PHA News 
 
Conference Special Edition
PHA's 9th International Pulmonary Hypertension Conference and Scientific Sessions; Riding the Wave to a Cure; Garden Grove, California, USA; June 25-27, 2010; www.PHAssociation.org/Conference
 
Join the hundreds of PHA members who have already registered! 
Early-Bird registration $25 discount ends April 1. 
Register Now!
In This Issue
"Overheard" Online
Conference Keynote Speakers Announced
Plenary Sessions Line-up
Medically Led Breakout Session Speakers
Skill Building Workshops
Conference Blog RSS Feed
Conference Buddy Online Sign-up
Notes of Thanks and Remembrance
Special Disneyland Ticket Pricing
Traveling with PH Webinar
Important Deadlines
Journeys to Conference Stories
"OVERHEARD" ONLINE -- WHO IS EXCITED ABOUT CONFERENCE?
"I'm so very excited to be attending this year's Conference. I went to Miami and MN (Minneapolis) and it was a fabulous time!!! I'm...looking forward to meeting all my new PHriends and PHamily!!!" - Tina Silks, Facebook commenter
 
"I am an RN and a patient. PHA is the greatest organization I have ever seen. This is my first international Conference with the group. Can't wait." - Belenda Kesler Spell, Facebook commenter
 
"What I did see [at Conference] is Katie Grace meeting children JUST LIKE HER. She was OK, she wasn't alone, she wasn't the ONLY ONE with a pump, or on oxygen. What she did do is walk up to young and old and pull down her shirt and say, 'Here is mine where is yours?' She played with children JUST LIKE HER and she made people laugh. That made me happy. That gave me HOPE!" - Kathy Groebner, PHA Parents email list.
KeynoteCONFERENCE KEYNOTE SPEAKERS REACH NEW HEIGHTS
Conference Keynote Speakers, Path to a Cure Climbing Team
Path to a Cure Climbing Team
PHA Announces the Mt. Kilimanjaro Path to a Cure Climbing Team as the Conference Keynote Speakers
 
The Mt. Kilimanjaro Path to a Cure Climbing Team Raymond Benza, MD; Robert Frantz, MD and Jessica Lazar, PA, will inspire Conference attendees with their Keynote Address at PHA's 9th International PH Conference and Scientific Sessions. The team will open our Conference with their moving Path to a Cure story on Friday afternoon, June 25. These dedicated medical professionals famously climbed to the summit of Mt. Kilimanjaro, the highest peak in Africa, in February of this year raising nearly $114,000 and lots of awareness with the full support of the PHA community.
PlenaryDYNAMIC PLENARY SESSIONS LINED UP
The Plenary Sessions are held throughout the weekend and are the main gathering point for patients, family members and medical professionals each day. View the Schedule of Events web page often for speaker confirmations.
 
Friday, June 25
Conference Opening

Keynote Address: The Mt. Kilimanjaro Path to a Cure Team
 
Dinner
Unraveling the Mysteries of PH with Vallerie McLaughlin, MD, and Victor Tapson, MD
 
Saturday, June 26
Val McLaughlinBreakfast
Network with a Medical Professional Breakfast
 
Lunch
"Journeys" Luncheon
 
Dinner
Founders' Dinner with Fashion Show
 
Sunday, June 27
Breakfast
Next Generation of PH Leaders Breakfast
MedledDISCOVER WHICH PH MEDICAL PROFESSIONALS WILL LEAD THE MEDICALLY LED BREAKOUT SESSIONS
Conference PanelistsMore than 120 medical professionals will be speaking at over 40 Medically Led Breakout Sessions during Conference on a wide variety of topics. Many have already been confirmed and more are committing to speak each day!  
 
