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414 Results for transplant evaluation
Before Transplant - Choosing a Transplant Center
...Transplant and Pulmonary Hypertension Choosing a Transplant Center Once you and your primary physician decide it is time for you to go on the lung transplant wait list, you will start working wit
Before Lung Transplant
...Transplant and Pulmonary Hypertension Before Transplant[image: patient getting an echocardiogram] Deciding whether transplant is right for you is a process that will involve your team of medical
Transplant and Pulmonary Hypertension
...Transplant and Pulmonary Hypertension [image: Illustration of human heart and lungs] Lung or heart-lung transplant is a treatment option reserved for patients who are not improving on medical ther
Patients - Lung Transplant Resources
...Transplant Resources The resources listed below offer additional information for transplant patients and their families. * Organizations * Articles and Online Resources * Books Organizati
Parents - Pediatric Transplant
...Transplant and Your Child: From Listing to New Lungs[image: Illustration of human heart and lungs] ________________________________________ “As with PH, building a relationship with your transpla
Answers about Lung Transplantation for Pulmonary Hypertension
...Answers about Lung Transplantation for PULMONARY HYPERTENSION [image: Download and Print PDF] Part One: Overview From the development of epoprostenol in the early 1980s to the discovery of o
Transplant Information for PH Patients
...Transplant and Pulmonary Hypertension Information for Patients and Transplant Recipients When you are no longer responding significantly to medical therapies, your physician may want to discuss t
PH evaluation and care
...Preliminary Data: PH Evaluation and Care Diagnostic Evaluations Performed [image: Diagnostic Evaluations Performed]
After Lung Transplant
...Transplant and Pulmonary Hypertension After Transplant[image: Pills] Whether you are considering or have already received a transplant, you probably have questions about life after transplant inc
Support Group: Event Calendar (Trends in Transplant Conference)
... SubTitle Name Trends in Transplant Conference Details To my PHA Support Group Members- this is a great conference that talks about transplant. Please RSVP by May 9 with them at gtf@gatranspl
BBTest Event Page (Trends in Transplant Conference)
... SubTitle Name Trends in Transplant Conference Details To my PHA Support Group Members- this is a great conference that talks about transplant. Please RSVP by May 9 with them at gtf@gatranspl
Lung Transplantation Consensus Statement
...Lung Transplantation in Patients with Pulmonary Hypertension Consensus Statements Issued by the Scientific Leadership Council   Download & Print PDF DISCLAIMER: This information i
Patients - About PH - Lung Transplant
...Lung Transplantation in Patients with Pulmonary Hypertension Consensus Statements Issued by the Scientific Leadership Council   Download & Print PDF DISCLAIMER: This information i
Lung Transplantation Consensus Statement
...Lung Transplantation in Patients with Pulmonary Hypertension Consensus Statements Issued by the Scientific Leadership Council   Download & Print PDF DISCLAIMER: This information i
Before Transplant - Financing a Lung Transplant
...Transplant and Pulmonary Hypertension Financing a Lung Transplant[image: Health Insurance] Lung transplants can be a great financial burden. There are a variety of medical and non-medical costs a
Living as a Transplant Recipient
...Transplant and PUlmonary Hypertension Living as a Transplant Recipient [image: Angie Eldam at Meet and Greet] As you transition back into your normal life, there are a few precautions that y
Meet PHA’s Transplant Email Group Committee
...Meet PHA’s Transplant Email Group Committee Many PH patients will consider or have questions about transplant during their PH journey. PHA’s Transplant email group is a place where patients, famil
Lung Transplant - Information for Parents
...Transplant and Pulmonary Hypertension Information for Parents - Pediatric Transplant [image: Shaye Wallace] Pediatric transplant varies in respect to adult transplant in several ways. Priori
Before Transplant - Next Steps After Getting Listed
...Transplant and Pulmonary Hypertension Now That I am Listed, What's the Next Step? [image: Cartoon of a confused man] In a word, the next step is waiting. During this time, it will be essential
Lung Transplant - Information for Friends, Family Members and Parents
...Transplant and Pulmonary Hypertension Information for Friends, Family Members and Parents [image: Ava and her family] Standing by a loved one during the transplant process can be taxing and
Transplant Information for PH Patients
...Get Support [image: Man on computer] <http://www.phassociation.org/EmailGroups/#PHPlus> PHA's Transplant email group is a private forum where you can openly discuss your questions about and exper
Lung Transplant - Information for Friends, Family Members and Parents
...Get Support [image: Man on computer] <http://www.phassociation.org/EmailGroups/#PHPlus> PHA's Transplant email group is a private forum where you can openly discuss your questions about and exper
Transplant and Pulmonary Hypertension
...Get Support [image: Man on computer] <http://www.phassociation.org/EmailGroups/#PHPlus> PHA's Transplant email group is a private forum where you can openly discuss your questions about and exper
Before Transplant - Getting the Call
...Transplant and Pulmonary Hypertension Getting "The Call" [image: Red telephone] When a donor organ becomes available, the hospital contacts the local Organ Procurement Organization (OPO), which w
Transplant Advisory Board
...Transplant Advisory Board [image: PHA Advisory Boards] The Transplant Advisory Board is specifically concerned with the broad range of topics surrounding transplants in the PH community. Member
Before Transplant - The Lung Allocation Score
...Transplant and Pulmonary Hypertension The Lung Allocation Score Once you have a transplant team, your priority for transplant must be established. Until the spring of 2005, lung transplant priori
Lung Transplant - Information for Caregivers
...Transplant and Pulmonary Hypertension Information for the Caregiver[image: Patient and caregiver hand in hand] Standing by a loved one while they list, wait, receive and recover from a transplant
Patient Insurance Victory - Don Burdolski
...Insurance Victories It Takes a Team: Family and Friends Rally around PH Patient to Fight for Transplant Approval July 2009 By Don Burdolski PH Caregiver [image: Kathy Burdolski : <vie
Before Lung Transplant
...Join PHA's Transplant Email Group <http://www.PHAssociation.org/TransplantGroup> to discuss your questions about and experiences with transplant. For more information contact Transplant@PHAssociati
The Lung Transplant Procedure
...Join PHA's Transplant Email Group <http://www.PHAssociation.org/TransplantGroup> to discuss your questions about and experiences with transplant. For more information contact Transplant@PHAssociati
After Lung Transplant
...Join PHA's Transplant Email Group <http://www.PHAssociation.org/TransplantGroup> to discuss your questions about and experiences with transplant. For more information contact Transplant@PHAssociati
After Transplant - Long-Term Emotional Issues
...Transplant and Pulmonary Hypertension Long-Term Emotional Issues After Transplant [image: Woman looking out over water] Although the overall quality of life after transplant is often greatly impr
Life 1 Day to 6 Months After Transplant
...Transplant and Pulmonary Hypertension Returning Home: Life 1 Day to 6 Months After Transplant&#160;[image: Joe Haan and Family] As you prepare to leave the hospital, your transplant team will tea
Emotional Issues After Transplant
...Transplant and Pulmonary Hypertension Emotional Issues After Transplant [image: Woman looking contemplative] Receiving a new organ is a wonderful gift, but the process of receiving and recovering
Before Transplant - The Emotional Impact of Listing
...Transplant and Pulmonary Hypertension [image: Patients hugging at PHA on the Road in Baltimore] The Emotional Impact of Listing The process of becoming listed as a lung transplant candidate and
The Lung Transplant Procedure
...Transplant and Pulmonary Hypertension During Transplant - Overview of the Surgical Procedure [image: Doctor talking with patient] Once you have received the call, arrived at the hospital, gone th
International News and Projects (Transplant Pioneer Celebrates 19 Years of Health)
...CTV News) - It was 19 years ago that Sherry Duncan Paterson underwent a double-lung heart transplant, making her a pioneer in the Canadian transplant world. 19 years ago, after the birth of her sec
Medications After Transplant
...Transplant and Pulmonary Hypertension Medications After Transplant[image: Pills] For transplant recipients, there are lots of pills to swallow — some people take 12 pills a day, some 40, dependin
Support Group Leader Updates - February, 2012
...Day. More than 112,000 Americans, including PH patients, are waiting for life-saving organ transplants. &#187;&#160;Check out PHA's transplant resources <https://www.phassociation.org/page.aspx?pi
After Transplant - Transplant Rejection
...Transplant and Pulmonary Hypertension Transplant Rejection Eighty to eighty-five percent of those who survive the transplant operation have a good functional status afterward and can do normal ac
PHPN Mentor Profiles
...patient population including idiopathic, familial, associated, left heart disease, lung disease, transplant program, Porto-pulmonary, HHT and thromboembolic among others. 4 Additional involvement
PH and Liver Disease
...is POPH diagnosed? * How is POPH treated? * Can patients with POPH be candidates for a liver transplant? What is liver disease? To understand liver disease, it is first essential to know wh
UC Davis Health System - Coordinator
...Professional Experience 1993-present Lead Clinical Coordinator, Lung Transplant Program, UC Davis Medical Center, Sacramento, CA 2000-present Pulmonary Hypertension Lead Clinical Coordinat
Support Group: Event Calendar (Lung Transplant Evaluation)
... SubTitle Name Lung Transplant Evaluation Details Place : Conference Room 723A on 7th floor, Mount St. Mary’s Hospital 5300 Military Rd, Lewiston, NY 14092 Topic : Lung Transplant Evaluation
BBTest Event Page (Lung Transplant Evaluation)
... SubTitle Name Lung Transplant Evaluation Details Place : Conference Room 723A on 7th floor, Mount St. Mary’s Hospital 5300 Military Rd, Lewiston, NY 14092 Topic : Lung Transplant Evaluation
Teens with PH - Transition to Adult Care
...in the future, ask if the plan covers these medications as well. * If I were to require a transplant in the future, will this insurance cover organ transplant? Know Your Insurance Rights Cer
PHPN Mentee Evaluation Form
...Mentee Evaluation Form To be completed after Month 1, Month 3 and Month 6 of pairing. Names are used to confirm completion of the evaluation but will be removed upon receipt; information received
PHPN Mentor Evaluation Form
...Mentor Evaluation Form To be completed after Month 1, Month 3 and Month 6 of pairing. Names are used to confirm completion of the evaluation but will be removed upon receipt; information received
Press Release 2015 April 9
...and cure PH. [image: Esther]Michelle Liu’s daughter Esther is a PH patient whose double lung transplant saved her life. Esther was diagnosed with severe PH at the age of 2, and immediately was sta
International News and Projects (PH Israel’s Ninth Annual PH Conference)
...the association’s work and achievements in the last year. Afterward, a speaker from the National Transplantation Service spoke about how donors are identified, how patients are put forward for tran
Endorsments from Other Organizations
...for Sarcoidosis Research www.stopsarcoidosis.org <http://www.stopsarcoidosis.org/> [image: Lung Transplant Foundation] <http://lungtransplantfoundation.org> Lung Transplant Foundation www.lung
Kentuckiana Pulmonary Associates - PHA-Accredited Center of Comprehensive Care
...Associates (KPA) began taking care of patients with pulmonary hypertension in 1992 when they transplanted their first PH patient and provided pre- and post-transplant care. In 1995, KPA started the
Support Group: Blog (Liz Brigham having transplant today)
