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It's been a while since we had a meeting. I am in the middle of gettting things ready for our group meeting. I found us a home
a hope to be up and running soon. Miss you all
your Leader Edi
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.