah

Tina Loader
Victoria Kate Lynn
Lily McGlone
Evelyn Melendez
Shaye Meyers New!
Kathleen Richardson
Chester Newby, Sr.
Shannon O'Donnell
Parker 
Hailie Sandstrom
David Sisk
Joanne Stearns 
Lucas Van Wormer
Yolanda Vasquez
Denise Vigue
Sieglinde Wilson
Sean Wyman

Carson Smith

Ellen SmithCaregiver Stories

Allen
Brian Corrigan
Craig Courtney 
Margaret Goodwin
Pat Gunn
Jean March
Teresa Meyers
Carmel Norton
Jane Northrop 
Gwen Olitsky New!
Michael Rivera
Patricia Monica Rosemburg
Karel Schulz
Yalan Tang & Chen Qi
Jayna Wall

 

 

Mary SiskFamily Stories

Judy Simpson, R.N., E.D.S (PDF)
Coleen Bethel

Cherie Brewer
Debbie Castro
Jessica D'Agostino 
Christina Doak New!
Lisa Young

 

 

Cristhiaan Ochoa, MDPH Nurse Stories

Shiela Bostelman, RN, MSN, CPNP, CCTC
Louise Durst, RN
Deb McCollister, RN, BSN
Frances Rogers, MSN, CRNP
Traci Stewart, RN, MSN
Glenna Traiger, RN, MSN
Melisa Wilson, APRN, BC 

PH Physician Assistant Stories

Jessica Lazar, PA

PH Specialist Stories

Murali Chakinala, MD
Karen Fagan, MD
Paul Fairman, MD

John Newman, MD 
Ronald J. Oudiz, MD
David Pham, MD
Francisco J. Soto, MD, MS 
Virginia Steen, MD
Roxana Sulica, MD

Researcher Stories

George El Ferzli, MD
Cristhiaan Ochoa, MD

Respiratory Therapist Stories

Gerilynn L. Connors, BS, RRT, FAACVPR, FAARC

 

 

Joanne Schmidt on left in fashion show2006 Conference Stories

Raye D. Bohn
Angie Eldam
Amanda DaSilva
Lynette Davis
Melanie Gertcher
Heather Koczur
Lian M. Latham, B.A., R.N.
Sally Maddox
Annette Markin
Jennifer Nelson
Neeta Pai
Merle Reeseman

Ken Schmidt

 


Journeys Memorials

Many Our Journeys stories are memorials to members of the PH family who have left behind a legacy of hope and love. Learn more about their inspiring lives from their friends and families here on these Journeys Memorials page.

 Kari Lain

 

S.O.B

“S.O.B.” Check out Leslie Polss’ cartoons on being a PH patient and “short of breath.”
S.O.B

Watch videos of PHers sharing their stories at PHA’s International Conference and other events.
Video Journeys

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.