... Description Liz Brigham will be receiving a heart and double lungs transplant at St. Mary's hospital in Rochester, MN. Liz is a PH support group leader and a patient to patient help line in N. C
Support Group: Blog (Updated about Larry Fox)
...Good news! Larry and Judy Fox were at the Mayo Clinic in Roctester, MN for three days and the transplant team decided to activated him up on the transplant List. He is thrilled to be move up on th
Support Group: Event Calendar (Support Group Meeting)
... Location Florida Hospital Transplant Center 6th Floor (take the elevator and follow the signs) 2415 N. Orange Ave, Suite 700 Orlando, FL Fees None ContactInfo Tina, 407-914-9798 Jackie, 407
International News and Projects (Canadian PH Teen & One Direction Super Fan Gets New Lungs, But Misses Concert)
...Amanda Kakoz is the proud owner of a new set of lungs after undergoing a double-lung transplant in July. Unfortunately, her hospitalization coincided with the One Direction <http://www.onedirection
International News and Projects (I’ve Had a Double Lung Transplant Already... And I’m Only 30)
...to school  —  things that would have been impossible before she had a life-saving double lung transplant. Read article <http://www.thesun.co.uk/sol/homepage/woman/health/health/4424479/Ive-had-a-do
BBTest Event Page (Support Group Meeting)
... Location Florida Hospital Transplant Center 6th Floor (take the elevator and follow the signs) 2415 N. Orange Ave, Suite 700 Orlando, FL Fees None ContactInfo Tina, 407-914-9798 Jackie, 407
Patient Mentor - Amy
...Started Flolan in 1997 and continued that therapy until February of 2013 when I received a lung transplant. I had many things I liked to do before transplant but I have been told the "new me" will
PHA Support Group Event Calendar - Alabama (FL - Sarasota)
...(preferably by email): Marty King mking18@juno.com, 941-486-0362 CategoryName SubTitle Lung Transplant: What You Need to Know! Details Lung Transplant:What You Need to Know! Patrick Pust
PHA Support Group Event Calendar - Colorado (CO - Rocky Mountain Wheezers (CO Springs))
...None ContactInfo RSVP: Lindsay, 720-297-4626 lcollins23@msn.com CategoryName SubTitle Transplant Awareness Details Transplant Awareness Speaker: Kerry Holiday, Donor Alliance Whether
PHA Support Group Event Calendar - Connecticut (CT - Connecticut (Farmington))
...RSVP by 8/1: Carol Morrison, 860-583-1313, chmorrison16@hotmail.com SubTitle Lung Transplant Details Connecticut Pulmonary Hypertension Support Group Tuesday, Aug. 2, 5:30 - 7 pm. Topic: Lung
After Transplant - What to Expect After Surgery
...Transplant and PUlmonary Hypertension What to Expect After Surgery[image: doctor with stethoscope] The good news is that about 90 percent of lung or heart-lung transplant patients recover from th
Social Security Disability Information
...WORK AND SOCIAL SECURITY This article cannot replace a direct conversation with the Social Security Administration (SSA). If you have returned to work, or are thinking about returning, it's very
Mayo Clinic - PHA-Accredited Center of Comprehensive Care
...coordinators and nurses, physicians with expertise in PH, heart failure, pulmonary disease, transplantation, echocardiography, and invasive assessment of hemodynamics. Dr. Frantz joined the PH prog
Our Journeys - Susie Alvarez
...to help you breathe but your illness will progressively get worse. Eventually you will need a lung transplant.” Then he left the room. "My family was located miles away and I did not have the s
Support Group: Event Calendar (Lung Transplants)
... SubTitle Speakers: Kelly Morris, RN (Transplant Team) and Dottie Biggar, RN (Pulmonary Rehab) Name Lung Transplants Details The meeting will take place at: St. Luke Hospital; Emerson Auditori
Support Group: Event Calendar (PH and Lung Transplant)
... SubTitle Speaker: Steven D. Nathan, MD, Medical Director, Advanced Lung Disease and Transplant Program at INOVA Fairfax Hospital Name PH and Lung Transplant Details Refreshments will be provid
Support Group: Event Calendar (Support Group Meeting w/special speakers)
... SubTitle Lung Transplant and Treatment Options for Advanced Lung Disease Name Support Group Meeting w/special speakers Details Come join us at our April meeting when Andres Pelaez, MD and Sue K
International News and Projects (Four-Year-Old Boy "Shortest" in UK to Get New Lungs)
...(BBC News) - A four-year-old boy is the shortest person in the UK to have a successful lung transplant, doctors said. Surgeons at Great Ormond Street Hospital in London carried out the transplant i
International News and Projects (Heart and Lung Transplant Recipient in Australia Hoping for a Breakthrough)
...essentially operating back to front, Mike Lambe has always known he would one day need a heart transplant. He developed pulmonary arterial hypertension and received new lungs along with his heart j
BBTest Event Page (Lung Transplants)
... SubTitle Speakers: Kelly Morris, RN (Transplant Team) and Dottie Biggar, RN (Pulmonary Rehab) Name Lung Transplants Details The meeting will take place at: St. Luke Hospital; Emerson Auditori
BBTest Event Page (PH and Lung Transplant)
... SubTitle Speaker: Steven D. Nathan, MD, Medical Director, Advanced Lung Disease and Transplant Program at INOVA Fairfax Hospital Name PH and Lung Transplant Details Refreshments will be provid
BBTest Event Page (Support Group Meeting w/special speakers)
... SubTitle Lung Transplant and Treatment Options for Advanced Lung Disease Name Support Group Meeting w/special speakers Details Come join us at our April meeting when Andres Pelaez, MD and Sue K
PHA Support Group Event Calendar - Texas (TX - Dallas)
...Free ContactInfo Honey 940-597-7564 or TX-Dallas@PHASupportGroups.org CategoryName SubTitle Transplants; Learning from Doctor, Patient &amp; Caregiver Details Join us for our June meeting!
PHA Support Group Event Calendar - Southern California (CA – South Orange County)
...Sehgal 949-830-6558 or CA-WojoSouthOrangeCounty@PHASupportGroups.org CategoryName SubTitle Transplants Details Join us for our March Meeting!  Judy Sepulveda, former PH patient and transpla
PHA Support Group Event Calendar - New York - NYC (NY - Mount Sinai Beth Israel)
...None ContactInfo RSVP: Rebecca Fenton, 212-844-8263, rfenton@chpnet.org SubTitle ourney to Lung Transplant, A PAH Patient’s Perspective Details Topic: Journey to Lung Transplant, A PAH Patient’
PHA Support Group Event Calendar - Florida (Central FL)
...352-668-4007, grracie12@aol.com CategoryName SubTitle Lung &amp; Organ Transplant: What You Need to Know Details Lung & Organ Transplant: What You Need to Know Speaker: Patrick Pustay, RN
PHA Support Group Event Calendar - Florida (FL - Jacksonville Area)
...Please RSVP: Mike Robinson, 904-571-8118 rmichaelray@bellsouth.net CategoryName SubTitle A Transplant Journey: Jo Madden (A PH Patient) Details Jo and her father, Steven Madden, will talk ab
PHA Support Group Event Calendar - Minnesota (MN - Rochester)
...RSVP: Neeta Pai, 507-206-6678 bhatpai@yahoo.com CategoryName SubTitle My Heart - Lung Transplant Details My Heart - Lung Transplant Speaker: Liz Brigham Saturday, June 20, 1 - 3 pm.
PHA Support Group Event Calendar - Vermont (VA - Charlottesville)
...RSVP to April Trainum, 434-760-1462 apriltrainum@hotmail.com CategoryName SubTitle Lung Transplant Details Lung Transplant Speaker:  Max Weder, MD  Friday, November 7 11:30 am. - 2:30 p
Susie Alvarez
...you breathe, but your illness will progressively get worse, and eventually you will need a lung transplant.” Then he left the room. My mind went into a fog, I felt so confused and very scared. I w
PH Roundup June 2012
...Time! Comment on Lung Allocation Score Revisions To better meet the needs of patients awaiting transplant, the Thoracic Organ Transplantation Committee recently proposed revisions to the Lung Allo
PHPN - PH Pulse Articles: PH in India
...very expensive. Surgical interventions for PH, such as thromboendarterectomy for CTEPH and lung transplantation, are not commonly performed in India. However, various cardiac catheterization bas
PH Roundup 2016 July
... Recently Released Studies Development of the Pulmonary Arterial Hypertension-Symptoms and Impact (PAH-SYMPACT®) questionnaire: a new patient-reported outcome instru
PH Roundup April 2012
...&#160; &#160; Roundup Spotlight... To better meet the needs of patients awaiting transplant, the Thoracic Organ Transplantation Committee recently proposed revisions to the Lung Alloca
PH Email Mentor - Patient - Syrena
...Patient Mentor Profile [image: BreAnn McFarland] Syrena Diagnosed in 2012 "I love to paint, spend time with family, and perform Mariachi music every weekend." __________________________
Stanford University - PHA-Accredited Center of Comprehensive Care
...Stanford Adult PH Program (SAPHP) was established in 1996 as a part of the lung/heart-lung transplant initiative and need for supporting PH patients seeking transplantation. Under the directorship
Press Release 2014 Nov 18
...FOR IMMEDIATE RELEASE Renée W. Hockaday PHA Communications ReneeH@PHAssociation.org <mailto:ReneeH@PHAssociation.org?Subject=PHA%20Press%20Release> 240-485-0774 ph. Pulmonary Hypertension Asso
Our Journeys - Heather Fischer
...decreased dramatically. I then decided to start the steps toward getting worked up for a lung transplant, and one of the required tests is a right-heart catheterization. After those tests I was to
PHA Board of Trustees - Laura D’Anna
...[image: Laura D'Anna]PHA Board of Trustees Laura D’Anna, DrPH, MPA Senior Research Fellow and Director, California State University Long Beach Center for Health Equity Research Long Beach, Calif
Support Group: Event Calendar (Advanced Lung Disease, PH and Lung Transplants)
... SubTitle Speaker: Dr. Pelaez, Medical Director, Lung Transplantation at FL Hospital Name Advanced Lung Disease, PH and Lung Transplants Details Lunch will be provided by United Therapeutics.
BBTest Event Page (Advanced Lung Disease, PH and Lung Transplants)
... SubTitle Speaker: Dr. Pelaez, Medical Director, Lung Transplantation at FL Hospital Name Advanced Lung Disease, PH and Lung Transplants Details Lunch will be provided by United Therapeutics.
Can PH Medications Cause Hair Loss?
...ASK A PH SPECIALIST[image: hairbrush with hair in it] Question: Since I was diagnosed with PH, my hair has been thinning. I’ve heard that some PH medications can cause hair loss as a side effect.
PHA Support Group Event Calendar - Florida (FL - Tampa Bay)
... SubTitle Anesthesia &amp; PAH, COPD and Lung Transplants Details Carol & Frank Morsani Center, Univ. of S. FL - Rm 1013A Guest Speaker: Devanand Mangar, MD President and CEO, Florida Gulf
Diagnosis Stories - Braden Buehler
...heart failure. No cause and no cure. Rare. Progressive. Fatal. Two years. Maybe five years. Lung transplants. Heart and lung transplants. Symptoms I recognized. Treatments that seemed they would in
Our Journeys - Braden Buehler
...heart failure. No cause and no cure. Rare. Progressive. Fatal. Two years. Maybe five years. Lung transplants. Heart and lung transplants. Symptoms I recognized. Treatments that seemed they would in
Support Group: Blog (TRANSPLANT ANNIVERSARY)
... Description This is my one month liver transplant anniversary.  Happy to report that still no signs of rejection. Feel good. Great to be back home for recuperation. My thanks to all for their
International News and Projects (Why Does Western Australia Lag Behind in Organ Donation?)
...has a chronic lung condition and is one of about 1,700 people Australia-wide in need of an organ transplant. "During my second pregnancy three and a half years ago I became sick and developed pulmo
Support Group Leader Updates - August, 2011
...<mailto:Debbie@PHAssociation.org> to participate in future group phone calls. Looking for Transplanted PH Patients <http://groups.google.com/group/PHA_Transplant/subscribe?hl=en&note=1&pli=
Transplant Information for PH Patients
...Lung Transplant Information Read a consensus statement on lung transplantation written by PHA's Scientific Leadership Council.
Lung Transplant - Information for Friends, Family Members and Parents
...Lung Transplant Information Read a consensus statement on lung transplantation written by PHA's Scientific Leadership Council.
Transplant and Pulmonary Hypertension
...Lung Transplant Information Read a consensus statement on lung transplantation written by PHA's Scientific Leadership Council.
