August 31, 2010


PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post

Cardiovascular Disability

Making Noise About PH

I speak and write a lot about the power of community. It's what makes advances in so many directions possible in the fight against PH. On Friday, Margaret Beardsworth, who works on insurance issues here at PHA, came in with some great news. » Read more

What's In This Issue

» Spotlight On... August District Visits
» Get Smart
» Website Discoveries
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» PH News Headlines

Spotlight On...
    Breaking News: PH patient Christie Breault will share her PH journey this Thursday, September 2, on the “Everyone Has A Story” segment of the Today Show! » Learn more

district visit with Rep. Himes

“We’ve Got to Get the Word Out”: 435 Campaigners Make the Most of District Visit Season

PHA members across the country connected with their Members of Congress this August. Read just a few of the success stories from this year’s District Visit Campaign. » Read more

Get Smart

child with crayon

Watch Our Planning for School Webinar!

From Hospital to Schoolroom, a webinar led by Education Specialist Jeanne Kane, teaches how to make school a safe and rewarding experience for your younger PHer. » Watch now

    PHA on the Road

Patient Services at PHA on the Road

PHA on the Road is only a few weeks away, stopping in the Baltimore/Washington, D.C., area (September 25) and Dallas, Texas (October 2). We are offering a variety of patient services for attendees to help make PHA on the Road easily accessible to all. » Learn more

    PHA Classroom

Lung Disease and Low Oxygen Recording Available in PHA Classroom

The second recording from PHA’s 9th International PH Conference, “Pulmonary Hypertension, Lung Disease and Low Oxygen Levels,” is now available in the PHA Classroom. Check back often for additional Conference sessions in coming weeks and months. » View recording

Website Discoveries


Things I Found by Kathryn Frix: Back-to-School Resources

Back-to-school is so early these days, it sneaks up on me. It's here now, and I'm being serenaded by the 'outdoor voices' of 50 little children at recess on the schoolyard across the street. » Read more


Understanding the Process and Importance of Clinical Trial Research

Dr. Mardi Gomberg-Maitland has developed a new fact sheet for our website that outlines the process of clinical trial research as well as its importance to the PH community. » Read fact sheet

PH Community Scoop

PHood PHight Against PH

PHood PHight Against PH

Growing up, your teachers and parents likely forbade you to throw food at others… but who says you can’t have a PHood PHight to put PH in its place? PH patient Denise Bradby shows us how! » Read more about Denise's experience and learn how to host your own house party

    Special Events

Thank You, August Event Planners!

To the event planners who made this a month to remember, we thank you: PHood PHight Against PH (Emeryville, Calif.); Minnesota 10th Annual PH Picnic (Maplewood, Minn.); Cocktails 4 Circulation (Ventura County, Calif.); 2nd Annual PHA Cut-a-Thon (Bridgton, Maine). » Learn more about special events

    boy puckering up for PH

The Little Island that Could Collects Lip Prints, Advances Community

If you’ve been following PHA-UK’s race to collect blue lip prints from around the world, you’ve likely been watching the competition between the campaign's top two collectors. » Read more

From the PHA News Desk
    template letters

Share your Success! Send in Your Insurance Letters

Share successful correspondence with your insurance company and help other PHers better overcome insurance challenges. To submit a letter or for more information, email, call 301-565-3004 x772 or visit our template letters page.

Medical Community Bulletin
    30-City Medical Education Program

Medical Professionals: Chico, Calif., Medical Education Program Rescheduled

The 30-City Medical Education Program event in Chico, California, has been rescheduled for Tuesday, November 9. » Register for this event or one in your area

    Building Medical Education in PH

Building Medical Education Event Scheduled in Ky

Sponsoring clinician Jinesh Mehta, MD, will host the Pulmonary Hypertension Updates: 2010 on September 28 at the University of Louisville in Ky. This event is open to medical professionals interested in learning more about PH. » Learn more

PH News Headlines

» Actelion Pharmaceuticals Announces FDA Approval of Brand Name for Commercially Available VELETRI® (epoprostenol for injection) for Pulmonary Arterial Hypertension

» Artificial Lung Keeps Boy Alive at St. Louis Children's Hospital

» Local Family’s Battle With Rare Lung Disease Brings Visit From Vanderbilt Research Doctor

» More News

Connect with PHA

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Upcoming Events

Sept. 17, 2010
New England PH Forum
Portland, Maine

Sept. 18, 2010
New England Swinging for a Cure Golf Tournament
Scarborough, Maine

Sept. 18, 2010
4th Annual Let’s Walk and Roll
Akron, Ohio

» Go to the Events Calendar

Video Journeys

Watch this news clip about PH patient Lil Long and her plans to swim the Mississippi River.

Quick Poll Answers

Do you follow PHA on Facebook?

Yes - 60%
No - 0%
No, but I’d like to! - 40%
 I’m not on Facebook - 0%

Look for a new question in the next issue!

Make November Event-ful: Host a house party!

Need more information? Contact
Pulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910
Office: 301-565-3004 | Fax: 301-565-3994

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.