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Jan. 16, 2010 Meeting
Sunday, January 31, 2010

Our first meeting of the year--and the first with Patty Ramos as our new co-leader, went very well.  Members brought snacks and Patti T. with United Therapeutics brought sandwiches and fruit...a big thanks.

On the agenda, we discussed our meeting dates for 2010:  March 20,  May 15, July 17, September 18, and November 13. The 3rd Saturday of the odd months except in November...a week earlier to avoid conflicts with Thanksgiving.

We had good attendance---17 and came up with several topics for the 2010 meetings. We will ask Dr. Frost to address a meeting, find a speaker to discuss various 02 delivery systems, insurance and Medicare issues with 02, and traveling with 02; caregiver support; a presentation on helping the newly diagnosed and their  loved  ones deal with the trauma of  a PH diagnosis--a full schedule for sure.

The HPHSG also voted to staff a PH and PHA info booth at the annual PH Crawfish Boil at Town Green Park in the Woodlands, March 27, 11am to 6pm.  www.thewoodlandscrawfish.com/

A big thanks to Alan H. for compiling that list--spaces were filled quickly--so a big thanks to all who volunteered!

Members ideas, input, and suggestions are always welcome...contact Patty or Shirley.

See you on March 20.....especially if  you volunteered for the Crawfish Boil to get your volunteer bracelet which you will need to have to get your t-shirt and meal.

sjc

 

 

 

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.