PHA Support Group Event Calendar - Florida (FL - Orlando)
... Location Florida Hospital Transplant Center 2415 N. Orange Ave., Suite 700, Orlando, FL Fees None ContactInfo RSVP by Sept. 24 to Tina, 407-914-9798, Jackie, 407-774-2707, Karen, 407-721-001
PHA Support Group Event Calendar - Florida (FL - Orlando)
... Location Florida Hospital Transplant Center 2415 N. Orange Ave., Suite 700, Orlando, FL Fees None ContactInfo CategoryName SubTitle Holiday Celebration Details We will also welcome our n
PHA Support Group Event Calendar - Florida (FL - Orlando)
... Location Florida Hospital Transplant Center 2415 N. Orange Avenue, Orlando, FL Fees None ContactInfo RSVP by 9/23 to Jackie Woosley, 321-279-6380; Jane Northrup, 321-245-8435; Jennifer Klick,
PHA Support Group Event Calendar - Florida (FL - Orlando)
...either Jewoosley@gmail.com or Orlando_PH_Support_Group@live.com. CategoryName SubTitle Is Lung Transplant Right for Me? Details Orlando Pulmonary Hypertension Support Group Meeting Thursday,
Washington University/Barnes-Jewish Hospital - PHA-Accredited Center of Comprehensive Care
...to 2002, PH patients at Washington University & Barnes-Jewish were managed diffusely by the Lung Transplant program and several other providers. Development of the PH program has concentrated patie
UCSF - PHA-Accredited Center of Comprehensive Care - Director
...Certifications * Internal Medicine * Cardiovascular Diseases * Advanced Heart Failure/Transplant Cardiology ________________________________________ Education 1978 AB University o
University of Iowa - PHA-Accredited Center of Comprehensive Care - Director
...Certifications * Internal Medicine * Cardiovascular Diseases * Advanced Heart Failure and Transplant Cardiology ________________________________________ Education 1989 BS Universi
Christine Williams
...my diagnosis of IPF, I thought my life was over. I was immediately considered for a double lung transplant and went through the evaluation process. After a year and a half, my IPF stabilized, and I
UC Davis Health System
...UC Davis Health System Advanced Lung Disease/Lung Transplant Program Overview | Director | Coordinator | Contact [image: CCC PHCC Center of Comprehensive Care]
UC Davis Health System - Director
...UC Davis Health System Advanced Lung Disease/Lung Transplant Program Overview | Director | Coordinator | Contact [image: CCC PHCC Center of Comprehensive Care]
UC Davis Health System - Coordinator
...UC Davis Health System Advanced Lung Disease/Lung Transplant Program Overview | Director | Coordinator | Contact [image: CCC PHCC Center of Comprehensive Care]
UC Davis Health System - Contact
...UC Davis Health System Advanced Lung Disease/Lung Transplant Program Overview | Director | Coordinator | Contact [image: CCC PHCC Center of Comprehensive Care]
PHCC Accredited - University of Minnesota Health
...to facilitate care and the needs of PH patients including rheumatology, pulmonology, hepatology, transplant, and palliative care. Additionally, a social worker, dietitian, pharmacist, and Coumadin
PHCC Accredited - Houston Methodist
...Methodist Hospital was established in the 1990’s by Dr. Adaani Frost as an outgrowth of the lung transplant program. It was the result of a request by Drs. Lewis Rubin and Stuart Rich for this site
Support Group: Event Calendar (Lung Transplant Evaluation - Dr. Thomas Gildea from Cleveland Clinic)
... SubTitle Name Lung Transplant Evaluation - Dr. Thomas Gildea from Cleveland Clinic Details Thanks to the Pulmonary Hypertension Association (PHA) Support Group Central Fund for sponsoring our
BBTest Event Page (Lung Transplant Evaluation - Dr. Thomas Gildea from Cleveland Clinic)
... SubTitle Name Lung Transplant Evaluation - Dr. Thomas Gildea from Cleveland Clinic Details Thanks to the Pulmonary Hypertension Association (PHA) Support Group Central Fund for sponsoring our
Clinical Trials
...CLINICAL TRIALS As the breadth of PH research expands, PHA is committed to keeping its members informed about ongoing clinical research pertaining to evaluation and treatment of pulmonary hyperten
PHPN Mentor Program
...PH Professional Network Mentor Program [image: allied health professionals] The PH Professional Network (PHPN) Mentor Program connects healthcare providers working with PH patients with a qualifi
Survival Guide Feedback
...Feedback – Pulmonary Hypertension: A Patient’s Survival Guide We hope you enjoyed reading Pulmonary Hypertension: A Patient’s Survival Guide. Please take a few moments to give us your thoughts a
Bardoxolone Methyl Evaluation
...Clinical Trials August 18, 2015 Bardoxolone Methyl Evaluation in Patients With Pulmonary Arterial Hypertension (PAH) - LARIAT * Study Sponsor: Reata Pharmaceuticals, Inc. * Institution: Reata
PHAR - Preliminary Data
...Preliminary Data The basic characteristics of patients enrolled in PHAR are summarized in reports on these webpages. No identifiable information is shared. These summaries are provided to keep pat
Support Group: Blog (Greater St. Louis Support Group Dinner & Wine Tasting Event)
...improvement!!! And we concluded our “successes” by continuing to celebrate Jim Baker’s double lung transplant recovery with Jim announcing that he no longer has PH, nor does he have any of the symp
Information on PH Specialists
...if yes:" fieldtype="1" htmlencode="True" isloop="False" /> Do you refer patients for heart/lung transplant? <img src="insertField.field?id=101&nmode=0&name=Do+you+refer+patients+for+heart%2flung
Support Group Leader Updates - December, 2011
...President Rino Aldrighetti's blog <http://pharino.blogspot.com/> &#160; &#160; Considering Transplant? PHA Has a Group for That <http://groups.google.com/group/pha_transplant> PHA has a disc
PH Roundup May 2012
...on Lung Allocation Score Revisions To better meet the needs of patients awaiting transplant, the Thoracic Organ Transplantation Committee recently proposed revisions to the Lung Allocation Score (
PH Roundup 2013 September
...Institutes of Health Submission Deadline: Oct. 16, 2013   Clinical Trials in Organ Transplantation (CTOT)(U01) <http://grants.nih.gov/grants/guide/rfa-files/RFA-AI-13-006.html> (RFA-AI-13-00
CTEPH Doctor Profile Display
...if yes:" fieldtype="1" htmlencode="True" isloop="False" /> Do you refer patients for heart/lung transplant? <img src="insertField.field?id=101&nmode=0&name=Do+you+refer+patients+for+heart%2flung
Froedtert and Medical College of Wisconsin - PHA-Accredited Center of Comprehensive Care
...Dr Presberg currently serves as medical director of the pulmonary hypertension program and lung transplant program at Froedtert & the Medical College of Wisconsin. He has served as the PI on a numb
Press Release 2015 July 28
...hypertension specialists in the US. “These kids have had or are waiting for heart and lung transplants or are otherwise dependent on multiple daily treatments. Heart Camp is the first time many of
Support Group: Blog (Great news...Larry Fox received a new liver!)
...in ICU and is doing fine. He received the liver from a living 49 year old man. Both were given a transplant, they called it a piggy back surgery. Both are doing well. We were all very surprise tha
Support Group: Blog (NOV. MEETING - NUTRITION FOR CHRONIC DISEASES)
... Description Nickie Francisco-Ziller, transplant dietitian at Mayo Clinic gave a very good presentation to an enthusiastic crowd on nutrition for chronic diseases. Although Nickie gets involved in
Support Group: Blog (Sharren Yamron)
...was an inspiration and gave many hope to know that this disease is doable. She had a double lung transplant, five years later she had a single lung transplant. Shortly after that she had breast can
Support Group: Blog (TRANSPLANT for CINDY)
...AM UTC Description November 16, 2011...Today Cindy Wangerud received her heart and double lung transplant at Stanford Univ. in Califor. She is still sedated, but her team of doctor said the proced
Support Group: Event Calendar (Christmas party/meeting)
...entrance is on Orlando St. off of Orange Ave. by the Wendy’s. Look for signs. Crosswalk to Transplant Center, then take elevator to 6th floor. Someone will be there to direct you. CategoryName L
BBTest Event Page (Christmas party/meeting)
...entrance is on Orlando St. off of Orange Ave. by the Wendy’s. Look for signs. Crosswalk to Transplant Center, then take elevator to 6th floor. Someone will be there to direct you. CategoryName L
Medicare Basics
...months * Have End-Stage Renal Disease, a permanent kidney failure requiring dialysis or a kidney transplant *The above requirements are only general guidelines; please visit Medicare Rights Ce
PHA Support Group Event Calendar - Southern California (CA - Los Angeles USC)
...Frances, 323-442-6077 or lidia.moreno@health.usc.edu CategoryName SubTitle Exploring Lung Transplants Details Speakers: Richard Barbers, MD & Jeremy O’Connor, LCSW   Family & friends a
Support Group Leader Updates - March, 2012
...register in advance! <https://cc.readytalk.com/r/cts44g3cmlsm> &#160; &#160; Recording: Transplant <http://phamultimedia.org/SupportGroups/2011Feb24_TrainingForLeaders/lib/playback.html> Dr.
PHA Donor Story - Christina Buchanan
...the tubing if it gets caught on something. On Dec. 27, 2011, Riley became actively listed for transplant at Children’s Hospital of Philadelphia. Riley is a “very happy girl. She doesn’t let any o
Support Group Leader Updates - July, 2012
... PHA Campaigns Get your group involved &#160; &#160; Transplant Resources Online <http://www.PHAssociation.org/Patients/LungTransplant> We have completely revamped our lung transplanta
Inova Fairfax - PHA-Accredited Center of Comprehensive Care
...200+ miles. Dr. Steve Nathan serves as the Medical Director of the Advanced Lung Disease and Lung Transplant Program at Inova Fairfax Hospital. Dr. Oksana Shlobin serves as the Co-Director of the P
Weill Cornell-New York Presbyterian - PHA-Accredited Center of Comprehensive Care - Director
...Certifications * Internal Medicine * Cardiology * Advanced Heart Failure/Transplant Cardiology ________________________________________ Education 1976 AB Mathematical Economic
Froedtert and Medical College of Wisconsin - PHA-Accredited Center of Comprehensive Care - Director
...Froedtert Memorial Lutheran Hospital, Milwaukee, Wisconsin 1991 - present Member, Lung Transplant Team, Froedtert Memorial Lutheran Hospital, Milwaukee, Wisconsin 1995 - present Medical Dir
University of Iowa - PHA-Accredited Center of Comprehensive Care
...of the Heart and Vascular Center (HVC) which also includes the Advanced Heart Failure, Thoracic Transplant (heart and lung) and Clinical Research Programs. Patients are offered access to cutting-ed
Brigham & Women's Hospital - PHA-Accredited Center of Comprehensive Care
...mechanical support, and novel delivery systems. The program works closely with the lung transplant program, and can expedite the evaluation of patients with pulmonary vascular disease who are being
Diane Ramirez
...hypertension. You cannot have children, and there is no cure. If you do not have a heart and lung transplant, you will not live more than two more years.” Honestly, when I first heard the name p
Our Journeys - Medical Professionals
...Chakinala I became acquainted with PH in the late 1990s, during my training to become a lung transplant physician at Washington University. At the time, only epoprostenol (FlolanTM) was approved,
Our Journeys - Jessica Lazar, PA
...for eight years, and because of her diagnosis of breast cancer, she was not eligible for a lung transplant. She began combination therapy and was also treated successfully for her cancer. After she
Support Group: Blog (Getting to Know your PH)
... News Channel Support Group News Publication Date 1/20/2010 1:46:10 PM UTC Description Welcome! KnowYourPH.org is a dedicated source of vital information for patients with pulmonary hypertens
Recommendatins for patient referral to PH Speciali
...Download & Print PDF Recommendations for patient referral to a PH specialist Consensus Statement Issued by the Scientific Leadership Council DISCLAIMER: The information below is for genera
PHA Medical Education On-Demand - Program Topics
...Program Topic Choices [image: Dr. Michael McGoon] For Medical Professionals Only [image: Request a Program] <http://www.phassociation.org/OnDemand/RequestAProgram> Password required, Con
Referral to PH Specialist Recommendations
...Download & Print PDF Recommendations for patient referral to a PH specialist Consensus Statement Issued by the Scientific Leadership Council DISCLAIMER: The information below is for genera
PHA Board of Trustees - Melisa Wilson, ARNP
...PHA Board of Trustees [image: Melisa Wilson]Melisa Wilson, ARNP, ACNP-BC Florida Hospital Medical Group Orlando, Fla. Scientific Leadership Council Representative Board term ending: June 2019
Recommendatins for patient referral to PH Speciali
...Download & Print PDF Recommendations for patient referral to a PH specialist Consensus Statement Issued by the Scientific Leadership Council DISCLAIMER: The information below is for genera
Symposium Committee
...Symposium Committee Committee Spotlight It’s that time of year when PHPN begins to anticipate the arrival of the PH Professional Network Symposium. The Symposium Committee has been working dilige
Mayo Clinic Florida - PHA-Accredited Center of Comprehensive Care
...therapies, active clinical trials, pulmonary thromboendarterectomy, and both liver and heart-lung transplantation. The hospital and outpatient facility are physically connected on one campus. The p
UCSF Benioff Children's Hospital - PHA-Accredited Center of Comprehensive Care - Contact
... Program Location University of California, San Francisco Benioff Children's Hospital Pulmonary Hypertension Program Ron Conway Family Gateway Medical Building 1825 Fourth Street, Sixth Floor
Support Group: Blog (PASSING OF VIKKI OLSON-AUZENNE)
... Description Unfortunately our member Vikki has passed due to complications from her lung transplant surgery. A private ceremony was held. We reach out to Joe and family expressing our sympathy at
Support Group: Blog (Saturday, August 17th 2013.)
