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Another Year Ahead!
Wednesday, March 13, 2013

Hello Mid-Hudson Valley phriends!

Another year has begun for the Mid-Hudson Valley support group.  We met tonight, March 13, at the Poughkeepsie Galleria Mall - Community Room.  It was an intimate meeting, and a new member has joined our support group.  Our small group continues to grow as we spread the word about our group in the Mid-Hudson Valley region.  I'm excited that people are finding us and are learning more about us.  A special thank you to Melissa Carrigan, RN from Accredo.  Thank you for helping me pick up the food from Longobardi's Restaurant and bring to the meeting.  Since it was a small group tonight, Melissa really gave one to one attention and addressed concerns that patients should address with their PH specialist.  Melissa will be working in the Mid-Hudson Valley region and building a communication with the local physicians, so that the PH patients can be better served in an emergency situation when not able to get to their PH specialist's office or hospital.  Next support group meeting is scheduled for Saturday, June 15, 1pm at the Poughkeepsie Galleria Mall - Community Room.  More details to come soon!

Kiara Tatum
Support Group Leader

Winter Wonderland!!!
Friday, December 28, 2012

On Wednesday, December 19, the Mid-Hudson Valley Support Group members gathered for the first holiday party sponsored by the PHA Central Fund.  With the cold weather outside, the support group gathered inside the warm and cozy Olive Garden with much laughter and good cheer amongst phriends and family.  23 people in total attendance, including 6 PH patients.  We shared goals for the new year and shared our favorites of the Christmas season such as favorite Christmas Carol or song, Christmas movie or story, Christmas character, Christmas colors or decorations, Christmas meal or desserts, etc.  And a new face to the group won the door prize, which he was excited since it was his first time winning something.  We enjoyed a delicious meal at the Olive Garden with an array of different pasta meals to choose from.  Each person went home with a small Christmas stocking with goodies inside.  We had a such a joyous and wonderful evening.  Until next year, have a wonderful New Year!!!

Kiara Tatum,
Support Group Leader

What happened at conference?
Tuesday, August 14, 2012

Didn't get to go to conference in Orlando this year, well don't worry because the Mid-Hudson Valley upcoming support group meeting will recap the happenings of the 10th International PH Conference of 2012.  Meeting is on Wednesday, September 5, 6p at Olive Garden.  Come out and enjoy a good meal amongst family and friends.  Share your story, learn about conference, and enjoy good discussion.  You don't want to miss this one!!!

Kiara Tatum
Support Group Leader

Oh What A Night!!!
Thursday, June 14, 2012

A great time was had by all at the last Mid-Hudson Valley Support Group meeting held on Wednesday, June 13, 6:00pm.  There were some new members that joined us that evening and some older members returned.  Our biggest turnout since our establishment in November 2008.  A total of 30 people.  25 were patients, caregivers and family; 7 were youth out of the 25 in attedance.  We had 5 professionals attend the meeting.  Everyone shared a little bit about themselves and what they hoped to get out of the meeting.  There was such a great feeling of hope in that room as each member spoke and shared with others.  We also learned about the latest treatments for PAH, and how questions were asked regarding some of the medications being prescribed how doctors choose which medications to prescribe to their PH patients.  We all enjoyed a great dinner at Uno's Chicago Grill.  The waiter was so patient and very help.  Thank you Jennifer Hoffman from Gilead for sponsoring our support group meeting and for arranging for Dr. Gregg Lanier, Director of Heart Failure and PH at Westchester Medical Center.  Thank you Dr. Lanier for the information and answering questions.  Thanks to Actelion representative for coming out and Melissa, Nurse at Accredo for joining us.  A special thank to you Yusetty Medina from Accredo who always comes out and supports our group.  We appreciate it so much.  Until the next meeting, take care and be empowered by hope!!!

Kiara Tatum
PH Patient & Support Group Leader

What are the latest PH treatments?
Tuesday, May 29, 2012

With more and more awareness about Pulmonary Hypertension, there is an increase of treatments for Pulmonary Hypertension.  Come out to the Mid-Hudson Valley Support Group meeting and hear from Dr. Gregg Lanier, Director of PH Center at Westchester Medical Center and learn what the latest treatments are on Wednesday, June 13, 6:00pm. 

Join us for an evening of good food at Uno's Chicago Grill in Wappingers Falls.  Share, learn, and discuss!!!  You don't want to miss this one.

