August 17, 2010


PHA News
Latest Blog Post

Dr. Dave Badesch

93 Medical Education Meetings… and More

In early August, I traveled to Cheyenne, Wyoming. Dr. Dave Badesch, a Professor of Medicine at the University of Colorado, was presenting a PHA medical education session for physicians and allied health professionals. » Read more

What's In This Issue

» Spotlight On... PHA Classroom
» Get Smart
» Living Better with PH
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» PH News Headlines

Spotlight On...
    PHA Classroom

Just Launched: PHA Classroom for Patients and Caregivers!

e-Learning. Anytime. Anyplace.
PHA Classroom, a program of PHA’s Medical Education Fund, is a new space for patient and caregiver e-learning about living with PH and ways to fight back. You can watch the 26 class recordings already posted or participate in upcoming live events. » Learn more

Get Smart

child drawing with crayon

Prepare Your Child for School

A webinar for parents of children with PH.
August 19, 8:30 p.m. ET – Education Specialist Jeanne Kane discusses how to prepare for the new school year by securing education accommodations for your child’s PH. » Learn more

    PHA on the Road

PHA on the Road Confirms Speakers

PHA on the Road is right around the corner! You can now view a list of confirmed speakers and presenters on our website. Your own doctor might be on the list! More speakers will be added, so check back often. Baltimore/ Washington, D.C., Speakers | Dallas, Texas, Speakers

Living Better with PH

PH Plus Scleroderma

PH Plus… Scleroderma

Scleroderma patients, visit PHA’s website to download educational resources for you and your medical team. You can also join PH Plus, an email group for PH patients with associated diseases, to find support and share information. Learn more | Join PH Plus

PH Community Scoop

Stu Berwick on Facebook

Patient Reaches Out to Newly Diagnosed in Person, Online

Texas PH patient Stu Berwick has been busy visiting with newly diagnosed PH patients. He meets many of them through Facebook! You can find a supportive network of patients on PHA’s Facebook page.

    local support groups

Support Groups Growing in Number

PHA has more than 230 support groups with new groups in Phoenix, Ariz.; Baltimore, Md.; Charlotte, N.C.; Layton, Utah; Carbondale, Ill.; Spokane, Wash.; Seattle, Wash.; Oklahoma City, Okla.; Delmarva Peninsula, Del.; Tampa Bay, Fla.; Rapid City, S.D.; Oxnard, Calif. » Learn more about support groups

Medical Community Bulletin

PAH Pulmonary Arterial Hypertension

Medical Professionals: Attend a 30-City Medical Education Program

New cities added to PHA’s 30-City Medical Education Program: El Paso, Texas; Greenville, S.C.; and San Juan, PR. The Chico, Calif., program is in the process of being rescheduled. » Find an event in your area and register today

    PHA Online University

Materials from 2009 PH Resource Network Symposium Available

Abstracts and presentations from PHA’s 2009 PH Resource Network Symposium, Leading Progress, Creating Partnerships: Empowering the Interdisciplinary Team, are now available. » Visit PHA Online University

From the PHA News Desk

Capitol building

Improving Access to Clinical Trials

SSI recipients cannot participate in many clinical trials because of rules preventing them from accepting compensation. The Improving Access to Clinical Trials Act would change that. The bill recently passed the Senate; support in the House is our next step. » Ask your representative to co-sponsor H.R. 2866!

Dr. Stephen Chan

PHA Supports Researcher

Stephen Y. Chan, MD, PhD, is the recipient of the 2010 Pulmonary Hypertension Association Mentored Clinical Scientist Development Award (K08), for his research on pulmonary hypertension. Learn more | Donate to PHA's Research Program

PH News Headlines

» Potential Treatment for Pulmonary Hypertension

» Bond Forged Over Organ Transplant

» More News

Connect with PHA

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Upcoming Events

Aug. 19, 2010
Media Matters! Working Media into Your Special Event
webinar: online and phone

Sept. 17, 2010
New England PH Forum
Portland, Maine

Sept. 18, 2010
New England Swinging for a Cure Golf Tournament
Scarborough, Maine

» Go to the Events Calendar

PHA UK Video

blue kiss

Watch this imaginative clip promoting PHA-UK’s PuckerUp4PH campaign. Contact International@
to get involved.

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Knowledge, Support, Hope: Find a support group near you

Need more information? Contact
Pulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910
Office: 301-565-3004 | Fax: 301-565-3994

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.