...Carolina to our small group in Rochester with open arms. Jodi, my co-leader was happy to share her transplant story and success from 14 years ago, her little boy born after the transplant five year
Support Group: Event Calendar (Jim Baker Benefit & Dance)
...Baker who suffers from Pulmonary Hypertension a rare lung disease and is in need of a double lung transplant. Pasta Dinner & Beer 7-10pm Live Music: Hobo Jungle (60’s- Today) Silent Auction, 5
Support Group: Event Calendar (Medicare 101)
...is available in the McCrae St. Garage (3rd Floor) CategoryName Location Florida Hospital Transplant Center 2415 N. Orange Ave., Orlando Fees None ContactInfo Please RSVP by Sept. 16 to Meliss
Support Group: Event Calendar (Support Group Meeting)
...Medical Center, Auditorium C Date: Sat, Aug 21 When: 12pm-2pm Speaker: Andrea Allen, RN Transplant Coordinator at UC Davis Topic: Emergency Management Sponsor: Lunch provided by Gilead RSVP:
Support Group: Event Calendar (Support Group Meeting)
...Support Group Meeting Details The Pulmonary Hypertension Program in association with The Lung Transplant & Heart Failure Program are pleased to invite you to our Pulmonary Hypertension Sup
Support Group: Event Calendar (Support Group Meeting)
...Support Group Meeting Details The Pulmonary Hypertension Program in association with The Lung Transplant & Heart Failure Program are pleased to invite you to our Pulmonary Hypertension Sup
Support Group: Event Calendar (Support Group Meeting)
...Sheila Williams is arranging a joint meeting with Dr Torres and her family to talk about her transplant experience. Location to be announced CategoryName Location To be announced Fees Contac
International News and Projects (New Lease of Life for Battling Mum)
... Description (Chorley Guardian - UK) - A battling mum who underwent a double-lung transplant has beaten the odds to make a remarkable recovery - just a month after leaving hospital. Natalie Kerr,
International News and Projects (News Special on President of Chinese PH Association)
...China, Huanghuan, just underwent the country’s second-ever attempt at a second-round double lung transplant. CCTV ran a TV special on her story. Watch the special <http://news.cntv.cn/2014/11/16/V
BBTest Event Page (Jim Baker Benefit & Dance)
...Baker who suffers from Pulmonary Hypertension a rare lung disease and is in need of a double lung transplant. Pasta Dinner & Beer 7-10pm Live Music: Hobo Jungle (60’s- Today) Silent Auction, 5
BBTest Event Page (Medicare 101)
...is available in the McCrae St. Garage (3rd Floor) CategoryName Location Florida Hospital Transplant Center 2415 N. Orange Ave., Orlando Fees None ContactInfo Please RSVP by Sept. 16 to Meliss
BBTest Event Page (Support Group Meeting)
...Medical Center, Auditorium C Date: Sat, Aug 21 When: 12pm-2pm Speaker: Andrea Allen, RN Transplant Coordinator at UC Davis Topic: Emergency Management Sponsor: Lunch provided by Gilead RSVP:
BBTest Event Page (Support Group Meeting)
...Support Group Meeting Details The Pulmonary Hypertension Program in association with The Lung Transplant & Heart Failure Program are pleased to invite you to our Pulmonary Hypertension Sup
BBTest Event Page (Support Group Meeting)
...Support Group Meeting Details The Pulmonary Hypertension Program in association with The Lung Transplant & Heart Failure Program are pleased to invite you to our Pulmonary Hypertension Sup
BBTest Event Page (Support Group Meeting)
...Sheila Williams is arranging a joint meeting with Dr Torres and her family to talk about her transplant experience. Location to be announced CategoryName Location To be announced Fees Contac
Lung Transplant - Information about Organ Donation
...Transplant and Pulmonary Hypertension Organ Donation&#160;[image: illustration of lungs] One of the greatest gifts you can give a loved one with PH is registering to be an organ donor. The need f
PHA Support Group Event Calendar - Texas (TX - Austin)
...Join us for our June Meeting!   Dr Ernest A. Haeusslein, from the Seton Heart Specialty Care & Transplant Center will be doing a presentation entitled PAH 101   RSVP to:  Gaby 512-383-5088 or T
PHA Support Group Event Calendar - Texas (TX - Rio Grande Valley (McAllen))
...Insights on PAH Emergency Preparedness Speaker: JJ Piper, RN Director, Heart Transplant Clinic, Methodist Healthcare   Tuesday, May 19, 12 pm.   Pulmonary and Sleep Center of the Valley 53
PHA Support Group Event Calendar - Southern California (CA - USC)
...or Jessica 323-442-6077 or CA-USC@PHASupportGroups.org CategoryName SubTitle Exploring Lung Transplantation Details Join us for our November Support Group Meeting! Marvin Mailom, RN, Transp
PHA Support Group Event Calendar - Florida (FL - Orlando)
... Location Florida Hospital Transplant Center - 6th Floor 2415 N. Orange Avenue, Suite 700 Orlando, FL Fees Free ContactInfo Jackie 407-774-2707, Jane Northrup 321-245-8435 or FL-Orlando@P
PHA Support Group Event Calendar - Louisiana (LA - New Orleans)
... SubTitle Practicing Radical Acceptance Details Speaker:  Phyllis Tenney, LMSW, M.Div. Heart Transplant Social Worker, Ochsner Health System   Tuesday, September 17, 12 - 1:30 pm.   Brent
PHA Support Group Event Calendar - Minnesota (MN - Twin Cities)
... SubTitle Nutrition &amp; PH Details Nutrition & PH Speaker: Nickie Francisco-Ziller Transplant Center Dietician, Mayo Clinic Saturday, November 14, 1 - 3 pm. American Lung Assoc. Bld
PHA Support Group Event Calendar - Tennessee (TN - Nashville)
...Coping With A Chronic Illness Details Speaker: Karen Starr, MSN, RN, MAC, PMHNP Director of Transplant Psychiatry, Vanderbilt Medical Center Lunch provided by Lung LLC. Name TN - Nashville
PHA Support Group Event Calendar - Vermont (VA - Charlottesville)
... CategoryName SubTitle Doctor Talk: Oksana Shlobin, MD Details From the Advanced Lung Disease Transplant Program at Inova Fairfax Hospital   Meeting will be held at:  Fontaine Research Pa
PHA Support Group Event Calendar - Washington (WA - Des Moines Seattle)
...Allen, RN will be speaking to us about Testing & Management. Miss Allen is a Certified Clinical Transplant Coordinator (CCTC), Advanced Lung Disease at UC Davis Medical Center.    RSVP to:  Yunen
PHA Support Group Event Calendar - Wisconsin (WI - Milwaukee)
... SubTitle Insurance for 2014 Details Chris Ullenberg Transplant Financial Coordinator, Aurora Healthcare   Wednesday, Oct. 9, 11:30 am. - 1 pm.   St. Luke’s Hospital, Health Science Room 2
PHA Support Group Event Calendar - Wisconsin (WI - Southeast Wisconsin Zebra)
...6:30 pm. Topic :Journey to Breathe Easy Speaker :Lynn Carey (Former PH patient and double lung transplant recipient) Community Conference Center, Room #2 8700 Watertown Plank Road, Milwaukee,
Aine's Diagnosis Story
...followed up where the specialists left off, the would have found pulmonary hypertension...a lung transplant could have saved her lfie if only they hadn't ignored her." Aine died on August 10, 20
PVOD or PCH
...unknown. Sometimes PVOD is associated with connective tissue disease, HIV infection, bone marrow transplantation and other rare conditions. On rare occasions PVOD has occurred in families and a few
Inova Fairfax - PHA-Accredited Center of Comprehensive Care - Contact
...interested in making an appointment with theInova Fairfax Hospital Advanced Lung Disease and Transplant Program cancall the Inova referral coordinatorthrough two ways: * Telephone: (703) 776-6168
Our Journeys - Christine Williams
...fibrosis in May 2009. I initially had to use oxygen and was a patient of a local hospital's lung transplant program. My condition stabilized 18 months later and I was no longer a patient of the lun
University of Pittsburgh Medical Center - Coordinator
...Professional Experience 2010-present Clinical Coordinator, Heart Failure/Transplant/Pulmonary Hypertension Program, University of Pittsburgh Medical Center, Pittsburgh, PA __________________
PH Patient Resource Links
...Information Advocacy Clinical Trials Emergency Response Insurance Medication Oxygen Transplant Travel also see Caregiver Resources Pulmonary Hypertension Information Expert Consensus
Patient Mentor - Colleen
...Patient Mentor Profile [image: Colleen Schnell] Colleen Diagnosed in 1975 "I love making jewelry and spending time with my family and friends. I run a local PH support group and I host t
PH Roundup November 2012
...  Portable Device Points to Better Lung Transplants <http://www.nlm.nih.gov/medlineplus/news/fullstory_130099.html> According to results of a study published in the Lancet, "Scientists have succ
Living with PH - Your INR Blood Test
...Your INR Blood Test: A Cautionary Tale Joanne's Story [image: Joanne] I've had pulmonary hypertension for 14 years. I thought Id seen it all when it comes to PH. Boy, was I wrong. Id like to s
PH Email Mentor - Patient - Marla
...Patient Mentor Profile [image: Marla] Marla Diagnosed in 2008 "Im a working mom and wife. I love to travel, spend time with family and exercise." _____________________________________
PH Email Mentor - Patient - MaureenH
...Patient Mentor Profile [image: Blank] Maureen Diagnosed in 2012                                                                                                                ________
PH Email Mentor - Patient - RandyR
...Patient Mentor Profile [image: Blank] Randy Diagnosed in 2008 "I have transitioned into early retirement, but am not ready to stop fulfilling my purpose. I love to make a difference. I a
PH Email Mentor - Patient - Karen
...Patient Mentor Profile [image: Marla] Karen Diagnosed in 2012 "I returned to school later in life, but never got to work in my area of study, elementary education. I am now on disability
PH Email Mentor - Patient - Elisa
...Patient Mentor Profile [image: Marla] Elisa Diagnosed in 2012 "Im a Life and Wellness Coach. I am also a Wardrobe Stylist. I love to do zumba, and try to stay active and enjoy being invo
PH Roundup 2015 May
...      May 2015      In This Issue     » Recently Released Studies » Funding Opportunities - PHA » Funding Opportunities - Other » Call for Abstracts » PHA Announcements
PH Email Mentor Venita
...Patient Mentor Profile [image: Venita] Venita Diagnosed in 2012 "I am a self-employed counselor. Im active in a local support group. I am a lifetime learner and love to learn things outs
PH Email Mentor Debbie
...Patient Mentor Profile [image: Debbie] Debbie Diagnosed in 2014 "I am a married mother of two boys (and one daughter-in-law) who has a love of acting and theatre. I enjoy meeti
PH Roundup 2016 Feb.
...for European Paediatric and Congenital Cardiology (AEPC), International Society for Heart and Lung Transplantation (ISHLT). <http://eurheartj.oxfordjournals.org/content/37/1/67.long> Galiè N, Humb
PH Roundup 2016 Sept.