Kiara Tatum,
PH Patient & Support Group Leader

What are you eating?
Wednesday, May 02, 2012

Hey PH Community,

The Mid-Hudson Valley Support Group meeting has been changed to Wednesday, June 13, 6pm-8pm at Uno's Chicago Grill.  Come join us for an evening of food, fun, sharing, learning and discussion on the topic of nutrition. 

Hope you can come out!

Kiara Tatum,
Support Group Leader

What are you putting in your mouth???
Thursday, April 19, 2012

Join the Mid-Hudson Valley PH Support Group on Wednesday, June 6, 6pm-8pm at the Poughkeepsie Galleria for a discussion on nutrition.  Mickie Gilbert, NP from Good Samaritian Hospital in Suffern, NY will be our guest speaker.  Meeting is sponsored by Gilead Sciences, Inc.  We will have some fun, share our stories, and learn at this upcoming meeting.  So if you are in the area and would like to join us; then email me at ny-midhudsonvalley@phasupportgroups.org.  I hope to see you there!

Kiara Tatum, Support Group Leader

This is Jeopardy...
Thursday, February 23, 2012

Come join us at our next support group meeting for your chance to play Jeopardy PH version to win prizes.  Afterwards, learn, discuss, and share on the topic, "Understanding Your PH Diagnosis."  Check out the flyer here!

Follow us on facebook!!!
Saturday, January 21, 2012

The Mid-Hudson Valley Support Group has a facebook page and now has its own username.  www.facebook.com/MidHudsonValleyPHSupportGroup Visit the page for the latest on the support group meetings, view photos, and other postings.  And if your in the neighborhood; come join us!

Spread the Word
Wednesday, November 30, 2011

The Mid-Hudson Valley Support Group raised awareness about PH during Pulmonary Hypertension Awareness Month.  We set up a table at the Poughkeepsie Galleria Mall on Saturday, November 5 from 12:30pm-3:30pm perfectly located outside down the corridor of the restroom area and were many shoppers would be visiting.  Awareness event was sponsored by Accredo.  They gave us flashlight key chains, hand sanitized spray, band aids with holder, post it pads, pens and treats to share with the people.  Also had a delicious, not a low sodium lunch, but I'd saved up mg) lunch from the pizza shop in the Galleria.  From PHA, we passed out information pamphlets about PH and PHA, and we actually packed it up after we ran out of the PH informational pamphlets.  I had a great day full of fun, laughs, and meeting and talking to interesting people.  Thanks Yusetty, Tiandra, and Gabby for all your hard work!!!

Kiara Tatum, Support Group Leader

PH Awareness Activity
Tuesday, October 11, 2011

Saturday, November 5 Mid-Hudson Valley Support Group will be bringing PH awareness to the Poughkeepsie area. If you would like to share your story with others or help in any way, please contact Kiara at ny-midhudsonvalley@phasupportgroups.org. Lunch will be provided to support group members. There will be informational brochures, special raffled items, free giveaways and some surprises.

Kiara Tatum, Support Group Leader

Take off the cheese!
Tuesday, October 11, 2011

At the September 17, support group meeting we discussed a low sodium diet. A quick way to reduce sodium is to take the cheese off the burger. It'll save you about 450mg of sodium. Another great tip is to throw away the salt shaker and visit www.mrsdash.com for low-sodium recipe ideas also no salt spice options.

Kiara Tatum, Support Group Leader

Have a facebook account?
Tuesday, August 23, 2011

Well, Mid-Hudson Valley PH Support Group is now on facebook too!  Visit the fan page and like the page, so that you can follow the group's activities and much more.  Visit page by clicking here.  & don't forget Mid-Hudson Valley group has an upcoming meeting in September. 

Kiara, PH Support Group Leader

It was a Zumba party!!!
Monday, March 21, 2011

Thank you Linda Thomas, Zumba Instructor for coming to the Mid-Hudson Valley PH Support Group.  It was a lot fun!  The less intense, modified latin moves and great music of Zumba Gold is a great way to stay healthy.  And moves can be done seated as well.  Go to Zumba.com and find a Zumba party near you.  Remember to talk to your doctor before you start any exercise program.  She bangs, she bangs, Oh baby when she moves, she moves, I go crazy 'cause she looks like a flower but stings like a bee like every girl in history...

Thank you Tina, Actelion Pharmaceuticals for sponsoring lunch from Panera Bread and Yusetty, Accredo for your continued support and the take home goodies.

