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Periwinkle PH Ribbon Minnesota PH


EST  2001


Welcome to our group's website! PHA support groups provide support, education and most of all hope. If you are in the area, we encourage you to join us. Our group was founded in 2001. We meet monthly, on the second Saturday of every month (weather permitting) from 1:00 to 3:00 pm. Meetings are open to PH patients, family, caregivers, physicians, nurses, and friends!!! 


BE AWARE of BAD WEATHER...we will post any cancelations on this page! Always be safe! You can always call Larry Fox to make sure we are holding the meeting. If you feel is is too bad to travel, Please stand home...we want everyone to be safe and there are always more meetings to attend. 

CHECK OUT the pictures from our group, just click on the PHOTOS tab on the left side of the web page. You just might be on there!  also check out our blog. It is updated  every month!

Upcoming Meetings, Events and cancellations will be posted Here.     

 NEXT MEETING Information 

Minnesota "Twin Cities" PH Support Group Meeting

 Connective Tissue Disease Associated with PH. Here's why this is important:


Connective tissue disease (CTD) is associated with pulmonary arterial vasculopathy, which produces increased pulmonary vascular resistance and pulmonary arterial hypertension (PAH). The resulting strain on the right ventricle may cause right-sided heart failure, which is associated with considerable morbidity and increased mortality. PAH caused by CTD (CTD-PAH) is part of a heterogeneous group of clinical entities that share similar pathologic and clinical characteristics and are classified under World Health Organization (WHO) group



        Date  -        Oct 10, 2015

  • Time  -       1:00 pm to 3:00 pm

  • Location - American Lung Assn. Bldg.

                      490 Concordia ave.

                      St. Paul, MN 55102

  •  Lunch provided by Gilead 
  • This is a must attend event you won't want to miss.


Please RSVP to  Larry Fox, support group leader, 651-459-9291 or


By Oct 8, 2015


Patients, caregivers, family members, medical professionals are welcome.

HOPE YOU CAN JOIN US THERE...For more information, please contact -

Larry Fox 651-459-9291

 FACEBOOK - We now have our own facebook page, it is a closed group for our support group ONLY. If you are a member of our Twin Cities support group and would like to join, please contact Larry Fox and request to be put on the Facebook page.


Be sure to remember the gala to be held in Rochester Oct. 9th.



Here is the Minnesota proclamation signed by Governor Dayton for PH Awareness month of November,2013.

Lois and Preston Piper requested and picked up the proclamation in memory of their daughter Mallory Hicks              


A beautiful summer day for the 2013 picnic.  Drs. Pritzger and Thenappan seated front and center.

                                Minnesota PH "Twin Cities" Support Group


Our BLOG is now fully functional!  Please do read it.

Also feel free to look at our "photo album" especially after the 2013 Holiday Party! Note: we welcome your photo's of our support group too! 

WANTED...your PH story., your milestones or events...which could include photos! 

Write your story and contact or send it to our webmaster, David Naumann (  or to Larry and we will add the entries directly in the blog.  Photos are great too, but contact our Webmaster, David Naumann to have them added to your story.




  Leader Contact Information

Leaders Larry Fox, Stephanie Layer, Irene Ohrbom


Feel free to contact our group's leaders to share your story, ask questions and get connected with our group. Periwinkle PH Ribbon

View leader contact info


View Calendar


Pulmonary Hypertension Clinics in the Area: a Wealth of Choices!

Minnesota area PH patients are able to find teams of Pulmonary Hypertension medical specialists in a number of locations in our area.  Our group leaders have identified five clinics, and post them here for your convenience.  The phone numbers and web sites are valid as of September, 2011.

Rochester Mayo Clinic: Cardiovascular Clinic / Pulmonary Hypertension Clinic

University of Minnesota Physicians at Fairview: Cardiac Clinic / Pulmonary Hypertension

United PH Lung Clinic: Pulmonary Hypertension Clinic

Abbott Northwestern Hospital / Minneapolis Heart Institute: Pulmonary Hypertension Clinic
612-863-3900 & 612-863-4000

Park Nicollet / Pulmonary Hypertension Clinic, St. Louis Park952-993-2369

   About this Minnesota Group Website

Webmaster David Naumann


Our Web pages are provided through the Pulmonary Hypertension Association.  Local information including this page, our Blog, and our photo page and these embedded photos have been created and maintained by our leaders and by our Webmaster.  A retired technical guy, David Naumann enjoys learning how to make computers do things.  He has created and maintains a number of websites as a volunteer.

If you need help with any of these pages, feel free to contact Dave at one of our monthly meetings or via email at



Management of this Site: Each support group website is managed by the group's volunteer leader, usually a patient. If you find outdated contact information, old meeting information, or any content that requires attention from PHA, please send an email with the link to the group site to:
Medical Disclaimer: Medical information included in these pages, including in newsletters and to outside links, may not have been reviewed for accuracy and appropriateness by PHA. We encourage patients to discuss their healthcare with their doctors. We do not provide medical advice on personal health matters, which should be obtained directly from a physician. PHA cannot be responsible for web visitors' actions taken as a result of their interpretation of information contained on these pages.

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.