...priorities identified will shape future Funding Opportunity Announcements. Could Treatment Post-Transplant Be Improved? On Tuesday September 27, Food and Drug Administration wants to hear from he
Support Group: Blog (Cindy Wangerud Benefit October 29, 4:30-8:30 at the North St. Paul American Legion)
...12 years, now Cindy has been informed by her physicians that she needs a double lung and heart transplant. While this is news no one wants to hear, it also necessitates a move to California to awai
Support Group: Blog (PHA on the Road was held at the Minneapolis Marriott Southwest)
... News Channel PHA Minnesota Support Group News Publication Date 6/22/2011 4:47:00 PM UTC Description There was a great turnout for this forum, on a rainy saturday in road construction season. Dr
Research & Clinical Trials Info for Patients
...RESEARCH IN PULMONARY HYPERTENSION "PHA's research program has yielded an explosion of understanding about PH that was not known before." – John Newman, MD, Vanderbilt University Medical Center
Research in Pulmonary Hypertension
...RESEARCH IN PULMONARY HYPERTENSION "PHA's research program has yielded an explosion of understanding about PH that was not known before." – John Newman, MD, Vanderbilt University Medical Center
How to File an Insurance Claim, Appeal or Complain
...CLAIMS, APPEALS & COMPLAINTS As a health plan member, you have the right to be heard. ________________________________________ Insurance companies can be selective when it comes to paying for be
Scientific Leadership Council Members
...TN Term Ends December 2017 Myung H. Park, MD Chief, Division of Heart Failure and Transplant Department of Cardiology Houston Methodist Hospital Houston, Texas Term Ends December 2016 Ioana
Scientific Leadership Council Members
...TN Term Ends December 2017 Myung H. Park, MD Chief, Division of Heart Failure and Transplant Department of Cardiology Houston Methodist Hospital Houston, Texas Term Ends December 2016 Ioana
PHA/ATS Award Winner Arlin Brice Blood, PhD
...PHA/ATS Partnership Grant Winner 2007 Return to List of all PHA/ATS Award Winners <target=&pid=1297&did=0&tab=0> [image: Arlin Brice Blood, Ph.D. : <view.image?Id=2273>]Arlin Brice Blood, Ph.
Find a PH Email Mentor by Topic
...Coping/Emotional Health * Cardiac or Pulmonary Rehab * Connecting with Others * Transplant * Oxygen Therapy Oral Medication [image: Marla] Marla [image: Kathy] Kathy [image:
PH Roundup 2014 May
...of Health Submission Deadline: June 16, 2014   NIAID Division of Allergy, Immunology and Transplantation: Statistical and Clinical Coordinating Center (UM2) <http://grants.nih.gov/grants/guid
CTEPH Treatment and Surgery Options
...CTEPH Treatment & Surgery Options The treatment of choice for chronic thromboembolic (CTEPH) patients is pulmonary thromboendarterectomy, or PTE surgery, a highly specialized surgical procedure th
Early Diagnosis Campaign - Endorsers
...The Lymphangiomatosis & Gorham’s Disease Alliance <http://www.lgdalliance.org> [image: Lung Transplant Foundation] <http://lungtransplantfoundation.org> Lung Transplant Foundation <http://lungtr
Brigham & Women's Hospital - PHA-Accredited Center of Comprehensive Care
...[image: Aaron Waxman] Program Director Aaron B. Waxman, MD, PhD ________________________________________ Board Certifications * Internal Medicine * Pulmonary Disease * Critical Car
Press Release: The Pacing Parson
...Cullen Steele, a local (Kent, Wash.) PH patient who recently underwent a heart and lung transplant. In 2010, Stevenson walked 1,200 miles around the perimeter of Washington State to help raise mone
Pacing Parson Passing through Detroit
...Cullen Steele, a local (Kent, Wash.) PH patient who recently underwent a heart and lung transplant. In 2010, Stevenson walked 1,200 miles around the perimeter of Washington State to help raise mone
Press Release 2015 Aug 28 Pacing Parson Making Headway from Detroit to Toledo
...and 14-year-old Cullen Steele, a Kent, Wash. PH patient who recently underwent a heart and lung transplant. In 2010, Stevenson walked 1,200 miles around the perimeter of Washington State to help ra
Pulmonary Hypertension Association Registry
...Pulmonary Hypertension Association Registry (PHAR) The Pulmonary Hypertension Association has spearheaded the PH Care Centers (PHCC) initiative to accredit centers with special expertise in pulmon
Who Can Participate in PHAR?
...Who Can Participate in PHAR? In clinical research studies, the individuals who enroll and participate in the research are called the “study population.” When designing a study like PHAR, researche
UC Davis Health System
...Coagulation Service * Congenital Heart Disease * Dietary/Nutrition Services * Lung Transplant Referral Program * On-call Pulmonary/Cardiology Service (24/7 Availability) * Palliative Care
Houston Methodist Director
...Fellow, Pulmonary Vascular Research Institute * Member, International Society for Heart & Lung Transplantation * Member, Pulmonary Hypertension Clinicians and Researchers * Member, Institute
Harry R. Rozakis - Faces of CTEPH
...came to see us Mr. Rozakis, because in one to two years you'd either be dead or in the heart/lung transplant center". At least that's how I heard it. That was before PTE 495, when I was known as Ha
Support Group: Blog (Jim Baker Benefit)
...Baker who suffers from Pulmonary Hypertension a rare lung disease and is in need of a double lung transplant. Pasta Dinner & Beer 7-10pm Live Music: Hobo Jungle (60’s- Today) Silent Auction, 5
Support Group: Blog (Ray Westphall passed away on March 16, 2013)
...He was always so brave and never, complained about what he was going though. He battled PH, lung transplant and cancer. Ray was a true "Marine". His visitation will be on Sunday 3 to 5pm at Transfi
Support Group: Blog (Update - Liz Brigham)
...to be going good so far. We will continue to send prayers to her and her husband Barry. Before the transplant took place, She did email me and told me she has her healing shawl with her at the hosp
Support Group: Event Calendar (Heart: Function vs Emotion)
...(101 6th Street, Pittsburgh, PA 15222-3305). An emotional account via ballet of what heart transplant patients and pulmonary hypertension patient endure -- how they stuggle, how they survive. Ti
Support Group: Event Calendar (Santa Barbara Pulmonary Hypertension Support Group)
...authors will share about their books and their experiences. One is an ex PHer-ten year lung transplant survivor!!! Also a restered dietician will share about low sodium diet, fluids and portion co
International News and Projects (PH patient in South Africa: "I'm being given a second chance at life")
...and healthy life, Tina has only a single mission - to remain strong enough to undergo a heart-lung transplant. Tina hopes by sharing her story to increase awareness surrounding organ donation in So
International News and Projects (Pucker Up to Raise Pulmonary Hypertension Awareness)
...from the incurable lung condition pulmonary hypertension (PH) and may soon need a heart and lung transplant. Now she is urging people across Oxfordshire to join an estimated 40,000 others around th
International News and Projects (Puppy Love for Natalie)
... Description (Chorley Guardian) - Man’s best friend is helping a mum recover from a double lung transplant and life-threatening pneumonia. Natalie Kerr, 30, from Adlington, was diagnosed with pulm
International News and Projects (Slovakian PH Film Wins Awards)
...originally released in three parts, follows Daniel and his family before and after his lung transplant. The movie was presented in the international movie competition CIMES in Baden-Baden in 2013 a
SLC Education Committee Members
...University School of Medicine  Boston, Mass. Sonja Bartolome , MD Director of Liver Transplant Critical Care Associate Professor, Internal Medicine UT Southwestern Medical Center Dallas, Te
BBTest Event Page (Heart: Function vs Emotion)
...(101 6th Street, Pittsburgh, PA 15222-3305). An emotional account via ballet of what heart transplant patients and pulmonary hypertension patient endure -- how they stuggle, how they survive. Ti
BBTest Event Page (Santa Barbara Pulmonary Hypertension Support Group)
...authors will share about their books and their experiences. One is an ex PHer-ten year lung transplant survivor!!! Also a restered dietician will share about low sodium diet, fluids and portion co
International Faces of PH - Jas Kalra
...available to them. Of the seven who had seen PPH cases earlier (including a US based heart/lung transplant surgeon), only five were thoroughly aware of the mainstream allopathic medications availab
PH Research Roundup August 2011
...[image: PH Research Roundup August 2011] Welcome to Research Roundup [image: researcher in lab] Welcome to PH Research Roundup, a resource for members of PH Clinicians and Researc
PHA Support Group Event Calendar - Ohio (OH - Cleveland Area)
...Associate Professor of Medicine, Case Western Reserve University, Medical Director of the Lung Transplant & Pulmonary Vascular Disease at the University Hospital of Cleveland  There is Free Parkin
PHA Support Group Event Calendar - Texas (TX - Austin)
...Care Consultants of Austin, Doctor Ernest A. Hausslein from the Seton Heart Specialty Care and Transplant Center and Chrisopher D. Spradley, of the Scott and White Memorial Hospital will be our gue
PHA Support Group Event Calendar - Texas (TX - Houston)
...Meeting Room 2.4 Speaker: Anju Rajaraman, MS, RD, LD, CNSC Dietician, JC Walter Transplant Center, Houston Medical Center       Please park in the rear (free parking) and enter th
PHA Support Group Event Calendar - Texas (TX - Houston)
... SubTitle Amit Parulekar, MD Details Amit Parulekar, MD Transplant Program, Baylor St. Luke's Medical Center Saturday, July 18, 11 am. - 1 p. m. Kelsey Seybold Clinic - Meeting Room 2.4
PHA Support Group Event Calendar - Southern California (CA - Newport Beach)
...or CA-NewportBeach@PHASupportGroups.org CategoryName SubTitle Journey with PH &amp; Transplant Details Speaker:  Judi Sepulveda   Saturday, October 19, 1 - 3 pm.   3333 West Coast Hwy, Su
PHA Support Group Event Calendar - Southern California (CA - San Diego)
...julieyourrealtor@gmail.com CategoryName SubTitle Everything You Wanted to Know About Lung Transplantation Details Everything You Wanted to Know About Lung Transplantation Tim Fernandes, MD
PHA Support Group Event Calendar - New York - NYC (NY - Grupo Hispano)
...Pulmonar para pacientes y familiars Por: Howard Castillo MSN, RN, APN, ACNP-BC, CCRN Lung Transplant and Pulmonary Hypertension Coordinator Patrocinando por Sus Amigos de UT Por Favor Confirme
PHA Support Group Event Calendar - Colorado (CO - Rocky Mountain Wheezers (Colorado Springs))
...Donor Alliance Tae Stamper from Donor Alliance will educate us about the criteria to qualify for transplantation as well as donor and transplant statistics. The First Lutheran Church of Colorado
PHA Support Group Event Calendar - Florida (FL - Orlando)
... Location Florida Hospital Transplant Center 6th Floor 2415 North Orange Ave., Suite 700 Orlando, FL Fees none ContactInfo Tina: 407-914-9798 Jackie: 407-774-2707 Karen: 407-721-0018 Cate
PHA Support Group Event Calendar - Florida (FL - Orlando)
...Speaker:  Sandy Ford, RN - Florida Hospital   Thursday, April 25, 6:30 pm.   Florida Hospital Transplant Center 2415 N. Orange Avenue, Suite 700, Orlando, FL [Free parking:  McRae Parking Gar
PHA Support Group Event Calendar - Florida (FL - Orlando)
... Location Florida Hospital Transplant Center 2415 N. Orange Avenue, Suite 700, Orlando, FL Fees ContactInfo Jackie Woosley, 407-774-2707; Jane Northrup, 321-245-8435; Jennifer Klick, 321-303-3
PHA Support Group Event Calendar - Florida (FL - Orlando)
... Location Florida Hospital Transplant Center Suite 600 - on the 6th Floor 2415 N. Orange Avenue Orlando, FL Fees Free ContactInfo Jackie Woosley 321-279-6380, Jane Northrop, 321-245-8435
PHA Support Group Event Calendar - Hawaii (Hawaii)
