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Before Transplant - Choosing a Transplant Center
...Transplant and Pulmonary Hypertension Choosing a Transplant Center Once you and your primary physician decide it is time for you to go on the lung transplant wait list, you will start working wit
Patients - Lung Transplant Resources
...Transplant Resources Join PHA's Transplant Email Group <http://www.PHAssociation.org/TransplantGroup> to discuss your questions about and experiences with transplant. For more information contact
Before Lung Transplant
...Transplant and Pulmonary Hypertension Before Transplant[image: patient getting an echocardiogram] Deciding whether transplant is right for you is a process that will involve your team of medical
Transplant and Pulmonary Hypertension
...Transplant and Pulmonary Hypertension [image: Illustration of human heart and lungs] Lung or heart-lung transplant is a treatment option reserved for patients who are not improving on medical ther
Answers about Lung Transplantation for Pulmonary Hypertension
...Answers about Lung Transplantation for PULMONARY HYPERTENSION [image: Download and Print PDF] Part One: Overview From the development of epoprostenol in the early 1980s to the discovery of o
Transplant Information for PH Patients
...Transplant and Pulmonary Hypertension Information for Patients and Transplant Recipients When you are no longer responding significantly to medical therapies, your physician may want to discuss t
Parents - Pediatric Transplant
...Transplant and Your Child: From Listing to New Lungs[image: Illustration of human heart and lungs] ________________________________________ “As with PH, building a relationship with your transpla
50 State Challenge Media Successes
...when they were kids. In this article, they talk about their lifelong friendship, Amanda's recent transplant surgery and Dawn's wait for a double lung transplant. Read the article <http://www.modbee
After Lung Transplant
...Transplant and Pulmonary Hypertension After Transplant[image: Pills] Whether you are considering or have already received a transplant, you probably have questions about life after transplant inc
Support Group: Event Calendar (Trends in Transplant Conference)
... SubTitle Name Trends in Transplant Conference Details To my PHA Support Group Members- this is a great conference that talks about transplant. Please RSVP by May 9 with them at gtf@gatranspl
BBTest Event Page (Trends in Transplant Conference)
... SubTitle Name Trends in Transplant Conference Details To my PHA Support Group Members- this is a great conference that talks about transplant. Please RSVP by May 9 with them at gtf@gatranspl
Lung Transplantation Consensus Statement
...Lung Transplantation in Patients with Pulmonary Hypertension Consensus Statements Issued by the Scientific Leadership Council &#160; Download &amp; Print PDF DISCLAIMER: This information i
Patients - About PH - Lung Transplant
...Lung Transplantation in Patients with Pulmonary Hypertension Consensus Statements Issued by the Scientific Leadership Council &#160; Download &amp; Print PDF DISCLAIMER: This information i
Lung Transplantation Consensus Statement
...Lung Transplantation in Patients with Pulmonary Hypertension Consensus Statements Issued by the Scientific Leadership Council &#160; Download &amp; Print PDF DISCLAIMER: This information i
Before Transplant - Financing a Lung Transplant
...Transplant and Pulmonary Hypertension Financing a Lung Transplant[image: Health Insurance] Lung transplants can be a great financial burden. There are a variety of medical and non-medical costs a
Living as a Transplant Recipient
...Transplant and PUlmonary Hypertension Living as a Transplant Recipient&#160;[image: Angie Eldam at Meet and Greet] As you transition back into your normal life, there are a few precautions that y
Meet PHA’s Transplant Email Group Committee
...Meet PHA’s Transplant Email Group Committee Many PH patients will consider or have questions about transplant during their PH journey. PHA’s Transplant email group is a place where patients, famil
Lung Transplant - Information for Parents
...Transplant and Pulmonary Hypertension Information for Parents - Pediatric Transplant&#160;[image: Shaye Wallace] Pediatric transplant varies in respect to adult transplant in several ways. Priori
PHA News July 11, 2012 - Transplant and PH
...back to issue <http://www.PHAssociation.org/PHANews/2012July11> Things I Found on PHA's Website: Transplant and PH [image: Lungs]If I were to list frequently asked questions found throughout the
PHA Classroom - e-Learning Guides - Transplantation
...  Give it a Listen … Understanding the Emotional Impacts of Transplant   Pediatric Transplant [image: Caregiver Advocacy] Considering transplantation can be challenging and stressful.
Before Transplant - Next Steps After Getting Listed
...Transplant and Pulmonary Hypertension Now That I am Listed, What's the Next Step? [image: Cartoon of a confused man] In a word, the next step is waiting. During this time, it will be essential
PHA Classroom - 2014Feb18 - Pediatric Transplant
...Samuel Goldfarb, MD]  Samuel Goldfarb, MD Medical Director, Lung and Heart/Lung Transplant Programs, CHOP Director, Primary Ciliary Dyskinesia Center and Children’s Interstitial and Diffuse
PHA Classroom - e-Learning Guides - Transplantation
...e-Learning guides Transplants While transplant is not the only treatment option for PH, many patients that are not improving their condition on medical therapies count on transplants as the alter
Lung Transplant - Information for Friends, Family Members and Parents
...Transplant and Pulmonary Hypertension Information for Friends, Family Members and Parents&#160;[image: Ava and her family] Standing by a loved one during the transplant process can be taxing and
Transplant Information for PH Patients
...Get Support [image: Man on computer] <http://www.phassociation.org/EmailGroups/#PHPlus> PHA's Transplant email group is a private forum where you can openly discuss your questions about and exper
Lung Transplant - Information for Friends, Family Members and Parents
...Get Support [image: Man on computer] <http://www.phassociation.org/EmailGroups/#PHPlus> PHA's Transplant email group is a private forum where you can openly discuss your questions about and exper
Transplant and Pulmonary Hypertension
...Get Support [image: Man on computer] <http://www.phassociation.org/EmailGroups/#PHPlus> PHA's Transplant email group is a private forum where you can openly discuss your questions about and exper
Parents - Pediatric Transplant
...Get Support [image: Man on computer] <http://www.phassociation.org/EmailGroups/#PHPlus> PHA's Transplant email group is a private forum where you can openly discuss your questions about and exper
PHA Classroom - e-Learning Guides - Transplantation
...Before, During and After Transplant PHA has resources for every step of the way in the transplant process, including tips about listing , what to expect during transplant and emotional issues that
Before Transplant - Getting the Call
...Transplant and Pulmonary Hypertension Getting "The Call" [image: Red telephone] When a donor organ becomes available, the hospital contacts the local Organ Procurement Organization (OPO), which w
PHA News Jan12 2011
...January 12, 2011 >> back to issue <target=&pid=2684&did=0&tab=0> Things I Found: Transplant Resources One of the common threads in my correspondence with people new to PH is that they know nothin
PHA News April6 2011
...Donate Life]More than 110,000 Americans, including PH patients, are waiting for organ transplants. Learn more and spread the word about the need for organ donors. * Hear renowned opera singer Cha
Before Transplant - The Lung Allocation Score
...Transplant and Pulmonary Hypertension The Lung Allocation Score Once you have a transplant team, your priority for transplant must be established. Until the spring of 2005, lung transplant priori
Lung Transplant - Information for Caregivers
...Transplant and Pulmonary Hypertension Information for the Caregiver[image: Patient and caregiver hand in hand] Standing by a loved one while they list, wait, receive and recover from a transplant
Patient Insurance Victory - Don Burdolski
...Insurance Victories It Takes a Team: Family and Friends Rally around PH Patient to Fight for Transplant Approval July 2009 By Don Burdolski PH Caregiver [image: Kathy Burdolski : <vie
PHA News April 18, 2012 - LAS Open for Public Comment
...allocation of organs to patients in need, including pulmonary hypertension patients awaiting lung transplant. Currently, the LAS significantly underestimates a PH patient's need for transplant, but
PHA News May 30, 2012 - LAS Open for Public Comment
...allocation of organs to patients in need, including pulmonary hypertension patients awaiting lung transplant. Currently, the LAS significantly underestimates a PH patient's need for transplant, but
Before Lung Transplant
...Join PHA's Transplant Email Group <http://www.PHAssociation.org/TransplantGroup> to discuss your questions about and experiences with transplant. For more information contact Transplant@PHAssociati
The Lung Transplant Procedure
...Join PHA's Transplant Email Group <http://www.PHAssociation.org/TransplantGroup> to discuss your questions about and experiences with transplant. For more information contact Transplant@PHAssociati
After Lung Transplant
...Join PHA's Transplant Email Group <http://www.PHAssociation.org/TransplantGroup> to discuss your questions about and experiences with transplant. For more information contact Transplant@PHAssociati
PHA Classroom - Understanding the Emotional Impacts of Transplant
...Understanding the Emotional Impacts of Transplant May 30, 2012 Considering transplantation can be challenging and stressful. In addition to your questions and concerns, you may experience many em
PHA Classroom - 2014Feb18 - Pediatric Transplant
...Pediatric Transplant February 18, 2014 Dr. Goldfarb and his team from The Children's Hospital of Philadelphia will explain what you need to know when making the decision to list your child for pe
After Transplant - Long-Term Emotional Issues
...Transplant and Pulmonary Hypertension Long-Term Emotional Issues After Transplant [image: Woman looking out over water] Although the overall quality of life after transplant is often greatly impr
Life 1 Day to 6 Months After Transplant
...Transplant and Pulmonary Hypertension Returning Home: Life 1 Day to 6 Months After Transplant&#160;[image: Joe Haan and Family] As you prepare to leave the hospital, your transplant team will tea
Emotional Issues After Transplant
...Transplant and Pulmonary Hypertension Emotional Issues After Transplant [image: Woman looking contemplative] Receiving a new organ is a wonderful gift, but the process of receiving and recovering
Chris Campbell's Journey with PH
...day on this earth without being thankful to God and my lung donor for the gift of being alive. My transplant came just a few months before my heart was ready to give up and just a year after my PH
Before Transplant - The Emotional Impact of Listing
...Transplant and Pulmonary Hypertension [image: Patients hugging at PHA on the Road in Baltimore] The Emotional Impact of Listing The process of becoming listed as a lung transplant candidate and
Caregiver Margaret Goodwin's Journey with PH
...the only treatments available to treat PPH were blood thinners and heart pills. There were no transplants going on. With the limitations of treatment then, my husband Steve lost his life to PPH at
The Lung Transplant Procedure
...Transplant and Pulmonary Hypertension During Transplant - Overview of the Surgical Procedure [image: Doctor talking with patient] Once you have received the call, arrived at the hospital, gone th
Headline News 2009
...boy from Hampton had already received the greatest gift. In September, he underwent a double-lung transplant in Toronto - a surgery that gave him a new lease on life after years suffering from a ra
International News and Projects (Transplant Pioneer Celebrates 19 Years of Health)
...CTV News) - It was 19 years ago that Sherry Duncan Paterson underwent a double-lung heart transplant, making her a pioneer in the Canadian transplant world. 19 years ago, after the birth of her sec
PHA Classroom - 2013July24 - PH Caregiving 101
...Presenter Information   Valerie Schacter Cappello, MSW, LCSW, CCTSW Lead Cardiothoracic Transplant Social Worker Newark Beth Israel Medical Center Valerie Cappello is the lead cardiothoracic
Medications After Transplant
...Transplant and Pulmonary Hypertension Medications After Transplant[image: Pills] For transplant recipients, there are lots of pills to swallow — some people take 12 pills a day, some 40, dependin
PHA Classroom News Feed (New Recording: Understanding the Emotional Impacts of Transplant)
... Description Considering transplantation can be challenging and stressful. In addition to your questions and concerns, you may experience many emotions when your doctor begins discussing transplan
PH Email Mentor Spotlight - BreAnn McFarland
...one-on-one, email-based support. Read on to learn about BreAnn McFarland, an email mentor and transplant recipient. What’s your PH story? In eighth grade, I started having chest pain and dizzin
PHA News - Jan. 12, 2011
... PH Community Scoop International Partners Write to Support Ariz. Transplant Funding <target=&pid=2751&did=0&tab=0> A decade ago, PHA Australia requested our help in trying to get their fi
Support Group Leader Updates - February, 2012
...Day. More than 112,000 Americans, including PH patients, are waiting for life-saving organ transplants. &#187;&#160;Check out PHA's transplant resources <https://www.phassociation.org/page.aspx?pi
After Transplant - Transplant Rejection
...Transplant and Pulmonary Hypertension Transplant Rejection Eighty to eighty-five percent of those who survive the transplant operation have a good functional status afterward and can do normal ac
Marie Garner's Journey with PH
...is Marie Garner; I live in Maine. I did have pulmonary hypertension and received a double lung transplant in Feb. 2011. I waited over three years for a match. It was a miracle in itself that I last
Update on Carson Smith's Journey with PH
...19, 2007 Taking Deep Breaths – Waiting (and Hoping) For My New Lungs: The Ups and Downs of My Transplant Journey by Carson Smith, Washington University Sophomore St. Louis, Missouri College is
PHA Classroom
...>>If you liked this recording, you may enjoy Surgical Treatments: Lung Transplants and Other Procedures <target=&pid=2764&did=0&tab=0> [image: Surgical Treatments: Lung Transplants and Other Proce
Journey with PH
...elite hospital didn't have an answer. They suggested the possibility of a heart lung type transplant, but had zero experience with this back in the late 1980's. My local cardiologist suggested cont
Sharren Yamron's Journey with PH
...was becoming a problem for me. My doctor was thorough and after all the tests I was on to the transplant list. I was going downhill quickly and willing to do anything to tackle this disease. When
Pulmonary Hypertension Research News (Hopkins Study Finds Double-Lung Transplant Better Than Single-Lung)
...Research News Publication Date 7/13/2009 12:06:00 PM UTC Description (Examiner) - Lung transplant recipients who received two lungs are twice as likely to be alive ten years later than those who
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Live in Arizona? Take Action for Transplants for PH Patients)
...Date 27/2011 7:49:22 PM UTC Description Tell Ariz. Governor to Reinstate Medicaid Funding for Transplants! Ninety-eight beneficiaries who had been previously told they were approved for transpl
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Opera Singer Awaiting Second Double Lung Transplant Inspires Awareness)
...world, but since Christmas Eve, Charity Tillemann-Dick has been waiting for her second double lung transplant at Cleveland Clinic. Pulmonary Hypertension required the opera singer to undergo a doub
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Teen in Virginia Lobbies for Transplant Education Law)
...very literally close to Madison Shinaberry's heart. The Harrisonburg teen received a double lung transplant in 2009, and Thursday she's lobbying state legislators to pass a law encouraging more don
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Transplant Pioneer Celebrates 19 Years of Health)
...CTV News) - It was 19 years ago that Sherry Duncan Paterson underwent a double-lung heart transplant, making her a pioneer in the Canadian transplant world. 19 years ago, after the birth of her sec
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Young Woman In England Recovering From Double Lung Transplant)
...returned home to her family in Whitefield after battling through a life-threatening double lung transplant operation. Medical experts were left with no choice but to carry out the transplant after
Jaimie Love's Journey with Pulmonary Hypertension
...This terrible disease almost took my life last year. On July 1, 2008 I received a double lung transplant that saved my life. I was diagnosed with idiopathic pulmonary hypertension on June 30, 2006
PH and Liver Disease
...is POPH diagnosed? * How is POPH treated? * Can patients with POPH be candidates for a liver transplant? What is liver disease? To understand liver disease, it is first essential to know wh
PHA Classroom News Feed (New Recording: My Doctor Said I May Need a Lung Transplant)
...PM UTC Description Session recording from PHA's 2010 International PH Conference Considering transplant? Hear from patients who have been through this process. Presenters: * Angie Eldam
PHA Classroom
...  Session Recording from PHA's 2010 9th International PH Conference Surgical Treatments: Lung Transplants and Other Procedures June 26, 2010  This session will review the who, when, and what pr
Patient Mentor - BreAnn
...Mentor Profile [image: BreAnn McFarland] BreAnn Diagnosed in 1994 "I had a double-lung transplant in 2002, and I have participated in events with both GA Transplant Foundation and PHA; I a
PHA Classroom - 2012Jun24 - Conf - Surgical Treatments: Lung Transplant and Other Procedures
...Session Recording from PHA's 2012 10th International PH Conference Surgical Treatments: Lung Transplant and Other Procedures June 24, 2012 This session will review the who, when and what procedu
PHA Classroom - e-Learning Guides - Transplantation
