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Zebra PHriends join the race!
Friday, August 03, 2012


What fun we're having planning our annual PHA race this year.  Our race committee just decided to update our theme to mirror the PHA Zebra campaign.  So we hurried to update our race materials with the new logo.  Still gives me a smile everytime I look at it!


We also decided to upgrade to electronic timing for the runners this year, and are having a spiffy technical T-shirt made up for the serious runners.


To help bring a face to the cause, we set up a section on the new website with photos and stories under "Our Inspiration."  Check it out to see some of our race committee members and their stories.


Also, really excited about this... we are doing a full-on media campaign this year.  We're already scheduled to meet with Senator Cornyn in August, and we're scheduled to speak at the Lake Cities Chamber of Commerce in October, and we're busy getting on the agendas for several more cities.


If you can come out to show your support for any of these media events, please contact Susan at or Lesli  at  The larger our group, the bigger the impact, and we always enjoy the chance to visit with PHriends! 


Raffle tickets are on sale now, and we have great prizes this year - check out our website or our facebook page for more info.


While you're there, take the time to notice our wonderful sponsors.  They are already making this event possible and we appreciate every one of them.


Can't wait!  Seems like November is just around the corner.


6th Annual N. TX Cure PH 5K Run & PHun Walk is open for business
Monday, April 23, 2012

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6th Annual N. TX Cure PH 5K Run & PHun Walk is open for business  
Monday, April 23, 2012

What an exciting time we've had planning for our 6th race!  Our race committee is energized and focused, and so much fun. 

Donations are starting to come in and we think it's going to be our biggest race ever.

Check out our facebook page, sign up for the 5K run on, and make a donation at first giving.  More info and updates are happening all the time on the facebook page, so Like us now to get all the latest. site to sign up for the 5K race:

Facebook page to keep up with the progress:!/CurePh5kRunPHunWalk

FirstGiving site to register for the 1 mile walk and for donations:

Select your sponsorship level here:

With your help, we're off to a great start!




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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.