... SubTitle Meeting Updates Details Meeting Updates New leadership & welcome member post-transplant! Saturday, Sep. 26, 11 am. - 1 pm. Paesano Ristorante Italiano 98-1277 Kaahumanu Street, Al
PHA Support Group Event Calendar - Vermont (VA - Southwest)
...PH Details Speaker:  Oksana A. Shlobin, MD. Assistant Director of Advanced Lung Disease & Transplant Program, Inova Heart & Lung Institute  Saturday, Dec. 8, 11:00 am. - 3:00 pm.  The Hote
PHA/NHLBI Awardee - Stephen Mathai
...pulmonary arterial hypertension associated with the scleroderma spectrum of diseases. J Heart Lung Transplant 2005; 24(10):1626-31. 2 Fisher MR, Mathai SC , Champion HC, Girgis RE, Housten-Harris
PH Email Mentor - Caregiver - Don
...Nunn] Don PH Caregiver from 2006-2009 "My wife Kathy was diagnosed in 2006. She was a Lung Transplant Listee in 2008. She died waiting for this in September of 2009. She was fetured in Pathli
University of Pennsylvania - PHA-Accredited Center of Comprehensive Care
...Coagulation Service * Congenital Heart Disease * Dietary/Nutrition Services * Lung Transplant * Palliative Care * Pulmonary or Cardiac Rehabilitation * Pulmonary Thromboendarterectomy (
PHA Accredits First Six PH Care Centers
...medical therapies, long-term outcomes are not optimal as many patients do not survive PH, require transplantation or hospitalization.  "The PHCC will give PH patients security in knowing they are
University of Cincinnati - PHA-Accredited Center of Comprehensive Care
...via Anticoagulation Clinic * Congenital Heart Disease * Dietary/Nutrition Services * Lung Transplant established referral * On-call Pulmonary/Cardiology Service (24/7 Availability) * Pall
PH Email Mentor - Caregiver - PamA
...online communities (PHA email groups, message boards, chats) * caring for a child with PH * transplant * bereavement Contact Pam: 
Advisory Boards
...suPer Heroes (Long-Term Survivor) Advisory Board * Support Group Leaders Advisory Board * Transplant Advisory Board
PHA Proof of Concept Winner Marc de Perrot, MD
...M , Pierre AF, Waddell TK, Keshavjee S. Normothermic Ex vivo Lung Perfusion in Clinical Lung Transplantation. N Engl J Med 2011 Apr 14;364(15):1431-40. 2 de Perrot M , McRae K, Shargall Y, Thenga
Weill Cornell-New York Presbyterian - PHA-Accredited Center of Comprehensive Care
...Central Line Placement and Repair * Congenital Heart Disease * Dietary/Nutrition * Lung Transplant Program * On-Call Pulmonary/Cardiology Service (24/7) * Palliative Care * Pulmonary/Ca
Mayo Clinic - PHA-Accredited Center of Comprehensive Care - Director
...Certifications * Internal Medicine * Cardiology * Advanced Heart Failure & Transplant ________________________________________ Education 1980 BA Biochemistry, HarvardUniversity,
University of Texas Southwestern - PHA-Accredited Center of Comprehensive Care
...Texas Southwestern (UTSW) was created in October 2000 after splitting off from the Heart and Lung Transplantation Programs.TheUTSWPH programis located within a tertiary academic teaching facility,
UCSF - PHA-Accredited Center of Comprehensive Care - Coordinator
...San Francisco, CA Cardiology Specialty Clinic: Pulmonary Hypertension, Heart Failure, and Heart Transplant ________________________________________ Awards & Honors 1996 Dean's List, San
UC Davis Health System - Director
...California, Davis, Sacramento, CA 2000-Present Medical Director, Advanced Lung Disease/Lung Transplant Program, UC Davis Medial Group, Sacramento, CA _______________________________________
Our Journeys - Anita Gonzales
...got much better, but I didn’t get worse. It was then that we decided to try to get on the lung transplant list. I was placed on the list on Dec. 7, 2011. Then I put it out of my mind. I never pray
Our Journeys - Dr. Murali Chakinala
...in PH? I became acquainted with PH in the late 1990s, during my training to become a lung transplant physician at Washington University. At the time, only epoprostenol (FlolanTM) was approved, a
PHCC Accredited - University of Wisconsin Hospital and Clinics
...Coagulation Service * Congenital Heart Disease * Dietary/Nutrition Services * Lung Transplant * On-call Pulmonary/Cardiology Service (24/7 Availability) * Palliative Care * Pulmonary or
Support Group: Blog (CLINICAL TRIALS MEETING 4-9-2016)
... Description We had a great turnout for our meeting. Dr. Eric Fenstad of the Mpls. Heart Clinic gave a detailed explanation of how the clinical trials process works. Notes from our member Lori Sun
Working with PH - PH, Professionalism and the Digital Age
...PH, Professionalism and the Digital Age [image: Colleen Brunetti]Colleen Brunetti When I was first diagnosed with PH, I was teaching part-time in a public school. I was met with sympathy and prom
PH Care Centers - Get Involved
...Get Involved with PH Care Centers [image: PHCC Governance Structure 2]PHCC Governance Structure The PHCC Initiative will be seeking applications for the two committees charged with site revie
A Mother's Journey Spans Continents
...a blockage in the ducts that carry bile from the liver to the gall bladder. He underwent a liver transplant to reverse the damage when he was 6 months old. [image: Medical professional] Then, a
PH Roundup 2014 Dec
... Roundup Spotlight... Largest Study of Survival in Scleroderma Patients following Lung Transplantation Released "There were 3,763 adults transplanted during the study period who met the study
PHA Proof of Concept Winner Frances S. de Man
...cardiac tissue of PAH-patients. In addition, cardiac tissue can only be obtained during heart-lung transplantation or autopsy, which is end-stage disease. Ideally, RV tissue should be obtained mult
PH Roundup 2015 March
...PHA News Recently Released Studies   Modified technique using novalung as bridge to transplant in pulmonary hypertension. <http://www.ncbi.nlm.nih.gov/pubmed/?term=25639425> Patil NP
Support Group: Blog (Anna Lawler passing)
...of the first persons I called once I was fairly coherent again was Ann.  Both before and after my transplant Ann was nothing but full of information and suggestions on how to approach this 2nd chan
Support Group: Blog (April 14, 2012 General meeting / PHA video presentation)
...she has now. She fought a good fight and her strength got her though the heart and double lung transplant. Thank you Cindy for sharing your story with our group and we are still keeping up the pray
Support Group: Blog (Cindy is coming home to Minnesota!)
...to Minnesota after a4 months stay in California where she received a new heart and double lung transplant at Stanford Univ. Hospital&#160;and after suffering from Pulmonary Hypertension for around
Support Group: Blog (Cindy is released from Stanford Hospital)
... Description Cindy has undergone her heart &amp; double lung transplant and is progressing very well. Yesterday, December 12 Monday Cindy was released&#160; from Stanford&#160;Hospital and she&#16
Support Group: Blog (Cindy's update)
...you know that Cindy Wangerud is steadly improving after she received her new heart and double lung transplant in California. She continues to keep us informed on her caring bridge site, but for all
Support Group: Blog (CONNECTIVE TISSUE DISEASE AND PH)
...as to how nutrition affects people with different diseases. I met Nickie when I had my liver transplant. She was my nutritionist at that time and I found her to be extremely professional in her app
Support Group: Blog (NOTICE: Washington DC Patient PHorum October 1, 2013)
...important role that caregivers play. Panelists: -Steven Nathan, MD, Advanced Lung Disease and Transplant Program at INOVA Fairfax Hospital -Traci Houston, RN, MSN, Pulmonary Hypertension Progr
Support Group: Blog (PH AND SURGERY)
...and interventional cardiology. He is currently senior attending cardiologist on the heart failure, transplantation and mechanical circulatory assistance service. He is a professor of cardiovascular
Support Group: Blog (Sad news)
...ago to tell me that she passed this morning. Anne was a very strong lady, she lived with a liver transplant for 21 years and also dealing with PH. She gave hope to so many and we always enjoyed her
Support Group: Blog (September Meeting)
...to PH patients will be _ No denial of pre-existing conditions, no life time caps which means the transplant expenses will be covered. The childen stay under parental coverage till age 26. Insurance
Support Group: Event Calendar (PHorum Dinner)
...Hypertension Center UT Southwestern &#160; JJ. Piper RN, BSN Director Heart Failure Transplant and PH Program Methodist Healthcare San Antonio Texas &#160; Featured Speaker &#8
Support Group: Event Calendar (Support Group Meeting)
...Room Speaker:Sean M. Studer, MD, MSC, FCCP Chief, Pulmonary and Critical Care Director, Lung Transplant, Pulmonary Hypertension & Advanced Lung Disease Newark Beth Israel Medical Center To
Resources for PH Patients
...clinical trials, emergency response, medication safety, supplemental oxygen, air travel and transplant. View links Related Health Organizations Explore related disease organizations for more in
Stem Cell Therapy and PH Alert
...another person are called &#8220;allogeneic&#8221; and these are susceptible to rejection when transplanted into a different individual (just like an organ transplantation). * Embryonic stem cell
Treatment Options for PH
...the vein) and subcutaneous (into the skin) options. Depending on the severity of PH, heart or lung transplant may also be an option. Remember that each patient is different. It is essential that
How Patients and Families Can Participate in Research
...ways to aid PH research Donate lung tissue specimens If you are scheduled for a lung transplant, you can request that your lungs be donated for medical research purposes. Plan for organ donation
Exercise and PH
...[image: Two children racing for PH]EXERCISE AND PH It’s well-known that exercise is very beneficial for healthy individuals, increasing cardiovascular and muscular fitness, improving mood, control
BBTest Event Page (PHorum Dinner)
...Hypertension Center UT Southwestern &#160; JJ. Piper RN, BSN Director Heart Failure Transplant and PH Program Methodist Healthcare San Antonio Texas &#160; Featured Speaker &#8
BBTest Event Page (Support Group Meeting)
...Room Speaker:Sean M. Studer, MD, MSC, FCCP Chief, Pulmonary and Critical Care Director, Lung Transplant, Pulmonary Hypertension & Advanced Lung Disease Newark Beth Israel Medical Center To
PHA Board of Trustees - Diane Ramirez
...When she was first diagnosed there were no treatments available; the only option was a heart-lung transplant. Instead of giving up hope, Diane made a decision to raise awareness of PH by talking to
Questions to Ask Your PH Doctor
...conduct clinical trials on PH medications? * Have you referred patients for lung or heart/lung transplant ? * Have you referred patients for pulmonary thromboendarterectomy? * Does the hospit
PHA/Pfizer Proof of Concept Research Grant Winner Ferhaan Ahmad, MD, PhD
...from lungs removed from patients with PAH at the time they are undergoing lung or heart-lung transplant operations. Curriculum Vitae NAME: Ferhaan Ahmad, MD, PhD POSITION TITLE: Assistant Profes
PHA Support Group Event Calendar - Pennsylvania (PA - Pittsburgh)
...by the Pittsburgh Magazine. In 2003, he received the “Most Outstanding Physician” award from the Transplant Recipients International Organization (TRIO). In 2004, he was honored as one of the “Best
PHA Support Group Event Calendar - Georgia (GA - Greater Atlanta (Marietta))
...residency. He subsequently completed his training in Cardiovascular Disease and Heart Failure and Transplant Cardiology at Johns Hopkins where he stayed on as an Assistant Professor of Medicine. He
Patient-to-Patient Support Line Profile - Marcia Beverly
...did not give her a right heart catheter. He did not tell her about any treatments and told her transplant was the only option for people with PH. I was able to get her to find a doctor who has had
Stem Cell Therapy and PH Alert