...Information for Everyone Everyone in the family can be impacted by a transplant. Luckily, PHA has resources to help everyone through this life-saving procedure. * For Parents: Pediatric Transpla
Support Group: Event Calendar (Lung Transplant Evaluation)
... SubTitle Name Lung Transplant Evaluation Details Place : Conference Room 723A on 7th floor, Mount St. Mary’s Hospital 5300 Military Rd, Lewiston, NY 14092 Topic : Lung Transplant Evaluation
BBTest Event Page (Lung Transplant Evaluation)
... SubTitle Name Lung Transplant Evaluation Details Place : Conference Room 723A on 7th floor, Mount St. Mary’s Hospital 5300 Military Rd, Lewiston, NY 14092 Topic : Lung Transplant Evaluation
Teens with PH - Transition to Adult Care
...in the future, ask if the plan covers these medications as well. * If I were to require a transplant in the future, will this insurance cover organ transplant? Know Your Insurance Rights Cer
PHPN Mentee Evaluation Form
...Mentee Evaluation Form To be completed after Month 1, Month 3 and Month 6 of pairing. Names are used to confirm completion of the evaluation but will be removed upon receipt; information received
PHPN Mentor Evaluation Form
...Mentor Evaluation Form To be completed after Month 1, Month 3 and Month 6 of pairing. Names are used to confirm completion of the evaluation but will be removed upon receipt; information received
PHA News May01 2009
...PHA on the Road PHA'S Educational Programs Now All in One Place Online! New Information on Transplant Available! Raising Local Awareness PH Support Groups Useful Info From a PH Pedia
Merle Reeseman's Journey with PH
...And yes, I said participate in a ballet. Dr. Dennis McNamara, Director of the Heat Failure Transplant Program at UPMC, approached Maria Caruso, Artistic Director of Bodiography Contemporary Ballet,
PHA News 2014Feb5
...than 120,000 Americans, including PH patients, are waiting for life-saving organ transplants. A single donor can save up to eight lives. This Valentine’s Day give a gift from the heart by spreading
Sieglinde Wilson's Journey with PH
...got a heart catheter. We were told that he has primary pulmonary hypertension and he needed a lung transplant. They don’t do lung transplants in Germany and we were told that it would be better for
Sean Wyman's Journey by Mother Evan White
...medical facility a when the pulmonologist said you are going to be recommended for the lung heart transplant list because your PH is so advanced (Class IV) there is no chance of improvement without
International News and Projects (PH Israel’s Ninth Annual PH Conference)
...the association’s work and achievements in the last year. Afterward, a speaker from the National Transplantation Service spoke about how donors are identified, how patients are put forward for tran
PHA News Feb9 2011
...>> back to issue <target=&pid=2738&did=0&tab=0> International Partners Write to Support Ariz. Transplant Funding A decade ago, PHA Australia requested our help in trying to get their first PH-t
Patient Mentor - Amy
...Started Flolan in 1997 and continued that therapy until February of 2013 when I received a lung transplant. I had many things I liked to do before transplant but I have been told the "new me" will
PHA News - March 7, 2012
...&#160; Ask Your Transplant Questions and Share Your Story! <http://groups.google.com/group/pha_transplant?pli=1> PHA's Transplant email group brings together patients considering transplantati
PHA News 2013April17 - Policy Changes will Benefit PHers Awaiting Transplant
...<http://www.phassociation.org/phanews/2013april17> Policy Changes will Benefit PHers Awaiting Transplant [image: National Donate Life Month]Last spring, PH advocates spoke out in support of chang
PHA News - April 17, 2013 - Lung Allocation Score
...<http://www.phassociation.org/phanews/2013april17-split> Changes to Benefit PHers Waiting for Transplant [image: National Donate Life Month]Last spring, PH advocates spoke out in support of chang
PH Email Mentor - Patient - DianeM
...Patient Mentor Profile [image: BreAnn McFarland] Diane Diagnosed in 2012 "I am an ordained minister and I am very active in my church. I love socializing with family and friends and I love
PH Email Mentor - Patient - Syrena
...Patient Mentor Profile [image: BreAnn McFarland] Syrena Diagnosed in 2012 "I love to paint, spend time with family, and perform Mariachi music every weekend." __________________________
PHA News - Dec. 14, 2011
...make the match with a gift today <http://www.PHAssociation.org/EOY2011>. &#160; &#160; [image: transplant group] Ask Your Transplant Questions and Share Your Story! <http://groups.google.com/g
Support Group: Blog (Liz Brigham having transplant today)
... Description Liz Brigham will be receiving a heart and double lungs transplant at St. Mary's hospital in Rochester, MN. Liz is a PH support group leader and a patient to patient help line in N. C
Support Group: Blog (Updated about Larry Fox)
...Good news! Larry and Judy Fox were at the Mayo Clinic in Roctester, MN for three days and the transplant team decided to activated him up on the transplant List. He is thrilled to be move up on th
Support Group: Event Calendar (Support Group Meeting)
... Location Florida Hospital Transplant Center 6th Floor (take the elevator and follow the signs) 2415 N. Orange Ave, Suite 700 Orlando, FL Fees None ContactInfo Tina, 407-914-9798 Jackie, 407
Carson Smith's Journey with PH
...a dream, that I didn't actually have to go through that emotional process, yet. I need a lung transplant. It was the middle of my freshman year, right before track season, when the doctor told me
International News and Projects (Canadian PH Teen & One Direction Super Fan Gets New Lungs, But Misses Concert)
...Amanda Kakoz is the proud owner of a new set of lungs after undergoing a double-lung transplant in July. Unfortunately, her hospitalization coincided with the One Direction <http://www.onedirection
International News and Projects (I’ve Had a Double Lung Transplant Already... And I’m Only 30)
...to school  —  things that would have been impossible before she had a life-saving double lung transplant. Read article <http://www.thesun.co.uk/sol/homepage/woman/health/health/4424479/Ive-had-a-do
Pulmonary Hypertension Research News (New Data Shows GeNO LLC Nitric Oxide Delivery System Provided Nitric Oxide With Low Levels of Nitrogen Dioxide for Heart Transplant Patient Evaluation)
...GeNO&#160; system for delivering inhaled nitric oxide (NO) to patients being evaluated for cardiac transplant. The study evaluated 10 heart failure patients who underwent RHC prior to cardiac trans
BBTest Event Page (Support Group Meeting)
... Location Florida Hospital Transplant Center 6th Floor (take the elevator and follow the signs) 2415 N. Orange Ave, Suite 700 Orlando, FL Fees None ContactInfo Tina, 407-914-9798 Jackie, 407
Pulmonary Hypertension News Jan 2010 to Apr 2012 (April is National Donate Life Month)
...than 110,000 Americans, including pulmonary hypertension patients, are waiting for organ transplants. Learn more and spread the word about the need for organ donors. * Hear renowned opera singer
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Children’s Organ Transplant Association Gives Hope and Makes Miracles)
...PM UTC Description 4/21/11 (PNW Local News) - Giving hope, making miracles – the Children’s Organ Transplant Association (COTA) has been doing this for 25 years. In Auburn, a group of caring and c
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Erectile Dysfunction Medication Now Being Used to Treat Other Diseases)
...suffers from pulmonary hypertension. Lack of oxygen causes her to pass out. "We just hear heart transplant, lung transplant. It was devastating. She's my little girl,” says Sandra Hernandez, Genevi
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Fundraisers to Help Teen Lung Transplant)
...and heart cannot work much longer. Brittany's best hope for continued survival is a bilateral lung transplant, medical experts say. Read article <http://republicanherald.com/news/fundraisers-to-hel
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Homecoming: Banners and Cheers Greet Boy Who Underwent Transplant)
...4/15/10 (Telegraph-Journal) Canada - Less than seven months after undergoing a double-lung transplant, 11-year-old Braden Gendron ran down the road to his former school with his Grade 6 classmates
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Opera Singer Thrives After Double Lung Transplant)
...singer -- a year ago to the day she awoke from a month-long coma following a difficult double lung transplant. Read article <http://abcnews.go.com/Health/Wellness/soprano-lung-transplant-donor-lung
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Pastor's Family Raising Money for Transplant)
...blood pressure of the lung. Since then, his lungs have slowly weakened forcing him onto the organ transplant list. As of Monday, the father of three was moved to the top of the list for a double lu
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Teenager's Spirit Takes Her Through Rigors of Transplant)
...Shinaberry, just 13 and very ill with incurable pulmonary hypertension, underwent a double lung transplant at Children's Hospital of Pittsburgh of UPMC. Less than a month later, she was well enough
PHA Classroom News Feed (New Recording: Surgical Treatments: Lung Transplants and Other Procedures)
...International PH Conference This session will review the who, when, and what procedure for lung transplant in the setting of PH. The updated lung allocation scoring system for transplant will be
PHA News Jan12 2011
...Cuts Beginning this past October, Arizona implemented budget cuts and stopped financing certain transplant operations under the state's version of Medicaid. Consequently, 98 beneficiaries who had
PHA News Jan26 2011
...to issue <target=&pid=2703&did=0&tab=0> Tell Ariz. Governor to Reinstate Medicaid Funding for Transplants! As we reported in the last issue of PHA News <target=&pid=2683&did=0&tab=0>, 98 benefici
Patient Mentor - Amy
...Started Flolan in 1997 and continued that therapy until February of 2013 when I received a lung transplant. I had many things I liked to do before transplant but I have been told the "new me" will
After Transplant - What to Expect After Surgery
...Transplant and PUlmonary Hypertension What to Expect After Surgery[image: doctor with stethoscope] The good news is that about 90 percent of lung or heart-lung transplant patients recover from th
Tammie Sharp's Journey with PH
...take A LOT of medicines. She had good days and bad ones. In November of 1995 she had a double lung transplant. The lungs were from a 13 year old girl from New Mexico. The "new" lungs developed pneu
Angie Eldam's Journey with PH
...proactive in finding “social services” to help our patients. I then took a rest because being post-transplant; none of the support groups met my needs this time. I attended “Speak Out: Tools You C
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Hear How PHers Felt When They Were Diagnosed)
...was exactly 18 years ago! I was put on Flolan which was experimental at the time as a bridge to transplant. That bridge was very very long as I didn't need a transplant until 2007! I never let this
Social Security Disability Information
...WORK AND SOCIAL SECURITY This article cannot replace a direct conversation with the Social Security Administration (SSA). If you have returned to work, or are thinking about returning, it's very
PHA's 2014 International PH Conference and Scientific Sessions
...Conference Videos [image: Dr. Michael McGoon YouTube] We recorded many videos at Conference, including some candid interviews with attendees. Hear about Conference from the perspective of D
PHA News - April 18, 2012
...help determine the allocation of organs to patients in need, including PH patients awaiting lung transplant. Currently, the LAS significantly underestimates a PH patient's need for organs, but that
PHA News - May 16, 2012
...Castro at 301-565-3004 x755. &#160; &#160; [image: Understanding the Emotional Impacts of Transplant]&#160; Understanding the Emotional Impacts of Transplant <https://cc.readytalk.com/r/wux3
PHA News - June 13, 2012
...for more information. Get Smart &#160; &#160; Transplant Recording Available <http://www.phassociation.org/page.aspx?pid=4124> Transplantation &#8211; or even just undergoing a tr
Gina Tackett's Journey with PH
...the local hospital. "I was completely devastated. They told me my only hope was to seek a lung transplant as soon as possible. I probably had about six months to live." Over the next three da
Journey - Susie Alvarez
...to help you breathe but your illness will progressively get worse. Eventually you will need a lung transplant.” Then he left the room.   "My family was located miles away and I did not have the
Support Group: Event Calendar (Lung Transplants)
... SubTitle Speakers: Kelly Morris, RN (Transplant Team) and Dottie Biggar, RN (Pulmonary Rehab) Name Lung Transplants Details The meeting will take place at: St. Luke Hospital; Emerson Auditori
Support Group: Event Calendar (PH and Lung Transplant)
... SubTitle Speaker: Steven D. Nathan, MD, Medical Director, Advanced Lung Disease and Transplant Program at INOVA Fairfax Hospital Name PH and Lung Transplant Details Refreshments will be provid
Support Group: Event Calendar (Support Group Meeting w/special speakers)
... SubTitle Lung Transplant and Treatment Options for Advanced Lung Disease Name Support Group Meeting w/special speakers Details Come join us at our April meeting when Andres Pelaez, MD and Sue K
Josiah's Journey with PH by Jan Windz
...ill and non-adoptable. His prognosis was that he would be dead within a year without a heart lung transplant. However, he was not considered a candidate for a transplant because he was in the foste
Treatment Options for PH
...the vein) and subcutaneous (into the skin) options. Depending on the severity of PH, heart or lung transplant may also be an option. Remember that each patient is different. It is essential that
International News and Projects (Four-Year-Old Boy "Shortest" in UK to Get New Lungs)
...(BBC News) - A four-year-old boy is the shortest person in the UK to have a successful lung transplant, doctors said. Surgeons at Great Ormond Street Hospital in London carried out the transplant i
International News and Projects (Heart and Lung Transplant Recipient in Australia Hoping for a Breakthrough)
...essentially operating back to front, Mike Lambe has always known he would one day need a heart transplant. He developed pulmonary arterial hypertension and received new lungs along with his heart j
Pulmonary Hypertension Research News (New Diagnostic Tool To Detect Complications In Lung Transplant Patients)
...have developed a new diagnostic tool that could help predict a fatal complication in lung transplantation patients. In the complication known as bronchiolitis obliterans syndrome (BOS), scar tissue
Pulmonary Hypertension Research News (Pulmonary Hypertension After a Lung Transplant Predicts RRT Need)
...hypertension is a strong predictor of the need for renal replacement therapy (RRT) after lung transplantation, according to researchers. Read article <http://www.renalandurologynews.com/pulmonary-h
Pulmonary Hypertension Research News (UK (University of Kentucky) Healthcare Surgeons First to Perform Novel Procedure for Transplant Patient)
...recently became the first ever to perform two specific procedures together as a bridge to lung transplantation. Read article <http://www.kyforward.com/2011/10/uk-healthcare-surgeons-first-to-perfor
BBTest Event Page (Lung Transplants)
... SubTitle Speakers: Kelly Morris, RN (Transplant Team) and Dottie Biggar, RN (Pulmonary Rehab) Name Lung Transplants Details The meeting will take place at: St. Luke Hospital; Emerson Auditori
BBTest Event Page (PH and Lung Transplant)
... SubTitle Speaker: Steven D. Nathan, MD, Medical Director, Advanced Lung Disease and Transplant Program at INOVA Fairfax Hospital Name PH and Lung Transplant Details Refreshments will be provid
BBTest Event Page (Support Group Meeting w/special speakers)
... SubTitle Lung Transplant and Treatment Options for Advanced Lung Disease Name Support Group Meeting w/special speakers Details Come join us at our April meeting when Andres Pelaez, MD and Sue K
Pulmonary Hypertension News Jan 2010 to Apr 2012 (H1N1 Flu Notice)
...UTC Description Due to the pandemic nature of H1N1 in our country today, if you are a PH patient, transplanted patient or direct caregiver, you should contact your PH (or transplant) physician imm
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Pulmonary Hypertension After a Lung Transplant Predicts RRT Need)
...hypertension is a strong predictor of the need for renal replacement therapy (RRT) after lung transplantation, according to researchers. Read article <http://www.renalandurologynews.com/pulmonary-
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Transplant Survivor Thankful for 'LifeGift')
... Description 12/29/2011 (My Fox Houston) - Houston resident Twana Schulz underwent double lung transplant surgery on Christmas Day 2010 and is thankful for the gift that gave her a second chance t
Pulmonary Hypertension News Jan 2010 to Apr 2012 (UK (University of Kentucky) Healthcare Surgeons First to Perform Novel Procedure for Transplant Patient)
...recently became the first ever to perform two specific procedures together as a bridge to lung transplantation. Read article <http://www.kyforward.com/2011/10/uk-healthcare-surgeons-first-to-perfor
PHA Classroom - Schedule of Conference Recordings
...recordings that have been posted February 15, 2011 * Surgical Treatments: Lung Transplants and Other Procedures * PDE-5 Inhibitors: Sildenafil and Tadalafil * Early/Mild PH * Cirugia y
PHA Classroom
...Recording from PHA's 2010 9th International PH Conference My Doctor Said I May Need a Lung Transplant June 25, 2010  [image: Angie Eldam]Angie Eldam Considering transplant? Hear from patients w
PHA News - Nov. 16, 2011
...has to offer. » Learn more <http://www.phassociation.org/conference/scholarships> Ask Your Transplant Questions and Share Your Story! <http://groups.google.com/group/pha_transplant?pli=1>
PHA Support Group Event Calendar - Texas (TX - Dallas)
...Free ContactInfo Honey 940-597-7564 or TX-Dallas@PHASupportGroups.org CategoryName SubTitle Transplants; Learning from Doctor, Patient &amp; Caregiver Details Join us for our June meeting!
