find a Caregiver Mentor

As a PH caregiver, you’re the first person your loved one turns to for help, but sometimes you need help, too! Caregiver mentors can direct you to resources and provide support and advice so you don’t have to do it all on your own. 

Browse the lists below to choose the PH Email Mentor right for you.

Parents of Teens with PH (Ages 11-20)

   Bill      Bill O'Donnell  



   Blank smallTeresa 


Parents of Adults with PH (Ages 21+)


EEvan Whitevan

  Bereaved Parents
  Evan WhitePam

Adult Children of Adult Patients


Bereaved Adult Children of Adult Patients




Family Members of Adult Patients



  JenniferBlank small


Spouses of Adults with PH


Bereaved Spouses

Joni BergJoni

Venessa NunnVenessa






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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.