Patient Mentor Profile

Joan Stevenson

Joan

Diagnosed in 1996

"I am a support group leader and a PHA Support Line volunteer. I also volunteer in my community for certain social and political issues."

About Joan:

  • Born in 1930
  • Type of PH: Idiopathic, but associated with sleep apnea
  • Languages: English

Joan feels comfortable discussing her experiences with:

  • infused medication
  • inhaled medication
  • oral medication
  • supplementary oxygen
  • depression and mental health issues
  • traveling with PH
  • communicating with medical personnel
  • organizing medical records
  • legislative advocacy
  • media awareness
  • local support groups
  • online communities (PHA email groups, message boards, chats)

Contact Joan: JoanS@PHAPHriends.org

 
Disclaimer: PHA PHriends are available to provide hope and support to PH patients and caregivers. They are not intended to provide medical advice on individual matters, which should be obtained directly from a physician.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.