PHA Support Group Event Calendar - Southern California (CA – South Orange County)
...Sehgal 949-830-6558 or CA-WojoSouthOrangeCounty@PHASupportGroups.org CategoryName SubTitle Transplants Details Join us for our March Meeting!  Judy Sepulveda, former PH patient and transpla
PHA Classroom - e-Learning Guides - Transplantation
...From the Medical Professionals It is important to understand all sides of getting a transplant, from emotional preparedness to medical terminology. PHA and the SLC has lots of resources to help yo
Peter Smoothy's Memorial Told by His Sister
...Peter didn't want to miss out on anything. But he got so ill that in July 1994 he was put on the transplant list. In August he was put to the top of the list. My husband and I took him on a boating
Denise Payne's Journey with PH
...story "I was told that in order to survive I was going to need a heart and lung transplant. My thought was that if that is going to keep me alive, I’ll do it" - Denise Payne Denise Y. Payne
PH Roundup June 2012
...Time! Comment on Lung Allocation Score Revisions To better meet the needs of patients awaiting transplant, the Thoracic Organ Transplantation Committee recently proposed revisions to the Lung Allo
Caregiver Mentor Spotlight - Jim Wilson
...us that they didn’t know enough about PH to treat her and referred us to a hospital that did lung transplants. The transplant team started my wife on a program designed for PH to see if she could q
Chester Newby Sr's Journey with PH by Orina Alsip
...me to Chester Sr.’s baby sister, Veronica, a PH patient. She was very ill and in need of a transplant. On June 24th, 1994, Chester Sr. was late to our wedding because veronica got her transplant. O
PHA News - Jan. 12, 2011
... Website Discoveries [image: lung illustration] Things I Found by Kathryn Frix: Transplant Resources <target=&pid=2685&did=0&tab=0> One of the common threads in my correspondence with peo
PHA News - Oct. 19, 2011
...x756 or Membership@PHAssociation.org <mailto:Membership@PHAssociation.org>. Ask Your Transplant Questions and Share Your Story! <https://groups.google.com/group/pha_transplant?pli=1> PHA's Tran
PH Roundup April 2012
...&#160; &#160; Roundup Spotlight... To better meet the needs of patients awaiting transplant, the Thoracic Organ Transplantation Committee recently proposed revisions to the Lung Alloca
Journey - Paige Ruffin
...liver. Today, as of a year and a month, I have been negative for Hep-C. My MAL level was 9 and a transplant was never going to be needed. But then I got diagnosed with PH which shot my MAL up to ab
Lindsay Morales's Journey with PH
...using supplemental Oxygen 24 hours a day. The doctors suggested that I needed a Heart and Lung Transplant to survive. In the beginning it was really hard for me to be compliant and follow-up with t
Jane Denham's Memorial Told by John
...the only available treatment. We were advised that she was too old at 58 to be accepted for a lung transplant at the Sydney facility. In 1997 we spent several months sailing our yacht up the Queen
Journey - Heather Fischer
...decreased dramatically. I then decided to start the steps toward getting worked up for a lung transplant, and one of the required tests is a right-heart catheterization. After those tests I was to
PHA Board of Trustees - Laura D’Anna
...[image: Laura D'Anna]PHA Board of Trustees Laura D’Anna, DrPH, MPA Senior Research Fellow and Associate Director, California State University Long Beach Center for Health Disparities Research Lo
Support Group: Event Calendar (Advanced Lung Disease, PH and Lung Transplants)
... SubTitle Speaker: Dr. Pelaez, Medical Director, Lung Transplantation at FL Hospital Name Advanced Lung Disease, PH and Lung Transplants Details Lunch will be provided by United Therapeutics.
BBTest Event Page (Advanced Lung Disease, PH and Lung Transplants)
... SubTitle Speaker: Dr. Pelaez, Medical Director, Lung Transplantation at FL Hospital Name Advanced Lung Disease, PH and Lung Transplants Details Lunch will be provided by United Therapeutics.
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Eisenhower School Dedicates Its Field to a Former Student Who Died of Pulmonary Hypertension)
...an emotional ceremony highlighting the life of LeGrand, a Dubuque teenager who underwent two lung transplants before a rare lung disorder claimed his life earlier this year. Read article <http://ww
Pulmonary Hypertension News Jan 2010 to Apr 2012 (The Man Who Gives the Gift of Breath)
...General Hosptital is profiled in this article. He talks about the groundbreaking artificial lung transplants he's done to help pulmonary hypertension patients stay alive while waiting for donated l
Can PH Medications Cause Hair Loss?
...ASK A PH SPECIALIST[image: hairbrush with hair in it] Question: Since I was diagnosed with PH, my hair has been thinning. I’ve heard that some PH medications can cause hair loss as a side effect.
PHA Support Group Event Calendar - Florida (FL - Tampa Bay)
... SubTitle Anesthesia &amp; PAH, COPD and Lung Transplants Details Carol & Frank Morsani Center, Univ. of S. FL - Rm 1013A Guest Speaker: Devanand Mangar, MD President and CEO, Florida Gulf
Braden Buehler's PH Journey
...heart failure. No cause and no cure. Rare. Progressive. Fatal. Two years. Maybe five years. Lung transplants. Heart and lung transplants. Symptoms I recognized. Treatments that seemed they would in
Diagnosis Stories - Braden Buehler
...heart failure. No cause and no cure. Rare. Progressive. Fatal. Two years. Maybe five years. Lung transplants. Heart and lung transplants. Symptoms I recognized. Treatments that seemed they would in
SF-PHA Donation Form
...p://sanfrancisco.cbslocal.com/video/9645963-east-bay-holiday-light-display-inspired-by-girl-needing-transplants/>.
Support Group: Blog (TRANSPLANT ANNIVERSARY)
... Description This is my one month liver transplant anniversary.  Happy to report that still no signs of rejection. Feel good. Great to be back home for recuperation. My thanks to all for their
PHA News Nov13 2009
...FLU NOTICE Due to the pandemic nature of H1N1 in our country today, if you are a PH patient, transplanted patient or direct caregiver, you should contact your PH (or transplant) physician imme
International News and Projects (Why Does Western Australia Lag Behind in Organ Donation?)
...has a chronic lung condition and is one of about 1,700 people Australia-wide in need of an organ transplant. "During my second pregnancy three and a half years ago I became sick and developed pulmo
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Chelsea's Story - New Book about a PHer)
...celebrating the life of a teenager, who passed away three years ago, after a double lung and heart transplant. The book, "It Gives a Lovely Light," is a tribute to Chelsea Groves, a young lady with
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Four-Year-Old Boy "Shortest" in UK to Get New Lungs)
...(BBC News) - A four-year-old boy is the shortest person in the UK to have a successful lung transplant, doctors said. Surgeons at Great Ormond Street Hospital in London carried out the transplant i
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Heart and Lung Transplant Recipient in Australia Hoping for a Breakthrough)
...essentially operating back to front, Mike Lambe has always known he would one day need a heart transplant. He developed pulmonary arterial hypertension and received new lungs along with his heart j
Pulmonary Hypertension News Jan 2010 to Apr 2012 (High School Junior and Lung Transplant Recipient Pushes for Organ Donation Education)
...- Maddie knew she had months, not years. When she was placed on the national organ transplant list because her lungs were failing, her doctors couldn't answer the big when — or if — question. Two m
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Man Plans Benefit Walk for 10-Year-Old Boy with Pulmonary Hypertension)
..."Walking Washington for the Breath of Life," to raise awareness and funds for the Children’s Organ Transplant Association (COTA). He is dedicating the walk to 10-year-old Cullen Steele who is antic
Pulmonary Hypertension News Jan 2010 to Apr 2012 (New Diagnostic Tool To Detect Complications In Lung Transplant Patients)
...have developed a new diagnostic tool that could help predict a fatal complication in lung transplantation patients. In the complication known as bronchiolitis obliterans syndrome (BOS), scar tissue
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Parents Make Public Appeal on Behalf of 5-week-old Daughter Who Needs Lung Transplant to Survive)
...media Friday on behalf of their 5-week-old daughter, Katelyn, who is in immediate need of a lung transplant in order to survive. Read article <http://www.businesswire.com/news/home/20110605005069/e
Pulmonary Hypertension News Jan 2010 to Apr 2012 (PHer Wins Essay Contest and Donation to PHA)
...and people are living longer and longer because of the treatments. The only other option is a lung transplant. I have pulmonary hypertension and have been approved for a double lung transplant. I a
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Pledge to Give the Gift of Life this Valentine’s Day)
...Americans, including&#160;pulmonary hypertension&#160;patients, are waiting for life-saving organ transplants. Learn more and spread the word about organ donation <http://www.organdonor.gov/inde
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Teen in Lee County, Ga., Needs Second Double Lung Transplant)
...2/26/10 (WALB News 10) Albany, Ga. - A 19-year-old in Lee County is waiting on a double lung transplant. It'sa road she's been down before. When she was only ten, Victoria Doolittle was diagnosed w
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Why Does Western Australia Lag Behind in Organ Donation?)
...has a chronic lung condition and is one of about 1,700 people Australia-wide in need of an organ transplant. "During my second pregnancy three and a half years ago I became sick and developed pulmo
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Woman Breathes Easy After Getting State's First Lung Transplant Since Katrina)
...for oxygen or hope after a Feb. 4 surgery at Ochsner Medical Center made her the first lung transplant recipient in Louisiana since Hurricane Katrina. "It's been an eye-opener. You're not invincibl
PHA Classroom - e-Learning. Anytime. Anyplace.
...Michigan Health System       Treatment Information   [image: Surgical Treatments: Lung Transplant and Other Procedures Panelists] Video   Surgical Treatments: Lung Transplant and Other
PHA News - 2011 Archives
...Caregivers * From the PHA News Desk: Conference Email Alerts, Make a Gift to PHA and It Doubles, Transplant Email Group * PH News Headlines November 30, 2011 - Awareness Building in Congress
Support Group Leader Updates - August, 2011
...<mailto:Debbie@PHAssociation.org> to participate in future group phone calls. Looking for Transplanted PH Patients <http://groups.google.com/group/PHA_Transplant/subscribe?hl=en&note=1&pli=
PHA Classroom
...>>If you liked this recording, you may enjoy Understanding Transplant Options <target=&pid=3146&did=0&tab=0> [image: Marshall Hertz, MD] <target=&pid=3146&did=0&tab=0>
Transplant Information for PH Patients
...Lung Transplant Information Read a consensus statement on lung transplantation written by PHA's Scientific Leadership Council.
Lung Transplant - Information for Friends, Family Members and Parents
...Lung Transplant Information Read a consensus statement on lung transplantation written by PHA's Scientific Leadership Council.
Support Group Leader Updates - January 2012
...&#160; Upcoming Second Tuesday Training: Heart to Heart: What You Need To Know about Transplant <http://www.phassociation.org/page.aspx?pid=1418> Tuesday, Feb. 14, 3:00 pm. ET Not only do
PHA News - 2012 Archives
...Support Groups for Caregivers and Parents * Website Discoveries: Things I Found by Kathryn Frix: Transplant and PH * PH Community Scoop: Congratulations, Shari Caffrey, Lady GODIVA Summer Honor
Transplant and Pulmonary Hypertension
...Lung Transplant Information Read a consensus statement on lung transplantation written by PHA's Scientific Leadership Council.
PHA Support Group Event Calendar - Florida (FL - Orlando)
... Location Florida Hospital Transplant Center 2415 N. Orange Ave., Suite 700, Orlando, FL Fees None ContactInfo RSVP by Sept. 24 to Tina, 407-914-9798, Jackie, 407-774-2707, Karen, 407-721-001
PHA Support Group Event Calendar - Florida (FL - Orlando)
... Location Florida Hospital Transplant Center 2415 N. Orange Ave., Suite 700, Orlando, FL Fees None ContactInfo CategoryName SubTitle Holiday Celebration Details We will also welcome our n
PHA Support Group Event Calendar - Florida (FL - Orlando)
... Location Florida Hospital Transplant Center 2415 N. Orange Avenue, Orlando, FL Fees None ContactInfo RSVP by 9/23 to Jackie Woosley, 321-279-6380; Jane Northrup, 321-245-8435; Jennifer Klick,
PHA News 2013July24
...Cancer Survivor and PH Patient Awaits Double Lung Transplant <http://www.thetelegram.com/News/Local/2013-07-20/article-3322044/Cancer-survivor-awaits-double-lung-transplant/1> » Desperate for Tran
PHA News 2013Aug7
...How Transplanted Pig Lungs Could Save Human Patients <http://www.popularmechanics.com/science/health/breakthroughs/how-transplanted-pig-lungs-could-save-human-patients-15750396?click=pm_latest> Up
PHA Classroom - PH in COPD
...Bartolome, MD Associate Director, Pulmonary Hypertension Program Director, Liver Transplant Critical Care Program University of Texas – Southwestern Dr. Sonja Bartolome graduated from the Unive
Parents - Pediatric Transplant
...Lung Transplant Information Read a consensus statement on lung transplantation written by PHA's Scientific Leadership Council.
Support Group: Event Calendar (Lung Transplant Evaluation - Dr. Thomas Gildea from Cleveland Clinic)
... SubTitle Name Lung Transplant Evaluation - Dr. Thomas Gildea from Cleveland Clinic Details Thanks to the Pulmonary Hypertension Association (PHA) Support Group Central Fund for sponsoring our
BBTest Event Page (Lung Transplant Evaluation - Dr. Thomas Gildea from Cleveland Clinic)
... SubTitle Name Lung Transplant Evaluation - Dr. Thomas Gildea from Cleveland Clinic Details Thanks to the Pulmonary Hypertension Association (PHA) Support Group Central Fund for sponsoring our
PHA Classroom
...  Session Recording from PHA's 2010 9th International PH Conference Pulmonary Hypertension, Lung Disease, and Low Oxygen Levels June 26, 2010  During this session, we discuss so-called Group B
Conference - Medical Professionals - Accreditation Information
...Continuing Education Accreditation Information Scientific Sessions - June 19-20 The Fundamentals of PH: Continuing Education Sessions - June 20-22, 2014 [image: Physician presenting at Conferenc
Survival Guide Feedback
...Feedback – Pulmonary Hypertension: A Patient’s Survival Guide We hope you enjoyed reading Pulmonary Hypertension: A Patient’s Survival Guide. Please take a few moments to give us your thoughts a
PHA Classroom - 2012Jun23 - Conf - PH and Lung Disease/Sleep Apnea
...Session Recording from PHA's 2012 10th International PH Conference PH and Lung Disease/Sleep Apnea June 23, 2012 During this session, we will discuss so-called Group B pulmonary hypertension—PH
PHA Classroom - 2014Feb27 - Pulmonary Hypertension: Essentials for Living the Adventure of PH
...Pulmonary Hypertension: Essentials for Living the Adventure of PH February 27, 2014 If you or someone you know was recently diagnosed with pulmonary hypertension (PH), this webinar is especially
Support Group: Blog (Greater St. Louis Support Group Dinner & Wine Tasting Event)
...improvement!!! And we concluded our “successes” by continuing to celebrate Jim Baker’s double lung transplant recovery with Jim announcing that he no longer has PH, nor does he have any of the symp
Support Group Leader Updates - December, 2011
...President Rino Aldrighetti's blog <http://pharino.blogspot.com/> &#160; &#160; Considering Transplant? PHA Has a Group for That <http://groups.google.com/group/pha_transplant> PHA has a disc
PH Roundup May 2012
...on Lung Allocation Score Revisions To better meet the needs of patients awaiting transplant, the Thoracic Organ Transplantation Committee recently proposed revisions to the Lung Allocation Score (
PH Roundup 2013 September
...Institutes of Health Submission Deadline: Oct. 16, 2013   Clinical Trials in Organ Transplantation (CTOT)(U01) <http://grants.nih.gov/grants/guide/rfa-files/RFA-AI-13-006.html> (RFA-AI-13-00
PHA News - July 27, 2011
...what else we've been up to <target=&pid=3042&did=0&tab=0> What Do You Want to Know About Transplantation? <http://www.surveymonkey.com/s/NHLQTFG> PHA is expanding our transplant resources. I
PHA News - Feb. 6, 2013
... Also of Interest     Celebrate New Life Through Transplant <http://www.organdonor.gov/index.html> Feb. 14 is National Organ Donor Day More than 116,000 Americans, including PH patient
PHA News 2013April3
...First 'Breathing Lung' Transplant on East Coast Using OCS Lung <http://medicalxpress.com/news/2013-03-lung-transplant-east-coast-ocs.html> » Biotech Company Partners with UK. Universities on PAH D
Susan Temple's Journey with PH
...The good news is that it was caught fairly early and that I was a good candidate for Flolan and a transplant. I started Flolan, a continuous IV medication in 2001 and it saved my life. I taught for
Support Group: Blog (Great news...Larry Fox received a new liver!)
