My name is Jaimie Love and technically I'm no longer a PH patient. This terrible disease almost took my life last year. On July 1, 2008 I received a double lung transplant that saved my life.
I was diagnosed with idiopathic pulmonary hypertension on June 30, 2006. I remember that day so vividly. I had never heard of PH before and I thought it was no big deal—just something I would have to take some pills for. Well, after Tracleer and Flolan and about a million hospital visits I knew better.
Pulmonary hypertension changed mine and my family’s life in every way possible. I ended up losing so many friends, not going to school and just being completely depressed. I had no hope. With the support of the people around me and the people on the ph boards I found hope. I looked at life so much differently. So what people say is true: life really is short.
I eventually got too sick for any medication to help me and had to be put on the lung transplant list. I couldn't believe this was happening. I live in Utah and the transplant team there turned me down so I had to move to Seattle and live away from my family while I awaited a double lung transplant at the University of Washington. I was at the very top of the transplant list and waited for four months until finally I got the call I had been waiting for—the call that saved my life.
It's weird how things happen at the exact right time. If I wouldn't have had my transplant then I would not be alive the following day. Now over a year later I am healthy and alive!
I know how so many of you ph patients feel. From the doubt the fear and losing all hope. I want to tell you to hang in there and that there is hope. We all got dealt a nasty hand but we can all handle it. Things will get better. Pulmonary hypertension is where my heart is and my greatest dream is that there will be a cure found for it.
To all of you out there suffering from this awful disease, you are my heroes.