Meet Katy!

Katy

This interview was conducted in spring 2010 by Mira Kruger, the granddaughter of a PH patient and a volunteer writer for PHA’s Pathlight newsletter.

Where do you live?
I live in Sandy, Utah

How old are you?
I am 11 years old.

When were you diagnosed?
I was diagnosed July 1, 2003.

When did you first start having symptoms of PH?
I first started having symptoms when I was 2 or 3.

What were your symptoms?
Around age 2 or 3, I started fainting, so my parents took me to the doctor to get me check out.

Do you do summer activities (like go to camp)?
I don’t go to camp, but my parents like to take my family on vacation.

Have you ever felt unable to do something because of PH?
Yes, I do miss out on some things, like playing summer sports.

What has changed in your life since you were diagnosed with PH?
I feel like I’m not a “normal” kid sometimes. I miss a lot of school, and I can’t run as far as the other kids in my grade.

What is a message you’d like to pass on to other kids with PH?
I want them to remember to keep their heads up high and not to give up hope.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.