...in ICU and is doing fine. He received the liver from a living 49 year old man. Both were given a transplant, they called it a piggy back surgery. Both are doing well. We were all very surprise tha
Support Group: Blog (Sharren Yamron)
...was an inspiration and gave many hope to know that this disease is doable. She had a double lung transplant, five years later she had a single lung transplant. Shortly after that she had breast can
Support Group: Blog (TRANSPLANT for CINDY)
...AM UTC Description November 16, 2011...Today Cindy Wangerud received her heart and double lung transplant at Stanford Univ. in Califor. She is still sedated, but her team of doctor said the proced
Support Group: Event Calendar (Christmas party/meeting)
...entrance is on Orlando St. off of Orange Ave. by the Wendy’s. Look for signs. Crosswalk to Transplant Center, then take elevator to 6th floor. Someone will be there to direct you. CategoryName L
Connor Sammy Sale
...13-year old’s fundraiser for friend David Rocco A letter from Linda Rocco, mom of patient and transplant survivor, David Rocco; PHA’s Caregiver of the year in 2004 and long-time PH and PHA special
Tina Gillis's Journey with PH
...I have fallen sick in the last couple of weeks. I still haven’t gotten my heart and double lung transplant. I’ve been told different stories about how I could get the transplant and then that I cou
Sally Maddox's Journey with PH
...of testing, they put me on 240mg of Procardia and Coumadin, and they evaluated me for heart lung transplant. Thank God for my parents, especially my mom, who had to make some hard decisions about t
Cathy Price's Journey with PH
...at Loyola and he quickly turned me over to Dr. Bhorade his chief of pulmonary medicine and transplant coordinator. “She takes care of the weird stuff,” he told us. That was reassuring, that my lung
Sarah's Memorial Told by Gary Atkinson
...on a birthday cake. We were told her only hope for a long life would be a lung or heart/lung transplant. As an exuberant and coquettish young lady, we held back from fully disclosing to her this d
Recommendatins for patient referral to PH Speciali
...Download & Print PDF Recommendations for patient referral to a PH specialist Consensus Statement Issued by the Scientific Leadership Council DISCLAIMER: The information below is for genera
BBTest Event Page (Christmas party/meeting)
...entrance is on Orlando St. off of Orange Ave. by the Wendy’s. Look for signs. Crosswalk to Transplant Center, then take elevator to 6th floor. Someone will be there to direct you. CategoryName L
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Opera Singer Charity Sunshine Tillemann-Dick Back on Stage After Double Lung Transplant)
...Ohio - A world renowned opera singer is performing for the first time since her double lung transplant. 26-year-old Charity Sunshine Tillemann-Dick developed a condition called pulmonary hypertensi
Medicare Basics
...months * Have End-Stage Renal Disease, a permanent kidney failure requiring dialysis or a kidney transplant *The above requirements are only general guidelines; please visit Medicare Rights Ce
Patient Mentor - Colleen
...Patient Mentor Profile [image: Colleen Schnell] Colleen Diagnosed in 1975 "I love making jewelry and spending time with my family and friends. I run a local PH support group and I host t
Gerilynn L. Connors' Journey Treating PH
...pulmonary rehabilitation program received our first referred PPH patient being worked up for lung transplant at Inova Fairfax Hospital. At that time, there was no literature about exercise and pulm
PHPN Mentor Program
...PH Professional Network Mentor Program [image: allied health professionals] The PH Professional Network (PHPN) Mentor Program connects healthcare providers working with PH patients with a qualifi
PHA News - Jan. 25, 2012
...Day. More than 112,000 Americans, including PH patients, are waiting for life-saving organ transplants.&#160; Learn more about organ donation <http://www.organdonor.gov/index.html>&#160;|&#160; Lea
Support Group Leader Updates - March, 2012
...register in advance! <https://cc.readytalk.com/r/cts44g3cmlsm> &#160; &#160; Recording: Transplant <http://phamultimedia.org/SupportGroups/2011Feb24_TrainingForLeaders/lib/playback.html> Dr.
Referral to PH Specialist Recommendations
...Download & Print PDF Recommendations for patient referral to a PH specialist Consensus Statement Issued by the Scientific Leadership Council DISCLAIMER: The information below is for genera
PHA Donor Story - Christina Buchanan
...the tubing if it gets caught on something. On Dec. 27, 2011, Riley became actively listed for transplant at Children’s Hospital of Philadelphia. Riley is a “very happy girl. She doesn’t let any o
Support Group Leader Updates - July, 2012
... PHA Campaigns Get your group involved &#160; &#160; Transplant Resources Online <http://www.PHAssociation.org/Patients/LungTransplant> We have completely revamped our lung transplanta
Recommendatins for patient referral to PH Speciali
...Download & Print PDF Recommendations for patient referral to a PH specialist Consensus Statement Issued by the Scientific Leadership Council DISCLAIMER: The information below is for genera
PHA News - Nov. 28, 2012 - FDA
...travelled to Washington to speak to an FDA panel, arguing for the inclusion of both PAH and organ transplant in the pilot year of FDA’s new initiative.  PHA’s president Rino Aldrighetti submitted
Endorsments from Other Organizations
...for Sarcoidosis Research www.stopsarcoidosis.org <http://www.stopsarcoidosis.org/> [image: Lung Transplant Foundation] <http://lungtransplantfoundation.org> Lung Transplant Foundation www.lung
Colleen Brunetti Testifies Before the FDA
...to Washington, DC., to speak to an FDA panel, arguing for the inclusion of both PAH and organ transplant in the pilot year of the FDA’s new initiative. Rino Aldrighetti, PHA’s President, submitted
Ask a PH Specialist: Preparing for PTE Surgery
...Ask a PH Specialist Question: As a CTEPH patient, what can I expect from my medical team as I prepare for the PTE surgery? Answer: Imagine for a moment that you’ve just been told you have pulmon
PH Email Mentor - Patient - Marla
...Patient Mentor Profile [image: Colleen Schnell] Marla Diagnosed in 2008 "Im a working mom and wife. I love to travel, spend time with family and exercise." ___________________________
PH Email Mentor - Patient - Alex
...Patient Mentor Profile [image: Colleen Schnell] Alex Diagnosed in 1998 "I have been diagnosed with PAH since 1998, was on Flolan for four of those years, Tracleer for 11 years and finall
Heather Wilson's Journey with PH
...were in the fifties. He didn't know what to do so he said he wanted me to have a heart and lung transplant. He was finding a good hospital to the transplant. When we got home from the doctors, I go
Jessica Lazar's Journey with PH
...for eight years, and because of her diagnosis of breast cancer, she was not eligible for a lung transplant. She began combination therapy and was also treated successfully for her cancer. After she
PHA News April 3, 2013
...First 'Breathing Lung' Transplant on East Coast Using OCS Lung <http://medicalxpress.com/news/2013-03-lung-transplant-east-coast-ocs.html> » Biotech Company Partners with UK. Universities on PAH D
PHA News April17, 2013
...<http://www.pharmabiz.com/NewsDetails.aspx?aid=74693&sid=2> » New Standards for Getting on the Transplant List to Benefit PHers <https://www.phassociation.org/phanews/2013april17-split/lung-alloca
PHA News Aug. 6, 2014
...Even the Rain Can’t Wipe the Smile Off Phoebe Fordham’s Face – Heart and Lung Transplant Survivor Appreciates Everything Life Has to Offer <http://www.ipswichstar.co.uk/news/claydon_even_the_rain_c
Support Group: Blog (Getting to Know your PH)
... News Channel Support Group News Publication Date 1/20/2010 1:46:10 PM UTC Description Welcome! KnowYourPH.org is a dedicated source of vital information for patients with pulmonary hypertens
PHA News Apr20 2009
...[image: PHA News : <view.image?Id=861>] April 20, 2009 ASK A PEDIATRICIAN QA CHAT WITH DR. ERIKA BERMAN ROSENZWEIG e-Learning Event Series Wednesday, April 22 7:00 pm. ET QA Onlin
Bonnie Dukart's Journey with PH
...also pleased to find out about a then experimental drug called Flolan and the possibility of lung transplants. At least there were other options. I went back to New Jersey and started a support g
Pulmonary Hypertension News Jan 2010 to Apr 2012 (For Medical Professionals: Free CME/CEU Live Webinar Thursday on PH in Systemic Sclerosis)
... News Channel What's New in Pulmonary Hypertension Publication Date 1/24/2011 7:22:17 PM UTC Description PH in Systemic Sclerosis January 27, 67 pm. ET Virginia Steen, MD This live PHA Onli
PHA Medical Education On-Demand - Program Topics
...Program Topic Choices   [image: Dr. Michael McGoon]   For Medical Professionals Only [image: Request a Program] <http://www.phamededondemand.org/Application/>  Password required, Contact
Research Funding for Pulmonary Hypertension
...RESEARCH IN PULMONARY HYPERTENSION "PHA's research program has yielded an explosion of understanding about PH that was not known before." - John Newman, MD, Vanderbilt University Medical Center
PHA Classroom News Feed (New Recording: Pulmonary Hypertension: Essentials for Living the Adventure of PH)
... Description If you or someone you know was recently diagnosed with pulmonary hypertension (PH), this webinar is especially designed for newly diagnosed patients. Deedre Boekweg, RN, BSN, CCRP, of
PHA Classroom News Feed (Upcoming Webinar: Pulmonary Hypertension: Essentials for Living the Adventure of PH)
... Description Thurs. Feb. 27, 2014 3 pm. ET / 12 pm. PT Presenter : Deedre Boekweg, RN, BSN, CCRP If you or someone you know was recently diagnosed with pulmonary hypertension (PH), please join
Deziree' Rivera's Journey with PH
...It was then I heard bits and pieces of what she was talking about. She was saying words like transplants, 35 years to live, and hospitalization for a heart catheterization. I could barely grasp any
PHA News - Nov. 1, 2012
...Chartiy Tillemann-Dick: A Tale of Two Transplants <http://thechart.blogs.cnn.com/2012/10/31/a-tale-of-two-transplants/> » Nike, Doernbecher Join Forces to Create Shoes, Raise Money <http://www.ore
2013 Symposium Sponsorships
...Sponsorships PHA is pleased to offer many sponsorship opportunities at the 2013 PH Professional Network Symposium. Numerous event sponsorships will be available from general sessions to event publ
PHA Classroom - 2012Jun23 - Conf - Surgery and Anesthesia in Patients with PH: What You Should Know
...Session Recording from PHA's 2012 10th International PH Conference Surgery and Anesthesia in Patients with PH: What You Should Know June 23, 2012 This session will discuss preoperative evaluatio
Support Group: Blog (Saturday, August 17th 2013.)
...Carolina to our small group in Rochester with open arms. Jodi, my co-leader was happy to share her transplant story and success from 14 years ago, her little boy born after the transplant five year
Support Group: Event Calendar (Jim Baker Benefit & Dance)
...Baker who suffers from Pulmonary Hypertension a rare lung disease and is in need of a double lung transplant. Pasta Dinner & Beer 7-10pm Live Music: Hobo Jungle (60’s- Today) Silent Auction, 5
Support Group: Event Calendar (Medicare 101)
...is available in the McCrae St. Garage (3rd Floor) CategoryName Location Florida Hospital Transplant Center 2415 N. Orange Ave., Orlando Fees None ContactInfo Please RSVP by Sept. 16 to Meliss
Support Group: Event Calendar (Support Group Meeting)
...Medical Center, Auditorium C Date: Sat, Aug 21 When: 12pm-2pm Speaker: Andrea Allen, RN Transplant Coordinator at UC Davis Topic: Emergency Management Sponsor: Lunch provided by Gilead RSVP:
Support Group: Event Calendar (Support Group Meeting)
...Support Group Meeting Details The Pulmonary Hypertension Program in association with The Lung Transplant & Heart Failure Program are pleased to invite you to our Pulmonary Hypertension Sup
Support Group: Event Calendar (Support Group Meeting)
...Support Group Meeting Details The Pulmonary Hypertension Program in association with The Lung Transplant & Heart Failure Program are pleased to invite you to our Pulmonary Hypertension Sup
Support Group: Event Calendar (Support Group Meeting)
...Sheila Williams is arranging a joint meeting with Dr Torres and her family to talk about her transplant experience. Location to be announced CategoryName Location To be announced Fees Contac
PHA News Feb06 2009
...Carl Hicks. We are sorry to share the sad news that Meaghan, who underwent a heart and double lung transplant in 2007, lost her battle with PH on January 30. We mourn with Carl and his family and w
PHA News Mar20 2009
...A DREAM A Successful Double Lung Transplant Allows Massachusetts' Teen To Swim Cassie Tessier loves to swim and, for the first time in more than eight years, she will soon be able to take the p
Maria Del Valle's Journey with PH
...it was too late to close that PDA. I now knew that I was looking at a lung and possibly a heart transplant. I went to meet with Dr. Angel,a lung transplant doctor. Dr. Angel and Dr. Homma both thou
Treatment Options for PH
...Classroom - Treatments> section of the PHA Classroom to learn more about specific PH therapies, transplant options and more. Watch recordings <http://www.phassociation.org/page.aspx?pid=2565#PHA C
International News and Projects (New Lease of Life for Battling Mum)
... Description (Chorley Guardian - UK) - A battling mum who underwent a double-lung transplant has beaten the odds to make a remarkable recovery - just a month after leaving hospital. Natalie Kerr,
BBTest Event Page (Jim Baker Benefit & Dance)
...Baker who suffers from Pulmonary Hypertension a rare lung disease and is in need of a double lung transplant. Pasta Dinner & Beer 7-10pm Live Music: Hobo Jungle (60’s- Today) Silent Auction, 5
BBTest Event Page (Medicare 101)
...is available in the McCrae St. Garage (3rd Floor) CategoryName Location Florida Hospital Transplant Center 2415 N. Orange Ave., Orlando Fees None ContactInfo Please RSVP by Sept. 16 to Meliss
BBTest Event Page (Support Group Meeting)
...Medical Center, Auditorium C Date: Sat, Aug 21 When: 12pm-2pm Speaker: Andrea Allen, RN Transplant Coordinator at UC Davis Topic: Emergency Management Sponsor: Lunch provided by Gilead RSVP:
BBTest Event Page (Support Group Meeting)
...Support Group Meeting Details The Pulmonary Hypertension Program in association with The Lung Transplant & Heart Failure Program are pleased to invite you to our Pulmonary Hypertension Sup
BBTest Event Page (Support Group Meeting)
...Support Group Meeting Details The Pulmonary Hypertension Program in association with The Lung Transplant & Heart Failure Program are pleased to invite you to our Pulmonary Hypertension Sup
BBTest Event Page (Support Group Meeting)
...Sheila Williams is arranging a joint meeting with Dr Torres and her family to talk about her transplant experience. Location to be announced CategoryName Location To be announced Fees Contac
Pulmonary Hypertension News Jan 2010 to Apr 2012 (PHA on the Road: Session Recordings Now Available)
...on June 18 are now available online. Session topics include How is PAH Diagnosed, Understanding Transplant Options, PH and Connective Tissue Disease and more. Continue your education at PHA Classro
Medical Education: Marketing & Communications Internship
...Medical Education: Marketing & Communications Internship Intern Video Journal Savannah Chaisson Medical Services: Marketing and Communications Summer 2013   Not Currently Available
PHA Classroom
...>>If you liked this recording, you may enjoy My Doctor Said I May Need a Lung Transplant <target=&pid=2768&did=0&tab=0> [image: Angie Eldam] <target=&pid=2768&did=0&tab=0>
Abby’s Road PHun Walk
...Family, who lost two daughters to PH and have a third daughter who is a double lung and heart transplant survivor.
