support group meetingWelcome to our group's website! PHA support groups provide support, education and most of all hope. If you are in the area, we encourage you to join us.

Leader Contact Information

Feel free to contact our group's leaders to share your story, ask questions and get connected with our group.

Contact Robert Converse, the leader for more information:

156 San Juan Drive   Sequim, WA 98382

360-460-9242 mobile

360-681-0908 home/fax
View leader contact info

Upcoming Meetings and Events

Come meet with other patients and caregivers at our next support group meeting.


Our next meeting is April 14th from 12-2 at the Olympic Medical Center Hospital. Speaking will be Univ. of Washington's Stephanie Harris from Dr. David Ralph's office.

View Calendar


We had a fantastic meeting hosted by our speaker, Brent Boyd. Thank goodness we all could attend, shared some fun, and learned more about each other. 

I'm going to start with how we finished... talking about a movie, "The Ultimate Gift", and Brent discussed our love language and "Letters from Dad". A lot of us have similar issues; one is denying that we are going thru, and what we are facing.  

Finding out a bit more about “Letters from Dad,” I think we all could share with ones we love, how we feel about them and how we cherish these closest relationships. Brent also talked about the Meyers/Briggs test, be sure to email Brent for the address if you want to take it. (  


Management of this Site: Each support group website is managed by the group's volunteer leader, usually a patient. If you find outdated contact information, old meeting information, or any content that requires attention from PHA, please send an email with the link to the group site to:
Medical Disclaimer: Medical information included in these pages, including in newsletters and to outside links, may not have been reviewed for accuracy and appropriateness by PHA. We encourage patients to discuss their healthcare with their doctors. We do not provide medical advice on personal health matters, which should be obtained directly from a physician. PHA cannot be responsible for web visitors' actions taken as a result of their interpretation of information contained on these pages.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.