MEDIA GUIDE

Making Connections to Stories in the Media Spotlight

When the spotlight of national or local media shines on an issue that affects the PH community, it’s a great opportunity to tell people about the connections between this issue and life with PH. This is called “piggybacking.”

You can utilize piggybacking in whatever type of outreach you choose to do. Consider writing a letter to the editor or an Op-Ed piece or pitch your personal story in the context of these issues.

Piggybacking issues may include:

  • Health insurance issues, including cost
  • Airline oxygen and other travel issues
  • PH-related legislation and 435 Campaign Action alerts
  • Highlighting the work of PH treatment centers or other medical facilities in your area
  • Your upcoming Support Group or fundraising event
  • PHA sponsored events you are attending


 

For help preparing your media outreach contact MediaAction@PHAssociation.org.

Online Press Room -- A Great Resource For Reporters

PHA's Press Room provides reporters with essential information on PH so they can stop researching and focus on your story.

Visit PHA's Online Press Room

ADDITIONAL RESOURCES

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.