PHA Classroom
...  Session Recording from 2011 PHA on the Road , Minneapolis Understanding Transplant Options June 18, 2011 This session will review the roles of lung transplantation and other surgical therapie
Lung Transplant - Information about Organ Donation
...Transplant and Pulmonary Hypertension Organ Donation&#160;[image: illustration of lungs] One of the greatest gifts you can give a loved one with PH is registering to be an organ donor. The need f
PHA Support Group Event Calendar - Texas (TX - Austin)
...Join us for our June Meeting!   Dr Ernest A. Haeusslein, from the Seton Heart Specialty Care & Transplant Center will be doing a presentation entitled PAH 101   RSVP to:  Gaby 512-383-5088 or T
PHA Support Group Event Calendar - Southern California (CA - USC)
...or Jessica 323-442-6077 or CA-USC@PHASupportGroups.org CategoryName SubTitle Exploring Lung Transplantation Details Join us for our November Support Group Meeting! Marvin Mailom, RN, Transp
PHA Support Group Event Calendar - Florida (FL - Orlando)
... Location Florida Hospital Transplant Center - 6th Floor 2415 N. Orange Avenue, Suite 700 Orlando, FL Fees Free ContactInfo Jackie 407-774-2707, Jane Northrup 321-245-8435 or FL-Orlando@P
PHA Support Group Event Calendar - Louisiana (LA - New Orleans)
... SubTitle Practicing Radical Acceptance Details Speaker:  Phyllis Tenney, LMSW, M.Div. Heart Transplant Social Worker, Ochsner Health System   Tuesday, September 17, 12 - 1:30 pm.   Brent
PHA Support Group Event Calendar - Tennessee (TN - Nashville)
...Coping With A Chronic Illness Details Speaker: Karen Starr, MSN, RN, MAC, PMHNP Director of Transplant Psychiatry, Vanderbilt Medical Center Lunch provided by Lung LLC. Name TN - Nashville
PHA Support Group Event Calendar - Vermont (VA - Charlottesville)
... CategoryName SubTitle Doctor Talk: Oksana Shlobin, MD Details From the Advanced Lung Disease Transplant Program at Inova Fairfax Hospital   Meeting will be held at:  Fontaine Research Pa
PHA Support Group Event Calendar - Washington (WA - Des Moines Seattle)
...Allen, RN will be speaking to us about Testing & Management. Miss Allen is a Certified Clinical Transplant Coordinator (CCTC), Advanced Lung Disease at UC Davis Medical Center.    RSVP to:  Yunen
PHA Support Group Event Calendar - Wisconsin (WI - Milwaukee)
... SubTitle Insurance for 2014 Details Chris Ullenberg Transplant Financial Coordinator, Aurora Healthcare   Wednesday, Oct. 9, 11:30 am. - 1 pm.   St. Luke’s Hospital, Health Science Room 2
PHA News - July 11, 2012
... Website Discoveries     Things I Found by Kathryn Frix: Transplant and PH <http://www.PHAssociation.org/PHANews/2012July11/TransplantAndPH> If I were to list frequently asked questions
Aine's Diagnosis Story
...followed up where the specialists left off, the would have found pulmonary hypertension...a lung transplant could have saved her lfie if only they hadn't ignored her." Aine died on August 10, 20
Patient Journey - Aine's Story
...followed up where the specialists left off, the would have found pulmonary hypertension...a lung transplant could have saved her lfie if only they hadn't ignored her." Aine died on August 10, 20
Journey Memorial - Aine's Story
...followed up where the specialists left off, the would have found pulmonary hypertension...a lung transplant could have saved her lfie if only they hadn't ignored her." Aine died on August 10, 20
Worldwide Photo Mosaic
...China I was misdiagnosed with asthma for 10 years, and I finally got cured by double lung transplant after taking medicines for 7 years. Wu Wuhuan, China DON'T GIVE UP Sarah - USA World PH Day 2
Mosaico de fotos - Cada foto conta uma historia
...China I was misdiagnosed with asthma for 10 years, and I finally got cured by double lung transplant after taking medicines for 7 years. Wu Wuhuan, China DON'T GIVE UP Sarah - USA World PH Day 2
每张照片都有一个故事
...China I was misdiagnosed with asthma for 10 years, and I finally got cured by double lung transplant after taking medicines for 7 years. Wu Wuhuan, China DON'T GIVE UP Sarah - USA World PH Day 2
Mosaico de fotos - Cada foto cuenta una historia
...China I was misdiagnosed with asthma for 10 years, and I finally got cured by double lung transplant after taking medicines for 7 years. Wu Wuhuan, China DON'T GIVE UP Sarah - USA World PH Day 2
PHA News 2013April17
... Also of Interest     Policy Changes will Benefit PHers Awaiting Transplant <http://www.PHAssociation.org/phanews/2013april17/LAS> Last spring, PH advocates spoke out in support of chan
PVOD or PCH
...unknown. Sometimes PVOD is associated with connective tissue disease, HIV infection, bone marrow transplantation and other rare conditions. On rare occasions PVOD has occurred in families and a few
Journey Christine Williams
...fibrosis in May 2009. I initially had to use oxygen and was a patient of a local hospital's lung transplant program. My condition stabilized 18 months later and I was no longer a patient of the lun
Internships - The Early Diagnosis Campaign: Marketing & Communications Internship
...The Early Diagnosis Campaign: Marketing & Communications Internship Available for Fall, 2014 The Pulmonary Hypertension Association (PHA) is a fast-growing association of patients, family members
Conference Sponsorships
...2014 Conference Sponsorships PHA is pleased to offer many sponsorship opportunities at the 2014 International PH Conference and Scientific Sessions. Numerous event sponsorships will be available f
Donna Head's Journey with PH
...me, "you have primary pulmonary hypertension, and you will not live two years without a heart/lung transplant." I laughed and pulled the covers over my head, and then I heard my mom crying. Whooooo
PH Patient Resource Links
...Information Advocacy Clinical Trials Emergency Response Insurance Medication Oxygen Transplant Travel also see Caregiver Resources Pulmonary Hypertension Information Expert Consensus
PHA Classroom - e-Learning. Anytime. Anyplace.
...College of Medicine       [image: Angie Eldam] Audio   My Doctor Said I May Need a Lung Transplant [image: 2010 International PH Conference session]  6/25/10 Presenters: -Angie Eldam -Ka
PHA News - April 6, 2011
...than 110,000 Americans, including PH patients, are waiting for organ transplants. » Learn more and spread the word about the need for organ donors <target=&pid=2861&did=0&tab=0> PH News Head
PHA News - July 13, 2011
...Clayton Family Seeks Help for Daughter's Heart and Lung Transplant <http://www.claytonpioneer.com/news/details.cfm?News_ID=673> » Journey Aims to Give Hope <http://www.timesunion.com/local/article
PHA News - Sept. 7, 2011
...[image: PHA News, Pulmonary Hypertension Association, Empowered by hope] PHA WEBSITE <target=&pid=197&did=0&tab=0> JOIN PHA <target=&pid=797&did=0&tab=0> COMMUNITY <target=&pid=495&did=0&t
PH Roundup November 2012
...  Portable Device Points to Better Lung Transplants <http://www.nlm.nih.gov/medlineplus/news/fullstory_130099.html> According to results of a study published in the Lancet, "Scientists have succ
Living with PH - Your INR Blood Test
...Your INR Blood Test: A Cautionary Tale Joanne's Story [image: Joanne] I've had pulmonary hypertension for 14 years. I thought Id seen it all when it comes to PH. Boy, was I wrong. Id like to s
Support Group: Blog (Cindy Wangerud Benefit October 29, 4:30-8:30 at the North St. Paul American Legion)
...12 years, now Cindy has been informed by her physicians that she needs a double lung and heart transplant. While this is news no one wants to hear, it also necessitates a move to California to awai
Support Group: Blog (PHA on the Road was held at the Minneapolis Marriott Southwest)
... News Channel PHA Minnesota Support Group News Publication Date 6/22/2011 4:47:00 PM UTC Description There was a great turnout for this forum, on a rainy saturday in road construction season. Dr
Patricia Boaz's Journey with PH
...a week later I went back to the lung Dr. He told me the only thing was left was the lung and heart transplant. I was so depressed that I went and got another opinion from another Dr. about my condi
Kim Craft's Journey with PH
...Yes I give thanks to God because He is with me through it all. A lot of people are on oxygen, lung transplant lists and iv meds to give them hope. And yes we do have HOPE. We need for people to be
Frank Williams's Journey to PH
...the doctors then said it was Eisenmengers syndrome. One of the therapies suggested is a heart lung transplant, so I told my cardiologist lets look into it. After a while I was sent to UCLA for eval
How to File an Insurance Claim, Appeal or Complain
...CLAIMS, APPEALS & COMPLAINTS As a health plan member, you have the right to be heard. ________________________________________ Insurance companies can be selective when it comes to paying
PHA/ATS Award Winner Arlin Brice Blood, PhD
...PHA/ATS Partnership Grant Winner 2007 Return to List of all PHA/ATS Award Winners <target=&pid=1297&did=0&tab=0> [image: Arlin Brice Blood, Ph.D. : <view.image?Id=2273>]Arlin Brice Blood, Ph.
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Know Your PH: Free Interactive iPad Book)
... Description Know Your PH is an interactive multi-touch iPad book now available for free download on iTunes. Written by Drs. Michael Parker and David Roberts, Know Your PH is a dedicated source of
PHA News - April 20, 2011
...[image: PHA News, Pulmonary Hypertension Association, Empowered by hope] PHA WEBSITE <target=&pid=197&did=0&tab=0> JOIN PHA <target=&pid=797&did=0&tab=0> COMMUNITY <target=&pid=495&did=0&t
PHA News June15 2011
...June 15, 2011 >> back to issue <target=&pid=2997&did=0&tab=0> PHA Preceptorship in NYC Educates 60 Medical Professionals New York City was the venue for a PHA Preceptorship Program on June 3 wi
PHA News - April 4, 2012
...&#160; &#160; &#160; &#160; [image: PHA News, Pulmonary Hypertension Association, Empowered by hope] PHA WEBSITE JOIN PHA COMMUNITY EMAIL/RSS DONATE Latest Blog
PH Care Centers - Get Involved
...Get Involved with PH Care Centers   [image: PHCC Governance Structure 2]PHCC Governance Structure The PHCC Initiative is currently seeking applications for the two committees charged with site
PHA News 2014April30
...River Heights, Utah, Woman Waits for Life-Saving Lung Transplant <http://upr.org/post/river-heights-woman-waits-life-saving-lung-transplant> » Learning More About Pediatric Pulmonary Hypertension
PH Roundup 2014 May
...of Health Submission Deadline: June 16, 2014   NIAID Division of Allergy, Immunology and Transplantation: Statistical and Clinical Coordinating Center (UM2) <http://grants.nih.gov/grants/guid
PHA News 2014June25
...Abilene Woman Awaits Double Lung Transplant in Colorado Hospital <http://www.abilene-rc.com/Articles-News-c-2014-06-13-184812.113118-Abilene-woman-awaits-double-lung-transplant-in-Colorado-hospital
Find a PH Email Mentor by Topic
...Find a PH Email Mentor by Topic of interest PH Email Mentors are caring and knowledgeable PH patients and caregivers who are here for you as a source of support, strength and hope. Our team of tra
Support Group: Blog (Jim Baker Benefit)
...Baker who suffers from Pulmonary Hypertension a rare lung disease and is in need of a double lung transplant. Pasta Dinner & Beer 7-10pm Live Music: Hobo Jungle (60’s- Today) Silent Auction, 5
Support Group: Blog (Ray Westphall passed away on March 16, 2013)
...He was always so brave and never, complained about what he was going though. He battled PH, lung transplant and cancer. Ray was a true "Marine". His visitation will be on Sunday 3 to 5pm at Transfi
Support Group: Blog (Update - Liz Brigham)
...to be going good so far. We will continue to send prayers to her and her husband Barry. Before the transplant took place, She did email me and told me she has her healing shawl with her at the hosp
Support Group: Event Calendar (Heart: Function vs Emotion)
...(101 6th Street, Pittsburgh, PA 15222-3305). An emotional account via ballet of what heart transplant patients and pulmonary hypertension patient endure -- how they stuggle, how they survive. Ti
Support Group: Event Calendar (Santa Barbara Pulmonary Hypertension Support Group)
...authors will share about their books and their experiences. One is an ex PHer-ten year lung transplant survivor!!! Also a restered dietician will share about low sodium diet, fluids and portion co
Email Groups
...medications. (Requires a free Google account) [image: join] <http://groups.google.com/group/PHA_Transplant/subscribe?hl=en&note=1> PHA_Transplant A discussion group for those who have undergon
Marilyn Clements's Journey with PH
...I feel better now than before I got sick. Twenty years ago, the only treatment was a heart-lung transplant. Thank God for modern medicine and possibly a cure in the future using stem cells from the
Mary Ann Konola's Journey with PH
...valvular heart disease and eventually PH. In early 2007 I should be on the list for a heart/lung transplant after losing about 14 lbs. In the meantime, Dr. Norbert Voelkel (bless the man!) and th
Kathy Forrest's Journey with PH
...fuel jet in the 31/2 pound aluminum and glass torch. Kathy, diagnosed with PPH in 1999 and a lung transplant candidate since 2000, was nominated for the honor by her daughter.
Sally Maddox's Journey with PH
...and their doctors were presented. From children to adults, from oral meds to a guy that has been transplanted, it was very encouraging and neat to listen to. I attended Changing to different PH me
International News and Projects (PH patient in South Africa: "I'm being given a second chance at life")
...and healthy life, Tina has only a single mission - to remain strong enough to undergo a heart-lung transplant. Tina hopes by sharing her story to increase awareness surrounding organ donation in So
International News and Projects (Pucker Up to Raise Pulmonary Hypertension Awareness)
...from the incurable lung condition pulmonary hypertension (PH) and may soon need a heart and lung transplant. Now she is urging people across Oxfordshire to join an estimated 40,000 others around th
International News and Projects (Puppy Love for Natalie)
... Description (Chorley Guardian) - Man’s best friend is helping a mum recover from a double lung transplant and life-threatening pneumonia. Natalie Kerr, 30, from Adlington, was diagnosed with pulm
Read & Share Patient Insurance Victories
...Locklear, PH Patient * It Takes a Team: Family and Friends Rally around PH Patient to Fight for Transplant Approval Don Burdolksi, PH Caregiver
Pulmonary Hypertension Research News (New Medical Device, Shape-HF, Measures Patient Physiology to Define Shortness of Breath)
...shunts, chronic obstructive pulmonary disease, pulmonary hypertension, and even a double lung transplant. Read article <http://www.prweb.com/releases/2010/02/prweb3635964.htm> Title New Medical De
BBTest Event Page (Heart: Function vs Emotion)
...(101 6th Street, Pittsburgh, PA 15222-3305). An emotional account via ballet of what heart transplant patients and pulmonary hypertension patient endure -- how they stuggle, how they survive. Ti
BBTest Event Page (Santa Barbara Pulmonary Hypertension Support Group)
...authors will share about their books and their experiences. One is an ex PHer-ten year lung transplant survivor!!! Also a restered dietician will share about low sodium diet, fluids and portion co
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Chinese Cultural Center Puckers Up for PH)
...was the first public promotion in China for PH. It was really effective. Mr. Chen Jingyu, a lung transplant expert as well as deputy to National People&#8217;s Congress, and Ms. Yong Mei, a famous
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Former Furniture Store Owner Alban Needs Kidney Transplant)
...Former Furniture Store Owner Alban Needs Kidney Transplant News Channel Description Daily updates about what's going on in the field of pulmonary hypertension and PHA events and activities.
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Health Care Reform Clears Path for Life-Saving Organ Transplant)
...Health Care Reform Clears Path for Life-Saving Organ Transplant News Channel Description Daily updates about what's going on in the field of pulmonary hypertension and PHA events and activities.
Pulmonary Hypertension News Jan 2010 to Apr 2012 (New Medical Device, Shape-HF, Measures Patient Physiology to Define Shortness of Breath)
...shunts, chronic obstructive pulmonary disease, pulmonary hypertension, and even a double lung transplant. Read article <http://www.prweb.com/releases/2010/02/prweb3635964.htm> Title New Medical De
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Path to a Cure Climber Dr. Raymond Benza Appointed to Federal Committee on Organ Transplantation)
...he was appointed to the US. Department of Health and Human Services Advisory Committee on Organ Transplantation. He is director of the heart failure, transplant, mechanical, circulatory support and
Pulmonary Hypertension News Jan 2010 to Apr 2012 (PH patient in South Africa: "I'm being given a second chance at life")
...and healthy life, Tina has only a single mission - to remain strong enough to undergo a heart-lung transplant. Tina hopes by sharing her story to increase awareness surrounding organ donation in So
Pulmonary Hypertension News Jan 2010 to Apr 2012 (Pucker Up to Raise Pulmonary Hypertension Awareness)
...from the incurable lung condition pulmonary hypertension (PH) and may soon need a heart and lung transplant. Now she is urging people across Oxfordshire to join an estimated 40,000 others around th
David Sisk's Journey with Pulmonary Hypertension
...Hypertension.” Then we clicked the link. “No cure….continuous IV drug therapy….heart and lung transplant….five years to live after initial diagnoses.” Our world came crashing in. On July 5, 2007
PHA Classroom - e-Learning. Anytime. Anyplace.
