Judith SimpsonPHA Board of Trustees

Judith A. Simpson, RN, EdS

Pediatric nursing instructor (retired)
Holiday Island, Ark.
Board Emeritus

Judy Simpson is the founding President of United Patients Association for Pulmonary Hypertension (later to become the Pulmonary Hypertension Association) and along with her husband Ed, has been a part of PHA from the beginning. Judy was one of the original “kitchen table” founders of PHA with her sister and fellow emeritus Board member, Pat Paton who has had PH since 1987.

Judy was a Treatment Investigation New Drug Advisory Committee member for Burroughs Wellcome Company as patient advocate and testified before the Senate Judiciary Committee on the need for research for rare disorders. She was a member of the National Institutes of Health, Heart, Lung and Blood Institute Advisory Council as a patient advocate from 1996-2000.  She represented PHA serving as a founding member and Chair of the American Thoracic Society Public Advisory Roundtable. Judy relates that, "PHA has set a new paradigm in the way a patient organization collaborates with physicians, researchers, pharmaceuticals, home health agencies, government, and medical societies, making us a model many support groups now are following." J

Judy lives in Holiday Island, Arkansas, with her husband Ed. Judy was a nurse for 53 years and taught pediatric nursing at Kishwaukee Community College in Malta, Illinois; she is now retired.

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.