Share Your Story

There are a lot of reasons why telling your PH story helps the community. Your story will help to increase awareness of pulmonary hypertension, but it will also help to explain to your community how PH affects your life. For those who get tired of explaining their illness to their neighbors, getting local media coverage is a great way to educate them.

How to share your story:

  1. You can pitch your story to virtually any media outlet, including TV news stations, radio stations, newspapers, local magazines and community blogs.

  2. Use your Media List to identify a reporter at each outlet who could be interested in your story. Look for reporters who frequently cover health issues or community issues.

  3. Contact each reporter. There are many ways to do this, including by phone, email, with a letter or in-person. Contact PHA for help honing your pitch!

  4. Send a PHA press kit to every reporter you contact. Let each reporter know that PHA can help them find useful information on PH.

  5. Follow-up with each reporter. If you’re invited to do an interview, be sure to thank the reporter. If you don’t get coverage immediately, don’t give up! Get in touch with your reporter and let them know that you’re available for future stories. The next time these reporters need an idea for a story, they’ll know that you’re a local resource on PH.

Contact Elisabeth to order press kits and for help preparing your media outreach. Contact or 301-565-3004 x753.

Online Press Room -- A Great Resource For Reporters

PHA's Press Room provides reporters with essential information on PH so they can stop researching and focus on your story.

Visit PHA's Online Press Room

Sign Up For PHA's Media Matters! Alerts

Receive media updates from PHA including breaking news opportunities, success stories and tips for getting your story covered.

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Learn From Media Experts—Your Fellow PHers!

Share experiences, and ideas and tips with your fellow PHers by joining the PHAware Campaign email group.

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Woman smiling“People need to hear your story. Don’t be afraid to tell it.”

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.