...MD, Johns Hopkins University - Mehdi Fini, MD, University of Colorado Denver [image: Pediatric Transplant] Voice and slides   Pediatric Transplant 2/18/14 Presenters: - Samuel B. Goldfarb,
Recognition and Awards
...Recognition and Awards PHA is proud to be recognized as an outstanding charity by these independent evaluators. [image: Charity Navigator Four-Star Charity] [image: GuideStar Exchange Valued Par
International Faces of PH - Jas Kalra
...available to them. Of the seven who had seen PPH cases earlier (including a US based heart/lung transplant surgeon), only five were thoroughly aware of the mainstream allopathic medications availab
Karen Shelley’s Journey with PH
...to identify some mechanisms and has led to treatments. There is no cure except a double-lung transplant, sometimes also a heart transplant. Fifteen years ago there were no treatments, and 50% of al
PH Research Roundup August 2011
...[image: PH Research Roundup August 2011] Welcome to Research Roundup [image: researcher in lab] Welcome to PH Research Roundup, a resource for members of PH Clinicians and Researc
Specialist Paul Fairman's Journey with PH
...Va. He became interested in PH in 1991 when he met his first PH patients while working in a lung transplant program. Dr. Fairman currently serves as National Committee Chair for the PHA on the Road
Dawn Smith's Journey with PH
...around. My angel suggested INOVA heart and lung program in Virginia to me because he was a lung transplant survivor. I went to INOVA and was diagnosed not only with sarcodosis, but also with pulmon
Specialist Dr. Murali Chakinala's Journey with PH
...in PH? I became acquainted with PH in the late 1990s, during my training to become a lung transplant physician at Washington University. At the time, only epoprostenol (FlolanTM) was approved, a
PHA Support Group Event Calendar - Ohio (OH - Cleveland Area)
...Associate Professor of Medicine, Case Western Reserve University, Medical Director of the Lung Transplant & Pulmonary Vascular Disease at the University Hospital of Cleveland  There is Free Parkin
PHA Support Group Event Calendar - Texas (TX - Austin)
...Care Consultants of Austin, Doctor Ernest A. Hausslein from the Seton Heart Specialty Care and Transplant Center and Chrisopher D. Spradley, of the Scott and White Memorial Hospital will be our gue
PHA Support Group Event Calendar - Texas (TX - Houston)
...Meeting Room 2.4 Speaker: Anju Rajaraman, MS, RD, LD, CNSC Dietician, JC Walter Transplant Center, Houston Medical Center       Please park in the rear (free parking) and enter th
PHA Support Group Event Calendar - Southern California (CA - Newport Beach)
...or CA-NewportBeach@PHASupportGroups.org CategoryName SubTitle Journey with PH &amp; Transplant Details Speaker:  Judi Sepulveda   Saturday, October 19, 1 - 3 pm.   3333 West Coast Hwy, Su
PHA Support Group Event Calendar - Florida (FL - Orlando)
... Location Florida Hospital Transplant Center 6th Floor 2415 North Orange Ave., Suite 700 Orlando, FL Fees none ContactInfo Tina: 407-914-9798 Jackie: 407-774-2707 Karen: 407-721-0018 Cate
PHA Support Group Event Calendar - Florida (FL - Orlando)
...Speaker:  Sandy Ford, RN - Florida Hospital   Thursday, April 25, 6:30 pm.   Florida Hospital Transplant Center 2415 N. Orange Avenue, Suite 700, Orlando, FL [Free parking:  McRae Parking Gar
PHA Support Group Event Calendar - Florida (FL - Orlando)
... Location Florida Hospital Transplant Center 2415 N. Orange Avenue, Suite 700, Orlando, FL Fees ContactInfo Jackie Woosley, 407-774-2707; Jane Northrup, 321-245-8435; Jennifer Klick, 321-303-3
PHA Support Group Event Calendar - Florida (FL - Orlando)
... Location Florida Hospital Transplant Center Suite 600 - on the 6th Floor 2415 N. Orange Avenue Orlando, FL Fees Free ContactInfo Jackie Woosley 321-279-6380, Jane Northrop, 321-245-8435
PHA Support Group Event Calendar - Vermont (VA - Southwest)
...PH Details Speaker:  Oksana A. Shlobin, MD. Assistant Director of Advanced Lung Disease & Transplant Program, Inova Heart & Lung Institute  Saturday, Dec. 8, 11:00 am. - 3:00 pm.  The Hote
PHA Classroom - Understanding the Emotional Impacts of Transplant
...program, Allyson was the clinical social worker for both the adult PH program and the heart/lung transplant program.
Working with PH - PH, Professionalism and the Digital Age
...PH, Professionalism and the Digital Age [image: Colleen Brunetti]Colleen Brunetti When I was first diagnosed with PH, I was teaching part-time in a public school. I was met with sympathy and prom
Full List of Events by Region
...supporter of the PH cause, TV journalist Markiza. A second event is being organized to support the transplant and donor program. On April 25 we are planning to host a professional workshop, premier
Attend an Event Near You - Europe
...supporter of the PH cause, TV journalist Markiza. A second event is being organized to support the transplant and donor program. On April 25 we are planning to host a professional workshop, premier
参加欧洲地区活动
...supporter of the PH cause, TV journalist Markiza. A second event is being organized to support the transplant and donor program. On April 25 we are planning to host a professional workshop, premier
活动列表
...supporter of the PH cause, TV journalist Markiza. A second event is being organized to support the transplant and donor program. On April 25 we are planning to host a professional workshop, premier
Asista a un evento cerca de usted - Europa
...supporter of the PH cause, TV journalist Markiza. A second event is being organized to support the transplant and donor program. On April 25 we are planning to host a professional workshop, premier
Lista completa de eventos
...supporter of the PH cause, TV journalist Markiza. A second event is being organized to support the transplant and donor program. On April 25 we are planning to host a professional workshop, premier
PHA Classroom Recordings - About PH
...recordings   >>More About PH recordings         [image: Surgical Treatments: Lung Transplant and Other Procedures Panelists] Video   Surgical Treatments: Lung Transplant and Other Proce
PHA News 2013May15
...Prediction Models May Overestimate Survival for PAH Patients Awaiting Lung Transplant <http://www.healio.com/cardiology/vascular-medicine/news/online/%7B97A77DA1-7CFF-4B45-85EC-60A4D9B56EFC%7D/Pred
Pittsburgh Walking PHor a Cure
...Walking PHor a Cure on Sept. 9. The team, led by Dr. Patricia George (second from left), a lung transplant physician at the University of Pittsburgh Medical Center’s Comprehensive PH Clinic, partne
Journey - Barbara M. Thomas
...of the heart and fibrosis of my lungs. I am 76 years old and not eligible for a lung or heart transplant. I keep a good attitude and am not depressed. If it weren’t for my husband Peter keeping tra
PHA/NHLBI Awardee - Stephen Mathai
...pulmonary arterial hypertension associated with the scleroderma spectrum of diseases. J Heart Lung Transplant 2005; 24(10):1626-31. 2 Fisher MR, Mathai SC , Champion HC, Girgis RE, Housten-Harris
PHA News 2013Sept18
...Cuba Grad Awaiting Double Lung Transplant <http://www.pjstar.com/news/x1803823956/Cuba-grad-awaiting-double-lung-transplant> » More News <http://phadailybeat.blogspot.com/> Connect with PHA  
PHA News 2014Feb19
...McHenry Man Recovers from Rare Transplant, Urges Organ Donation <http://www.nwherald.com/2014/02/10/mchenry-man-recovers-from-rare-transplant-urges-organ-donation/abkwyhk/?page=1> » More News <htt
Attend an Event Near You - Full List of Events by Region PORTUGUESE
...supporter of the PH cause, TV journalist Markiza. A second event is being organized to support the transplant and donor program. On April 25 we are planning to host a professional workshop, premier
PHA News 2014May14
...May 14, 2014           [image: PHA News, Pulmonary Hypertension Association, Empowered by hope] PHA WEBSITE JOIN PHA COMMUNITY EMAIL/RSS DONATE Blog Post f
PHA on the Road - Houston - Speakers
...Medicine Houston, Texas Kimberly Winter, RN, BBA University Health System / University Transplant Center San Antonio, Texas      
Journey Patient Anita Gonzales
...got much better, but I didn’t get worse. It was then that we decided to try to get on the lung transplant list. I was placed on the list on Dec. 7, 2011. Then I put it out of my mind. I never pray
PH Email Mentor - Caregiver - Don
...Vanessa Nunn] Don PH Caregiver "My wife Kathy was diagnosed in 2006. She was a Lung Transplant Listee in 2008. She died waiting for this in September of 2009. She was fetured in Pathlight in
Emergency 101: How to Prepare Yourself and Others
...Emergency 101: How to Prepare Yourself and Others for PH Emergencies [image: emergency] * Conference Session Audio Recording: Emergency Situations <http://www.phassociation.org/Document.Doc?
Clinical Trials
...CLINICAL TRIALS    [image: research room at PHA's 2008 Conference]   As the breadth of PH research expands, PHA is committed to keeping its members informed about ongoing clinical research
PHA Classroom
...Emergency 101: How to Prepare Yourself and Others for PH Emergencies [image: emergency] * Conference Session Audio Recording: Emergency Situations <http://www.phassociation.org/Document.Doc?
Journey - Rose Niedbalski
...to lose weight and had some good days and some bad. We took a trip to Cleveland for a double lung transplant evaluation in August. We planned on going back in Oct., but didn’t get the chance. My mo
PHA News Sep18 2009
...x749. [image: PH in the News : <view.image?Id=868>] PH IN THE NEWS Waiting for Transplant an Emotional Roller Coaster (Orlando Sentinel) - Tammy Jo Alford has had a bit of layover on the t
Olga Rosskopf Cassella's Memorial by Sister Ilma
...past twenty years, but which prevented her from being a candidate for double lung organ and heart transplants because of the damage to her throat. At the time that Olga applied, The Johns Hopkins L
Braden Gendron's Journey with PH by His Mother
...Our hearts broke again when we were told that we are getting closer to the point of needing a transplant - not at all what we were hoping to hear. But Braden was then started on Tracleer and we hav
PHA News Dec. 4, 2009
...Randomized, Crossover Pilot Study of Inhaled Nitric Oxide Versus Inhaled Irostacyclin in Heart Transplant and Lung Transplant Recipients (The Journal of Thoracic and Cardiovascular Surgery) - In
PHA News December 18 2009
...(PDF) [image: PH in the News : <view.image?Id=868>]PH IN THE NEWS Double Lung Transplant Patient from Mustang Receives a New Chance at Life (The Oklahoman) - Some people dread going to th
Pulmonary Hypertension News Jan 2010 to Apr 2012 (I'm Most Aware of My Pulmonary Hypertension When...)
...up sleeping on the sofa :-( When I dream of having babies I know longer have PH because I had a transplant, but I am reminded of jaw pain! Never being able to just take a bite of something withou
PHA News April 29 2010
...IN THE NEWS Research Presented at ISHLT Meeting Shows Promise to Improve Outlook for Lung Transplant Patients (PRNewswire) - A new technique that uses gene therapy to help repair damaged lungs
PHA News - Oct. 27, 2010
...Opera Singer Thrives After Double Lung Transplant <http://abcnews.go.com/Health/Wellness/soprano-lung-transplant-donor-lung-breathes-body/story?id=11978908> » More News <target=&pid=1615&did=0&tab
PHA News - May 4, 2011
...Lisbon Woman, 25, Awaits Double Lung Transplant to Deal with Rare Conditions <http://new.bangordailynews.com/2011/04/24/health/lisbon-woman-25-awaits-double-lung-transplant-to-deal-with-rare-condit
PHA News - May 18, 2011
...- Pulmonary Hypertension » Mason Lewis, 4, is Youngest Briton to Receive Lung Transplant <http://www.metro.co.uk/news/862958-mason-lewis-4-is-youngest-briton-to-receive-lung-transplant#ixzz1MGII
A Mother's Journey Spans Continents
...a blockage in the ducts that carry bile from the liver to the gall bladder. He underwent a liver transplant to reverse the damage when he was 6 months old. [image: Medical professional] Then, a
Support Group: Blog (Anna Lawler passing)
...of the first persons I called once I was fairly coherent again was Ann.  Both before and after my transplant Ann was nothing but full of information and suggestions on how to approach this 2nd chan
Support Group: Blog (April 14, 2012 General meeting / PHA video presentation)
...she has now. She fought a good fight and her strength got her though the heart and double lung transplant. Thank you Cindy for sharing your story with our group and we are still keeping up the pray
Support Group: Blog (Cindy is coming home to Minnesota!)
...to Minnesota after a4 months stay in California where she received a new heart and double lung transplant at Stanford Univ. Hospital&#160;and after suffering from Pulmonary Hypertension for around
Support Group: Blog (Cindy is released from Stanford Hospital)
... Description Cindy has undergone her heart &amp; double lung transplant and is progressing very well. Yesterday, December 12 Monday Cindy was released&#160; from Stanford&#160;Hospital and she&#16
Support Group: Blog (Cindy's update)
...you know that Cindy Wangerud is steadly improving after she received her new heart and double lung transplant in California. She continues to keep us informed on her caring bridge site, but for all
Support Group: Blog (NOTICE: Washington DC Patient PHorum October 1, 2013)
...important role that caregivers play. Panelists: -Steven Nathan, MD, Advanced Lung Disease and Transplant Program at INOVA Fairfax Hospital -Traci Houston, RN, MSN, Pulmonary Hypertension Progr
Support Group: Blog (Sad news)
...ago to tell me that she passed this morning. Anne was a very strong lady, she lived with a liver transplant for 21 years and also dealing with PH. She gave hope to so many and we always enjoyed her
Support Group: Blog (September Meeting)
...to PH patients will be _ No denial of pre-existing conditions, no life time caps which means the transplant expenses will be covered. The childen stay under parental coverage till age 26. Insurance
Support Group: Event Calendar (PHorum Dinner)
...Hypertension Center UT Southwestern &#160; JJ. Piper RN, BSN Director Heart Failure Transplant and PH Program Methodist Healthcare San Antonio Texas &#160; Featured Speaker &#8
Support Group: Event Calendar (Support Group Meeting)
...Room Speaker:Sean M. Studer, MD, MSC, FCCP Chief, Pulmonary and Critical Care Director, Lung Transplant, Pulmonary Hypertension & Advanced Lung Disease Newark Beth Israel Medical Center To
Resources for PH Patients
...clinical trials, emergency response, medication safety, supplemental oxygen, air travel and transplant. View links Related Health Organizations Explore related disease organizations for more in
Race at Stanford Univ
...Taking part in the race was a 10-year-old girl named Amy who several months ago had a heartlung transplant. I met an elderly woman who lost her husband two years ago to PH and now was walking with
Angela Eldam's Journey with PH
...in June. I had always told my doctor that as long as I could laugh, I wasn’t ready for a transplant. I stopped laughing. Each and every breath was an effort. Sometimes I would be thirsty, but I wou
Jill Shaw's Journey with PH
...to see my girls go to grade school, and that my only hope of living past two years would be a lung transplant. He sent me to the Cleveland Clinic and told me that I would immediately be put on the
Jim Jordan's Journey with PH by Wife Nancy
...we are going back and forth to Cleveland Clinic to see if he is a candidate for a double lung transplant. My message to anyone with PAH, or caring for a loved one with PAH is hang in there, and ne
Tina Loader's Journey with PH by Shirley Loader
...hypertension. The heart doctors and lung specialist told me that Tina needed a heart and lung transplant. Then as the years went by they told me Tina would only live until she was 15 or 16. When s
PHA News Oct30 2009
...may extend the life of patients with pulmonary arterial hypertension and prevent the need for lung transplantation, currently the only cure for this debilitating disease. Read article <http://rs6.n
Stem Cell Therapy and PH Alert
...another person are called &#8220;allogeneic&#8221; and these are susceptible to rejection when transplanted into a different individual (just like an organ transplantation). * Embryonic stem cell
How Patients and Families Can Participate in Research
...ways to aid PH research Donate lung tissue specimens If you are scheduled for a lung transplant, you can request that your lungs be donated for medical research purposes. Plan for organ donation
Exercise and PH
...[image: Two children racing for PH]EXERCISE AND PH It’s well-known that exercise is very beneficial for healthy individuals, increasing cardiovascular and muscular fitness, improving mood, control
BBTest Event Page (PHorum Dinner)
...Hypertension Center UT Southwestern &#160; JJ. Piper RN, BSN Director Heart Failure Transplant and PH Program Methodist Healthcare San Antonio Texas &#160; Featured Speaker &#8
BBTest Event Page (Support Group Meeting)
...Room Speaker:Sean M. Studer, MD, MSC, FCCP Chief, Pulmonary and Critical Care Director, Lung Transplant, Pulmonary Hypertension & Advanced Lung Disease Newark Beth Israel Medical Center To
PHA News Apr29 2009
...Banners, Cheers Greet Boy, 11, Who Underwent Double-Lung Transplant (Telegraph-Journal) Canada - Less than seven months after undergoing a double-lung transplant, 11-year-old Braden Gendron ran
PHA News May 28, 2010
...Singer Charity Sunshine Tillemann-Dick Back on Stage After Double Lung Transplant (Fox 8 News) Cleveland, Ohio - A world renowned opera singer is performing for the first time since her double l
PHA Classroom - e-Learning. Anytime. Anyplace.
...Ohio State University <target=&pid=2764&did=0&tab=0> video Surgical Treatments: Lung Transplants and Other Procedures <target=&pid=2764&did=0&tab=06/26/10 Presenters: -Sean Studer, MD
PHA News Dec8 2010
...Ford shared her journey with the disease and Carl Hicks, who lost his daughter Meaghan after transplant, shared both the devastating impact of PH on his family and his hope for a better future. Kim
PHA on the Road: PH Patients and Families Education Forum
...(Concurrent) Emergency Situations Pediatric PH - For Parents Understanding Transplant Options Exercise and PH 12:25 pm. - 12:40 pm. Break 12:40 pm. - 2:00 pm.
