Sample Press Release

Submit your press release to news outlets a few weeks before your event. Remember that reporters are always looking for connections between news and the community, so consider highlighting the story of a local patient to emphasize the importance of raising awareness and funds to fight pulmonary hypertension.

Most reporters prefer to receive press releases through email. Cut and paste the text of your release into the body of the email — if you add it as an attachment your email may get stuck in a spam filter.

For more help writing press releases, contact PHA at 301-565-3004 x753 or


Contact: Your Name
Phone: 555-555-5555
Fax: 555-555-5555
Website: Include your local groups’ website, or use

[Your town or area] holds a fundraiser to benefit those affected by rare disease

Your town, State—Month, day—[DESCRIBE THE BASICS OF YOUR EVENT IN THIS PARAGRAPH] [Your group’s name] is hosting a [name of the event] to benefit the Pulmonary Hypertension Association in their mission to provide valuable resources to the community affected by this rare, under-diagnosed disease.  [MENTION IN THIS PARAGRAPH THAT PH AFFECTS SPECIFIC PEOPLE IN THE LOCAL COMMUNITY]


  • Time for specific aspects of the event (speeches, awards, meals, etc...)
  • Local celebrities who will attend
  • How many attendees are expected?
  • If you’ve held the event before, how much money was raised and how attendees did you draw?

[DESCRIBE PH] Pulmonary hypertension is a simplified name for a complex health problem—continuous high blood pressure in the pulmonary artery in the lungs, resulting in an enlarged heart which can lose its ability to pump. There is no cure. In 1985, patients had a 50% of surviving 2.8 years past diagnosis, but thanks to new treatments, prognosis is improving. PHA’s goal is to provide hope to the pulmonary hypertension community through support, education, advocacy and awareness. The “PH community” helps fulfill this mission by helping to raise awareness and funds to support PH patients and find a cure.


  • Event name, date and time
  • Price of tickets, etc…
  • Re-state contact information.



Contact Elisabeth to order press kits and for help preparing your media outreach. Contact or 301-565-3004 x753.

Online Press Room -- A Great Resource For Reporters

PHA's Press Room provides reporters with essential information on PH so they can stop researching and focus on your story.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.