OUR JOURNEYS

Patient story

Elaine Mullens

Hi, my name is Elaine. I am a PH person. I was told in September of 2008. I am so scared. I live in a very small town. No one has heard about PH. I am taking Epoprostenol Sodium by IV. I also am taking Klor-Con, Digoxin, Warfarin and Furosemide. I am not doing too well, so on Monday I started Revatio. I am having really bad side-effects from this new medicine.

I am lucky to have a wonderful husband. We have been married for 37 years. I have three grown sons and two young grandsons, who I want to see grow up.

I have no one to talk to about my PH. I have lost 200 lbs in five years, from being sick. I also have Lupus. Please help me get through this. I need a friend.

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.