Caregiver Mentor Profile

Laura O'Donnell


PH Caregiver since 2001

"I am a stay-at-home mom with a daughter with PH. I love cooking and baking. I lead a local pediatric support group."

About Laura:

  • Born in 1962
  • Lives in Massachusetts
  • Languages: English

About Laura’s Loved One:

  • Patient’s year of birth: 1995
  • Type of PH: Idiopathic

Laura feels comfortable discussing her experiences with:

  • infused medication
  • oral medication
  • communicating with school personnel about PH
  • communicating with children about PH

Contact Laura:


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.