Patient Mentor Profile

Sean Wyman

Sean

Diagnosed in 2002

"I'm a patient in my early 30s. I'm currently a second year medical student. I sit on the Young Adult Advisory Board for PHA (Generation Hope) and help develop programing. I do fundraising for PH research and patient programming. I also recently developed a short cartoon series about PH which can be seen at LipsPaintedBlue.org. I have been kicking PH in the butt for years and intend to keep doing it for 100 more!"

About Sean:

  • Born in 1983
  • Lives in California
  • Type of PH: Idiopathic
  • Languages: English

Sean feels comfortable discussing his experiences with:

  • infused medication
  • oral medication
  • working with PH
  • traveling with PH
  • communicating with school personnel about PH
  • communicating with medical personnel
  • communicating with children about PH
  • local support groups
  • online communities (PHA email groups, message boards, chats)

Contact Sean: 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.