PHA Strategic Plan
...that improve quality of life for PH patients. * Ensure that recommendations for equalizing transplantation eligibility and appeals processes for PH are working. * Join coalition-led efforts th
PHA News March9 2011
...Role in Your Healthcare Decisions," "PAH Traveling Tips" or "My Doctor Said I May Need a Lung Transplant." Enjoy browsing the listings and watching the recordings. I know you will return time and
PHA Board of Trustees - Diane Ramirez
...When she was first diagnosed there were no treatments available; the only option was a heart-lung transplant. Instead of giving up hope, Diane made a decision to raise awareness of PH by talking to
Questions to Ask Your PH Doctor
...conduct clinical trials on PH medications? * Have you referred patients for lung or heart/lung transplant ?  * Have you referred patients for pulmonary thromboendarterectomy? * Does the hospi
PHA/Pfizer Proof of Concept Research Grant Winner Ferhaan Ahmad, MD, PhD
...from lungs removed from patients with PAH at the time they are undergoing lung or heart-lung transplant operations. Curriculum Vitae NAME: Ferhaan Ahmad, MD, PhD POSITION TITLE: Assistant Profes
Conference - PHA Outstanding Member Awards
...Having never heard of the disease, it wasn’t until May of 1991 when Sally was being evaluated for transplant that Mary learned about an organization known as UPHAH, now PHA. The two immediately joi
Conference - Support Group Meetings
...For family members of patients between the ages of 13 and 19 * PH Patients on “Pump Therapy” * Transplant Recipients: For PH patients who have undergone transplantation If you’re interested
Patient-to-Patient Support Line Profile - Marcia Beverly
...did not give her a right heart catheter. He did not tell her about any treatments and told her transplant was the only option for people with PH. I was able to get her to find a doctor who has had
Stem Cell Therapy and PH Alert
...another person are called &#8220;allogeneic&#8221; and these are susceptible to rejection when transplanted into a different individual (just like an organ transplantation). * Embryonic stem cell
Read Brandi Stickney's Story
...on Tracleer, I no longer needed the oxygen. I was sent to Stanford in December 2003 for heart/lung transplant evaluation. I was told I needed to come back in March to be evaluated for any congenita
Brandi Stickney's Journey with PH
...on Tracleer, I no longer needed the oxygen. I was sent to Stanford in December 2003 for heart/lung transplant evaluation. I was told I needed to come back in March to be evaluated for any congenita
Read Violet Ladd's Story
...I was put on Flolan and was told that the next and only other thing would be a heart and lung transplant. I have a great family support team and great doctors. After 4 years I was taken off of oxyg
Violet Ladd's Journey with PH
...I was put on Flolan and was told that the next and only other thing would be a heart and lung transplant. I have a great family support team and great doctors. After 4 years I was taken off of oxyg
PHA News - Nov. 28, 2012
...From PHers Around the World » Louisville, Ky., Woman Who Receives Heart, Double-Lung Transplant Happy to Be Celebrating Thanksgiving <http://www.courier-journal.com/article/20121120/PRIME01/311200
PHA Classroom - 2012Nov15 - Adolescent Issues & Self-Esteem Building
...was diagnosed with PH secondary to pulmonary veno-occlusive disease in 2002 and added to the lung transplant waiting list. Carson has completed a BA in anthropology, a Masters in Public Administrat
Meet Team PHenomenal Hope
...race goals. In my 'day job' I take care of patients with PH, many of whom are pre- or post-transplant, as well as do research in PH, but we all recognize that we need more awareness and more fundin
Lantos Awards 2013 Profile - Haley Ann Lynn
...successful treatment. Im still here because of research and medication instead of a heart and lung transplant. We need a cure. Im not asking for your money, Im asking for your awareness. Pulmonary
PHA News Apr17 2009
...-- Six years ago his only goal was to say alive. But now heart and double-lung transplant survivor Jamie Woodhouse is set to see his second dream come true as he prepares to jet off to Australia fo
Ask a Pediatrician with Dr. Erika Berman Rosenzwei
...If on steady therapy, may be 6-12 months. martalarta(Q): Hi Dr. Berman, my son had a liver transplant due to Billiary Atresia and developed HP after TX, it is very mild and has been on Revation s
Ask a PH Specialist - General Anesthesia
...that is done in an emergency situation, aortic or other major blood vessel surgery, and liver transplantation. Clinical features that predict a low risk include good functional status, in that the
PHA Classroom
...If on steady therapy, may be 6-12 months. martalarta(Q): Hi Dr. Berman, my son had a liver transplant due to Billiary Atresia and developed HP after TX, it is very mild and has been on Revation s
PHA News - Jan. 12, 2011
... Also of Interest Tell Ariz. Governor to Reinstate Medicaid Funding for Transplants! <target=&pid=2702&did=0&tab=0> As we reported in the last issue of PHA News <target=&pid=2683&did=0&tab
PHA Source - January 2011
...[image: Pulmonary Hypertension Association, Empowered by hope] [image: PHA Source, An insider's look at PHA] Volume 5, Number 2 April 2011 PHA Source was created expressly for
Patient Insurance Victory - Kathy Morton
...Insurance Victories A Prepared Army Wins the Insurance Battle Fall 2011 By: Kathy Morton PH Patient [image: Kathy Morton]Kathy Morton I was diagnosed with PAH during the spring of 2005. I a
Targeted Pediatric Research in PH Needed
...Targeted Pediatric Research in PH Needed [image: Dr. Ivy (far right) treats a young PH patient]Dr. Ivy (far right) treats a young PH patient “It is believed that in the United States, pulmonary a
Caregiver Gwen Olitsky's story
...OUR JOURNEYS Caregiver story Gwen Olitsky "Being natural caregivers, we figured out what we could do locally so no one would ever have to go through this again.“ My husband Allan and I cons
PHA News - 2013 Archives
...in Schistosomiasis: An Overview * Also of Interest: Policy Changes will Benefit PHers Awaiting Transplant * PH News Headlines * Generation Hope Blog: Depression and PH April 3, 2013 - Worl
PH Care Centers Frequently Asked Questions for Medical Professionals
...Frequently Asked Questions * About the PHCC Initiative * Types of PH Care Centers * Application Process * Cost of Accreditation About the PHCC Initiative What is the PHA-Accredited PH C
Press Release: Oct. 3, 2013
...FOR IMMEDIATE RELEASE Contact: Christina Relacion, Communications Manager, Scleroderma Foundation (800) 722-4673, Ext. 243 CRelacion@Scleroderma.org <mailto:CRelacion@Scleroderma.org> Katherin
Support Group: Blog (Rochester "Reach for the Stars" Gala)
...awareness signed by Governor Mark Dayton and Cindy told her PH story and about her successful transplant. Cindy presented me with the proclamation and it was very emotional. I was very touched and
Support Group: Blog (Thank you to all that signed up to help with Twin Cities support group meetings!)
...to hear them! Because of Larry Fox has to spend more time on his health in wait for his liver transplant...it is time to ask for extra help.  I hate to say it, but I have turned 70 today and old a
Diana's Journey with PH
...so unbelievable, yet its true. My dr. says I have arterial changes and I will be looking at a lung transplant which scares me, but I will do whatever I have to to give the example to my 4 children.
Joanne's Journey with PH
...food on such a high dose of flolan was not worth the side effects. The day before I received my transplant, I finally admitted to myself that my life was over-it was at the same time a sad and pea
Denise Wathen's Journey with PH
...me that the medication he has had me on has stopped working and his only solution was a heart lung transplant. I sat in the parking lot of his offices and I cried, I called my mother and I cried, I
Vanessa and Valerie Sauceda's Journey with PH by M
...for her to try to get her strength back to go to Palo Alto on the 19th for heart and double lung transplant. On May 16, 2009 at approximately 10:15am her doctor said she may only last a few days, m
Social Security Disability Information
...7 years Most PH patients should expect review every 3 to 7 years. An exception is if you had a transplant before your disability claim was approved; your claim will likely be reviewed about a ye
Delaysia Williams' Journey with PH
...was pulmonary veno-occlusive disease and she had ten months to live without a double lung transplant. My family and I were totally devastated with this news. Especially since she had been healthy
Donor Story - Carl Hicks
...in 2004 and later became its Chair. Eventually Meaghan’s PH did progress and despite a heart/lung transplant she passed away in 2009. Carl, an army veteran, describes her as “the strongest person
Donor Story - Torres Gonzalez Family
...rare incurable disease “Biliary Atresia,” a form of liver cirrhosis in infants. Daniel had a liver transplant when he was six months old at the Children’s Hospital of Philadelphia. “After Daniel’s
Danya Edwards' Journey with PH
...so advanced that the doctors said it was irreversible. The only option given was a heart and lung transplant, but she was too sick to be even considered. On August 12, 1994 my mother died at Maimo
PHA/NHLBI K08/K23 Award Winner Edda Spiekerkoetter, MD
...Respiratory and Critical Care Medicine. Director: Prof. Dr. med. H. Fabel Including: 1 year: Lung transplant fellow 1/2 year: Pulmonary Hypertension fellow (outpatients, right-heart catheterizati
PH America Honors - Myra Verdin
...what it was. All I know that I did hear and understand is that I would have to have a heart lung transplant. That shook me to my core (as it would anyone). It so happened that my hubby and I had b
Sue Evans' Journey with PH
...wanted a second opinion. They agreed because they felt I should get evaluated for a heart and lung transplant. They faxed my records over to another facility, and that night I received a call from
Michael Rivera's Journey with PH
...treatments immediately, but I told her I was going to wait tell she was stable and placed on the transplant list. I needed to be sure that Delia was going to be ok well before I did my treatments.
Journey Memorial Alyssa Johnson
...Dr. that they had done everything they could do for her. Her best chance of survival was a lung transplant. We were taken by medical jet from Omaha, Nebraska to Houston, Texas to start the process.
Press Release 2014 July 8 Dr. Murali Chakinala
...Chakinala first became acquainted with PH in the late 1990s, during his training to become a lung transplant physician at Washington University. He is a member of PHA's Scientific Leadership Counci
PHA Goes on the Road to Houston
...Hospital Houston, Texas Kimberly Winters, RN, BBA University Health System / University Transplant Center San Antonio, Texas        
Joyce Iman's Journey with PH
...much better. My doc said if I wasn’t better when I came back in August he would refer me for transplant evaluation. I needed to lose weight and he told me I would feel better if I just lost weight.
PHA-AHA Fellowship Award Winner Todd Bull, MD
...PHA/AHA Post Doctoral Fellowship Award Winner 2001 Return to List of all PHA/AHA Award Winners <target=&pid=1298&did=0&tab=0> [image: Todd Bull, MD ]Todd Bull, MD University of Colorado, Den
PHA/ATS Award Winner Todd Bull, MD
...PHA/ATS Partnership Grant Winner 2006 Return to List of all PHA/ATS Award Winners <target=&pid=1297&did=0&tab=0> [image: Todd Bull, MD]Todd Bull, MD University of Colorado “The role of Kapo
PHA News - Oct. 13, 2010
...[image: PHA News, Pulmonary Hypertension Association, Empowered by hope] PHA WEBSITE <target=&pid=197&did=0&tab=0> JOIN PHA <target=&pid=797&did=0&tab=0> COMMUNITY <target=&pid=495&did=0&t
PHA News - Feb. 23, 2011
...[image: PHA News, Pulmonary Hypertension Association, Empowered by hope] PHA WEBSITE <target=&pid=197&did=0&tab=0> JOIN PHA <target=&pid=797&did=0&tab=0> COMMUNITY <target=&pid=495&did=0&t
PHA News - March 9, 2011
... Medical Community Bulletin PHA Online University Course: Thoracic Transplantation for PAH <http://www.phaonlineuniv.org/courses/ThoracicTransplantation> Hosted by Murali Chakinala, M
PHA News - March 23, 2011
...[image: PHA News, Pulmonary Hypertension Association, Empowered by hope] PHA WEBSITE <target=&pid=197&did=0&tab=0> JOIN PHA <target=&pid=797&did=0&tab=0> COMMUNITY <target=&pid=495&did=0&t
PHA News - June 1, 2011
...[image: PHA News, Pulmonary Hypertension Association, Empowered by hope] PHA WEBSITE <target=&pid=197&did=0&tab=0> JOIN PHA <target=&pid=797&did=0&tab=0> COMMUNITY <target=&pid=495&did=0&t
PHA News - Nov. 2, 2011
...[image: PHA News, Pulmonary Hypertension Association, Empowered by hope] PHA WEBSITE <target=&pid=197&did=0&tab=0> JOIN PHA <target=&pid=797&did=0&tab=0> COMMUNITY <target=&pid=495&did=0&t
Pulmonary Thromboendarterectomy (PTE)
...Pulmonary Thromboendarterectomy I have CTEPH (chronic thromboembolic pulmonary hypertension) and have been told I may benefit from a pulmonary thromboendarterectomy. What is this? A pulmonary
PHA News - Feb. 22, 2012
...Living Proof That Transplants Do Work <http://au.news.yahoo.com/thewest/lifestyle/a/-/article/12951475/living-pro> &#187; Pulmonary Hypertension Common in Hemodialysis Patients <http://www.renalan
Linda Parshley's Journey with PH
...undergoing many tests, we spoke about the possibility of removing my damaged lung and receiving a transplant. I qualified with Brigham and Women&#8217;s Hospital except for a final couple of tests.
PH Care Centers - Center Criteria
.../ Nutritional service‡ Dietary / Nutritional services‡ Cardiac Anesthesia†   Pulmonary transplant service or referral process†   Congenital heart disease consultant or referral proc
Associated diseases - Lupus
...PH and Lupus Print PH and Lupus brochure (PDF) Order Copies of the PH and Lupus Brochure * What do I need to know about lupus-associated PH? * Why do PH and lupus seem to occasionally
PH Roundup 2014 April
...2014 Submission Deadline: May 23, 2014   New!   NIAID Division of Allergy, Immunology and Transplantation: Statistical and Clinical Coordinating Center (UM2) <http://grants.nih.gov/grants/gui
Treatment - Macitentan
...medical therapy for PAH. The need for infused PAH therapy, hospitalization for PAH, lung transplantation and death were all indicators of disease progression. The research study showing the effecti
PH Roundup 2014 August
...MD, MS Project title: Clinical and Biomarker Risk Evaluation of Pulmonary Hypertension in Lung Transplantation R. Blair Dodson, PhD Assistant Research Professor University of Colorado Devner
PH Care Centers Medical Professionals Pediatric Criteria
...service‡   Pediatric Anesthesia with extensive PH experience†   Pulmonary/Cardiac transplant service or referral process†   Congenital heart disease specialist†   Congenital he
Support Group: Blog (February 8, 2014 Honoring our caregivers!)
...for some more. Extra help is always welcome. Our co- leader Larry Fox has been put on the liver transplant list, so he needs to focus on his health and needs at this time. With all the extra help,
Support Group: Blog (Two Updates....Rochester Gala......Cindy Wangerud)
...close to Stanford hospital. She met with a PH doctor who will manage her PH until she receives a transplant. Please keep up sending the prayers to her, she still has a long road to go and she needs
Support Group: Event Calendar (6th Annual N. TX Cure PH 5K Run & PHun Walk)
...continuous IV medications all geared toward sustaining a patient's life until a lung and/or heart transplant can be performed. Name 6th Annual N. TX Cure PH 5K Run &amp; PHun Walk
Support Group: Event Calendar (6th Annual North Texas Cure PH 5K Run & PHus Walk)
...continuous IV medications all geared toward sustaining a patient's life until a lung and/or heart transplant can be performed. Name 6th Annual North Texas Cure PH 5K Run &amp; PHus Walk
PHA News Aug07 2009
...[image: PHA News : <view.image?Id=861>] In This Issue New PH Treatment Approved by FDA! Announcing 2009 Research Grant Winners What'sa Bug Boil & What Does it Have to Do with Curing P
PHA News Oct05 2009
...[image: PHA News : <view.image?Id=861>] In This Issue Awareness Month Site Launched! Eliminate Lifetime Insurance Caps PH Resource Network Reaches Record Numbers Vote Now for the B
April Clemmons Hughes's Journey with PH
...live. We went to Chicago, IL to see a specialist and to St. Louis, MO to get information about a transplant. At that time the Flolan/ Prostacyclin had not been FDA approved and I was really relucta
Valerie Norton's Journey with PH
...slightly. I am now on Flolan, coumadin, lanoxin, and aldacton. I am now a stage 1 and am on the transplant list. I am also signed up for the clinical trial with Viagra. PH has changed my life in
International News and Projects (Canada Comes Together: Uniting the PH Community from Coast to Coast)
...of the PH community followed by a presentation by the speaker, Mark Black, a heart and double-lung transplant recipient turned fourtime marathon runner, best-selling author, life coach and motivati
BBTest Event Page (6th Annual N. TX Cure PH 5K Run & PHun Walk)
...continuous IV medications all geared toward sustaining a patient's life until a lung and/or heart transplant can be performed. Name 6th Annual N. TX Cure PH 5K Run &amp; PHun Walk
BBTest Event Page (6th Annual North Texas Cure PH 5K Run & PHus Walk)
...continuous IV medications all geared toward sustaining a patient's life until a lung and/or heart transplant can be performed. Name 6th Annual North Texas Cure PH 5K Run &amp; PHus Walk
PHA News March 19 2010
...[image: PHA News : <view.image?id=2581>] In This Issue More Than 1 Million People Reached by PH Awareness Patients Gain 2nd Senate Bill Co-sponsor Attend Traveling with PH Webinar
Pulmonary Hypertension Acronym Decoder
...anti- inflammatory drugs OB obliterative bronchiolitis, chronic rejection of a lung after transplantation O2 oxygen O2 Sats oxygen saturation (percentage of oxygen in the blood) PA
Ask a PH Specialist - What is Palliative Care?
