Find Parent-to-Parent Support

Family support groupMeet other parents of infants, children or teens with pulmonary hypertension in one of our virtual or local support groups.

PHA Parents Telephone Support Group

A toll-free telephone support group for caregivers of children with PH. This hour-long conference call offers PH parents across the U.S. and Canada the chance to connect in real-time for support, encouragement and information sharing.

Calls are held monthly; see below for the upcoming schedule.

Upcoming call schedule:

June 2013

TWO time slots!

   

June 17, 2013
11:00 p.m. ET/8:00 p.m. PT

-OR-

June 19, 2013
8:00 p.m. ET/5:00 p.m. PT

Topic: Travel

Whether by plane, car, bus or train, traveling with PH can be tricky for families. Share tips with other parents for your summer travel plans. The call lasts one hour; join us for as long as you’d like.

To Participate:
Dial toll-free from the U.S. or Canada: 1-866-221-8923
When prompted, enter access code: 349-951-0894

Download a reminder postcard!

PHA Parents Email Group

An email group community for parents of children with PH. We welcome experienced moms and dads as well as newcomers who urgently need support and encouragement to participate in the discussion. Join now

PH Email Mentors

PHA's PH Email Mentor Program includes a team of parents who are ready and eager to answer your questions by email. They can't provide medical advice, but they can share their experiences raising children with PH and help you find resources to ensure your child receives the best care possible. Email a parent mentor

Local Pediatric Support Groups

Boston, Massachusetts
View contact info for leaders

Los Angeles, California
View contact info for leaders

Interested in starting a pediatric support group in your area? Contact SupportGroups@PHAssociation.org.

 
The Pediatric Webinar Series is made possible by funding from the Cardiovascular Medical Research and Education Fund.
     

   

   

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.