Caregiver Mentor Profile

Laura O'Donnell

Laura

PH Caregiver since 2001

"I am a stay-at-home mom with a daughter with PH. I love cooking and baking. I lead a local pediatric support group."

About Laura:

  • Born in 1962
  • Lives in Massachusetts
  • Languages: English

About Laura’s Loved One:

  • Patient’s year of birth: 1995
  • Type of PH: Idiopathic

Laura feels comfortable discussing her experiences with:

  • infused medication
  • oral medication
  • communicating with school personnel about PH
  • communicating with children about PH

Contact Laura: LauraO@PHAPHriends.org

   

Disclaimer: PHA PHriends are available to provide hope and support to PH patients and caregivers. They are not intended to provide medical advice on individual matters, which should be obtained directly from a physician.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.