...another person are called &#8220;allogeneic&#8221; and these are susceptible to rejection when transplanted into a different individual (just like an organ transplantation). * Embryonic stem cell
Read Brandi Stickney's Story
...on Tracleer, I no longer needed the oxygen. I was sent to Stanford in December 2003 for heart/lung transplant evaluation. I was told I needed to come back in March to be evaluated for any congenita
Read Violet Ladd's Story
...I was put on Flolan and was told that the next and only other thing would be a heart and lung transplant. I have a great family support team and great doctors. After 4 years I was taken off of oxyg
Lantos Awards 2013 Profile - Haley Ann Lynn
...successful treatment. Im still here because of research and medication instead of a heart and lung transplant. We need a cure. Im not asking for your money, Im asking for your awareness. Pulmonary
Inova Fairfax Hospital - PHA-Accredited Center of Comprehensive Care - Center Directors
...and Critical Care, Cedars-Sinai Medical Center, Los Angeles, CA 1991-1992 Fellow, Lung Transplantation, Cedars-Sinai Medical Center, Los Angeles, CA ________________________________________
Cottage Health System - PHA-Accredited Center of Comprehensive Care
...and interventional radiology. The Cottage PH Program has an established referral pattern for lung transplantation and pulmonary thromboendarterectomy (PTE). _____________________________________
Columbia-New York Presbyterian - PHA-Accredited Center of Comprehensive Care
...Central Line Placement and Repair * Congenital Heart Disease * Dietary/Nutrition * Lung Transplant Program * On-Call Pulmonary/Cardiology Service (24/7) * Palliative Care * Pulmonary/Ca
Virginia Commonwealth University - PHA-Accredited Center of Comprehensive Care
...Central Line Placement and Repair * Congenital Heart Disease * Dietary/Nutrition * Lung Transplant Program * On-Call Pulmonary/Cardiology Service (24/7) * Palliative Care * Pulmonary/Ca
Rhode Island Hospital - PHA-Accredited Center of Comprehensive Care
...Central Line Placement and Repair * Congenital Heart Disease * Dietary/Nutrition * Lung Transplant Program Referral * On-Call Pulmonary/Cardiology Service (24/7) * Palliative Care * Pul
University of Michigan - PHA-Accredited Center of Comprehensive Care
...Central Line Placement and Repair * Congenital Heart Disease * Dietary/Nutrition * Lung Transplant Program * On-Call Pulmonary/Cardiology Service (24/7) * Palliative Care * Pulmonary/Ca
University of Colorado Denver - PHA-Accredited Center of Comprehensive Care
...Central Line Placement and Repair * Congenital Heart Disease * Dietary/Nutrition * Lung Transplant Program * On-Call Pulmonary/Cardiology Service (24/7) * Palliative Care * Pulmonary/Ca
St. Joseph's Hospital and Medical Center - PHA-Accredited Center of Comprehensive Care
...Central Line Placement and Repair * Congenital Heart Disease * Dietary/Nutrition * Lung Transplant Program * On-Call Pulmonary/Cardiology Service (24/7) * Palliative Care * Pulmonary/Ca
Diagnosis Stories - Suhrut
...The Difference an Early Diagnosis Makes Family story Suhrut Story by Amrutha Valli Kavi, Suhrut’s mother [image: Suhrut with Sally Jung, nurse at PICU Texas Childrens]Suhrut with Sally Jung,
Johns Hopkins University - PHA-Accredited Center of Comprehensive Care
...lung disease, primarily those with pulmonary hypertension and those who have undergone lung transplantation. On each of the floors admitting patients from the JHPHP, nurses and pharmacists have bee
UCSF - PHA-Accredited Center of Comprehensive Care
...Director of Advanced Heart Failure and Pulmonary Hypertension, and Medical Director of Heart Transplantation. With the advent of the approval of epoprostenol, the referral base from the community g
The University of Kansas Hospital - PHA-Accredited Center of Comprehensive Care
...all services required for the diagnosis and management of PH patients with the exception of lung transplantation.The University of Kansas Hospital currently has three designated units, one general
University of North Carolina at Chapel Hill - PHA-Accredited Center of Comprehensive Care
...Coagulation Service * Congenital Heart Disease * Dietary/Nutrition Services * Lung Transplant Referral * On-call Pulmonary/Cardiology Service (24/7 Availability) * Palliative Care * Pul
Columbia University-New York Presbyterian - PHA-Accredited Center of Comprehensive Care
...Central Line Placement and Repair * Congenital Heart Disease * Dietary/Nutrition * Lung Transplant Program * On-Call Pulmonary/Cardiology Service (24/7) * Palliative Care * Pulmonary/Ca
UCSF Benioff Children's Hospital - PHA-Accredited Center of Comprehensive Care
...Congenital Heart Disease * Dietary/Nutrition Services * Exercise Physiology * Lung Transplant * On-call Pulmonary/Cardiology/Pediatric Critical Care/NeonatologyService (24/7 Availability)
Children's Hospital Colorado
...Central Line Placement and Repair * Congenital Heart Disease * Dietary/Nutrition * Lung Transplant Program * Neonatal/Pediatric Critical Care Services * On-Call Pulmonary/Cardiology Servi
University Medical Center New Orleans
...Central Line Placement and Repair * Congenital Heart Disease * Dietary/Nutrition * Lung Transplant Referral Program * On-Call Pulmonary/Cardiology Service (24/7) * Palliative Care * Pul
Allegheny General Hospital
...rheumatology, congenital heart disease, cardiac anesthesia, palliative care, cardiac and liver transplantation programs and a PTE service, including pulmonary angioplasty. There is also a well-deve
Allegheny General Hospital - Director
...Certifications * Internal Medicine * Cardiovascular Disease * Advanced Heart Failure and Transplantation ________________________________________ Education 1985 BA Psychology, Emo
Orlando Health Heart Institute
...Coagulation Service * Congenital Heart Disease * Dietary/Nutrition Services * Lung Transplant Referral Program * On-call Pulmonary/Cardiology Service (24/7 Availability) * Palliative Care
Yale University School of Medicine
...Coagulation Service * Congenital Heart Disease * Dietary/Nutrition Services * Lung Transplant Referral Services * On-call Pulmonary/Cardiology Service (24/7 Availability) * Palliative Car
Vanderbilt Medical Center
...Central Line Placement/Repair * Congenital Heart Disease * Dietary/Nutrition Services * Lung Transplant Services * On-call Pulmonary/Cardiology Service (24/7 Availability) * Palliative Ca
Aurora St. Luke's Medical Center
...Congenital Heart Disease * Dietary/Nutrition Services * Financial Counselor * Lung Transplant Referral Services * On-call Pulmonary/Cardiology Service (24/7 Availability) * Palliative Car
Our Journeys - Brandi Stickney
...on Tracleer, I no longer needed the oxygen. I was sent to Stanford in December 2003 for heart/lung transplant evaluation. I was told I needed to come back in March to be evaluated for any congenita
Our Journeys - Suhrut
...The Difference an Early Diagnosis Makes Family story Suhrut Story by Amrutha Valli Kavi, Suhrut’s mother [image: Suhrut with Sally Jung, nurse at PICU Texas Childrens]Suhrut with Sally Jung,
PHCC Accredited - University of Pittsburgh Medical Center
...Coagulation Service * Congenital Heart Disease * Dietary/Nutrition Services * Lung Transplant Services * On-call Pulmonary/Cardiology Service (24/7 Availability) * Palliative Care * Pul
PHCC Accredited - University of Rochester
...Coagulation Service * Congenital Heart Disease * Dietary/Nutrition Services * Lung Transplant Referral Program * On-call Pulmonary/Cardiology Service (24/7 Availability) * Palliative Care
Fran Rogers
...has been working exclusively in PH for the last eight years. Fran has past experience as a heart transplant nurse practitioner as well as a VAD coordinator. Fran served as vice chair of PHA's PH Pr
PH Pulse 2016 Summer
...[image: PHPN PH Pulse] Renew Membership MENTOR PROGRAM EMAIL GROUP <https://phassociation.mobilize.io/> PRACTICE Tools WELLNESS Resources Welcome the new PH Pulse As you browse thro
Ask a PH Specialist - General Anesthesia
...that is done in an emergency situation, aortic or other major blood vessel surgery, and liver transplantation. Clinical features that predict a low risk include good functional status, in that the
Patient Insurance Victory - Kathy Morton
...Insurance Victories A Prepared Army Wins the Insurance Battle Fall 2011 By: Kathy Morton PH Patient [image: Kathy Morton]Kathy Morton I was diagnosed with PAH during the spring of 2005. I a
Targeted Pediatric Research in PH Needed
...WHY Pediatric PH Research is Needed [image: Dr. Ivy (far right) treats a young PH patient]Dr. Ivy (far right) treats a young PH patient “It is believed that in the United States, pulmonary ar
Early Diagnosis Campaign Media Coverage
...Media Coverage The Non-Specific Symptoms of a PH Patient Can Lead to Extended Diagnosis Times <http://respiratory-care-sleep-medicine.advanceweb.com/Features/Articles/Pulmonary-Hypertension-3.aspx
Press Release: Oct. 3, 2013
...FOR IMMEDIATE RELEASE Contact: Christina Relacion, Communications Manager, Scleroderma Foundation (800) 722-4673, Ext. 243 CRelacion@Scleroderma.org <mailto:CRelacion@Scleroderma.org> Katherin
Get to know your PH Healthcare team
...Get to know your PH Healthcare team When you are diagnosed with pulmonary hypertension, you may have an expanding group of professionals on your healthcare team. From doctors to dieticians, the li
Support Group: Blog (Rochester "Reach for the Stars" Gala)
...awareness signed by Governor Mark Dayton and Cindy told her PH story and about her successful transplant. Cindy presented me with the proclamation and it was very emotional. I was very touched and
Support Group: Blog (Thank you to all that signed up to help with Twin Cities support group meetings!)
...to hear them! Because of Larry Fox has to spend more time on his health in wait for his liver transplant...it is time to ask for extra help.  I hate to say it, but I have turned 70 today and old a
Social Security Disability Information
...7 years Most PH patients should expect review every 3 to 7 years. An exception is if you had a transplant before your disability claim was approved; your claim will likely be reviewed about a ye
PHA Source - January 2011
...[image: Pulmonary Hypertension Association, Empowered by hope] [image: PHA Source, An insider's look at PHA] Volume 5, Number 2 April 2011 PHA Source was created expressly for
Donor Story - Carl Hicks
...in 2004 and later became its Chair. Eventually Meaghan’s PH did progress and despite a heart/lung transplant she passed away in 2009. Carl, an army veteran, describes her as “the strongest person
Donor Story - Torres Gonzalez Family
...rare incurable disease “Biliary Atresia,” a form of liver cirrhosis in infants. Daniel had a liver transplant when he was six months old at the Children’s Hospital of Philadelphia. “After Daniel’s
PHA/NHLBI K08/K23 Award Winner Edda Spiekerkoetter, MD
...Respiratory and Critical Care Medicine. Director: Prof. Dr. med. H. Fabel Including: 1 year: Lung transplant fellow 1/2 year: Pulmonary Hypertension fellow (outpatients, right-heart catheterizati
Press Release 2014 July 8 Dr. Murali Chakinala
...Chakinala first became acquainted with PH in the late 1990s, during his training to become a lung transplant physician at Washington University. He is a member of PHA's Scientific Leadership Counci
PHA Goes on the Road to Houston
...Hospital Houston, Texas Kimberly Winters, RN, BBA University Health System / University Transplant Center San Antonio, Texas        
Our Journeys - Alyssa Johnson
...Dr. that they had done everything they could do for her. Her best chance of survival was a lung transplant. We were taken by medical jet from Omaha, Nebraska to Houston, Texas to start the process.
Our Journeys - Michael Rivera
...treatments immediately, but I told her I was going to wait tell she was stable and placed on the transplant list. I needed to be sure that Delia was going to be ok well before I did my treatments.