Medical professionals speaking at Conference for the first time include:
 
Jeffrey A. Feinstein, MD
Paul Forifa, MD
Mark T. Gladwin, MD
Dana McGlothlin, MD
Rajan Saggar, MD
Duncan Stewart, MD
Keith M. Swetz, MD
Glenna L. Traiger, RN, MSN
Roham Zamanian, MD
 
Visit the Medically Led Breakout Sessions page for a listing of confirmed speakers, updated often.
LEARN NEW SKILLS AT CONFERENCE
Not only does our International PH Conference offer you the opportunity to educate yourself through the Medically and Patient/Family Led Breakout Sessions, the staff of PHA also hosts unique Skill Building Workshops throughout Conference to help empower you to strengthen the PH community in your own way. 
 
Creative Connections: Tips for Networking During (and After!) Conference
This session will give you tips on how to maximize your time and connect with other patients during Conference, and will show you how to find a local support group or start your own group once you return home.
 
From Your Hometown to Capitol Hill: Become your own Advocate
Expect to leave this workshop with the knowledge, tools and inspiration to educate and build relationships with your elected officials.
 
Media Matters!
In this session you will join a panel of print and broadcast media experts and discuss the advantages of raising awareness through the media.
 
Put the Special in Special Events
This workshop will bring together a panel of experienced PH special events organizers to share their experiences putting on successful fundraisers and spreading the word about PH in their local communities.
 
Words for Wellbeing
Get ideas, prompts and tips for writing for your own health, as well as guidelines and considerations when writing for Pathlight.  
 
PHA 2.0: Using the Web to Fight Against PH
In this workshop you will learn how you can spread awareness about PH and raise funds for the cause from the comfort of your home computer.
FOLLOW CONFERENCE PLANNERS WITH OUR CONFERENCE BLOG RSS FEED
Our Conference Blog just launched two weeks ago and already has received hundreds of views! Add the PHA Conference Blog to your RSS feeds to receive new posts.  Subscribe to the RSS feed
SIGN-UP FOR A CONFERENCE BUDDY ONLINE
Friends at ConferencePatients and caregivers looking to make a one-on-one connection at the 9th International PH Conference have the chance to be paired with a Conference Buddy! Buddies are available to first-time attendees, patients with associated illnesses, young adults with PH (18-30s), families of children with PH, and family caregivers of adult patients. Sign up for a Conference Buddy using our quick and easy online form.
SUBMIT A NOTE OF THANKS AND REMEMBRANCE AND SUPPORT THE CONFERENCE SCHOLARSHIP FUND
Acknowledge someone special in your life by submitting a Note of Thanks and Remembrance to the Conference Program Book. Submitting a note costs $25 and your donation will support the Conference Scholarship Fund and help others fulfill their dream of attending Conference. The deadline for submission is May 1.
ADD MAGIC TO YOUR CONFERENCE EXPERIENCE
Purchase Special Disneyland Tickets only for Conference Attendees
Visit the Pulmonary Hypertension Association Disneyland Ticket Store for specially priced tickets only available to International PH Conference attendees. Advance purchase is required and tickets are not available at the Theme Park Ticket window at the Resort. Ticket sales end 9:00 p.m. PT on June 17.
PlanePARTICIPATE IN THE TRAVELING WITH PH WEBINAR
Thursday, April 1, 6:30 p.m. ET
Join PH Resource Network Immediate Past Chair Joy Beckmann, RN, MSN, and the International PH Conference Planning Committee Co-Chair Cindy Pickles, RN, BSN, as they discuss measures PH patients should take while planning their trip and traveling to Conference.
MARK YOUR CALENDARS: IMPORTANT DEADLINES
March 31
Research Room Application Deadline for Medical Professionals
Abstract Submission Deadline for Medical Professionals
journeysSHARE YOUR STORY - JOURNEYS TO CONFERENCE
Participate in Journeys to Conference to share your story about a previous Conference experience or your feelings leading up to attending our 9th International PH Conference.  View previous Conference Journeys  | Share your stories online now
 
journeysAt Conference PHA is looking for people to:  
  • Help record stories on easy-to-use iFlip camcorders
  • Share your stories on film or at the Blogosphere Internet Café
  • Update your Facebook status or Tweet using the Conference hashtag #PHConf

To participate in Journeys to Conference, email Journeys@PHAssociation.org or call 301-565-3004 x749.
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