...when there is a change in your health status, when PH therapies are not tolerated or when lung transplant is not an option. The misconception that hospice and palliative care are only available whe
PHA News Nov23 2010
...PH and has a third daughter who had PH for five years and is now a nine-year double lung and heart transplant survivor. Black Tie Dinner/Dance for PHA (Chicago, Ill.) – This annual fundraiser is h
PHA Classroom - e-Learning. Anytime. Anyplace.
...Purl, RN, BSN, CCRC       [image: Angie Eldam] audio   My Doctor Said I May Need a Lung Transplant 6/25/10 Presenters: -Angie Eldam -Karen Lindemann       audio   When People Jus
For Your Patients
...groups are available for young adults, patients with associated diseases, patients considering transplant, caregivers and parents. * The Patient-to-Patient Support Line (800-748-7274) is a toll-f
Shannon Munson's Journey with PH
...the last thing they put a person on when their condition is so severe. In some cases a lung transplant is the last option. I had to mix my medication from scratch every day as it only had a shelf l
PHA News - June 29, 2011
...[image: PHA News, Pulmonary Hypertension Association, Empowered by hope] PHA WEBSITE <target=&pid=197&did=0&tab=0> JOIN PHA <target=&pid=797&did=0&tab=0> COMMUNITY <target=&pid=495&did=0&t
PHA News - Feb. 8, 2012
...Day. More than 112,000 Americans, including PH patients, are waiting for life-saving organ transplants. &#187; Learn more about organ donation <http://www.organdonor.gov/index.html> &#160; &#160;
The PHA Support Group "Scoop" Fall 2011
...at support group meetings. * The Southwest Virginia group brought Dr. Steven Nathan to discuss transplant and PH. * The Tri-State PH group in Cincinnati brought Peter Engel, MD, FACC, to disc
PH Roundup September 2012
...September 2012           September 2012       Roundup Spotlight... Discover the Newly Revamped PHA Online University PHA Online University ( www.PHAOnlineUniv.org <ht
PH Roundup October 2012
...October 2012           October 2012       Roundup Spotlight... PHA's SLC Releases Consensus Statement on Revatio® (sildenafil) for Pediatric Use PHA's SLC has released
PH Roundup 2012 December
...France April 24-27, 2013 International Society for Heart and Lung Transplantation 33rd Annual Meeting and Scientific Sessions <http://ishlt.org/meetings/annualMeeting.asp> Montréal, Canada  
Journey - Jacky Kelly
...they inserted by right heart catheter, because after that the doctor told me that a pulmonary transplant was my only option. But I have to say up to this day I am only on Lasix®. Here on the is
Diagnosis Stories - Jacky Kelly
...they inserted by right heart catheter, because after that the doctor told me that a pulmonary transplant was my only option. But I have to say up to this day I am only on Lasix®. Here on the is
District Visit Talking Points
...by the time they are diagnosed , and many must consider more expensive treatments or a heart-lung transplant. Take a budget-neutral approach that is unique among disease-specific bills This bil
PHA News 2014Jan22
...Clayton Girl Suffering from Pulmonary Hypertension on Transplant List <http://www.contracostatimes.com/concord/ci_24916931/clayton-girl-suffering-from-pulmonary-hypertension-put-active> » More New
Research - PHA Proof of Concept Winner Jiwang Chen
...PHA Proof of Concept Research Grant Winner 2013 [image: Jiwang Chen] Jiwang Chen, PhD Return to List of all PHA Proof of Concept Grant Winners Division of Pulmonary, Critical Care, Alle
Support Group: Blog (Scleroderma Doctors in the USA and aboard)
...Thomas Medsger, Jr Division of Rheumatology and clinical Immunology Stem Cell transplant clinical Study UPMC Pittsburgh, PA Phone: 412-383 8000 Chester V Oddis (anti-synthase syndrome doctor)
M. Cindy Bennett's Journey with PH
...have told you there was no help. Five years ago they would have told you that a heart and lung transplant was your only option. I just hope my kids or grandkids don't have it. I can't do a lot of
Brittany Evans's Journey with PH
...message board names. There were cheers with recollection of stories, especially with NuLungs, our transplant success story. I felt like I had known these women my whole life. I am more optimistic
George Harris's Journey with PH
...my brother died from pulmonary hypertension in July 1988. At that time he was on the heart-lung transplant list at Pittsburgh and Yale. After watching him become weak and eventually make the decisi
Lora Moranti's Journey with PH
...diagnosed with PPH in July, 2007. My twin sister was diagnosed 15 years ago and had a double lung transplant 13 12 years ago. My mother died at UCLA in 1964 from a pulmonary embolism caused by the
Donna Pedersen's Journey with PH
...didn't feel all that bad physically - and I certainly didn't feel ready for the IV medications or transplants that the doctors were thinking about for the future. I quickly got back to my normal ro
Katie Grace Groebner's Journey by Mother Kathy
...She has pulmonary hypertension! We cannot help her here and she will require a heart-lung transplant!" How can this be? Last night we were just going to FIX HER and today you say we can't. My mind
Maddie Heaton's Journey with PH by Mother Lori
...Hospital. “No Mrs. Heaton, Madison’s condition is incurable. The only treatment is a lung transplant, which I don’t recommend. Take her home and make her life as pleasant as possible, for whatever
Camps for Chronically Ill Children
...Chestertown, Md. (especially for children who’ve received heart or lung transplant or are diagnosed with PH) * The Hole In The Wall Gang Camp <http://www.holeinthewallgang.org/Page.aspx?pid=471>,
PH Advocacy Victories & Successes
...to an Food and Drug Administration (FDA) panel, arguing for the inclusion of both PAH and organ transplant in the pilot year of the FDA's new initiative. The initiative will expand the way the FDA
Scientific Leadership Council Members
...Ends June 2014 Robert J. Schilz, DO, PhD Chair, Education Committee Medical Director, Lung Transplantation and Pulmonary Vascular Disease Associate Professor of Medicine Case Western Reserve Un
Scientific Leadership Council Members
...Ends June 2014 Robert J. Schilz, DO, PhD Chair, Education Committee Medical Director, Lung Transplantation and Pulmonary Vascular Disease Associate Professor of Medicine Case Western Reserve Un
Jhenna Pacelli's Journey with PH
...which doesn’t have the same side effects for me. I am going for a consultation for a lung transplant because my specialist wants to make sure I have back up options just in case my PH worsens. I a
Kelli Cornett's Memorial by Father and Mother
...for the survival guide. Kelli, after the PPH was becoming more difficult, signed up for a lung transplant, knowing at the time that survival for one year was 50% to 60%. It was now time for her to
PHA Source - January 2011
...[image: Pulmonary Hypertension Association, Empowered by hope] [image: PHA Source, An insider's look at PHA] Volume 5, Number 1 January 2011 PHA Source was created expressly f
Managing Caregiver Stress
...Managing Caregiver Stress ________________________________________ &#8220;He is not able to help as much with the kids as I would like. It stresses me out when they want something or they are
Your Prescription for Well-Being: Attend a Support Group
...the group had over the course of the year, from an improved six-minute walk to a successful lung transplant. The benefits of witnessing the triumphs of others cannot be downplayed. At diagnosis, no
Lucas Van Wormer's Journey with PH
...It’s just more difficult to spot in children. PH can only be cured through lung or heart-lung transplant (and survival rates aren’t high), but medications that relax the blood vessels can help keep
Read Lucas Van Wormer's Story
...It’s just more difficult to spot in children. PH can only be cured through lung or heart-lung transplant (and survival rates aren’t high), but medications that relax the blood vessels can help keep
Read Nicolene Muller's Story
...Paul Williams, a Critical Care Specialist at Milpark Hospital, to be worked up for a possible lung transplant. When we arrived at the hospital, Dr. Williams told us that the South Australia Medical
Nicolene Muller's Journey with PH
...Paul Williams, a Critical Care Specialist at Milpark Hospital, to be worked up for a possible lung transplant. When we arrived at the hospital, Dr. Williams told us that the South Australia Medical
PHA/ATS Fellow Career Development Winner Todd Kolb
...PHA/ATS Fellow Career Development in Pulmonary Arterial Hypertension Grant Winner 2012 Return to List of all PHA/ATS Fellow Career Development Winners [image: Todd Kolb, MD, PhD] Todd Kolb,
PHA News 2013June12
...Honoring a Comeback: Mount Ayr, Iowa, Woman Survives Double-Lung Transplant <http://www.crestonnewsadvertiser.com/2013/06/06/honoring-a-comeback/a43bcvf/> » More News <http://phadailybeat.blogspot
PHA News 2013Oct30 - Pulmonary Hypertension Association
...Considering Transplant and on Oxygen, Singer-Songwriter with Rare Lung Disease Returns to Stage Nov. 7 <http://www.prweb.com/releases/2013/10/prweb11273283.htm> » More News <http://phadailybeat.bl
Patients - PHA News - 2014
...Living Better with PH: Empower Yourself This Year * Webinar for Parents: Pediatric Webinar: Transplant * PH News Headlines Jan. 22, 2014 - Register for Conference and more! * PH News Hea
Press Release - Team PHenomenal Hope
...<http://www.teamphenomenalhope.org/>, a Pittsburgh, Pa.-based cycling team consisting of a lung-transplant physician and three other women, is competing in the high-endurance cycling event, Race Ac
Applying for Social Security Disability
...APPLYING FOR DISABILITY Applying for disability can seem like an intimidating process. Many people believe that the Social Security Administration (SSA) will turn you down a few times before you g
PHA Source - October 2010
...[image: Pulmonary Hypertension Association, Empowered by hope] [image: PHA Source, An insider's look at PHA] Volume 4, Number 4 October 2010 PHA Source was created expressly f
PHA News Jan09 2009
...Cells Poised to Grow Organs for Transplant (Enhanced News Online) -- Physicians at the Dominican Republic division of Regenocyte announced clinical results of a 46-year-old patient with pulmonary
PHA News Feb20 2009
...had previously been used only on adults to keep her alive until donor lungs came available for transplant. Katie had been diagnosed with pulmonary hypertension, a rare condition that constricts blo
Ellen Harris's Journey with PH
...Quickly after that, another doctor came in and introduced himself as the director of the lung transplant program, and he asked me a lot of questions. The first one was, “Can you climb a flight of s
Julie Lisante's Journey with PH
...medication Cialis, while Jennifer moved on to the Flolan and eventually was granted a double lung transplant to cure the PH. I was happy for her, as she deserved the best life she could possibly ha
Clarence McGee's Journey with PH
...me, and I needed to get it under control ASAP or it was going to be the end of me. I was on the transplant list at UNC, so I asked the doctors there to get me a pulmonary specialist who had some k
Linda Sullivan's Journey with PH
...you are a very sick woman. I am referring you to Columbia in Manhattan for a heart and double lung transplant, do you have any questions?” I replied, “Not right now, but am I allowed to have a cup
Katie Tobias's Journey with PH
...In the blink of an eye, “worst case scenario” went from open-heart surgery to possible heart/lung transplant. View a larger version <target=&pid=1121&did=0&tab=0> After a right heart catheter
Sophia Volino's Memorial Told by Stephanie Volino
...so long. Then two doctors emerged. Things took a turn. They started talking about a possible lung transplant and the statistics of survival. At this point, all the words flying at me where meshing
Pulmonary Hypertension Treatment Ambrisentan (Letairis)
...can interact with cyclosporine, a medication given to patients who have had transplant surgery. When ambrisentan and cyclosporine are used together, the dose of ambrisentan should be limited to 5 m
Exercise & Nutrition: Ways to a Healthier PH Life
...[image: exercise] Exercise and Nutrition: Ways to a Healthier PH Lifestyle August 12, 2008, Online QA Chat We discussed a variety of issues regarding exercise, nutrition and PAH. Chat Tra
Press Releases
...on June 14, 2014, Team Phenomenal Hope , a Pittsburgh, Pa.-based cycling team consisting of a lung transplant physician and three other women, is competing in the high-endurance cycling event, Race
Pulmonary Hypertension News Jan 2010 to Apr 2012 (What Pulmonary Hypertension Feels Like)
...PH for 20 years and I am familiar with all these comments. 3.5 years ago I got a double lung transplant and am healthy now. I keep helping and praying for a cure. May you all be blessed. My aunt w
PHA News Jan 22 2010
...celebrating the life of a teenager, who passed away three years ago, after a double lung and heart transplant. Read article <http://www.wkrg.com/alabama/article/chelseas_story/656496/Jan-19-2010_8-
PHA News Aug17 2010
...Hypertension <http://www.medicalnewstoday.com/articles/197600.php> » Bond Forged Over Organ Transplant <http://seattletimes.nwsource.com/html/localnews/2012525461_transplant04.html> » More News <
PHA News - 2009 Archives
...PHA on the Road * PHA'S Educational Programs Now All in One Place Online! * New Information on Transplant Available! * Raising Local Awareness * PH Support Groups * Useful Info From a PH
Marla Akins' Journey with PH
...this is serious business, your life expectancy is three to five years and you need a lung transplant.&#8221; All I heard was that was it for me. I was a 37-year-old woman with a6-year-old daughter
PHA News - Aug. 10, 2011
...on June 18 are now available online. Session topics include How is PAH Diagnosed, Understanding Transplant Options, PH and Connective Tissue Disease and more. » Continue your education at PHA Class
Glossary of Pulmonary Hypertension Terms
...vessels, usually from an unknown toxic exposure, infection and in chronic rejection after lung transplantation. Back to top of page -C- Calcium channel blockers (CCBs): Blood pressure medicine
Read Marla Akins' Story
...this is serious business, your life expectancy is three to five years and you need a lung transplant.&#8221; All I heard was that was it for me. I was a 37-year-old woman with a6-year-old daughter
PHA News - May 30, 2012
...help determine the allocation of organs to patients in need, including PH patients awaiting lung transplant. Currently, the LAS significantly underestimates a PH patient's need for organs, but that
PHA News - June 27, 2012
...Double Lung Transplant Mum Natalie is Given the All-clear <http://www.thisislancashire.co.uk/news/9743540.Double_lung_transplant_mum_Natalie_is_given_the_all_clear/> &#187; More News <http://phada
Read Jayna Wall's Caregiver Story
...in to get the status of the procedure and after hearing it said that he thought a heart and lung transplant would pretty much be our only option. He did admit that they aren't experts in IPAH and s
Jayna Wall's Journey with PH
...in to get the status of the procedure and after hearing it said that he thought a heart and lung transplant would pretty much be our only option. He did admit that they aren't experts in IPAH and s
PHA/NHLBI Awardee - Vinicio de Jesus Perez
...with left main coronary artery compression in pulmonary hypertension. Journal of Heart and Lung Transplantation, 2009; May 8(5): 527-530 (PMID: 19416787). E. Spiekerkoetter, C. Guignabert, V. de J
PHA News 2013May1
...on Young Mother's Life <http://www.prweb.com/releases/2013/4/prweb10649890.htm> » Double Lung Transplant Recipient Celebrates Two Birthdays <http://www.northjersey.com/news/health/205278581_SD_do
Support Group: Blog (My Journey with PPH...by Tina SIlks)
...Well, I got over it. During all the time I was put on the UNOS list for a Double Lung and Heart Transplant. This scared me to no end. The trip down to UCSD were brutal for me. But I did it, and lea
Cheryl Guillory's Journey with PH
...we heard about it did not deter me. I chose Ochsner Hospital's Multi Organ Cardio/Pulmonary Transplant Clinic. Our first appointment was not very promising. The doctor seemed very eccentric, and h
PHA News - May 2, 2012
...Tillemann-Dick, a pulmonary hypertension patient who recently went through a second double lung transplant. &#187; View the video <http://www.cbsnews.com/8301-505269_162-57415671/soprano-sings-abou
Christine Silks' Journey with PH
...the time I was put on the United Network for Organ Sharing (UNOS) list for a double lung and heart transplant. This scared me to no end. The trips down to University of California, San Diego were b
Staff
...with patients living with PH and an associated condition and with patients going through the transplant process. She develops new resources, expands support and educational opportunities for adults
Priya Balachandran's Journey with PH
...drug was vital to keep me breathing and finally if that didn't work Id be put on an emergency lung transplant list. It was a Saturday afternoon and the idea that a lung would be available was slim,
LaVerne Cash's Journey with PH
...of remission tomorrow and at some point have to face the decision whether or not to have a lung transplant. But that is in God’s hands. He has looked out for me so far, and He will look out for me
Craig Courtney's caregiver Journey with PH
...not believe Matthew would have agreed to the treprostinil anyway. The PH doctor did mention a lung transplant in passing. Matthew's 6MWD was 1,000 feet prior to taking the ambrisentan. There were m
Conference - Medically Led Sessions
...and special concerns for each disorder will be reviewed. Treatments options (medical and organ transplant) will be discussed. Connective Tissue Diseases and PH Chair: Aryeh Fischer, MD, Nationa
Maintaining a Positive Self Image
...over&#8221; in a body that feels totally foreign. Teresa told us, &#8220;It&#8217;s like a body transplant! You&#8217;re the same person inside, in terms of personality, interests, hobbies. But you
 

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.