Volunteer Profiles

Thank you! PHA wants to thank all of our volunteers for your tireless work. It is because of the work you do that we can accomplish so much.

Here we highlight the stories of some of our volunteers.

John Hess

John Hess
PHA Board Member; PHA Parent Advisory Board; PHA Web Volunteer

Carol Morrison

Carol Morrison
Insurance Volunteer

Merle Reeseman Merle Reeseman
PHA Support Line Volunteer; Online Support Group Chat Host; Local Support Group Leader; Special Event Organizer: PHAware Campaign Member; 435 Campaign Member
Katie Tobias

Katie Tobias
Pathlight Columnist

Conchita Watson

Conchita Watson
PHA Office Volunteer; Advocacy Volunteer

Volunteer NIght Volunteer Night workers








Volunteer in our Silver Spring, Md., office or help us out remotely.

Volunteer Form

Support Groups

Volunteer to help lead one of the more than 200 local PHA Support Groups or, if there isn't a Support Group in your area yet, start a new one.

Find a local Support Group

Learn about leading a Support Group

Get Involved in PHA Programs

There are plenty of ways to get involved, from educating your community and advocating for research funding in Congress to creating a personal fundraising page and organizing Special Events.

Discover which program is right for you

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.