Find Parent-to-Parent Support

Meet other parents of infants, children or teens with pulmonary hypertension in one of our virtual or local support groups.

PHA Parents Telephone Support Group

A toll-free telephone support group for caregivers of children with PH. This hour-long conference call offers PH parents across the U.S. and Canada the chance to connect in real-time for support, encouragement and information sharing.

Calls are held on the third Thursday of every month at 8:30 p.m. ET/5:30 p.m. PT.

Upcoming call schedule:

May 16, 2013 8:30 pm ET/5:30 pm PT

Parents Telephone Support Group With everything on your plate, it can be easy to feel overwhelmed or frustrated. Take some time to discuss and share tips with other parents for using laughter to keep you afloat during times of stress. The call lasts one hour; join us for as long as you’d like. Call-in Details: Dial toll-free: 1-866-221-8923 Enter access code: 349-951-0894 Download a reminder postcard for this call!

May 20, 2013 7:00 pm ET/4:00 pm PT

Pediatric Webinar: Preparing for the School Year with PH Presenter: Jeanne Kane, MA Program Coordinator and Education Specialist, Lucile Packard Children's Hospital at Stanford Join Education Specialist Jeanne Kane as she discusses the effects of chronic illness on children’s school performance and explains how to secure education accommodations to make school a safe and rewarding experience for your child. Learn the ins and outs of 504 plans and IEPs, and hear from real families overcoming their own unique challenges with school and PH. Register

PHA Parents Email Group

An email group community for parents of children with PH. We welcome experienced moms and dads as well as newcomers who urgently need support and encouragement to participate in the discussion. Join now

PH Email Mentors

PHA's PH Email Mentor Program includes a team of parents who are ready and eager to answer your questions by email. They can't provide medical advice, but they can share their experiences raising children with PH and help you find resources to ensure your child receives the best care possible. Email a parent mentor

Local Pediatric Support Groups

Boston, Massachusetts
View contact info for leaders

Los Angeles, California
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Stanford, California
View contact info for leaders

Interested in starting a pediatric support group in your area? Contact SupportGroups@PHAssociation.org.

The Pediatric Webinar Series is made possible by funding from the Cardiovascular Medical Research and Education Fund.