PHA-AHA Fellowship Award Winner Todd Bull, MD
...PHA/AHA Post Doctoral Fellowship Award Winner 2001 Return to List of all PHA/AHA Award Winners <target=&pid=1298&did=0&tab=0> [image: Todd Bull, MD ]Todd Bull, MD University of Colorado, Den
PHA/ATS Award Winner Todd Bull, MD
...PHA/ATS Partnership Grant Winner 2006 Return to List of all PHA/ATS Award Winners <target=&pid=1297&did=0&tab=0> [image: Todd Bull, MD]Todd Bull, MD University of Colorado “The role of Kapo
PH Care Centers Frequently Asked Questions for Medical Professionals
...Frequently Asked Questions * About the PHCC Initiative * Types of PH Care Centers * Application Process * Cost of Accreditation About the PHCC Initiative What is the PHA-Accredited PH C
PH Care Centers - Center Criteria
.../ Nutritional service‡ Dietary / Nutritional services‡ Cardiac Anesthesia† Pulmonary transplant service or referral process† Congenital heart disease consultant or referral proces
Associated diseases - Lupus
...PH and Lupus Print PH and Lupus brochure (PDF) Order Copies of the PH and Lupus Brochure * What do I need to know about lupus-associated PH? * Why do PH and lupus seem to occasionally
PH Roundup 2014 April
...2014 Submission Deadline: May 23, 2014   New!   NIAID Division of Allergy, Immunology and Transplantation: Statistical and Clinical Coordinating Center (UM2) <http://grants.nih.gov/grants/gui
Treatment - Macitentan
...medical therapy for PAH. The need for infused PAH therapy, hospitalization for PAH, lung transplantation and death were all indicators of disease progression. The research study showing the effecti
PH Roundup 2014 August
...MD, MS Project title: Clinical and Biomarker Risk Evaluation of Pulmonary Hypertension in Lung Transplantation R. Blair Dodson, PhD Assistant Research Professor University of Colorado Devner
PH Care Centers Medical Professionals Pediatric Criteria
...service‡ Pediatric Anesthesia with extensive PH experience† Pulmonary/Cardiac transplant service or referral process† Congenital heart disease specialist† Congenital heart
Pulmonary Thromboendarterectomy Surgery
...Pulmonary Thromboendarterectomy I have CTEPH (chronic thromboembolic pulmonary hypertension) and have been told I may benefit from a pulmonary thromboendarterectomy. What is this? A pulmonary
Research - PHA/NHLBI K08/K23 2013 Winner Bradley Maron, MD
...PHA/NHLBI K08/K23 Award Winner 2013 Return to List of all PHA-NHLBI Award Winners [image: Bradley Maron MD] Bradley A. Maron, MD Assistant Professor of Medicine Division of Cardiovascular
Diuretics in PAH
...Diuretics in PAH A Closer Look Megan M. Clarke, PharmD, BCPS Clinical Pharmacy Specialist Allegheny General Hospital Pittsburgh, Pennsylvania Traci Stewart, RN, MSN, CHFN Nurse Clinician
PHPN - PH Pulse Articles: PH Care Centers Initiative
...PH Care Centers Initiative A Report from the Trenches Glenna Traiger, RN, MSN, CNS-BC PH CNS David Geffen School of Medicine at UCLA Chris Archer-Chicko, MSN, CRNP-BC Nurse Coordinator, Pulmo
Research Fellowship Award Winner Ankit Desai
...S, Mirza O, Desai AA , and Farzaneh-Far A. Regression of Cardiac Amyloidosis following Stem Cell Transplantation assessed by Cardiovascular Magnetic Resonance Imaging. In press. Circulation. 2014 J
PH Roundup 2015 August
...August 2015 In This Issue FDA Issues Drug Safety Communication on Proglycem (diazoxide) Recently Released Studies Funding Opportu
Soumya Thomas
...Phenomenal Lives Soumya Thomas, PH Patient [image: Soumya Thomas] My PAH journey began in 2007. A friend noticed that I was out of breath while I was on the phone with her. Id always been very h
Support Group: Blog (February 8, 2014 Honoring our caregivers!)
...for some more. Extra help is always welcome. Our co- leader Larry Fox has been put on the liver transplant list, so he needs to focus on his health and needs at this time. With all the extra help,
Support Group: Blog (Two Updates....Rochester Gala......Cindy Wangerud)
...close to Stanford hospital. She met with a PH doctor who will manage her PH until she receives a transplant. Please keep up sending the prayers to her, she still has a long road to go and she needs
Support Group: Event Calendar (6th Annual N. TX Cure PH 5K Run & PHun Walk)
...continuous IV medications all geared toward sustaining a patient's life until a lung and/or heart transplant can be performed. Name 6th Annual N. TX Cure PH 5K Run &amp; PHun Walk
Support Group: Event Calendar (6th Annual North Texas Cure PH 5K Run & PHus Walk)
...continuous IV medications all geared toward sustaining a patient's life until a lung and/or heart transplant can be performed. Name 6th Annual North Texas Cure PH 5K Run &amp; PHus Walk
International News and Projects (Canada Comes Together: Uniting the PH Community from Coast to Coast)
...of the PH community followed by a presentation by the speaker, Mark Black, a heart and double-lung transplant recipient turned fourtime marathon runner, best-selling author, life coach and motivati
BBTest Event Page (6th Annual N. TX Cure PH 5K Run & PHun Walk)
...continuous IV medications all geared toward sustaining a patient's life until a lung and/or heart transplant can be performed. Name 6th Annual N. TX Cure PH 5K Run &amp; PHun Walk
BBTest Event Page (6th Annual North Texas Cure PH 5K Run & PHus Walk)
...continuous IV medications all geared toward sustaining a patient's life until a lung and/or heart transplant can be performed. Name 6th Annual North Texas Cure PH 5K Run &amp; PHus Walk
Pulmonary Hypertension Acronym Decoder
...anti- inflammatory drugs OB obliterative bronchiolitis, chronic rejection of a lung after transplantation O2 oxygen O2 Sats oxygen saturation (percentage of oxygen in the blood) PA
Ask a PH Specialist - What is Palliative Care?
...when there is a change in your health status, when PH therapies are not tolerated or when lung transplant is not an option. The misconception that hospice and palliative care are only available whe
For Your Patients
...groups are available for young adults, patients with associated diseases, patients considering transplant, caregivers and parents. * The Patient-to-Patient Support Line (800-748-7274) is a toll-f
The PHA Support Group "Scoop" Fall 2011
...at support group meetings. * The Southwest Virginia group brought Dr. Steven Nathan to discuss transplant and PH. * The Tri-State PH group in Cincinnati brought Peter Engel, MD, FACC, to disc
PH Roundup September 2012
...September 2012           September 2012       Roundup Spotlight... Discover the Newly Revamped PHA Online University PHA Online University ( www.PHAOnlineUniv.org <ht
PH Roundup October 2012
...October 2012           October 2012       Roundup Spotlight... PHA's SLC Releases Consensus Statement on Revatio® (sildenafil) for Pediatric Use PHA's SLC has released
PH Roundup 2012 December
...France April 24-27, 2013 International Society for Heart and Lung Transplantation 33rd Annual Meeting and Scientific Sessions <http://ishlt.org/meetings/annualMeeting.asp> Montréal, Canada  
Diagnosis Stories - Jacky Kelly
...they inserted by right heart catheter, because after that the doctor told me that a pulmonary transplant was my only option. But I have to say up to this day I am only on Lasix®. Here on the is
Research - PHA Proof of Concept Winner Jiwang Chen
...PHA Proof of Concept Research Grant Winner 2013 [image: Jiwang Chen] Jiwang Chen, PhD Return to List of all PHA Proof of Concept Grant Winners Division of Pulmonary, Critical Care, Alle
Pacing Parson Passes 1,000-Mile Mark
...a teenager with PH for whom he raised money is now recovering from a lifesaving heart and lung transplant. PH is incurable and life threatening, as it can lead to failure of the right side of the
Press Release 2015 July 10
...a teenager with PH for whom he raised money is now recovering from a lifesaving heart and lung transplant. PH is incurable and life threatening, as it can lead to failure of the right side of the
Press Release 2015 Oct. 2, 2015
...At the time, with no treatments and little hope for survival beyond perhaps a heart and lung transplant, doctors gave her less than two years to live. Because the symptoms of PH, which include s
Our Journeys - Jacky Kelly
...they inserted by right heart catheter, because after that the doctor told me that a pulmonary transplant was my only option. But I have to say up to this day I am only on Lasix®. Here on the is
Shannon Munson
...the last thing they put a person on when their condition is so severe. In some cases a lung transplant is the last option. I had to mix my medication from scratch every day as it only had a shelf l
Support Group: Blog (Scleroderma Doctors in the USA and aboard)
...Thomas Medsger, Jr Division of Rheumatology and clinical Immunology Stem Cell transplant clinical Study UPMC Pittsburgh, PA Phone: 412-383 8000 Chester V Oddis (anti-synthase syndrome doctor)
Camps for Chronically Ill Children
...Chestertown, Md. (especially for children who’ve received heart or lung transplant or are diagnosed with PH) * The Hole In The Wall Gang Camp <http://www.holeinthewallgang.org/Page.aspx?pid=471>,
Managing Caregiver Stress
...Managing Caregiver Stress ________________________________________ &#8220;He is not able to help as much with the kids as I would like. It stresses me out when they want something or they are
Your Prescription for Well-Being: Attend a Support Group
...the group had over the course of the year, from an improved six-minute walk to a successful lung transplant. The benefits of witnessing the triumphs of others cannot be downplayed. At diagnosis, no
Read Lucas Van Wormer's Story
...It’s just more difficult to spot in children. PH can only be cured through lung or heart-lung transplant (and survival rates aren’t high), but medications that relax the blood vessels can help keep
Read Nicolene Muller's Story
...Paul Williams, a Critical Care Specialist at Milpark Hospital, to be worked up for a possible lung transplant. When we arrived at the hospital, Dr. Williams told us that the South Australia Medical
PHA/ATS Fellow Career Development Winner Todd Kolb
...PHA/ATS Fellow Career Development in Pulmonary Arterial Hypertension Grant Winner 2012 Return to List of all PHA/ATS Fellow Career Development Winners [image: Todd Kolb, MD, PhD] Todd Kolb,
Press Release - Team PHenomenal Hope
...<http://www.teamphenomenalhope.org/>, a Pittsburgh, Pa.-based cycling team consisting of a lung-transplant physician and three other women, is competing in the high-endurance cycling event, Race Ac
Press Release
...with PH, and a 14-year-old Kent, Wash., PH patient who recently underwent a heart and lung transplant. In 2010, Stevenson walked 1,200 miles around the perimeter of Washington State to help raise m
Applying for Social Security Disability
...APPLYING FOR DISABILITY Applying for disability can seem like an intimidating process. Many people believe that the Social Security Administration (SSA) will turn you down a few times before you g
Staff
...Meet PHA’s Team PHA’s staff is a dedicated group of individuals ready to help you find answers to your questions. Look below for departments, job descriptions and contact information. You can also
Pulmonary Hypertension Treatment Ambrisentan (Letairis)
...can interact with cyclosporine, a medication given to patients who have had transplant surgery. When ambrisentan and cyclosporine are used together, the dose of ambrisentan should be limited to 5 m
Glossary of Pulmonary Hypertension Terms
...vessels, usually from an unknown toxic exposure, infection and in chronic rejection after lung transplantation. Back to top of page -C- Calcium channel blockers (CCBs): Blood pressure medi
Read Marla Akins' Story
...“Marla this is serious business, your life expectancy is three to five years and you need a lung transplant.” All I heard was that was it for me. I was a 37-year-old woman with a 6-year-old daught
Read Jayna Wall's Caregiver Story
...in to get the status of the procedure and after hearing it said that he thought a heart and lung transplant would pretty much be our only option. He did admit that they aren't experts in IPAH and s
PHA/NHLBI Awardee - Vinicio de Jesus Perez
...with left main coronary artery compression in pulmonary hypertension. Journal of Heart and Lung Transplantation, 2009; May 8(5): 527-530 (PMID: 19416787). E. Spiekerkoetter, C. Guignabert, V. de
Dayna Hydrick - Faces of CTEPH
...be well again. Additionally, because of my recurrent clots I am not a candidate for a heart/lung transplant. Recently I started on Adempas 2.5 mg 3 times a day, Ventavis 5 times a day plus warfari
PH Roundup Sept. 2015
...VF, Torres F, Dario Vizza C, Lawrence D, Yang W, Felser JM, Quinn DA, Ghofrani HA. J Heart Lung Transplant. 2015 Jun 11. doi: 10.1016/j.healun.2015 Heart rate variability is related to disease sev
Our Journeys - Jayna Wall
...in to get the status of the procedure and after hearing it said that he thought a heart and lung transplant would pretty much be our only option. He did admit that they aren't experts in IPAH and s
EDx - Success Stories - Jackson
...doctor who had come to get a status update on the procedure said that he thought a heart and lung transplant would be our only option. However, he did admit that they weren’t experts in IPAH and sa
Support Group: Blog (My Journey with PPH...by Tina SIlks)
...Well, I got over it. During all the time I was put on the UNOS list for a Double Lung and Heart Transplant. This scared me to no end. The trip down to UCSD were brutal for me. But I did it, and lea
Press Release Archives
...on June 14, 2014, Team Phenomenal Hope , a Pittsburgh, Pa.-based cycling team consisting of a lung transplant physician and three other women, is competing in the high-endurance cycling event, Race
Maintaining a Positive Self Image
...over&#8221; in a body that feels totally foreign. Teresa told us, &#8220;It&#8217;s like a body transplant! You&#8217;re the same person inside, in terms of personality, interests, hobbies. But you
 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.