Kiara Tatum
Support Group Leader

Shall We Dance?
Wednesday, March 02, 2011

You asked and it's here.  Come to the next support group meeting on Saturday, March 19 for a free Zumba Gold demonstration by local Zumba instructor, Linda Thomas.  Let's have some fun and be active by latin dancing.  Zumba Gold is modified Zumba moves at a different pace designed for older adults and beginners.

Visit the event calendar and support group home for more information.  Let's Dance!

Kiara, Support Group Leader

Support Group Meeting
Wednesday, October 27, 2010

Saturday, November 20, 1:45pm - 3:45pm (note time change) at the Panera Bread - Chestnut Plaza Poughkeepsie, NY, the Mid-Hudson Valley PH Support Group will be having there next meeting.  Susan Melroy, Community Advocate Manager from Actelion Pharmaceuticals will be presenting topic: Stress Management - Dealing with PH.  Please come out this month and support your local PH support group during PH Awareness Month.

Kiara Tatum, Support Group Leader

A Hopeful Time!
Tuesday, September 21, 2010

Saturday, September 18th was a great meeting for the Mid-Hudson Valley Support Group.  It was sponsored by the PHA Central Fund, which was really easy to apply for and really fast response from Sophie.  Thanks, Sophia!  To all the PH patients and caregivers that were able to attend the meeting, it was a pleasure seeing everyone again and if you need anything before the next meeting feel free to call me anytime.  And as always we have support and assistance from Yusetty from Accredo.  Thanks for picking me and the food up for the meeting.  It was nice to meet Susan, the new Clinical Advocacy Manager from Actelion for our region, who will sponsor our next meeting.  It was great to talk of hope and what gets us through this PH journey.  It feels good to share laughs.  We came up with some great ideas of speaker topics for next year, and we will try to fit them all in.  Well, until next time, which is Saturday, November 20. 

Kiara Tatum, Support Group Leader

Missed You!
Wednesday, June 23, 2010

The Mid-Hudson Valley Support Group forgot to think Liz (member of the Mid-Hudson Valley Support Group) for all her hard work with organizing the Father's Day Parade and Celebration and her support she gave to the support group. You truly helped to make the event successful.  Also, thank you John Flowers for your support of the Mid-Hudson Valley PH Support Group.  And a special thank you to the rest of the team that supported John Flowers in having a free event for the families of Poughkeepsie.  It was a great time for all!

Thank you again, Liz!

 Kiara Tatum, Support Group Leader

Happy Father's Day!
Sunday, June 20, 2010

The Father's Day Parade & Celebration was a success!  It was a sunny, hot, and breezy day.  Thank you Tina, Actelion Rep and your family for your support and use of the table, chairs, and canopy tent.  Thank you Yusetty, Accredo for your cool giveaways.  The silly pens were a huge hit with the adults.  Thank you Jessica for use of the banner and for the informational brochures and hats.  I would like to say a special thank you to my family for all your support on Saturday and everyday.  Til next year!

Kiara Tatum, Support Group Leader

Take Action!
Wednesday, April 21, 2010

On Saturday, June 19, 2010, the Father's Day Parade will be taking place in Poughkeepsie down Main Street until Waryas Park.  Free event for the community: parade, live entertainment, food (can also purchase food), vendors, boats, and more.  Mid-Hudson Valley Support Group will have a float and needs people to help design float and ride on the float.  Looking for youth, adults, PH patients, caregivers, friends and family to come support and volunteer at the Father's Day Parade.  Also, there will be an exhibit at the beautiful Waryas Park riverfront.  Can also use help setting up and monitoring the booth for half hour to hour shifts from 12 noon to 4 pm. Important Times: 8 am - start designing float & 11 am - Line up for parade.  Have any ideas on float design and materials, let me know.  Also, looking for a canopy tent for the booth at the riverfront.  Contact me at (845) 549-9222 or ny-midhudsonvalley@phasupportgroups.org

 Kiara Tatum, Support Group Leader

Volunteers Needed!
Wednesday, March 24, 2010

On June 19, 2010 starting at 12noon, the Poughkeepsie community will be having a Father's Day Parade as well as booths set up at Waryas Park.  The Mid-Hudson Valley PH Support Group will have a PH Awareness booth set up at the riverfront and a float in the parade.  We are looking for PH community members to help set up our booth, ride on the float, monitor the booth, clean up our area, and any help you can provide.  If you are interested in helping, please e-mail me at ny-midhudsonvalley@PHASupportGroups.org  If you have any ideas on a family activity for our booth, you can also e-mail them to me.  Thanks for your support!

Kiara Tatum, Support Group Leader

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